Orphanet: Ricerca per nome della malattia
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GERMANIA

Baden-Württemberg
TÜBINGEN

ERN-RND: European Reference Network on Rare Neurological Diseases
Institut für Medizinische Genetik und angewandte Genomik Tübingen

SVIZZERA

Suisse Alémanique
BERN

kosek - National Coordination of Rare Diseases
c/o unimedsuisse, Haus der Akademien

UNGHERIA

Közép-Magyarország
BUDAPEST

Semmelweis University Centre of Expertise for Rare Diseases
Institute of Genomic Medicine and Rare Disorders, Semmelweis University

NORVEGIA

Østlandet
OSLO

NKSD - National Advisory Unit on Rare Disorders, Norway
Oslo University Hospital, Ullevaal