Orphanet: Ricerca per nome della malattia
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FRANCIA

ILE-DE-FRANCE
PARIS

FAVA-Multi - French rare diseases Healthcare Network : rare multisystemic vascular diseases
CHU Paris Nord-Val de Seine - Hôpital Xavier Bichat-Claude Bernard

FRANCIA

ILE-DE-FRANCE
PARIS

VASCERN: European Reference Network on Rare Multisystemic Vascular Diseases
CHU Paris Nord-Val de Seine - Hôpital Xavier Bichat-Claude Bernard

UNGHERIA

Közép-Magyarország
BUDAPEST

Semmelweis University Centre of Expertise for Rare Diseases
Institute of Genomic Medicine and Rare Disorders, Semmelweis University

GERMANIA

Baden-Württemberg
TÜBINGEN

ERN-RND: European Reference Network on Rare Neurological Diseases
Institut für Medizinische Genetik und angewandte Genomik Tübingen

GERMANIA

Berlin
BERLIN

Competence Network Paediatric Oncology and Haematology (Expert centres)
Otto-Heubner-Centrum für Kinder- und Jugendmedizin

GERMANIA

Hamburg
HAMBURG

Comprehensive Cancer Center (CCC) Network (Expert centers)
Hubertus Wald Tumorzentrum/ Universitäres Cancer Center (UCCH)

PAESI BASSI

Gelderland
NIJMEGEN

ERN GENTURIS: European Reference Network on GENetic TUmour RIsk Syndromes
Radboudumc - Radboud universitair medisch centrum

REGNO UNITO; GRAN BRETAGNA

Greater Manchester
MANCHESTER

SVIZZERA

Suisse Alémanique
BERN

SVIZZERA

Suisse Alémanique
BERN

kosek - National Coordination of Rare Diseases
c/o unimedsuisse, Haus der Akademien

NORVEGIA

Østlandet
OSLO

NKSD - National Advisory Unit on Rare Disorders, Norway
Oslo University Hospital, Ullevaal