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Orphanet website Ireland entry point

Orphanet Ireland
Access Orphanet services in Ireland and other countries in:

:: Team/Contact

 

Country coordinator: Professor Eileen Treacy

 

Information scientist: Deborah Lambert, MSc, European Registered Genetic Counsellor

 

Genetic counsellor and Orphanet Medical Writer: Jackie Turner, MSc, GCRB Registered Genetic Counsellor

 

Senior Administrator and Information Scientist: Rita Marron

 

 

 

Orphanet Ireland is now hosted by the National Rare Disease Office, located at the Mater Misericordiae Hospital, Eccles Street, Dublin 7.

 

If you have a query about registering your activity (expert centre, patient support group or research) on Orphanet, please contact us at:

 

orphanet.ireland@mater.ie

 

+353 (01) 809 -7475

 

 

 

The National Rare Disease Office team responds to queries about Rare Diseaes in Ireland.  If you cannot find the information you are looking for on Orphanet, or your question relates to Irish servics, please contact the Rare Diseae Office:

 


Website: www.rare diseases.ie

 

Freephone: 1 800 240 365,     Monday to Thursday 9:30-1:30

 

Phoneline: +353 (01) 854 5065,    Monday to Thursday 9:30-1:30


email: rare.diseases@mater.ie







Access Orphanet services in Ireland and other countries in:
Legal noticeContact us — Last updated on: 17-06-07