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ZSE Freiburg: Spezialambulanz für Diamond-Blackfan-Anämie Universitätsklinikum Freiburg

Spezialambulanz für pädiatrische Hämatologie und Hämostaseologie Kinder- und Jugendarztpraxis Professor Dr. med. Stefan Eber

Reference centre for sickle cell disease, thalassemia and other red cell disorders - Constitutive site Hospices Civils de Lyon - Groupement Hospitalier EST

Reference centre for sickle cell disease, thalassemia and other red cell disorders - Competence centre CHU de Clermont-Ferrand - Hôpital d'Estaing

Reference centre for sickle cell disease, thalassemia and other red cell disorders - Competence centre CHU de Rennes - Hôpital Sud

Reference centre for sickle cell disease, thalassemia and other red cell disorders - Competence centre CHU de Nancy - Hôpitaux de Brabois

Reference centre for sickle cell disease, thalassemia and other red cell disorders - Constitutive site CHU Paris IdF Ouest - HEGP Hôpital Européen Georges Pompidou

Reference centre for sickle cell disease, thalassemia and other red cell disorders - Constitutive site Hôpital Necker-Enfants Malades

Reference centre for sickle cell disease, thalassemia and other red cell disorders - Competence centre CHU de Caen - Hôpital de la Côte de Nacre

Centre of Expertise for rare anemia A.O. della Provincia di Lecco - Ospedale Alessandro Manzoni

Hemoglobinopathies clinic Hosp. Pediátrico e Hosp. Covões - Centro Hospitalar e Universitário de Coimbra

Hematologic oncology clinic Spitalul Clinic de Urgente pentru Copii Sfanta Maria

ZSE Hannover: Zentrum für Blutbildungsstörung Medizinische Hochschule Hannover

Spezialambulanz für seltene Zytopenien (PNH, AA/PRCA, DKC) und hämolytische Anämien (PNH, CAD) (Qualitätsgesichert durch die Stiftung Lichterzellen) Westdeutsches Tumorzentrum Essen (WTZ)

Centre for Bone Marrow Failure Amsterdam UMC, locatie AMC

Van Creveldkliniek - Expertise Centre for Benign Hematology, Thrombosis and Hemostasis UMC Utrecht - Universitair Medisch Centrum Utrecht

CSUR - National unit of expertise for congenital spinal cord syndromes Hospital Universitari Vall d'Hebron

Rare constitutional aplastic anemia clinic Hospital Infantil Universitario Niño Jesús

Pediatric Hematology and Oncology Clinic University hospital Varna

Ambulanz für Hämatologie und Onkologie Department für Innere Medizin - Medizinische Universitätsklinik Tübingen

ZSE Hannover: Zentrum für Krebsprädisposition Medizinische Hochschule Hannover

Nationales Zentrum für erbliche Tumorerkrankungen Universitätsklinikum Bonn (AöR)

ZSE Bonn: Zentrum für erbliche Tumorerkrankungen Universitätsklinikum Bonn (AöR)

ZSE Düsseldorf: Zentrum für angeborene Immundefekterkrankungen und Tumorsuszeptibilität im Kindesalter Universitätsklinikum Düsseldorf

Leukämie- und Lymphom-Centrum (DKG e.V. zertifiziert) Universitätsmedizin Mainz

Reference centre for rare ENT malformations (MALO) - Competence centre CHU de Lyon HCL - GH Est-Hôpital Femme Mère Enfant

Reference centre for rare malformations of the face and oral cavity (MAFACE) - Competence centre CHU de Lyon HCL - GH Est-Hôpital Femme Mère Enfant

Reference centre for rare ENT malformations (MALO) - Competence centre CHU de Clermont-Ferrand - Hôpital Gabriel Montpied

Reference centre for rare malformations of the face and oral cavity (MAFACE) - Competence centre CHU de Clermont-Ferrand - Hôpital d'Estaing

Reference centre for rare malformations of the face and oral cavity (MAFACE) - Competence centre Clinique du Val d'Ouest

Reference centre for rare malformations of the face and oral cavity (MAFACE) - Competence centre CHU de Grenoble site Nord - Hôpital Couple-Enfant

Reference centre for rare medullar aplasias - Competence centre CHU de Lyon HCL - GH Sud

Reference centre for rare malformations of the face and oral cavity (MAFACE) - Competence centre CHRU de Besançon - Hôpital Jean Minjoz

Reference centre for rare ENT malformations (MALO) - Competence centre CHRU de Brest - Hôpital Morvan

Reference centre for rare ENT malformations (MALO) - Competence centre CHRU de Tours - Hôpital Bretonneau

Reference centre for rare malformations of the face and oral cavity (MAFACE) - Competence centre CHRU de Tours - Hôpital Trousseau

Reference centre for rare malformations of the face and oral cavity (MAFACE) - Competence centre CHU de Nancy - Hôpital Central

Reference centre for rare malformations of the face and oral cavity (MAFACE) - Competence centre CHU de Strasbourg - Hôpital Civil

Reference centre for rare ENT malformations (MALO) - Competence centre CHU de Strasbourg - Hôpital de Hautepierre

Reference centre for rare ENT malformations (MALO) - Competence centre CHU de Nancy - Hôpitaux de Brabois

Reference centre for rare malformations of the face and oral cavity (MAFACE) - Competence centre CHU Amiens-Picardie - Site Sud

Reference centre for rare medullar aplasias - Competence centre CHRU de Lille - Hôpital Claude Huriez

Reference centre for rare medullar aplasias - Competence centre CHRU de Lille - Hôpital Jeanne de Flandre

Reference centre for rare ENT malformations (MALO) - Competence centre CHRU de Lille - Hôpital Jeanne de Flandre

Reference centre for rare malformations of the face and oral cavity (MAFACE) - Competence centre CHRU de Lille - Hôpital Jeanne de Flandre

Reference centre for rare medullar aplasias - Constitutive site CHU Paris - Hôpital Robert Debré

Reference centre for rare ENT malformations (MALO) - Constitutive site CHU Paris - Hôpital Robert Debré

Reference centre for rare medullar aplasias - Coordinator site CHU Paris-GH St-Louis Lariboisière F.Widal - Hôpital Saint-Louis

Reference centre for rare ENT malformations (MALO) - Coordinator site Hôpital Necker-Enfants Malades

Reference centre for rare malformations of the face and oral cavity (MAFACE) - Coordinator site Hôpital Necker-Enfants Malades

Reference centre for rare malformations of the face and oral cavity (MAFACE) - Competence centre CHU de Caen - Hôpital de la Côte de Nacre

Reference centre for rare ENT malformations (MALO) - Competence centre CHU de Rouen

Reference centre for rare ENT malformations (MALO) - Competence centre CHU de Limoges - Hôpital de la mère et de l'enfant

Reference centre for rare medullar aplasias - Competence centre CHU de Bordeaux-GH Sud - Hôpital Haut-Lévêque

Reference centre for rare ENT malformations (MALO) - Competence centre CHU de Montpellier - Hôpital Gui de Chauliac

Reference centre for rare malformations of the face and oral cavity (MAFACE) - Competence centre CHU de Montpellier - IURC

Reference centre for rare ENT malformations (MALO) - Competence centre CHU de Toulouse - Hôpital Pierre-Paul Riquet

Reference centre for rare malformations of the face and oral cavity (MAFACE) - Competence centre CHU de Toulouse - Hôpital des Enfants

Reference centre for rare medullar aplasias - Competence centre CHU de Martinique - Hôpital P. Zobda-Quitman

Reference centre for rare ENT malformations (MALO) - Competence centre CHU de la Guadeloupe

Reference centre for rare medullar aplasias - Competence centre CHU de la Réunion - GH Sud Réunion - Saint-Pierre

Reference centre for rare ENT malformations (MALO) - Competence centre CHU de Nantes - Hôtel Dieu

Reference centre for rare medullar aplasias - Competence centre CHU de Marseille - Hôpital de la Timone

Reference centre for rare ENT malformations (MALO) - Competence centre CHU de Marseille - Hôpital de la Timone

Reference centre for rare medullar aplasias - Competence centre CLCC Institut Paoli Calmettes

Craniofacial Combined Orthodontic Clinic St James's Hospital

Aplastic Anemia Clinic Tallaght University Hospital

Centre of Expertise for constitutional and acquired aplasias IRCCS Istituto G. Gaslini - Ospedale Pediatrico

Centre for Familial Tumors UMCG - Universitair Medisch Centrum Groningen

Norwegian National Unit for Craniofacial Surgery Oslo Universitetssykehus HF, Rikshospitalet

Zentrum für erbliche Tumorerkrankungen Innsbruck (Assoziiertes Nationales Zentrum im Europäischen Referenznetzwerk ERN GENTURIS) Medizinische Universität Innsbruck

Risiko und Präventionssprechstunde University Hospital Inselspital

Oncogenetics unit Hôpitaux Universitaires de Genève - Maternité

Oncogenetic clinic Hôpital Nestlé - CHUV

Oncogenetic clinic Institut Central des Hôpitaux (ICH)

CSUR - National unit of expertise for hereditary erythropathology Hospital de la Santa Creu i Sant Pau

CSUR - National unit of expertise for hereditary erythropathology Hospital Sant Joan de Déu Barcelona

ZSE Freiburg: Spezialambulanz für Diamond-Blackfan-Anämie
Universitätsklinikum Freiburg

Spezialambulanz für pädiatrische Hämatologie und Hämostaseologie
Kinder- und Jugendarztpraxis Professor Dr. med. Stefan Eber

Reference centre for sickle cell disease, thalassemia and other red cell disorders - Constitutive site
Hospices Civils de Lyon - Groupement Hospitalier EST

Reference centre for sickle cell disease, thalassemia and other red cell disorders - Competence centre
CHU de Clermont-Ferrand - Hôpital d'Estaing

Reference centre for sickle cell disease, thalassemia and other red cell disorders - Competence centre
CHU de Rennes - Hôpital Sud

Reference centre for sickle cell disease, thalassemia and other red cell disorders - Competence centre
CHU de Nancy - Hôpitaux de Brabois

Reference centre for sickle cell disease, thalassemia and other red cell disorders - Constitutive site
CHU Paris IdF Ouest - HEGP Hôpital Européen Georges Pompidou

Reference centre for sickle cell disease, thalassemia and other red cell disorders - Constitutive site
Hôpital Necker-Enfants Malades

Reference centre for sickle cell disease, thalassemia and other red cell disorders - Competence centre
CHU de Caen - Hôpital de la Côte de Nacre

Centre of Expertise for rare anemia
A.O. della Provincia di Lecco - Ospedale Alessandro Manzoni

Hemoglobinopathies clinic
Hosp. Pediátrico e Hosp. Covões - Centro Hospitalar e Universitário de Coimbra

Hematologic oncology clinic
Spitalul Clinic de Urgente pentru Copii Sfanta Maria

ZSE Hannover: Zentrum für Blutbildungsstörung
Medizinische Hochschule Hannover

Spezialambulanz für seltene Zytopenien (PNH, AA/PRCA, DKC) und hämolytische Anämien (PNH, CAD) (Qualitätsgesichert durch die Stiftung Lichterzellen)
Westdeutsches Tumorzentrum Essen (WTZ)

Centre for Bone Marrow Failure
Amsterdam UMC, locatie AMC

Van Creveldkliniek - Expertise Centre for Benign Hematology, Thrombosis and Hemostasis
UMC Utrecht - Universitair Medisch Centrum Utrecht

CSUR - National unit of expertise for congenital spinal cord syndromes
Hospital Universitari Vall d'Hebron

Rare constitutional aplastic anemia clinic
Hospital Infantil Universitario Niño Jesús

Pediatric Hematology and Oncology Clinic
University hospital Varna

Ambulanz für Hämatologie und Onkologie
Department für Innere Medizin - Medizinische Universitätsklinik Tübingen

ZSE Hannover: Zentrum für Krebsprädisposition
Medizinische Hochschule Hannover

Nationales Zentrum für erbliche Tumorerkrankungen
Universitätsklinikum Bonn (AöR)

ZSE Bonn: Zentrum für erbliche Tumorerkrankungen
Universitätsklinikum Bonn (AöR)

ZSE Düsseldorf: Zentrum für angeborene Immundefekterkrankungen und Tumorsuszeptibilität im Kindesalter
Universitätsklinikum Düsseldorf

Leukämie- und Lymphom-Centrum (DKG e.V. zertifiziert)
Universitätsmedizin Mainz

Reference centre for rare ENT malformations (MALO) - Competence centre
CHU de Lyon HCL - GH Est-Hôpital Femme Mère Enfant

Reference centre for rare malformations of the face and oral cavity (MAFACE) - Competence centre
CHU de Lyon HCL - GH Est-Hôpital Femme Mère Enfant

Reference centre for rare ENT malformations (MALO) - Competence centre
CHU de Clermont-Ferrand - Hôpital Gabriel Montpied

Reference centre for rare malformations of the face and oral cavity (MAFACE) - Competence centre
CHU de Clermont-Ferrand - Hôpital d'Estaing

Reference centre for rare malformations of the face and oral cavity (MAFACE) - Competence centre
Clinique du Val d'Ouest

Reference centre for rare malformations of the face and oral cavity (MAFACE) - Competence centre
CHU de Grenoble site Nord - Hôpital Couple-Enfant

Reference centre for rare medullar aplasias - Competence centre
CHU de Lyon HCL - GH Sud

Reference centre for rare malformations of the face and oral cavity (MAFACE) - Competence centre
CHRU de Besançon - Hôpital Jean Minjoz

Reference centre for rare ENT malformations (MALO) - Competence centre
CHRU de Brest - Hôpital Morvan

Reference centre for rare ENT malformations (MALO) - Competence centre
CHRU de Tours - Hôpital Bretonneau

Reference centre for rare malformations of the face and oral cavity (MAFACE) - Competence centre
CHRU de Tours - Hôpital Trousseau

Reference centre for rare malformations of the face and oral cavity (MAFACE) - Competence centre
CHU de Nancy - Hôpital Central

Reference centre for rare malformations of the face and oral cavity (MAFACE) - Competence centre
CHU de Strasbourg - Hôpital Civil

Reference centre for rare ENT malformations (MALO) - Competence centre
CHU de Strasbourg - Hôpital de Hautepierre

Reference centre for rare ENT malformations (MALO) - Competence centre
CHU de Nancy - Hôpitaux de Brabois

Reference centre for rare malformations of the face and oral cavity (MAFACE) - Competence centre
CHU Amiens-Picardie - Site Sud

Reference centre for rare medullar aplasias - Competence centre
CHRU de Lille - Hôpital Claude Huriez

Reference centre for rare medullar aplasias - Competence centre
CHRU de Lille - Hôpital Jeanne de Flandre

Reference centre for rare ENT malformations (MALO) - Competence centre
CHRU de Lille - Hôpital Jeanne de Flandre

Reference centre for rare malformations of the face and oral cavity (MAFACE) - Competence centre
CHRU de Lille - Hôpital Jeanne de Flandre

Reference centre for rare medullar aplasias - Constitutive site
CHU Paris - Hôpital Robert Debré

Reference centre for rare ENT malformations (MALO) - Constitutive site
CHU Paris - Hôpital Robert Debré

Reference centre for rare medullar aplasias - Coordinator site
CHU Paris-GH St-Louis Lariboisière F.Widal - Hôpital Saint-Louis

Reference centre for rare ENT malformations (MALO) - Coordinator site
Hôpital Necker-Enfants Malades

Reference centre for rare malformations of the face and oral cavity (MAFACE) - Coordinator site
Hôpital Necker-Enfants Malades

Reference centre for rare malformations of the face and oral cavity (MAFACE) - Competence centre
CHU de Caen - Hôpital de la Côte de Nacre

Reference centre for rare ENT malformations (MALO) - Competence centre
CHU de Rouen

Reference centre for rare ENT malformations (MALO) - Competence centre
CHU de Limoges - Hôpital de la mère et de l'enfant

Reference centre for rare medullar aplasias - Competence centre
CHU de Bordeaux-GH Sud - Hôpital Haut-Lévêque

Reference centre for rare ENT malformations (MALO) - Competence centre
CHU de Montpellier - Hôpital Gui de Chauliac

Reference centre for rare malformations of the face and oral cavity (MAFACE) - Competence centre
CHU de Montpellier - IURC

Reference centre for rare ENT malformations (MALO) - Competence centre
CHU de Toulouse - Hôpital Pierre-Paul Riquet

Reference centre for rare malformations of the face and oral cavity (MAFACE) - Competence centre
CHU de Toulouse - Hôpital des Enfants

Reference centre for rare medullar aplasias - Competence centre
CHU de Martinique - Hôpital P. Zobda-Quitman

Reference centre for rare ENT malformations (MALO) - Competence centre
CHU de la Guadeloupe

Reference centre for rare medullar aplasias - Competence centre
CHU de la Réunion - GH Sud Réunion - Saint-Pierre

Reference centre for rare ENT malformations (MALO) - Competence centre
CHU de Nantes - Hôtel Dieu

Reference centre for rare medullar aplasias - Competence centre
CHU de Marseille - Hôpital de la Timone

Reference centre for rare ENT malformations (MALO) - Competence centre
CHU de Marseille - Hôpital de la Timone

Reference centre for rare medullar aplasias - Competence centre
CLCC Institut Paoli Calmettes

Craniofacial Combined Orthodontic Clinic
St James's Hospital

Aplastic Anemia Clinic
Tallaght University Hospital

Centre of Expertise for constitutional and acquired aplasias
IRCCS Istituto G. Gaslini - Ospedale Pediatrico

Centre for Familial Tumors
UMCG - Universitair Medisch Centrum Groningen

Norwegian National Unit for Craniofacial Surgery
Oslo Universitetssykehus HF, Rikshospitalet

Zentrum für erbliche Tumorerkrankungen Innsbruck (Assoziiertes Nationales Zentrum im Europäischen Referenznetzwerk ERN GENTURIS)
Medizinische Universität Innsbruck

Risiko und Präventionssprechstunde
University Hospital Inselspital

Oncogenetics unit
Hôpitaux Universitaires de Genève - Maternité

Oncogenetic clinic
Hôpital Nestlé - CHUV

Oncogenetic clinic
Institut Central des Hôpitaux (ICH)

CSUR - National unit of expertise for hereditary erythropathology
Hospital de la Santa Creu i Sant Pau

CSUR - National unit of expertise for hereditary erythropathology
Hospital Sant Joan de Déu Barcelona

Regional unit of expertise of pediatric oncology
Hospital Clínico Universitario de Valencia

CSUR - National unit of expertise for hereditary erythropathology
Hospital Materno Infantil Gregorio Marañón

Multidisciplinary expert team/Centre for Rare Diseases - University Hospital of Antwerp
University Hospital of Antwerp - UZA