Orphanet: Ricerca per nome della malattia
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FRANCIA

ILE-DE-FRANCE
PARIS

FAVA-Multi - French rare diseases Healthcare Network : rare multisystemic vascular diseases
CHU Paris Nord-Val de Seine - Hôpital Xavier Bichat-Claude Bernard

PAESI BASSI

Gelderland
NIJMEGEN

Radboudumc AGORA: network for congenital anomalies and childhood cancer
Radboudumc - Radboud universitair medisch centrum

SVIZZERA

Suisse Alémanique
BERN

kosek - National Coordination of Rare Diseases
c/o unimedsuisse, Haus der Akademien

FRANCIA

ILE-DE-FRANCE
PARIS

Cardiogen - French rare diseases Healthcare Network : hereditary heart diseases
APHP.Sorbonne Université, Hôpital de la Pitié-Salpêtrière

FRANCIA

ILE-DE-FRANCE
PARIS

VASCERN: European Reference Network on Rare Multisystemic Vascular Diseases
CHU Paris Nord-Val de Seine - Hôpital Xavier Bichat-Claude Bernard

NORVEGIA

Østlandet
OSLO

NKSD - National Advisory Unit on Rare Disorders, Norway
Oslo University Hospital, Ullevaal

SVIZZERA

Suisse Alémanique
BERN

PAESI BASSI

Noord-Holland
AMSTERDAM

UNGHERIA

Közép-Magyarország
BUDAPEST

Semmelweis University Centre of Expertise for Rare Diseases
Institute of Genomic Medicine and Rare Disorders, Semmelweis University