Orphanet Ireland: Information Quality

Orphanet's strength is that the information about Rare Disease resources is validated and reliable.  All information submitted for registration is checked by the Orphanet Ireland validators, who are experts in the field of rare diseases,  to ensure that the resource is appropriate to be included in Orphanet and that it meets the Orphanet quality criteria.

You can learn about the Orphanet Ireland sources of information, and inclusion criteria for each type of rare disease resource here.

Information about the evalutation of Expert Centre Quality Criteria Questionnaires in Ireland is available here.