RDTF RECOMMENDATIONS, REPORTS, AND SCOPING PAPERS
Overview of current Centres of Reference on rare diseases in the EU (2005)
Centres of Reference for rare diseases in Europe - State-of-the-art in 2006 and Recommendations of the Rare Diseases Task Force (2007)
How Many Drugs for How Many Patients? Recommendations of the Rare Diseases Task Force (July 2007)
Assessing the added-value of European Reference Networks in the Field of Rare Diseases (2008)
Health Indicators for Rare Diseases (published 2008)
Patient Registries and Databases in the Field of Rare Diseases: Technical, Legal and Ethical Issues (published 2008)
DG SANCO: Programme of Community action in the field of Health and Consumer protection 2007-2013 (published 2005)
DG Research: Highlights and Recommendations from a workshop on "Identifying the research needs of the rare diseases community", 12/13 April 2005
Report from the EMEA's Committee for Orphan Medicinal Products (COMP) on 5 years of EU Orphan Drug Legislation (July 2005)
List of marketing authorised Orphan Drugs in Europe
NATIONAL INITIATIVES
