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Orphanet produces its data according to published procedures

Rare Diseases - European Commission

RD-Action

European Medicines Agency

IRDiRC

Office of rare diseases research (US)

EC Expert Group on Rare Diseases (EU)

European Reference Networks

OJRD

Orphanet Report Series

The portal for rare diseases and orphan drugs

COVID-19 & Rare diseases

Rare Diseases Resources for Refugees/Displaced Persons

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