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NeuroSphinx - Filière de santé maladies rares : complications neurologiques et sphinctériennes des malformations pelviennes et médullaires rares

NeuroSphinx - French rare diseases Healthcare Network : neurological and sphincteric complications of pelvic and spinal rare malformations

Coordinator of expert centre network

Członkowie

Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre CHU Amiens-Picardie - Site Sud

Reference centre for Chiari and Rare Vertebral and Medullary Abnormalities (C-MARVEM) - Competence centre CHU d'Angers

Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre CHU d'Angers

Reference centre for rare urinary tract malformations MARVU - Competence centre CHU de Besançon - Hôpital Jean Minjoz

Reference centre for Chiari and Rare Vertebral and Medullary Abnormalities (C-MARVEM) - Competence centre CHU de Besançon - Hôpital Jean Minjoz

Reference centre for Chiari and Rare Vertebral and Medullary Abnormalities (C-MARVEM) - Competence centre CHU de Besançon - Hôpital Jean Minjoz

Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre CHU de Besançon - Hôpital Jean Minjoz

Reference centre for rare urinary tract malformations MARVU - Competence centre CHU de Bordeaux-GH Pellegrin

Reference centre for Chiari and Rare Vertebral and Medullary Abnormalities (C-MARVEM) - Competence centre CHU de Bordeaux-GH Pellegrin

Reference centre for Chiari and Rare Vertebral and Medullary Abnormalities (C-MARVEM) - Constitutive site CHU Paris IdF Ouest - Hôpital Ambroise Paré

Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre CHU Paris IdF Ouest - Hôpital Ambroise Paré

Reference centre for rare urinary tract malformations MARVU - Competence centre CHRU de Brest - Hôpital Morvan

Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre CHRU de Brest - Hôpital Morvan

Reference centre for Chiari and Rare Vertebral and Medullary Abnormalities (C-MARVEM) - Competence centre CHU de Brest - Hôpital de la Cavale Blanche

Reference centre for rare urinary tract malformations MARVU - Constitutive site CHU de Lyon HCL - GH Est-Hôpital Femme Mère Enfant

Reference centre for Chiari and Rare Vertebral and Medullary Abnormalities (C-MARVEM) - Competence centre CHU de Lyon HCL - GH Est-Hôpital Femme Mère Enfant

Reference centre for Chiari and Rare Vertebral and Medullary Abnormalities (C-MARVEM) - Competence centre CHU de Lyon HCL - GH Est-Hôpital Femme Mère Enfant

Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre CHU de Lyon HCL - GH Est-Hôpital Femme Mère Enfant

Reference centre for rare urinary tract malformations MARVU - Competence centre CHU de Caen - Hôpital de la Côte de Nacre

Reference centre for Chiari and Rare Vertebral and Medullary Abnormalities (C-MARVEM) - Competence centre CHU de Caen - Hôpital de la Côte de Nacre

Reference centre for Chiari and Rare Vertebral and Medullary Abnormalities (C-MARVEM) - Competence centre CHU de Caen - Hôpital de la Côte de Nacre

Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre CHU de Caen - Hôpital de la Côte de Nacre

Reference centre for Chiari and Rare Vertebral and Medullary Abnormalities (C-MARVEM) - Competence centre CHU Paris Nord-Val de Seine - Hôpital Beaujon

Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre Hôpital Pasteur - Hôpitaux civils de Colmar

Reference centre for Chiari and Rare Vertebral and Medullary Abnormalities (C-MARVEM) - Competence centre CHU Dijon Bourgogne - Hôpital François Mitterrand

Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre CHU Dijon Bourgogne - Hôpital d'Enfants

Reference centre for rare urinary tract malformations MARVU - Competence centre CHU de Martinique - Maison de la Femme, de la Mère et de l'Enfant

Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre CHU de Martinique - Maison de la Femme, de la Mère et de l'Enfant

Reference centre for Chiari and Rare Vertebral and Medullary Abnormalities (C-MARVEM) - Competence centre CHU Grenoble Alpes - Site Nord - Hôpital Couple Enfant

Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre CHU Grenoble Alpes - Site Nord - Hôpital Couple Enfant

Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre CHU de Grenoble site Nord - Hôpital Couple-Enfant

Reference centre for rare urinary tract malformations MARVU - Competence centre APHP. Université Paris-Saclay, Hôpital Bicêtre

Reference centre for Chiari and Rare Vertebral and Medullary Abnormalities (C-MARVEM) - Coordinator site APHP. Université Paris-Saclay, Hôpital Bicêtre

Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre APHP. Université Paris-Saclay, Hôpital Bicêtre

Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre Centre Hospitalier Le Mans

Reference centre for rare urinary tract malformations MARVU - Competence centre CHRU de Lille - Hôpital Jeanne de Flandre

Reference centre for Chiari and Rare Vertebral and Medullary Abnormalities (C-MARVEM) - Competence centre CHRU de Lille - Hôpital Jeanne de Flandre

Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre CHRU de Lille - Hôpital Jeanne de Flandre

Reference centre for Chiari and Rare Vertebral and Medullary Abnormalities (C-MARVEM) - Competence centre CHRU de Lille - Hôpital Pierre Swynghedauw

Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre CHU de Limoges - Hôpital de la mère et de l'enfant

Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre CHU de Limoges - Hôpital de la mère et de l'enfant

Reference centre for rare urinary tract malformations MARVU - Competence centre CHU de Marseille - Hôpital de la Timone

Reference centre for Chiari and Rare Vertebral and Medullary Abnormalities (C-MARVEM) - Competence centre CHU de Marseille - Hôpital de la Timone

Reference centre for Chiari and Rare Vertebral and Medullary Abnormalities (C-MARVEM) - Competence centre CHU de Marseille - Hôpital de la Timone

Reference centre for Chiari and Rare Vertebral and Medullary Abnormalities (C-MARVEM) - Constitutive site CHU de Marseille - Hôpital de la Timone

Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre CHU de Marseille - Hôpital de la Timone

Reference centre for rare urinary tract malformations MARVU - Competence centre CHU de Montpellier - Hôpital Arnaud de Villeneuve

Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre CHU de Montpellier - Hôpital Arnaud de Villeneuve

Reference centre for Chiari and Rare Vertebral and Medullary Abnormalities (C-MARVEM) - Competence centre CHU de Montpellier - Hôpital Gui de Chauliac

Reference centre for Chiari and Rare Vertebral and Medullary Abnormalities (C-MARVEM) - Competence centre CHU de Nantes - Hôpital Saint-Jacques

Reference centre for rare urinary tract malformations MARVU - Competence centre CHU de Nantes - Hôpital mère-enfant

Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre CHU de Nantes - Hôpital mère-enfant

Reference centre for Chiari and Rare Vertebral and Medullary Abnormalities (C-MARVEM) - Competence centre CHU de Nantes - Hôtel Dieu

Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre CHU de Nantes - Hôtel Dieu

Reference centre for Chiari and Rare Vertebral and Medullary Abnormalities (C-MARVEM) - Competence centre CHU de Nice - Hôpital Pasteur

Reference centre for Chiari and Rare Vertebral and Medullary Abnormalities (C-MARVEM) - Competence centre Hôpitaux Pédiatriques de Nice CHU - Lenval

Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre Hôpitaux Pédiatriques de Nice CHU - Lenval

Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre CHR d'Orléans - Site La Source

Reference centre for rare urinary tract malformations MARVU - Competence centre AP-HP.Sorbonne Université - Hôpital d'Enfants Armand-Trousseau

Reference centre for Chiari and Rare Vertebral and Medullary Abnormalities (C-MARVEM) - Constitutive site AP-HP.Sorbonne Université - Hôpital d'Enfants Armand-Trousseau

Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre AP-HP.Sorbonne Université - Hôpital d'Enfants Armand-Trousseau

Reference centre for Chiari and Rare Vertebral and Medullary Abnormalities (C-MARVEM) - Competence centre CHU Paris - Hôpital Robert Debré

Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre CHU Paris - Hôpital Robert Debré

Reference centre for rare urinary tract malformations MARVU - Coordinator site CHU Paris - Hôpital Robert Debré

Reference centre for Chiari and Rare Vertebral and Medullary Abnormalities (C-MARVEM) - Competence centre CHU Paris Est - Hôpital Rothschild

Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre Groupe Hospitalier Paris Saint-Joseph

Reference centre for Chiari and Rare Vertebral and Medullary Abnormalities (C-MARVEM) - Constitutive site Groupe hospitalier AP-HP.6 - Hôpital Tenon

Reference centre for rare urinary tract malformations MARVU - Competence centre Hôpital Necker-Enfants Malades

Reference centre for Chiari and Rare Vertebral and Medullary Abnormalities (C-MARVEM) - Constitutive site Hôpital Necker-Enfants Malades

Reference centre for rare anorectal and pelvic malformations (MAREP) - Coordinator site Hôpital Necker-Enfants Malades

Reference centre for Chiari and Rare Vertebral and Medullary Abnormalities (C-MARVEM) - Competence centre CHU de Poitiers

Reference centre for Chiari and Rare Vertebral and Medullary Abnormalities (C-MARVEM) - Competence centre CHU de Poitiers

Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre CHU de Poitiers

Reference centre for Chiari and Rare Vertebral and Medullary Abnormalities (C-MARVEM) - Competence centre CHU de Reims - American Memorial Hospital

Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre CHU de Reims - American Memorial Hospital

Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre
CHU Amiens-Picardie - Site Sud

Reference centre for Chiari and Rare Vertebral and Medullary Abnormalities (C-MARVEM) - Competence centre
CHU d'Angers

Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre
CHU d'Angers

Reference centre for rare urinary tract malformations MARVU - Competence centre
CHU de Besançon - Hôpital Jean Minjoz

Reference centre for Chiari and Rare Vertebral and Medullary Abnormalities (C-MARVEM) - Competence centre
CHU de Besançon - Hôpital Jean Minjoz

Reference centre for Chiari and Rare Vertebral and Medullary Abnormalities (C-MARVEM) - Competence centre
CHU de Besançon - Hôpital Jean Minjoz

Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre
CHU de Besançon - Hôpital Jean Minjoz

Reference centre for rare urinary tract malformations MARVU - Competence centre
CHU de Bordeaux-GH Pellegrin

Reference centre for Chiari and Rare Vertebral and Medullary Abnormalities (C-MARVEM) - Competence centre
CHU de Bordeaux-GH Pellegrin

Reference centre for Chiari and Rare Vertebral and Medullary Abnormalities (C-MARVEM) - Constitutive site
CHU Paris IdF Ouest - Hôpital Ambroise Paré

Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre
CHU Paris IdF Ouest - Hôpital Ambroise Paré

Reference centre for rare urinary tract malformations MARVU - Competence centre
CHRU de Brest - Hôpital Morvan

Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre
CHRU de Brest - Hôpital Morvan

Reference centre for Chiari and Rare Vertebral and Medullary Abnormalities (C-MARVEM) - Competence centre
CHU de Brest - Hôpital de la Cavale Blanche

Reference centre for rare urinary tract malformations MARVU - Constitutive site
CHU de Lyon HCL - GH Est-Hôpital Femme Mère Enfant

Reference centre for Chiari and Rare Vertebral and Medullary Abnormalities (C-MARVEM) - Competence centre
CHU de Lyon HCL - GH Est-Hôpital Femme Mère Enfant

Reference centre for Chiari and Rare Vertebral and Medullary Abnormalities (C-MARVEM) - Competence centre
CHU de Lyon HCL - GH Est-Hôpital Femme Mère Enfant

Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre
CHU de Lyon HCL - GH Est-Hôpital Femme Mère Enfant

Reference centre for rare urinary tract malformations MARVU - Competence centre
CHU de Caen - Hôpital de la Côte de Nacre

Reference centre for Chiari and Rare Vertebral and Medullary Abnormalities (C-MARVEM) - Competence centre
CHU de Caen - Hôpital de la Côte de Nacre

Reference centre for Chiari and Rare Vertebral and Medullary Abnormalities (C-MARVEM) - Competence centre
CHU de Caen - Hôpital de la Côte de Nacre

Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre
CHU de Caen - Hôpital de la Côte de Nacre

Reference centre for Chiari and Rare Vertebral and Medullary Abnormalities (C-MARVEM) - Competence centre
CHU Paris Nord-Val de Seine - Hôpital Beaujon

Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre
Hôpital Pasteur - Hôpitaux civils de Colmar

Reference centre for Chiari and Rare Vertebral and Medullary Abnormalities (C-MARVEM) - Competence centre
CHU Dijon Bourgogne - Hôpital François Mitterrand

Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre
CHU Dijon Bourgogne - Hôpital d'Enfants

Reference centre for rare urinary tract malformations MARVU - Competence centre
CHU de Martinique - Maison de la Femme, de la Mère et de l'Enfant

Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre
CHU de Martinique - Maison de la Femme, de la Mère et de l'Enfant

Reference centre for Chiari and Rare Vertebral and Medullary Abnormalities (C-MARVEM) - Competence centre
CHU Grenoble Alpes - Site Nord - Hôpital Couple Enfant

Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre
CHU Grenoble Alpes - Site Nord - Hôpital Couple Enfant

Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre
CHU de Grenoble site Nord - Hôpital Couple-Enfant

Reference centre for rare urinary tract malformations MARVU - Competence centre
APHP. Université Paris-Saclay, Hôpital Bicêtre

Reference centre for Chiari and Rare Vertebral and Medullary Abnormalities (C-MARVEM) - Coordinator site
APHP. Université Paris-Saclay, Hôpital Bicêtre

Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre
APHP. Université Paris-Saclay, Hôpital Bicêtre

Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre
Centre Hospitalier Le Mans

Reference centre for rare urinary tract malformations MARVU - Competence centre
CHRU de Lille - Hôpital Jeanne de Flandre

Reference centre for Chiari and Rare Vertebral and Medullary Abnormalities (C-MARVEM) - Competence centre
CHRU de Lille - Hôpital Jeanne de Flandre

Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre
CHRU de Lille - Hôpital Jeanne de Flandre

Reference centre for Chiari and Rare Vertebral and Medullary Abnormalities (C-MARVEM) - Competence centre
CHRU de Lille - Hôpital Pierre Swynghedauw

Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre
CHU de Limoges - Hôpital de la mère et de l'enfant

Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre
CHU de Limoges - Hôpital de la mère et de l'enfant

Reference centre for rare urinary tract malformations MARVU - Competence centre
CHU de Marseille - Hôpital de la Timone

Reference centre for Chiari and Rare Vertebral and Medullary Abnormalities (C-MARVEM) - Competence centre
CHU de Marseille - Hôpital de la Timone

Reference centre for Chiari and Rare Vertebral and Medullary Abnormalities (C-MARVEM) - Competence centre
CHU de Marseille - Hôpital de la Timone

Reference centre for Chiari and Rare Vertebral and Medullary Abnormalities (C-MARVEM) - Constitutive site
CHU de Marseille - Hôpital de la Timone

Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre
CHU de Marseille - Hôpital de la Timone

Reference centre for rare urinary tract malformations MARVU - Competence centre
CHU de Montpellier - Hôpital Arnaud de Villeneuve

Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre
CHU de Montpellier - Hôpital Arnaud de Villeneuve

Reference centre for Chiari and Rare Vertebral and Medullary Abnormalities (C-MARVEM) - Competence centre
CHU de Montpellier - Hôpital Gui de Chauliac

Reference centre for Chiari and Rare Vertebral and Medullary Abnormalities (C-MARVEM) - Competence centre
CHU de Nantes - Hôpital Saint-Jacques

Reference centre for rare urinary tract malformations MARVU - Competence centre
CHU de Nantes - Hôpital mère-enfant

Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre
CHU de Nantes - Hôpital mère-enfant

Reference centre for Chiari and Rare Vertebral and Medullary Abnormalities (C-MARVEM) - Competence centre
CHU de Nantes - Hôtel Dieu

Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre
CHU de Nantes - Hôtel Dieu

Reference centre for Chiari and Rare Vertebral and Medullary Abnormalities (C-MARVEM) - Competence centre
CHU de Nice - Hôpital Pasteur

Reference centre for Chiari and Rare Vertebral and Medullary Abnormalities (C-MARVEM) - Competence centre
Hôpitaux Pédiatriques de Nice CHU - Lenval

Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre
Hôpitaux Pédiatriques de Nice CHU - Lenval

Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre
CHR d'Orléans - Site La Source

Reference centre for rare urinary tract malformations MARVU - Competence centre
AP-HP.Sorbonne Université - Hôpital d'Enfants Armand-Trousseau

Reference centre for Chiari and Rare Vertebral and Medullary Abnormalities (C-MARVEM) - Constitutive site
AP-HP.Sorbonne Université - Hôpital d'Enfants Armand-Trousseau

Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre
AP-HP.Sorbonne Université - Hôpital d'Enfants Armand-Trousseau

Reference centre for Chiari and Rare Vertebral and Medullary Abnormalities (C-MARVEM) - Competence centre
CHU Paris - Hôpital Robert Debré

Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre
CHU Paris - Hôpital Robert Debré

Reference centre for rare urinary tract malformations MARVU - Coordinator site
CHU Paris - Hôpital Robert Debré

Reference centre for Chiari and Rare Vertebral and Medullary Abnormalities (C-MARVEM) - Competence centre
CHU Paris Est - Hôpital Rothschild

Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre
Groupe Hospitalier Paris Saint-Joseph

Reference centre for Chiari and Rare Vertebral and Medullary Abnormalities (C-MARVEM) - Constitutive site
Groupe hospitalier AP-HP.6 - Hôpital Tenon

Reference centre for rare urinary tract malformations MARVU - Competence centre
Hôpital Necker-Enfants Malades

Reference centre for Chiari and Rare Vertebral and Medullary Abnormalities (C-MARVEM) - Constitutive site
Hôpital Necker-Enfants Malades

Reference centre for rare anorectal and pelvic malformations (MAREP) - Coordinator site
Hôpital Necker-Enfants Malades

Reference centre for Chiari and Rare Vertebral and Medullary Abnormalities (C-MARVEM) - Competence centre
CHU de Poitiers

Reference centre for Chiari and Rare Vertebral and Medullary Abnormalities (C-MARVEM) - Competence centre
CHU de Poitiers

Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre
CHU de Poitiers

Reference centre for Chiari and Rare Vertebral and Medullary Abnormalities (C-MARVEM) - Competence centre
CHU de Reims - American Memorial Hospital

Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre
CHU de Reims - American Memorial Hospital

Reference centre for Chiari and Rare Vertebral and Medullary Abnormalities (C-MARVEM) - Constitutive site
CHU de Rennes - Hôpital Pontchaillou

Reference centre for rare urinary tract malformations MARVU - Competence centre
CHU de Rennes - Hôpital Sud

Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre
CHU de Rennes - Hôpital Sud

Reference centre for rare urinary tract malformations MARVU - Competence centre
CHU de Rouen

Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre
CHU de Rouen