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Useful links
European Commission
websites
| DG SANCO |
 |
DG SANCO website about Rare Diseases
http://www.europa.eu.int/comm/health/ph_threats/non_com/rare_diseases_en.htm
Projects in rare disease research funded by DG SANCO
http://europa.eu.int/comm/health/ph_threats/non_com/projects_rarediseases_en.htm
Publications
from rare diseases research funded by
DG SANCO
http://europa.eu.int/comm/health/ph_threats/non_com/pubs_rare_diseases_en.htm
| DG Research |
 |
DG Research 6th Framework Programme:
Life Sciences,
Genomics and
Biotechnology for Health (2002 - 2006)
http://www.europa.eu.int/comm/research/fp6/index_en.html
Projects in rare
diseases funded under
the 6th Framework Programme for Research
http://www.cordis.lu/lifescihealth/major/rare-diseases-projects-1.htm
DG Research 7th Framework Programme
(2007 - 2013)
http://www.cordis.lu/fp7/home.html
| DG Enterprise |
 |
DG Enterprise Orphan Medicinal Products
http://www.pharmacos.eudra.org/F2/orphanmp/index.htm
| EMEA |
 |
European Medicines Agency (EMEA): Committee for
Orphan Medicinal
Products
http://www.emea.eu.int/htms/general/contacts/COMP.html
| PHEA |
 |
Public Health Executive Agency website
http://ec.europa.eu/phea/index_en.html
Other useful websites:
ORPHANET:
European wide database on rare diseases
and orphan drugs
http://www.orpha.net
EUROCAT:
European network of population based
registries for congenital
anomalies
http://www.eurocat.ulster.ac.uk
EURORDIS:
European alliance of patient
organisations
http://www.eurordis.org
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