Orphanet: Ricerca per nome della malattia
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FRANCIA

ILE-DE-FRANCE
COLOMBES

EPNET: European network on centre of reference on porphyria (centres of expertise)
CHU Paris Nord-Val de Seine - Hôpital Louis Mourier

REGNO UNITO; GRAN BRETAGNA

Greater Manchester
SALFORD

BIPNET: British & Irish Porphyria network
Salford Royal NHS Foundation Trust

SVIZZERA

Suisse Alémanique
BERN

kosek - National Coordination of Rare Diseases
c/o unimedsuisse, Haus der Akademien

UNGHERIA

Közép-Magyarország
BUDAPEST

Semmelweis University Centre of Expertise for Rare Diseases
Institute of Genomic Medicine and Rare Disorders, Semmelweis University

FRANCIA

ILE-DE-FRANCE
PARIS

NORVEGIA

Østlandet
OSLO

NKSD - National Advisory Unit on Rare Disorders, Norway
Oslo University Hospital, Ullevaal

IRLANDA

County Dublin
DUBLIN

Irish Traveller Network
Children's Health Ireland @ Crumlin