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: Designated centre of expertise = Member of a ERN =

ANTWERPEN
ANTWERPEN-EDEGEM
Multidisciplinary expert team/Centre for Rare Diseases University Hospital of Antwerp
University Hospital of Antwerp - UZA

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
Multidisciplinary expert team/Centre for rare diseases Saint-Luc University Hospital
Cliniques universitaires Saint-Luc - UCLouvain

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
Multidisciplinary expert team/Centre for rare diseases Erasme University Hospital
Erasme Hospital - ULB

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
Multidisciplinary expert team/Centre for Rare Diseases University Hospital of Brussels
Universitair Ziekenhuis Brussel

LIEGE
LIEGE
Multidisciplinary expert team/Centre for rare diseases CHU Liège
CHU Sart Tilman - Liège

OOST-VLAANDEREN
GENT
Multidisciplinary expert team/Centre for Rare Diseases University Hospital of Ghent
Ghent University Hospital - UZ Gent

VLAAMS BRABANT
LEUVEN
Multidisciplinary expert team/Centre for Rare Diseases University Hospital of Leuven
UZ Leuven - Campus Gasthuisberg

Bayern
MÜNCHEN
Visceral and thorax surgery clinic
Kinderklinik und Kinderpoliklinik im Dr. von Haunerschen Kinderspital

LAZIO
ROMA
Centre of Expertise for rare pediatric addominal surgical diseases
IRCCS Ospedale Pediatrico Bambino Gesù - SEDE GIANICOLO

LIGURIA
GENOVA
Centre of Expertise for rare pediatric abdominal surgical diseases
IRCCS Istituto G. Gaslini - Ospedale Pediatrico

LOMBARDIA
MILANO
Centre of Expertise for rare pediatric abdominal surgical diseases
IRCCS Ca' Granda - Ospedale Maggiore Policlinico - Clinica Pediatrica De Marchi

VENETO
PADOVA
Centre of Expertise for pediatric surgically congenital malformative pathologies
Azienda Ospedaliera di Padova

VENETO
PADOVA
Centre of expertise for rare gastrointestinal surgical diseases
Azienda Ospedaliera di Padova

Suisse Alémanique
BASEL
The Basel University Centre for Rare and Undiagnosed Diseases
Universitätsspital Basel

Suisse Alémanique
BERN
Centre for Rare Diseases Inselspital
Universitätsspital Inselspital

Suisse Alémanique
ST. GALLEN
Centre for Rare Diseases of Eastern Switzerland
Kantonsspital St. Gallen

Suisse Romande
LAUSANNE
Center for rare diseases Lausanne University Hospital
Hôpital Nestlé - CHUV

OBERÖSTERREICH
LINZ
Pediatric Colorectal Center Linz (Associated National Center in the European Reference Network ERNICA)
Kepler Universitätsklinikum - Med Campus IV.

STEIERMARK
GRAZ
Center for inborn intestinal malformations (Associated National Center in the European Reference Network ERNICA)
Medizinische Universität Graz

WIEN
WIEN
Center for Rare Colorectal Diseases, Incontinence, and Diseases of the Pelvic Floor (Associated National Center in the European Reference Network ERNICA)
Allgemeines Krankenhaus der Stadt Wien

WIEN
WIEN
Pediatric gastroenterology clinic (Associated National Center in the European Reference Network ERNICA)
Sozialmedizinisches Zentrum Ost - Donauspital

Fyn
ODENSE
Centre for treatment of congenital malformations in the gastrointestinal tract
Odense University hospital

AUVERGNE-RHONE-ALPES
BRON
Reference centre for developmental anomalies and malformation syndromes Sud-Est - Coordinator site
CHU de Lyon HCL - GH Est-Hôpital Femme Mère Enfant

AUVERGNE-RHONE-ALPES
CLERMONT-FERRAND
Reference centre for developmental anomalies and malformation syndromes Sud-Est - Constitutive site
CHU de Clermont-Ferrand - Hôpital d'Estaing

AUVERGNE-RHONE-ALPES
GRENOBLE
Reference centre for developmental anomalies and malformation syndromes Sud-Est - Constitutive site
CHU de Grenoble site Nord - Hôpital Couple-Enfant

AUVERGNE-RHONE-ALPES
SAINT-PRIEST-EN-JAREZ
Reference centre for developmental anomalies and malformation syndromes Sud-Est - Competence centre
CHU de Saint-Etienne - Hôpital Nord

BOURGOGNE-FRANCHE-COMTE
DIJON
Reference centre for developmental anomalies and malformation syndromes Est - Coordinator site
CHU Dijon Bourgogne - Hôpital François Mitterrand

BRETAGNE
BREST
Reference centre for developmental anomalies and malformation syndromes Ouest- Competence centre
CHRU de Brest - Hôpital Morvan

BRETAGNE
VANNES
Reference centre for developmental anomalies and malformation syndromes Ouest- Competence centre
CHBA Centre hospitalier Bretagne Atlantique - CH Chubert

CENTRE-VAL DE LOIRE
TOURS
Reference centre for developmental anomalies and malformation syndromes Ouest - Constitutive site
CHRU de Tours - Hôpital Bretonneau

GRAND-EST
REIMS
Reference centre for developmental anomalies and malformation syndromes Est - Constitutive site
CHU de Reims - Hôpital Maison Blanche

GRAND-EST
STRASBOURG
Reference centre for developmental anomalies and malformation syndromes Est - Constitutive site
CHU de Strasbourg - Hôpital de Hautepierre

GRAND-EST
VANDOEUVRE-LÈS-NANCY
Reference centre for developmental anomalies and malformation syndromes Est - Constitutive site
CHU de Nancy - Hôpitaux de Brabois

HAUTS-DE-FRANCE
AMIENS
Reference centre for developmental anomalies and malformation syndromes Nord-Ouest - Constitutive site
CHU Amiens-Picardie - Site Sud

HAUTS-DE-FRANCE
LILLE
Reference centre for developmental anomalies and malformation syndromes Nord-Ouest - Coordinator site
CHU de Lille - Centre de Biologie Pathologie Génétique

ILE-DE-FRANCE
CRÉTEIL
Reference centre for developmental anomalies and malformation syndromes IDF - Competence centre
Centre Hospitalier Intercommunal de Créteil

ILE-DE-FRANCE
PARIS
Reference centre for developmental anomalies and malformation syndromes IDF - Constitutive site
APHP.Sorbonne Université, Hôpital de la Pitié-Salpêtrière

ILE-DE-FRANCE
PARIS
Reference centre for developmental anomalies and malformation syndromes IDF - Coordinator site
CHU Paris - Hôpital Robert Debré

ILE-DE-FRANCE
PARIS
Reference centre for developmental anomalies and malformation syndromes IDF - Competence centre
CHU Paris Est - Hôpital d'Enfants Armand-Trousseau

ILE-DE-FRANCE
PARIS
Reference centre for developmental anomalies and malformation syndromes IDF - Constitutive site
Hôpital Necker-Enfants Malades

ILE-DE-FRANCE
POISSY
Reference centre for developmental anomalies and malformation syndromes IDF - Constitutive site
Centre hospitalier intercommunal Poissy-Saint-Germain-en-Laye

NOUVELLE AQUITAINE
BORDEAUX
Reference centre for developmental anomalies and malformation syndromes Sud-Ouest Occitanie Réunion - Coordinator site
CHU de Bordeaux-GH Pellegrin

NOUVELLE AQUITAINE
POITIERS
Reference centre for developmental anomalies and malformation syndromes Sud-Ouest Occitanie Réunion- Competence centre
CHU de Poitiers

OCCITANIE
MONTPELLIER
Reference centre for developmental anomalies and malformation syndromes Sud-Ouest Occitanie Réunion - Constitutive site
CHU de Montpellier - Hôpital Arnaud de Villeneuve

OCCITANIE
TOULOUSE
Reference centre for developmental anomalies and malformation syndromes Sud-Ouest Occitanie Réunion- Competence centre
CHU de Toulouse - Hôpital Purpan

OUTRE-MER
FORT DE FRANCE
Reference centre for developmental anomalies and malformation syndromes Sud-Ouest Occitanie Réunion- Competence centre
CHU de Martinique - Hôpital P. Zobda-Quitman

OUTRE-MER
POINTE À PITRE
Reference centre for developmental anomalies and malformation syndromes IDF - Competence centre
CHU de la Guadeloupe

OUTRE-MER
SAINT-DENIS
Reference centre for developmental anomalies and malformation syndromes Sud-Ouest Occitanie Réunion - Constitutive site
CHU de la Réunion - Hôpital Félix Guyon

PAYS DE LA LOIRE
ANGERS
Reference centre for developmental anomalies and malformation syndromes Ouest - Constitutive site
CHU d'Angers

PAYS DE LA LOIRE
LE MANS
Reference centre for developmental anomalies and malformation syndromes Ouest- Competence centre
Centre Hospitalier Le Mans

PAYS DE LA LOIRE
NANTES
Reference centre for developmental anomalies and malformation syndromes Ouest - Constitutive site
CHU de Nantes - Hôtel Dieu

PROVENCE-ALPES-COTE D'AZUR
MARSEILLE
Reference centre for developmental anomalies and malformation syndromes Sud-Est - Constitutive site
CHU de Marseille - Hôpital de la Timone

PROVENCE-ALPES-COTE D'AZUR
NICE
Reference centre for developmental anomalies and malformation syndromes Sud-Est - Competence centre
CHU de Nice - Hôpital l'Archet 2

Berlin
BERLIN
Retroperitoneal fibrosis (Ormond disease) clinic
Charité - Universitätsmedizin Berlin (CBF)

Berlin
BERLIN
Digestive tract and diaphragmatic or abdominal wall malformations clinic
Charité - Universitätsmedizin Berlin (CVK)

Hamburg
HAMBURG
Congenital digestive tract malformations clinic
AKK Altonaer Kinderkrankenhaus gGmbH

Hessen
FRANKFURT AM MAIN
Congenital gastrointestinal malformations clinic
Klinikum der Johann Wolfgang Goethe-Universität Frankfurt

Nordrhein-Westfalen
BOCHUM
Gastroenterology clinic
Universitäts-Kinderklinik am St. Josef-Hospital

Nordrhein-Westfalen
WUPPERTAL
Retroperitoneal fibrosis (Ormond disease) clinic
HELIOS Universitätsklinikum Wuppertal - Universität Witten/Herdecke

Sachsen
DRESDEN
Diaphragmatic or abdominal wall malformations clinic
Universitätsklinikum Carl Gustav Carus an der TU Dresden

LOMBARDIA
MILANO
Expert center for rare autoimmune diseases
Azienda Ospedaliera San Carlo Borromeo

PIEMONTE
NOVARA
Centre of Expertise for retroperitoneal fibrosis
Azienda Ospedaliero-Universitaria Maggiore della Carità

TOSCANA
PISA
Centre of Expertise for rare renal diseases
Azienda Ospedaliero Universitaria Pisana - Ospedale Cisanello

VENETO
TREVISO
Centre of Expertise for digestive tract malformations
Azienda ULSS 9 - Ospedale di Treviso

Gelderland
NIJMEGEN
Radboudumc Pediatric Center for Congenital Malformations of the Intestinal Tract
Radboudumc - Radboud universitair medisch centrum

Zuid-Holland
DORDRECHT
Centre of Expertise Retroperitoneal Fibrosis
Albert Schweitzer Ziekenhuis, locatie Dordwijk

Østlandet
OSLO
SSD - Resource Centre for Rare Disorders
Oslo Universitetssykehus HF, Rikshospitalet

Region Stockholm
STOCKHOLM
Expert team for rare gastrointestinal diseases
Karolinska Universitetssjukhuset - Solna

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
Center for rare liver diseases in children - UCL Saint Luc
Cliniques universitaires Saint-Luc - UCLouvain

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
Center of Hepatology and Pediatric Liver Transplantation - UCL Saint Luc
Cliniques universitaires Saint-Luc - UCLouvain

AUVERGNE-RHONE-ALPES
BRON
Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre
CHU de Lyon HCL - GH Est-Hôpital Femme Mère Enfant

AUVERGNE-RHONE-ALPES
BRON
Reference centre for biliary atresia and cholestasis - Constitutive site
CHU de Lyon HCL - GH Est-Hôpital Femme Mère Enfant

AUVERGNE-RHONE-ALPES
GRENOBLE
Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre
CHU Grenoble Alpes - Site Nord - Hôpital Couple Enfant

AUVERGNE-RHONE-ALPES
GRENOBLE
Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre
CHU de Grenoble site Nord - Hôpital Couple-Enfant

AUVERGNE-RHONE-ALPES
SAINT-PRIEST-EN-JAREZ
Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre
CHU de Saint-Etienne - Hôpital Nord

BOURGOGNE-FRANCHE-COMTE
BESANÇON
Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre
CHRU de Besançon - Hôpital Jean Minjoz

BOURGOGNE-FRANCHE-COMTE
DIJON
Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre
CHU Dijon Bourgogne - Hôpital d'Enfants

BRETAGNE
BREST
Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre
CHRU de Brest - Hôpital Morvan

BRETAGNE
RENNES
Reference centre for biliary atresia and cholestasis - Competence centre
CHU de Rennes - Hôpital Sud

BRETAGNE
RENNES
Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre
CHU de Rennes - Hôpital Sud

CENTRE-VAL DE LOIRE
ORLEANS
Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre
CHR d'Orléans - Site La Source

GRAND-EST
COLMAR
Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre
Hôpital Pasteur - Hôpitaux civils de Colmar

GRAND-EST
REIMS
Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre
CHU de Reims - American Memorial Hospital

GRAND-EST
VANDOEUVRE-LÈS-NANCY
Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre
CHU de Nancy - Hôpitaux de Brabois

HAUTS-DE-FRANCE
AMIENS
Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre
CHU Amiens-Picardie - Site Sud

HAUTS-DE-FRANCE
LILLE
Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre
CHRU de Lille - Hôpital Jeanne de Flandre

HAUTS-DE-FRANCE
LILLE
Reference centre for biliary atresia and cholestasis - Competence centre
CHRU de Lille - Hôpital Jeanne de Flandre

ILE-DE-FRANCE
BOULOGNE-BILLANCOURT
Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre
CHU Paris IdF Ouest - Hôpital Ambroise Paré

ILE-DE-FRANCE
CLICHY
Reference centre for biliary atresia and cholestasis - Competence centre
CHU Paris Nord-Val de Seine - Hôpital Beaujon

ILE-DE-FRANCE
LE KREMLIN-BICÊTRE
Reference centre for biliary atresia and cholestasis - Coordinator site
CHU Paris-Sud - Hôpital de Bicêtre

ILE-DE-FRANCE
LE KREMLIN-BICÊTRE
Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre
CHU Paris-Sud - Hôpital de Bicêtre

ILE-DE-FRANCE
PARIS
Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre
CHU Paris - Hôpital Robert Debré

ILE-DE-FRANCE
PARIS
Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre
CHU Paris Est - Hôpital d'Enfants Armand-Trousseau

ILE-DE-FRANCE
PARIS
Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre
Groupe Hospitalier Paris Saint-Joseph

ILE-DE-FRANCE
PARIS
Reference centre for rare anorectal and pelvic malformations (MAREP) - Coordinator site
Hôpital Necker-Enfants Malades

ILE-DE-FRANCE
PARIS
Reference centre for biliary atresia and cholestasis - Constitutive site
Hôpital Necker-Enfants Malades

ILE-DE-FRANCE
VILLEJUIF
Reference centre for biliary atresia and cholestasis - Competence centre
GHU Paris-Sud - Hôpital Paul Brousse

NORMANDIE
CAEN
Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre
CHU de Caen - Hôpital de la Côte de Nacre

NORMANDIE
ROUEN
Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre
CHU de Rouen

NOUVELLE AQUITAINE
LIMOGES
Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre
CHU de Limoges - Hôpital de la mère et de l'enfant

NOUVELLE AQUITAINE
LIMOGES
Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre
CHU de Limoges - Hôpital de la mère et de l'enfant

NOUVELLE AQUITAINE
POITIERS
Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre
CHU de Poitiers

OCCITANIE
MONTPELLIER
Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre
CHU de Montpellier - Hôpital Arnaud de Villeneuve

OCCITANIE
TOULOUSE
Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre
CHU de Toulouse - Hôpital des Enfants

OCCITANIE
TOULOUSE
Reference centre for biliary atresia and cholestasis - Competence centre
CHU de Toulouse - Hôpital des Enfants

OUTRE-MER
FORT DE FRANCE
Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre
CHU de Martinique - Maison de la Femme, de la Mère et de l'Enfant

OUTRE-MER
SAINT-DENIS
Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre
CHU de la Réunion - Hôpital Félix Guyon

PAYS DE LA LOIRE
ANGERS
Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre
CHU d'Angers

PAYS DE LA LOIRE
LE MANS
Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre
Centre Hospitalier Le Mans

PAYS DE LA LOIRE
NANTES
Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre
CHU de Nantes - Hôpital mère-enfant

PAYS DE LA LOIRE
NANTES
Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre
CHU de Nantes - Hôtel Dieu

PROVENCE-ALPES-COTE D'AZUR
MARSEILLE
Reference centre for biliary atresia and cholestasis - Competence centre
CHU de Marseille - Hôpital de la Timone

PROVENCE-ALPES-COTE D'AZUR
MARSEILLE
Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre
CHU de Marseille - Hôpital de la Timone

PROVENCE-ALPES-COTE D'AZUR
NICE
Reference centre for rare anorectal and pelvic malformations (MAREP) - Competence centre
Hôpitaux Pédiatriques de Nice CHU - Lenval

Baden-Württemberg
HEIDELBERG
Hereditary intestinal malformations clinic
Zentrum für Kinder- und Jugendmedizin - Angelika-Lautenschläger-Klinik

Baden-Württemberg
TÜBINGEN
Hepatology clinic
Behandlungs- und Forschungszentrum für Seltene Erkrankungen ZSE Tübingen

Berlin
BERLIN
Anorectal congenital malformations clinic
Charité - Universitätsmedizin Berlin (CVK)

Sachsen-Anhalt
HALLE (SAALE)
Abdominal wall malformations clinic
Universitätsklinikum Halle (Saale)

LAZIO
ROMA
Centre of Expertise for surgically congenital malformative pathologies associated to intrauterine diagnosis
Azienda Ospedaliera S. Camillo-Forlanini - Ospedale San Camillo

LIGURIA
GENOVA
Centre of Expertise for rare pediatric gastro-intestinal and hepatic diseases
IRCCS Istituto G. Gaslini - Ospedale Pediatrico

PIEMONTE
ALESSANDRIA
Specialised Clinic for rare gastro-intestinal diseases
Azienda Ospedaliera Nazionale SS.Antonio e Biagio e Cesare Arrigo

Groningen
GRONINGEN
Paediatric Colorectal Expertise Center Groningen
UMCG - Universitair Medisch Centrum Groningen

Noord-Holland
AMSTERDAM
Amsterdam Centre of Congenital Malformations - Collaboration of Amsterdam UMC, locations AMC & VUmc
Amsterdam UMC, locatie AMC

Utrecht
UTRECHT
Center for Congenital Malformations
UMC Utrecht - Universitair Medisch Centrum Utrecht

Zuid-Holland
ROTTERDAM
Pediatric Surgical Centre for Anatomical Congenital Malformations
Erasmus MC - Erasmus Medisch Centrum

Andalucía
MÁLAGA
Metabolic disorders clinic
Hospital Regional Universitario de Málaga - Hospital Materno-Infantil

Madrid
MADRID
Rare genetic cardiac diseases clinic
Hospital Universitario Fundación Jiménez Díaz

Region Stockholm
STOCKHOLM
Expert team for combined anorectal and urologic malformations
Karolinska Universitetssjukhuset - Solna

Region Stockholm
STOCKHOLM
Expert team for cholestasis in infants
Karolinska Universitetssjukhuset - Solna

SALZBURG
SALZBURG
Outpatient clinic for pediatric surgery and pediatric urology
Universitätsklinikum der Paracelsus Medizinischen Privatuniversität

STEIERMARK
GRAZ
Outpatient clinic for gastrointestinal functional diagnostics
Medizinische Universität Graz

STEIERMARK
GRAZ
Outpatient clinic for urologic functional diagnostics
Medizinische Universität Graz

VLAAMS BRABANT
LEUVEN
Reference centre for rare hepatological diseases - UZ Leuven
UZ Leuven - Campus Gasthuisberg

AUVERGNE-RHONE-ALPES
BRON
Reference centre for disorders of sex development - Coordinator site
CHU de Lyon HCL - GH Est-Hôpital Femme Mère Enfant

AUVERGNE-RHONE-ALPES
BRON
Reference centre for diaphragmatic hernia - Competence centre
CHU de Lyon HCL - GH Est-Hôpital Femme Mère Enfant

AUVERGNE-RHONE-ALPES
CLERMONT-FERRAND
Reference centre for disorders of sex development - Competence centre
CHU de Clermont-Ferrand - Hôpital Gabriel Montpied

AUVERGNE-RHONE-ALPES
CLERMONT-FERRAND
Reference centre for diaphragmatic hernia - Competence centre
CHU de Clermont-Ferrand - Hôpital d'Estaing

AUVERGNE-RHONE-ALPES
CLERMONT-FERRAND
Reference centre for inflammatory diseases of the biliary tract and autoimmune hepatitis - Competence centre
CHU de Clermont-Ferrand - Hôpital d'Estaing

AUVERGNE-RHONE-ALPES
GRENOBLE
Reference centre for inflammatory diseases of the biliary tract and autoimmune hepatitis - Constitutive site
CHU Grenoble Alpes - Site Nord - Hôpital Couple Enfant

AUVERGNE-RHONE-ALPES
GRENOBLE
Reference centre for disorders of sex development - Competence centre
CHU Grenoble Alpes - Site Nord - Hôpital Couple Enfant

AUVERGNE-RHONE-ALPES
GRENOBLE
Reference centre for diaphragmatic hernia - Competence centre
CHU de Grenoble site Nord - Hôpital Couple-Enfant

AUVERGNE-RHONE-ALPES
LYON
Reference centre for inflammatory diseases of the biliary tract and autoimmune hepatitis - Competence centre
CHU de Lyon HCL - GH Nord-Hôpital de la Croix Rousse

AUVERGNE-RHONE-ALPES
SAINT-PRIEST-EN-JAREZ
Reference centre for disorders of sex development - Competence centre
CHU de Saint-Etienne - Hôpital Nord

AUVERGNE-RHONE-ALPES
SAINT-PRIEST-EN-JAREZ
Reference centre for diaphragmatic hernia - Competence centre
CHU de Saint-Etienne - Hôpital Nord

BOURGOGNE-FRANCHE-COMTE
BESANÇON
Reference centre for disorders of sex development - Competence centre
CHRU de Besançon - Hôpital Jean Minjoz

BOURGOGNE-FRANCHE-COMTE
BESANÇON
Reference centre for inflammatory diseases of the biliary tract and autoimmune hepatitis - Competence centre
CHRU de Besançon - Hôpital Jean Minjoz

BOURGOGNE-FRANCHE-COMTE
BESANÇON
Reference centre for diaphragmatic hernia - Competence centre
CHRU de Besançon - Hôpital Jean Minjoz

BOURGOGNE-FRANCHE-COMTE
DIJON
Reference centre for inflammatory diseases of the biliary tract and autoimmune hepatitis - Competence centre
CHU Dijon Bourgogne - Hôpital François Mitterrand

BOURGOGNE-FRANCHE-COMTE
DIJON
Reference centre for diaphragmatic hernia - Competence centre
CHU Dijon Bourgogne - Hôpital d'Enfants

BOURGOGNE-FRANCHE-COMTE
DIJON
Reference centre for disorders of sex development - Competence centre
CHU Dijon Bourgogne - Hôpital d'Enfants

BRETAGNE
BREST
Reference centre for diaphragmatic hernia - Competence centre
CHRU de Brest - Hôpital Morvan

BRETAGNE
BREST
Reference centre for inflammatory diseases of the biliary tract and autoimmune hepatitis - Competence centre
CHU de Brest - Hôpital de la Cavale Blanche

BRETAGNE
BREST
Reference centre for disorders of sex development - Competence centre
CHU de Brest - Hôpital de la Cavale Blanche

BRETAGNE
RENNES
Reference centre for inflammatory diseases of the biliary tract and autoimmune hepatitis - Competence centre
CHU de Rennes - Hôpital Pontchaillou

BRETAGNE
RENNES
Reference centre for disorders of sex development - Competence centre
CHU de Rennes - Hôpital Sud

BRETAGNE
RENNES
Reference centre for diaphragmatic hernia - Competence centre
CHU de Rennes - Hôpital Sud

CENTRE-VAL DE LOIRE
ORLEANS
Reference centre for inflammatory diseases of the biliary tract and autoimmune hepatitis - Competence centre
CHR d'Orléans - Site La Source

CENTRE-VAL DE LOIRE
TOURS
Reference centre for disorders of sex development - Competence centre
CHRU de Tours - Hôpital Bretonneau

CENTRE-VAL DE LOIRE
TOURS
Reference centre for diaphragmatic hernia - Competence centre
CHRU de Tours - Hôpital Clocheville

CENTRE-VAL DE LOIRE
TOURS
Reference centre for inflammatory diseases of the biliary tract and autoimmune hepatitis - Competence centre
CHRU de Tours - Hôpital Trousseau

GRAND-EST
REIMS
Reference centre for diaphragmatic hernia - Competence centre
CHU de Reims - American Memorial Hospital

GRAND-EST
REIMS
Reference centre for inflammatory diseases of the biliary tract and autoimmune hepatitis - Competence centre
CHU de Reims - Hôpital Robert Debré

GRAND-EST
REIMS
Reference centre for disorders of sex development - Competence centre
CHU de Reims - Hôpital Robert Debré

GRAND-EST
STRASBOURG
Reference centre for inflammatory diseases of the biliary tract and autoimmune hepatitis - Competence centre
CHU de Strasbourg - Hôpital Civil

GRAND-EST
STRASBOURG
Reference centre for disorders of sex development - Competence centre
CHU de Strasbourg - Hôpital de Hautepierre

GRAND-EST
STRASBOURG
Reference centre for diaphragmatic hernia - Competence centre
CHU de Strasbourg - Hôpital de Hautepierre

GRAND-EST
VANDOEUVRE-LÈS-NANCY
Reference centre for diaphragmatic hernia - Competence centre
CHU de Nancy - Hôpitaux de Brabois

GRAND-EST
VANDOEUVRE-LÈS-NANCY
Reference centre for inflammatory diseases of the biliary tract and autoimmune hepatitis - Competence centre
CHU de Nancy - Hôpitaux de Brabois

HAUTS-DE-FRANCE
AMIENS
Reference centre for diaphragmatic hernia - Competence centre
CHU Amiens-Picardie - Site Sud

HAUTS-DE-FRANCE
AMIENS
Reference centre for disorders of sex development - Competence centre
CHU Amiens-Picardie - Site Sud

HAUTS-DE-FRANCE
AMIENS
Reference centre for inflammatory diseases of the biliary tract and autoimmune hepatitis - Competence centre
CHU d'Amiens - Hôpital Nord

HAUTS-DE-FRANCE
LILLE
Reference centre for inflammatory diseases of the biliary tract and autoimmune hepatitis - Constitutive site
CHRU de Lille - Hôpital Claude Huriez

HAUTS-DE-FRANCE
LILLE
Reference centre for disorders of sex development - Constitutive site
CHRU de Lille - Hôpital Jeanne de Flandre

HAUTS-DE-FRANCE
LILLE
Reference centre for diaphragmatic hernia - Coordinator site
CHRU de Lille - Hôpital Jeanne de Flandre

ILE-DE-FRANCE
BONDY
Reference centre for inflammatory diseases of the biliary tract and autoimmune hepatitis - Competence centre
CHU Paris Seine-Saint-Denis - Hôpital Jean Verdier

ILE-DE-FRANCE
CLAMART
Reference centre for diaphragmatic hernia - Constitutive site
Hôpital Antoine Béclère

ILE-DE-FRANCE
CLICHY
Reference centre for inflammatory diseases of the biliary tract and autoimmune hepatitis - Competence centre
CHU Paris Nord-Val de Seine - Hôpital Beaujon

ILE-DE-FRANCE
CRÉTEIL
Reference centre for inflammatory diseases of the biliary tract and autoimmune hepatitis - Competence centre
CHU Henri Mondor

ILE-DE-FRANCE
LE KREMLIN-BICÊTRE
Reference centre for disorders of sex development - Constitutive site
Hôpital Bicêtre, GHU APHP. Université Paris Saclay

ILE-DE-FRANCE
PARIS
Reference centre for inflammatory diseases of the biliary tract and autoimmune hepatitis - Competence centre
APHP.Sorbonne Université, Hôpital de la Pitié-Salpêtrière

ILE-DE-FRANCE
PARIS
Reference centre for diaphragmatic hernia - Competence centre
CHU Paris - Hôpital Robert Debré

ILE-DE-FRANCE
PARIS
Reference centre for inflammatory diseases of the biliary tract and autoimmune hepatitis - Competence centre
CHU Paris Centre - Hôpital Cochin, Site Cochin

ILE-DE-FRANCE
PARIS
Reference centre for disorders of sex development - Competence centre
CHU Paris Centre - Hôpital Cochin, Site Cochin

ILE-DE-FRANCE
PARIS
Reference centre for inflammatory diseases of the biliary tract and autoimmune hepatitis - Coordinator site
CHU Paris Est - Hôpital Saint-Antoine

ILE-DE-FRANCE
PARIS
Reference centre for diaphragmatic hernia - Competence centre
CHU Paris Est - Hôpital d'Enfants Armand-Trousseau

ILE-DE-FRANCE
PARIS
Reference centre for diaphragmatic hernia - Competence centre
Hôpital Necker-Enfants Malades

ILE-DE-FRANCE
PARIS
Reference centre for inflammatory diseases of the biliary tract and autoimmune hepatitis - Competence centre
Hôpital Necker-Enfants Malades

NORMANDIE
CAEN
Reference centre for inflammatory diseases of the biliary tract and autoimmune hepatitis - Competence centre
CHU de Caen - Hôpital de la Côte de Nacre

NORMANDIE
CAEN
Reference centre for diaphragmatic hernia - Competence centre
CHU de Caen - Hôpital de la Côte de Nacre

NORMANDIE
CAEN
Reference centre for disorders of sex development - Competence centre
CHU de Caen - Hôpital de la Côte de Nacre

NORMANDIE
ROUEN

NORMANDIE
ROUEN

NORMANDIE
ROUEN
Reference centre for inflammatory diseases of the biliary tract and autoimmune hepatitis - Competence centre
CHU de Rouen

NOUVELLE AQUITAINE
BORDEAUX
Reference centre for disorders of sex development - Competence centre
CHU de Bordeaux-GH Pellegrin

NOUVELLE AQUITAINE
BORDEAUX
Reference centre for diaphragmatic hernia - Competence centre
CHU de Bordeaux-GH Pellegrin

NOUVELLE AQUITAINE
LIMOGES
Reference centre for inflammatory diseases of the biliary tract and autoimmune hepatitis - Competence centre
CHU de Limoges - Hôpital Dupuytren

NOUVELLE AQUITAINE
LIMOGES
Reference centre for disorders of sex development - Competence centre
CHU de Limoges - Hôpital de la mère et de l'enfant

NOUVELLE AQUITAINE
LIMOGES
Reference centre for diaphragmatic hernia - Competence centre
CHU de Limoges - Hôpital de la mère et de l'enfant

NOUVELLE AQUITAINE
PESSAC
Reference centre for inflammatory diseases of the biliary tract and autoimmune hepatitis - Competence centre
CHU de Bordeaux-GH Sud - Hôpital Haut-Lévêque

NOUVELLE AQUITAINE
POITIERS
Reference centre for diaphragmatic hernia - Competence centre
CHU de Poitiers

NOUVELLE AQUITAINE
POITIERS
Reference centre for inflammatory diseases of the biliary tract and autoimmune hepatitis - Competence centre
CHU de Poitiers

OCCITANIE
MONTPELLIER
Reference centre for disorders of sex development - Constitutive site
CHU de Montpellier - Hôpital Arnaud de Villeneuve

OCCITANIE
MONTPELLIER
Reference centre for diaphragmatic hernia - Competence centre
CHU de Montpellier - Hôpital Arnaud de Villeneuve

OCCITANIE
MONTPELLIER
Reference centre for inflammatory diseases of the biliary tract and autoimmune hepatitis - Competence centre
CHU de Montpellier - Hôpital Saint-Eloi

OCCITANIE
TOULOUSE
Reference centre for inflammatory diseases of the biliary tract and autoimmune hepatitis - Competence centre
CHU de Toulouse - Hôpital Purpan

OCCITANIE
TOULOUSE
Reference centre for diaphragmatic hernia - Competence centre
CHU de Toulouse - Hôpital des Enfants

OCCITANIE
TOULOUSE
Reference centre for disorders of sex development - Competence centre
CHU de Toulouse - Hôpital des Enfants

OUTRE-MER
FORT DE FRANCE
Reference centre for diaphragmatic hernia - Competence centre
CHU de Martinique - Maison de la Femme, de la Mère et de l'Enfant

OUTRE-MER
PAPEETE
Reference centre for inflammatory diseases of the biliary tract and autoimmune hepatitis - Competence centre
Centre Hospitalier de la Polynésie française

OUTRE-MER
POINTE À PITRE
Reference centre for inflammatory diseases of the biliary tract and autoimmune hepatitis - Competence centre
CHU de la Guadeloupe

OUTRE-MER
SAINT-DENIS
Reference centre for diaphragmatic hernia - Competence centre
CHU de la Réunion - Hôpital Félix Guyon

OUTRE-MER
SAINT-DENIS
Reference centre for disorders of sex development - Competence centre
CHU de la Réunion - Hôpital Félix Guyon

PAYS DE LA LOIRE
ANGERS

PAYS DE LA LOIRE
ANGERS
Reference centre for inflammatory diseases of the biliary tract and autoimmune hepatitis - Competence centre
CHU d'Angers

PAYS DE LA LOIRE
NANTES
Reference centre for diaphragmatic hernia - Competence centre
CHU de Nantes - Hôpital mère-enfant

PAYS DE LA LOIRE
NANTES
Reference centre for inflammatory diseases of the biliary tract and autoimmune hepatitis - Competence centre
CHU de Nantes - Hôtel Dieu

PROVENCE-ALPES-COTE D'AZUR
MARSEILLE
Reference centre for disorders of sex development - Competence centre
CHU de Marseille - Hôpital de la Conception

PROVENCE-ALPES-COTE D'AZUR
MARSEILLE
Reference centre for diaphragmatic hernia - Constitutive site
CHU de Marseille - Hôpital de la Timone

PROVENCE-ALPES-COTE D'AZUR
MARSEILLE
Reference centre for inflammatory diseases of the biliary tract and autoimmune hepatitis - Competence centre
CHU de Marseille - Hôpital de la Timone

PROVENCE-ALPES-COTE D'AZUR
NICE
Reference centre for inflammatory diseases of the biliary tract and autoimmune hepatitis - Competence centre
CHU de Nice - Hôpital l'Archet 2

PROVENCE-ALPES-COTE D'AZUR
NICE
Reference centre for disorders of sex development - Competence centre
CHU de Nice - Hôpital l'Archet 2

PROVENCE-ALPES-COTE D'AZUR
NICE
Reference centre for diaphragmatic hernia - Competence centre
Hôpitaux Pédiatriques de Nice CHU - Lenval

Baden-Württemberg
ULM
Exstrophy-epispadias complex clinic
Zentrum für Seltene Erkrankungen am Universitätsklinikum Ulm

Bayern
REGENSBURG
Exstrophy-epispadias complex clinic
Krankenhaus Barmherzige Brüder Regensburg - Klinik St. Hedwig

Berlin
BERLIN
Hypospadias and exstrophy-epispadias complex clinic
Charité - Universitätsmedizin Berlin (CVK)

LOMBARDIA
MILANO
Centre of Expertise for congenital diaphragmatic hernia
Ospedale Maggiore Policlinico - Clinica Mangiagalli

PUGLIA
CASTELLANA GROTTE
Centre of Expertise for rare hepatic diseases
IRCCS "Saverio De Bellis"

VENETO
TREVISO
Centre of Expertise for diaphragmatic hernia
Azienda ULSS 9 - Ospedale di Treviso

Gelderland
NIJMEGEN
Radboud Center for Congenital Diaphragmatic Hernia, Neonatal Pulmonary Hypertension and Alveolo-Capillary Dysplasia
Radboudumc - Radboud universitair medisch centrum

Groningen
GRONINGEN
Expertise Center Pediatric Liver Disease, Liver Surgery and Liver Transplantation
UMCG - Universitair Medisch Centrum Groningen

IASI
IASI
Pediatric service : gastroenterology and metabolism
Spitalul Clinic de Urgente pentru Copii Sfanta Maria

Cataluña
BARCELONA
CSUR - National unit of expertise for exstrophy-epispadias complex
Fundació Puigvert

Cataluña
ESPLUGUES DE LLOBREGAT
Congenital diaphragmatic hernia clinic (fetal medicine)
Hospital Sant Joan de Déu Barcelona

Cataluña
ESPLUGUES DE LLOBREGAT
Congenital diaphragmatic hernia clinic (neonatal medicine)
Hospital Sant Joan de Déu Barcelona

Cataluña
ESPLUGUES DE LLOBREGAT
CSUR - National unit of expertise for exstrophy-epispadias complex (pediatric)
Hospital Sant Joan de Déu Barcelona

Madrid
MADRID
CSUR - National unit of expertise for exstrophy-epispadias complex
Hospital Universitario 12 de Octubre

Madrid
MADRID
CSUR - National unit of expertise for exstrophy-epispadias complex (adults)
Hospital Universitario La Paz

Madrid
MADRID
CSUR - National unit of expertise for exstrophy-epispadias complex (pediatric)
Hospital Universitario La Paz

Region Stockholm
STOCKHOLM
Expert team for bladder extrophy and epispadias
Karolinska Universitetssjukhuset - Solna

Suisse Romande
GENÈVE
Outpatient clinic for congenital pulmonary malformations
Hôpital des Enfants - Hôpitaux Universitaires de Genève HUG

Suisse Romande
GENÈVE
Swiss paediatric liver center
Hôpital des Enfants - Hôpitaux Universitaires de Genève HUG

West Yorkshire
LEEDS
Paediatric Liver Disease Treatment NHS Specialised Service
Leeds General Infirmary

AUVERGNE-RHONE-ALPES
BRON
Reference centre for congenital malformations of the esophagus CRACMO - Competence centre
CHU de Lyon HCL - GH Est-Hôpital Femme Mère Enfant

AUVERGNE-RHONE-ALPES
CLERMONT-FERRAND
Reference centre for congenital malformations of the esophagus CRACMO - Competence centre
CHU de Clermont-Ferrand - Hôpital d'Estaing

AUVERGNE-RHONE-ALPES
GRENOBLE
Reference centre for congenital malformations of the esophagus CRACMO - Competence centre
CHU de Grenoble site Nord - Hôpital Couple-Enfant

AUVERGNE-RHONE-ALPES
SAINT-PRIEST-EN-JAREZ
Reference centre for congenital malformations of the esophagus CRACMO - Competence centre
CHU de Saint-Etienne - Hôpital Nord

BOURGOGNE-FRANCHE-COMTE
BESANÇON
Reference centre for congenital malformations of the esophagus CRACMO - Competence centre
CHRU de Besançon - Hôpital Jean Minjoz

BOURGOGNE-FRANCHE-COMTE
DIJON
Reference centre for congenital malformations of the esophagus CRACMO - Competence centre
CHU Dijon Bourgogne - Hôpital d'Enfants

BRETAGNE
BREST
Reference centre for congenital malformations of the esophagus CRACMO - Competence centre
CHRU de Brest - Hôpital Morvan

BRETAGNE
RENNES
Reference centre for congenital malformations of the esophagus CRACMO - Competence centre
CHU de Rennes - Hôpital Sud

CENTRE-VAL DE LOIRE
ORLEANS
Reference centre for congenital malformations of the esophagus CRACMO - Competence centre
CHR d'Orléans - Site La Source

CENTRE-VAL DE LOIRE
TOURS
Reference centre for congenital malformations of the esophagus CRACMO - Competence centre
CHRU de Tours - Hôpital Clocheville

GRAND-EST
REIMS
Reference centre for congenital malformations of the esophagus CRACMO - Competence centre
CHU de Reims - American Memorial Hospital

GRAND-EST
STRASBOURG
Reference centre for congenital malformations of the esophagus CRACMO - Competence centre
CHU de Strasbourg - Hôpital de Hautepierre

GRAND-EST
VANDOEUVRE-LÈS-NANCY
Reference centre for congenital malformations of the esophagus CRACMO - Competence centre
CHU de Nancy - Hôpitaux de Brabois

HAUTS-DE-FRANCE
AMIENS
Reference centre for congenital malformations of the esophagus CRACMO - Competence centre
CHU Amiens-Picardie - Site Sud

HAUTS-DE-FRANCE
LILLE
Reference centre for congenital malformations of the esophagus CRACMO - Coordinator site
CHRU de Lille - Hôpital Jeanne de Flandre

ILE-DE-FRANCE
CRÉTEIL
Reference centre for congenital malformations of the esophagus CRACMO - Competence centre
Centre Hospitalier Intercommunal de Créteil

ILE-DE-FRANCE
LE KREMLIN-BICÊTRE
Reference centre for congenital malformations of the esophagus CRACMO - Competence centre
CHU Paris-Sud - Hôpital de Bicêtre

ILE-DE-FRANCE
PARIS
Reference centre for congenital malformations of the esophagus CRACMO - Competence centre
CHU Paris - Hôpital Robert Debré

ILE-DE-FRANCE
PARIS
Reference centre for congenital malformations of the esophagus CRACMO - Competence centre
CHU Paris Est - Hôpital d'Enfants Armand-Trousseau

ILE-DE-FRANCE
PARIS
Reference centre for congenital malformations of the esophagus CRACMO - Competence centre
Hôpital Necker-Enfants Malades

NORMANDIE
CAEN
Reference centre for congenital malformations of the esophagus CRACMO - Competence centre
CHU de Caen - Hôpital de la Côte de Nacre

NORMANDIE
ROUEN
Reference centre for congenital malformations of the esophagus CRACMO - Competence centre
CHU de Rouen

NOUVELLE AQUITAINE
BORDEAUX
Reference centre for congenital malformations of the esophagus CRACMO - Competence centre
CHU de Bordeaux-GH Pellegrin

NOUVELLE AQUITAINE
LIMOGES
Reference centre for congenital malformations of the esophagus CRACMO - Competence centre
CHU de Limoges - Hôpital de la mère et de l'enfant

NOUVELLE AQUITAINE
POITIERS
Reference centre for congenital malformations of the esophagus CRACMO - Competence centre
CHU de Poitiers

OCCITANIE
MONTPELLIER
Reference centre for congenital malformations of the esophagus CRACMO - Competence centre
CHU de Montpellier - Hôpital Arnaud de Villeneuve

OCCITANIE
TOULOUSE
Reference centre for congenital malformations of the esophagus CRACMO - Competence centre
CHU de Toulouse - Hôpital des Enfants

OUTRE-MER
FORT DE FRANCE
Reference centre for congenital malformations of the esophagus CRACMO - Competence centre
CHU de Martinique - Maison de la Femme, de la Mère et de l'Enfant

OUTRE-MER
SAINT-DENIS
Reference centre for congenital malformations of the esophagus CRACMO - Competence centre
CHU de la Réunion - Hôpital Félix Guyon

PAYS DE LA LOIRE
ANGERS
Reference centre for congenital malformations of the esophagus CRACMO - Competence centre
CHU d'Angers

PAYS DE LA LOIRE
LE MANS
Reference centre for congenital malformations of the esophagus CRACMO - Competence centre
Centre Hospitalier Le Mans

PAYS DE LA LOIRE
NANTES
Reference centre for congenital malformations of the esophagus CRACMO - Competence centre
CHU de Nantes - Hôpital mère-enfant

PROVENCE-ALPES-COTE D'AZUR
MARSEILLE
Reference centre for congenital malformations of the esophagus CRACMO - Competence centre
CHU de Marseille - Hôpital de la Timone

PROVENCE-ALPES-COTE D'AZUR
NICE
Reference centre for congenital malformations of the esophagus CRACMO - Competence centre
Hôpitaux Pédiatriques de Nice CHU - Lenval

LAZIO
ROMA
Centre of Expertise for bladder exstrophy
IRCCS Ospedale Pediatrico Bambino Gesù - SEDE GIANICOLO

Zuid-Holland
ROTTERDAM
Center for Pediatric Laryngotracheal Stenosis
Erasmus MC - Erasmus Medisch Centrum

IASI
IASI
Rare gastroenterologic diseases clinic
Spitalul Clinic de Urgente pentru Copii 'Sfanta Maria'

Greater London
LONDON
Bladder Exstrophy Treatment NHS Specialised Service (Children)
University College London Hospitals, NHS Foundation Trust

Greater Manchester
MANCHESTER
Bladder Exstrophy Treatment NHS Specialised Service (Children)
Royal Manchester Children's Hospital

AUVERGNE-RHONE-ALPES
BRON
Reference centre for rare respiratory diseases - Competence centre
CHU de Lyon HCL - GH Est-Hôpital Femme Mère Enfant

AUVERGNE-RHONE-ALPES
BRON
Reference centre for rare respiratory diseases - Competence centre
CHU de Lyon HCL - GH Est-Hôpital Femme Mère Enfant

AUVERGNE-RHONE-ALPES
GRENOBLE
Reference centre for rare respiratory diseases - Competence centre
CHU Grenoble Alpes - Site Nord - Hôpital Couple Enfant

BOURGOGNE-FRANCHE-COMTE
BESANÇON
Reference centre for rare respiratory diseases - Competence centre
CHRU de Besançon - Hôpital Jean Minjoz

BOURGOGNE-FRANCHE-COMTE
DIJON
Reference centre for rare respiratory diseases - Competence centre
CHU Dijon Bourgogne - Hôpital d'Enfants

BRETAGNE
BREST
Reference centre for rare respiratory diseases - Competence centre
CHRU de Brest - Hôpital Morvan

CENTRE-VAL DE LOIRE
TOURS
Reference centre for rare respiratory diseases - Competence centre
CHRU de Tours - Hôpital Clocheville

GRAND-EST
REIMS
Reference centre for rare respiratory diseases - Competence centre
CHU de Reims - American Memorial Hospital

GRAND-EST
STRASBOURG
Reference centre for rare respiratory diseases - Competence centre
CHU de Strasbourg - Hôpital de Hautepierre

GRAND-EST
STRASBOURG
Reference centre for rare respiratory diseases - Competence centre
CHU de Strasbourg - Hôpital de Hautepierre

GRAND-EST
VANDOEUVRE-LÈS-NANCY
Reference centre for rare respiratory diseases - Competence centre
CHU de Nancy - Hôpitaux de Brabois

HAUTS-DE-FRANCE
LILLE
Reference centre for rare respiratory diseases - Competence centre
CHRU de Lille - Hôpital Jeanne de Flandre

HAUTS-DE-FRANCE
LILLE
Reference centre for rare respiratory diseases - Competence centre
CHRU de Lille - Hôpital Jeanne de Flandre

ILE-DE-FRANCE
CRÉTEIL
Reference centre for rare respiratory diseases - Constitutive site
Centre Hospitalier Intercommunal de Créteil

ILE-DE-FRANCE
PARIS
Reference centre for rare pulmonary diseases (adults) - Constitutive site
APHP.Sorbonne Université, Hôpital de la Pitié-Salpêtrière

ILE-DE-FRANCE
PARIS
Reference centre for rare respiratory diseases - Competence centre
CHU Paris - Hôpital Robert Debré

ILE-DE-FRANCE
PARIS
Reference centre for rare respiratory diseases - Constitutive site
CHU Paris - Hôpital Robert Debré

ILE-DE-FRANCE
PARIS
Reference centre for rare respiratory diseases - Coordinator site
CHU Paris Est - Hôpital d'Enfants Armand-Trousseau

ILE-DE-FRANCE
PARIS
Reference centre for rare respiratory diseases - Constitutive site
Hôpital Necker-Enfants Malades

NORMANDIE
CAEN
Reference centre for rare respiratory diseases - Competence centre
CHU de Caen - Hôpital de la Côte de Nacre

NORMANDIE
ROUEN

NOUVELLE AQUITAINE
BORDEAUX
Reference centre for rare respiratory diseases - Competence centre
CHU de Bordeaux-GH Pellegrin

OCCITANIE
MONTPELLIER
Reference centre for rare respiratory diseases - Competence centre
CHU de Montpellier - Hôpital Arnaud de Villeneuve

OCCITANIE
TOULOUSE
Reference centre for rare respiratory diseases - Competence centre
CHU de Toulouse - Hôpital des Enfants

OUTRE-MER
SAINT-DENIS
Reference centre for rare respiratory diseases - Competence centre
CHU de la Réunion - Hôpital Félix Guyon

PAYS DE LA LOIRE
ANGERS

PAYS DE LA LOIRE
NANTES
Reference centre for rare respiratory diseases - Competence centre
CHU de Nantes - Hôpital enfant-adolescent

PROVENCE-ALPES-COTE D'AZUR
MARSEILLE
Reference centre for rare respiratory diseases - Competence centre
CHU de Marseille - Hôpital de la Timone

PROVENCE-ALPES-COTE D'AZUR
NICE
Reference centre for rare respiratory diseases - Competence centre
Hôpitaux Pédiatriques de Nice CHU - Lenval

LOMBARDIA
VARESE
Centre of Expertise for syndromic obesity (Bardet-Biedl syndrome; Prader-Willi syndrome)
A.O.U. Ospedale di Circolo e Fondazione Macchi - Ospedale Filippo Del Ponte

Cataluña
BARCELONA
XUEC - Unit of regional clinical experience in genetic-based behavioral cognitive disorders in pediatric age
Hospital Universitari Vall d'Hebron

Cataluña
ESPLUGUES DE LLOBREGAT
XUEC - Unit of regional clinical experience in genetic-based behavioral cognitive disorders in pediatric age
Hospital Sant Joan de Déu Barcelona

Cataluña
SABADELL
XUEC - Unit of regional clinical experience in genetic-based behavioral cognitive disorders in pediatric age
Corporación Sanitaria Parc Taulí. Hospital de Sabadell

Greater London
LONDON
Bardet-Biedl syndrome treatment NHS Specialised Service (Children)
GOSH NHS Foundatin Trust

Greater London
LONDON
Bardet-Biedl syndrome treatment NHS Specialised Service (Adults)
St Thomas' Hospital

West Midlands
BIRMINGHAM
Bardet-Biedl syndrome treatment NHS Specialised Service (Children)
Birmingham Children's Hospital NHS Foundation Trust

West Midlands
BIRMINGHAM