Orphanet: Ricerca per nome della malattia
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FRANCIA

ILE-DE-FRANCE
PARIS

EuroBloodNet: European Reference Network on Rare Hematological Diseases
CHU Paris-GH St-Louis Lariboisière F.Widal - Hôpital Saint-Louis

FRANCIA

ILE-DE-FRANCE
PARIS

EURO-NMD: European Reference Network for Rare Neuromuscular Diseases
Institut de Myologie - Hôpital Pitié-Salpêtrière

GERMANIA

Baden-Württemberg
TÜBINGEN

ERN-RND: European Reference Network on Rare Neurological Diseases
Institut für Medizinische Genetik und angewandte Genomik Tübingen

GERMANIA

Hessen
FRANKFURT AM MAIN

ERN-LUNG: European Reference Network on rare respiratory diseases
Klinikum der Johann Wolfgang Goethe-Universität Frankfurt

PAESI BASSI

Zuid-Holland
LEIDEN