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ROMANIA
IASI
IASI
Rare gastroenterologic diseases clinic
Spitalul Clinic de Urgente pentru Copii 'Sfanta Maria'
SWEDEN
Region Stockholm
SOLNA
Expert team for rare gastrointestinal diseases
Karolinska Universitetssjukhuset
ITALY
LAZIO
ROMA
Centre of Expertise for surgically congenital malformative pathologies associated to intrauterine diagnosis
Azienda Ospedaliera S. Camillo-Forlanini - Ospedale San Camillo
BELGIUM
OOST-VLAANDEREN
GENT
Expert Center on rare malformations of the digestive system - Ghent University Hospital
Ghent University Hospital - UZ Gent
CZECH REPUBLIC
Capital City Prague
PRAHA
Highly specialized care center for rare birth defects
University Hospital Motol
FRANCE
AUVERGNE-RHONE-ALPES
BRON
Reference centre for diaphragmatic hernia - Competence centre
CHU de Lyon HCL - GH Est-Hôpital Femme Mère Enfant
GERMANY
Baden-Württemberg
HEIDELBERG
Hereditary intestinal malformations clinic
Zentrum für Kinder- und Jugendmedizin des Universitätsklinikums Heidelberg
GERMANY
Berlin
BERLIN
Digestive tract and diaphragmatic or abdominal wall malformations clinic
Charité - Universitätsmedizin Berlin (CVK)
GERMANY
Hessen
FRANKFURT AM MAIN
Congenital gastrointestinal malformations clinic
Universitätsklinikum Frankfurt
GERMANY
Sachsen
LEIPZIG
ZSE Leipzig: Spezialambulanz für gastrointestinale Fehlbildungen
Zentrum für Seltene Erkrankungen Leipzig
ITALY
LAZIO
ROMA
Expert Center for rare inherited and congenital anomalies
Fondazione Policlinico Universitario Agostino Gemelli IRCCS
ITALY
LAZIO
ROMA
Centre of Expertise for rare pediatric gastro-intestinal diseases
IRCCS Ospedale Pediatrico Bambino Gesù - SEDE GIANICOLO
ITALY
LOMBARDIA
BERGAMO
Centre of Expertise for rare gastro-intestinal diseases
ASST Papa Giovanni XXIII
ITALY
LOMBARDIA
MILANO
Centre of Expertise for rare gastro-esophageal diseases
Fondazione IRCCS Ca' Granda - Ospedale Maggiore Policlinico
ITALY
PIEMONTE
ALESSANDRIA
Specialised Clinic for rare gastro-intestinal diseases
Azienda Ospedaliera Nazionale SS.Antonio e Biagio e Cesare Arrigo
NETHERLANDS
Gelderland
NIJMEGEN
Radboudumc Center of Expertise for Congenital Malformations of the Intestinal Tract
Radboudumc - Radboud universitair medisch centrum
POLAND
Gdansk
GDANSK
Expert Center on rare Inherited and Congenital Anomalies
Uniwersyteckie Centrum Kliniczne
SPAIN
Cataluña
BARCELONA
Expert center on gastrointestinal malformations
Hospital Universitari Vall d'Hebron
SWEDEN
Region Uppsala
UPPSALA
Team för sällsynta,ärftliga eller medfödda diagnoser, ERN Ernica
Akademiska Sjukhuset
AUSTRIA
OBERÖSTERREICH
LINZ
Pediatric Colorectal Center Linz (Associated National Center in the European Reference Network ERNICA)
Kepler Universitätsklinikum - Med Campus IV.
AUSTRIA
STEIERMARK
GRAZ
Center for inborn intestinal malformations (Associated National Center in the European Reference Network ERNICA)
Medizinische Universität Graz
AUSTRIA
WIEN
WIEN
Center for Rare Colorectal Diseases, Incontinence, and Diseases of the Pelvic Floor (Associated National Center in the European Reference Network ERNICA)
Allgemeines Krankenhaus der Stadt Wien
AUSTRIA
WIEN
WIEN
Pediatric gastroenterology clinic (Associated National Center in the European Reference Network ERNICA)
Sozialmedizinisches Zentrum Ost - Donauspital
CROATIA
CROATIA
ZAGREB
Expert Center on on Rare Congenital Malformations and Rare Intellectual Disability
Children's University Hospital Zagreb
DENMARK
Fyn
ODENSE
Centre for treatment of congenital malformations in the gastrointestinal tract
Odense University hospital
ESTONIA
Tartu
TARTU
Centre for Rare Congenital Anomalies (Associated National Centre in the ERNICA)
Competence Centre for Rare Diseases - Tartu University Hospital
FRANCE
AUVERGNE-RHONE-ALPES
BRON
Reference centre for developmental anomalies and malformation syndromes Sud-Est - Coordinator site
CHU de Lyon HCL - GH Est-Hôpital Femme Mère Enfant
FRANCE
AUVERGNE-RHONE-ALPES
CLERMONT-FERRAND
Reference centre for developmental anomalies and malformation syndromes Sud-Est - Constitutive site
CHU de Clermont-Ferrand - Hôpital d'Estaing
FRANCE
AUVERGNE-RHONE-ALPES
GRENOBLE
Reference centre for developmental anomalies and malformation syndromes Sud-Est - Constitutive site
CHU de Grenoble site Nord - Hôpital Couple-Enfant
FRANCE
AUVERGNE-RHONE-ALPES
SAINT-PRIEST-EN-JAREZ
Reference centre for developmental anomalies and malformation syndromes Sud-Est - Competence centre
CHU de Saint-Etienne - Hôpital Nord
FRANCE
BOURGOGNE-FRANCHE-COMTE
DIJON
Reference centre for developmental anomalies and malformation syndromes Est - Coordinator site
CHU Dijon Bourgogne - Hôpital François Mitterrand
FRANCE
BRETAGNE
BREST
Reference centre for developmental anomalies and malformation syndromes Ouest- Competence centre
CHRU de Brest - Hôpital Morvan
FRANCE
BRETAGNE
VANNES
Reference centre for developmental anomalies and malformation syndromes Ouest- Competence centre
CHBA Centre hospitalier Bretagne Atlantique - CH Chubert
FRANCE
CENTRE-VAL DE LOIRE
TOURS
Reference centre for developmental anomalies and malformation syndromes Ouest - Constitutive site
CHRU de Tours - Hôpital Bretonneau
FRANCE
GRAND-EST
REIMS
Reference centre for developmental anomalies and malformation syndromes Est - Constitutive site
CHU de Reims - Hôpital Maison Blanche
FRANCE
GRAND-EST
STRASBOURG
Reference centre for developmental anomalies and malformation syndromes Est - Constitutive site
CHU de Strasbourg - Hôpital de Hautepierre
FRANCE
GRAND-EST
VANDOEUVRE-LÈS-NANCY
Reference centre for developmental anomalies and malformation syndromes Est - Constitutive site
CHU de Nancy - Hôpitaux de Brabois
FRANCE
HAUTS-DE-FRANCE
AMIENS
Reference centre for developmental anomalies and malformation syndromes Nord-Ouest - Constitutive site
CHU Amiens-Picardie - Site Sud
FRANCE
HAUTS-DE-FRANCE
LILLE
Reference centre for developmental anomalies and malformation syndromes Nord-Ouest - Coordinator site
CHU de Lille - Centre de Biologie Pathologie Génétique
FRANCE
ILE-DE-FRANCE
CRÉTEIL
Reference centre for developmental anomalies and malformation syndromes IDF - Competence centre
Centre Hospitalier Intercommunal de Créteil
FRANCE
ILE-DE-FRANCE
PARIS
Reference centre for developmental anomalies and malformation syndromes IDF - Competence centre
AP-HP.Sorbonne Université - Hôpital d'Enfants Armand-Trousseau
FRANCE
ILE-DE-FRANCE
PARIS
Reference centre for developmental anomalies and malformation syndromes IDF - Constitutive site
AP-HP.Sorbonne Université - Hôpital de la Pitié-Salpêtrière
FRANCE
ILE-DE-FRANCE
PARIS
Reference centre for developmental anomalies and malformation syndromes IDF - Coordinator site
CHU Paris - Hôpital Robert Debré
FRANCE
ILE-DE-FRANCE
PARIS
Reference centre for developmental anomalies and malformation syndromes IDF - Constitutive site
Hôpital Necker-Enfants Malades
FRANCE
ILE-DE-FRANCE
POISSY
Reference centre for developmental anomalies and malformation syndromes IDF - Constitutive site
Centre hospitalier intercommunal Poissy-Saint-Germain-en-Laye
FRANCE
NOUVELLE AQUITAINE
BORDEAUX
Reference centre for developmental anomalies and malformation syndromes Sud-Ouest Occitanie Réunion - Coordinator site
CHU de Bordeaux-GH Pellegrin
FRANCE
NOUVELLE AQUITAINE
POITIERS
Reference centre for developmental anomalies and malformation syndromes Sud-Ouest Occitanie Réunion- Competence centre
CHU de Poitiers
FRANCE
OCCITANIE
MONTPELLIER
Reference centre for developmental anomalies and malformation syndromes Sud-Ouest Occitanie Réunion - Constitutive site
CHU de Montpellier - Hôpital Arnaud de Villeneuve
FRANCE
OCCITANIE
TOULOUSE
Reference centre for developmental anomalies and malformation syndromes Sud-Ouest Occitanie Réunion- Competence centre
CHU de Toulouse - Hôpital Purpan
FRANCE
OUTRE-MER
FORT DE FRANCE
Reference centre for developmental anomalies and malformation syndromes Sud-Ouest Occitanie Réunion- Competence centre
CHU de Martinique - Hôpital P. Zobda-Quitman
FRANCE
OUTRE-MER
POINTE À PITRE
Reference centre for developmental anomalies and malformation syndromes IDF - Competence centre
CHU de la Guadeloupe
FRANCE
OUTRE-MER
SAINT-DENIS
Reference centre for developmental anomalies and malformation syndromes Sud-Ouest Occitanie Réunion - Constitutive site
CHU de la Réunion - Hôpital Félix Guyon
FRANCE
PAYS DE LA LOIRE
ANGERS
Reference centre for developmental anomalies and malformation syndromes Ouest - Constitutive site
CHU d'Angers
FRANCE
PAYS DE LA LOIRE
LE MANS
Reference centre for developmental anomalies and malformation syndromes Ouest- Competence centre
Centre Hospitalier Le Mans
FRANCE
PAYS DE LA LOIRE
NANTES
Reference centre for developmental anomalies and malformation syndromes Ouest - Constitutive site
CHU de Nantes - Hôtel Dieu
FRANCE
PROVENCE-ALPES-COTE D'AZUR
NICE
Reference centre for developmental anomalies and malformation syndromes Sud-Est - Competence centre
CHU de Nice - Hôpital l'Archet 2
GERMANY
Bayern
AUGSBURG
Ano-uro-genital malformations, developmental and functional disorders clinic
Universitätsklinikum Augsburg
GERMANY
Nordrhein-Westfalen
BOCHUM
Gastroenterology clinic
Universitäts-Kinderklinik am St. Josef-Hospital
GERMANY
Nordrhein-Westfalen
BONN
Short bowel syndrome, intestinal failure and intestinal rehabilitation clinic
Universitätsklinikum Bonn (AöR)
ITALY
PIEMONTE
TORINO
Center of Expertise for rare disorders potentially indicated for transplant
A.O.U. Città della Salute e della Scienza di Torino - Ospedale Regina Margherita
ITALY
VENETO
TREVISO
Centre of Expertise for digestive tract malformations
Azienda ULSS 9 - Ospedale di Treviso
NORWAY
Østlandet
OSLO
SSD - Resource Centre for Rare Disorders
Oslo University Hospital, Rikshospitalet
SPAIN
Madrid
MADRID
CSUR - National unit of expertise for pediatric and adult bowel transplantation
Hospital Universitario 12 de Octubre
SPAIN
Madrid
MADRID
CSUR - National unit of expertise for pediatric and adult bowel transplantation
Hospital Universitario La Paz
SWEDEN
Region Stockholm
SOLNA
Expert team for genetic diagnostics of congenital malformations and/or intelectual disabilities, ERN Ithaca
Karolinska Universitetssjukhuset
SWEDEN
Region Västra Götaland
GÖTEBORG
Expert team for Paediatric transplantation, ERN Transplant-Child
Sahlgrenska Universitetssjuhuset
BELGIUM
ANTWERPEN
EDEGEM (ANTWERPEN)
Multidisciplinary expert team/Centre for Rare Diseases - University Hospital of Antwerp
Antwerp University Hospital - UZA
BELGIUM
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
Multidisciplinary expert team/Centre for rare diseases - ULB
Cliniques Universitaires de Bruxelles - Hôpital Erasme
BELGIUM
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
Multidisciplinary expert team/Centre for rare diseases - Saint-Luc University Hospital
Cliniques universitaires Saint-Luc - UCLouvain
BELGIUM
ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
Multidisciplinary expert team/Centre for Rare Diseases - University Hospital of Brussels
Universitair Ziekenhuis Brussel
BELGIUM
HAINAUT
GILLY
Multidisciplinary expert team/Centre for rare diseases - Grand Hôpital de Charleroi et Institut de Pathologie et de Génétique
Grand Hôpital de Charleroi - Site Saint-Joseph
BELGIUM
LIEGE
LIEGE
Multidisciplinary expert team/Centre for rare diseases - CHU Liège
CHU de Liège - Domaine universitaire du Sart Tilman
BELGIUM
OOST-VLAANDEREN
GENT
Multidisciplinary expert team/Centre for Rare Diseases - University Hospital of Ghent
Ghent University Hospital - UZ Gent
BELGIUM
VLAAMS BRABANT
LEUVEN
Multidisciplinary expert team/Centre for Rare Diseases - University Hospital of Leuven
UZ Leuven - Campus Gasthuisberg
ESTONIA
Tartu
TARTU
Centre for Paediatric Transplantation (Associated Centre in the ERN TRANSPLANT-CHILD)
Competence Centre for Rare Diseases - Tartu University Hospital
GERMANY
Bayern
MÜNCHEN
Visceral and thorax surgery clinic
Kinderklinik und Kinderpoliklinik im Dr. von Haunerschen Kinderspital
GERMANY
Nordrhein-Westfalen
BOCHUM
Rare paediatric surgery clinic
Universitäts-Kinderklinik am St. Josef-Hospital
GERMANY
Schleswig-Holstein
LÜBECK
Rare genetic syndromes and congenital malformations clinic
Universitätsklinikum Schleswig-Holstein - Campus Lübeck
IRELAND
County Dublin
DUBLIN
National Paediatric Nephrology and Transplant Service
Children's Health Ireland @ Temple Street
ITALY
LAZIO
ROMA
Centre of Expertise for rare pediatric addominal surgical diseases
IRCCS Ospedale Pediatrico Bambino Gesù - SEDE GIANICOLO
ITALY
LAZIO
ROMA
Specialised Clinic for rare disorders potentially indicated for transplant
IRCCS Ospedale Pediatrico Bambino Gesù - SEDE GIANICOLO
ITALY
LIGURIA
GENOVA
Centre of Expertise for rare pediatric abdominal surgical diseases
IRCCS Istituto G. Gaslini - Ospedale Pediatrico
ITALY
LOMBARDIA
MILANO
Centre of Expertise for rare pediatric abdominal surgical diseases
IRCCS Ca' Granda Ospedale Maggiore Policlinico - Padiglione De Marchi
ITALY
VENETO
PADOVA
Centre of Expertise for pediatric surgically congenital malformative pathologies
Azienda Ospedaliera di Padova
ITALY
VENETO
PADOVA
Centre of expertise for rare gastrointestinal surgical diseases
Azienda Ospedaliera di Padova
RUSSIAN FEDERATION
RUSSIAN FEDERATION
MOSCOW
Loginov Moscow Clinical Scientific Center
Loginov Moscow Clinical Scientific Center
SWEDEN
Region Stockholm
SOLNA
Expert team for paediatric kidney transplant ERN Transplant-Child
Karolinska Universitetssjukhuset
SWITZERLAND
Suisse Alémanique
AARAU
Center for Rare Diseases (CRD) Kantonsspital Aarau AG
Kantonsspital Aarau
SWITZERLAND
Suisse Alémanique
BASEL
Pediatric surgery clinic
Universitäts-Kinderspital beider Basel UKBB
SWITZERLAND
Suisse Alémanique
BASEL
The Basel University Centre for Rare and Undiagnosed Diseases
Universitätsspital Basel
SWITZERLAND
Suisse Alémanique
BERN
Centre for Rare Diseases Inselspital
Universitätsspital Inselspital
SWITZERLAND
Suisse Alémanique
LUZERN
Centre for rare diseases, LUKS
Luzerner Kantonsspital / Kinderspital Luzern
SWITZERLAND
Suisse Alémanique
ST. GALLEN
Centre for Rare Diseases of Eastern Switzerland
Kantonsspital St. Gallen
SWITZERLAND
Suisse Italienne
BELLINZONA
Center for Rare Diseases of Southern Switzerland
Ospedale Regionale di Bellinzona e Valli - San Giovanni
SWITZERLAND
Suisse Romande
LAUSANNE
Center for rare diseases Lausanne University Hospital
Hôpital Nestlé - CHUV
CANADA
Ontario
MISSISSAUGA
Clinical Genetics, Credit Valley Site, Trillium Health Partners
Genetics Clinic, Credit Valley Hospital
CANADA
Ontario
TORONTO
The Prenatal Diagnosis and Medical Genetics Program, Mount Sinai Hospital
Mount Sinai Hospital
CANADA
Ontario
TORONTO
Clinical and Metabolic Genetics Division
The Hospital for Sick Children and University of Toronto
CANADA
Québec
MONTRÉAL
Medical genetics pediatric clinic
Glen / McGill Univeristy Health Centre - Centre Universitaire de santé McGill
CANADA
Québec
MONTRÉAL
Medical genetics adult clinic
Glen / McGill Univeristy Health Centre - Centre Universitaire de santé McGill
ESTONIA
Tartu
TARTU
Multidisciplinary expert team / Competence Centre for Rare Diseases
Competence Centre for Rare Diseases - Tartu University Hospital
FINLAND
Finland
HELSINKI
Expert Center on Transplantation in Children
HUS - Helsinki University Hospital
ITALY
LAZIO
ROMA
Centre of Expertise for rare genetic diseases
IRCCS Ospedale Pediatrico Bambino Gesù - SEDE GIANICOLO
ITALY
SICILIA
CATANIA
Centre of Expertise for rare genetic disorders
Azienda Ospedaliero Universitaria Policlinico "G.Rodolico - San Marco"
ITALY
VENETO
VERONA
Centre of Expertise for cystic fibrosis and rare pulmonary diseases
Azienda Ospedaliera Universitaria Integrata di Verona - Ospedale Borgo Trento
PORTUGAL
NORTE
VILA REAL
Genetic counselling clinic
Centro Hospitalar de Trás-os-Montes e Alto Douro, EPE
ROMANIA
TIMIS
TIMISOARA
Centrul Regional de Genetica Medicala Timis
University Medecine-Pharmacie "Victor Babes"- Pediatric Hospital "Louis Turcanu"
RUSSIAN FEDERATION
RUSSIAN FEDERATION
MOSCOW
The Research Centre for Medical Genetics
The Research Centre for Medical Genetics
RUSSIAN FEDERATION
RUSSIAN FEDERATION
MOSCOW
Veltischev Research and Clinical Institute for Pediatrics
Veltischev Research and Clinical Institute for Pediatrics
RUSSIAN FEDERATION
RUSSIAN FEDERATION
SAINT-PETERSBURG
St. Petersburg State Pediatric Medical University
St. Petersburg State Pediatric Medical University
RUSSIAN FEDERATION
RUSSIAN FEDERATION
TAMBOV
Tambov regional childrens clinical hospital
Tambov Regional Children's Hospital clinical hospital
RUSSIAN FEDERATION
RUSSIAN FEDERATION
TYUMEN
«Perinatal Medical Center» (Tyumen)
«Perinatal Medical Center» (Tyumen)
RUSSIAN FEDERATION
RUSSIAN FEDERATION
VLADIKAVKAZ
Children's Clinical Hospital, medical and Genetic consultation
Children's Clinical Hospital, medical and Genetic consultation
SWEDEN
Region Skåne
LUND
Clinical Genetics - Skåne University Hospital
Skånes Universitetssjukhus -Klinisk Genetik
SWITZERLAND
Suisse Italienne
VIGANELLO