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: Designated centre of expertise = Member of a ERN =

AUVERGNE-RHONE-ALPES
LYON
Information centre for professional chemical risk during pregnancy
CHU de Lyon HCL - Centre antipoison

ILE-DE-FRANCE
PARIS
CRAT - Centre of reference on teratogens
AP-HP.Sorbonne Université - Hôpital d'Enfants Armand-Trousseau

OUTRE-MER
SAINT-DENIS
Reference centre for developmental anomalies and malformation syndromes Sud-Ouest Occitanie Réunion - Constitutive site
CHU de la Réunion - Hôpital Félix Guyon

OUTRE-MER
SAINT-DENIS
Reference centre for neuromuscular diseases PACA-Réunion-Rhône Alpes - Competence centre
Hôpital d'enfants de Saint-Denis

PROVENCE-ALPES-COTE D'AZUR
NICE
Reference centre for developmental anomalies and malformation syndromes Sud-Est - Competence centre
CHU de Nice - Hôpital l'Archet 2

Berlin
BERLIN
Pharmacovigiliance and Counselling Centre for Embryonaltoxicology
Charité - Universitätsmedizin Berlin (CVK)

Region Stockholm
STOCKHOLM
Expert team for genetic diagnostics of congenital malformations and/or intelectual disabilities
Karolinska Universitetssjukhuset - Solna

ANTWERPEN
EDEGEM (ANTWERPEN)
Multidisciplinary expert team/Centre for Rare Diseases - University Hospital of Antwerp
University Hospital Antwerp - UZA

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
Multidisciplinary expert team/Centre for rare diseases - Saint-Luc University Hospital
Cliniques universitaires Saint-Luc - UCLouvain

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
Multidisciplinary expert team/Centre for rare diseases - ULB
Erasme Hospital - ULB

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
Multidisciplinary expert team/Centre for Rare Diseases - University Hospital of Brussels
Universitair Ziekenhuis Brussel

HAINAUT
GILLY
Multidisciplinary expert team/Centre for rare diseases - Grand Hôpital de Charleroi et Institut de Pathologie et de Génétique
Grand Hôpital de Charleroi - Site Saint-Joseph

LIEGE
LIEGE
Multidisciplinary expert team/Centre for rare diseases - CHU Liège
CHU de Liège - Site du Sart Tilman

OOST-VLAANDEREN
GENT
Multidisciplinary expert team/Centre for Rare Diseases - University Hospital of Ghent
Ghent University Hospital - UZ Gent

VLAAMS BRABANT
LEUVEN
Multidisciplinary expert team/Centre for Rare Diseases - University Hospital of Leuven
UZ Leuven - Campus Gasthuisberg

AUVERGNE-RHONE-ALPES
BRON
Reference centre for Pierre Robin syndromes and congenital sucking/swallowing disorders (SPRATON) - Competence centre
CHU de Lyon HCL - GH Est-Hôpital Femme Mère Enfant

AUVERGNE-RHONE-ALPES
CLERMONT-FERRAND
Reference centre for Pierre Robin syndromes and congenital sucking/swallowing disorders (SPRATON) - Competence centre
CHU de Clermont-Ferrand - Hôpital d'Estaing

AUVERGNE-RHONE-ALPES
GRENOBLE
Reference centre for Pierre Robin syndromes and congenital sucking/swallowing disorders (SPRATON) - Competence centre
CHU de Grenoble site Nord - Hôpital Couple-Enfant

BOURGOGNE-FRANCHE-COMTE
BESANÇON
Reference centre for Pierre Robin syndromes and congenital sucking/swallowing disorders (SPRATON) - Competence centre
CHU de Besançon - Hôpital Jean Minjoz

BRETAGNE
BREST
Reference centre for Pierre Robin syndromes and congenital sucking/swallowing disorders (SPRATON) - Competence centre
CHRU de Brest - Hôpital Morvan

BRETAGNE
RENNES
Reference centre for Pierre Robin syndromes and congenital sucking/swallowing disorders (SPRATON) - Competence centre
CHU de Rennes - Hôpital Sud

CENTRE-VAL DE LOIRE
TOURS
Reference centre for Pierre Robin syndromes and congenital sucking/swallowing disorders (SPRATON) - Competence centre
CHRU de Tours - Hôpital Clocheville

GRAND-EST
NANCY
Reference centre for Pierre Robin syndromes and congenital sucking/swallowing disorders (SPRATON) - Competence centre
CHU de Nancy - Hôpital Central

GRAND-EST
STRASBOURG
Reference centre for Pierre Robin syndromes and congenital sucking/swallowing disorders (SPRATON) - Competence centre
CHU de Strasbourg - Hôpital de Hautepierre

HAUTS-DE-FRANCE
AMIENS
Reference centre for Pierre Robin syndromes and congenital sucking/swallowing disorders (SPRATON) - Competence centre
CHU Amiens-Picardie - Site Sud

HAUTS-DE-FRANCE
LILLE
Reference centre for Pierre Robin syndromes and congenital sucking/swallowing disorders (SPRATON) - Competence centre
CHRU de Lille - Hôpital Jeanne de Flandre

NORMANDIE
CAEN
Reference centre for Pierre Robin syndromes and congenital sucking/swallowing disorders (SPRATON) - Competence centre
CHU de Caen - Hôpital de la Côte de Nacre

NORMANDIE
ROUEN
Reference centre for Pierre Robin syndromes and congenital sucking/swallowing disorders (SPRATON) - Competence centre
CHU de Rouen

NOUVELLE AQUITAINE
BORDEAUX
Reference centre for Pierre Robin syndromes and congenital sucking/swallowing disorders (SPRATON) - Competence centre
CHU de Bordeaux-GH Pellegrin

NOUVELLE AQUITAINE
LIMOGES
Reference centre for Pierre Robin syndromes and congenital sucking/swallowing disorders (SPRATON) - Competence centre
CHU de Limoges - Hôpital de la mère et de l'enfant

NOUVELLE AQUITAINE
POITIERS
Reference centre for Pierre Robin syndromes and congenital sucking/swallowing disorders (SPRATON) - Competence centre
CHU de Poitiers

OCCITANIE
TOULOUSE
Reference centre for Pierre Robin syndromes and congenital sucking/swallowing disorders (SPRATON) - Competence centre
CHU de Toulouse - Hôpital des Enfants

Baden-Württemberg
FREIBURG
Rare intoxication clinic
Zentrum für Kinder- und Jugendmedizin Freiburg

Bayern
MÜNCHEN
Rare intoxication clinic
Klinikum rechts der Isar der Technischen Universität München

Bayern
MÜNCHEN
Expert center on Rare Congenital Malformations and Rare Intellectual Disability_Munchen
Pränatal-Medizin München MVZ GmbH

LAZIO
ROMA
Specialized teratology clinic
Fondazione Policlinico Universitario Agostino Gemelli IRCCS

LAZIO
ROMA
Specialized clinic for craniofacial malformations
IRCCS Ospedale Pediatrico Bambino Gesù - SEDE GIANICOLO

RUSSIAN FEDERATION
MOSCOW
Loginov Moscow Clinical Scientific Center
Loginov Moscow Clinical Scientific Center

Region Uppsala
UPPSALA
Expert team for rare craniofacial disorders - Uppsala Craniofacial Center
Uppsala University Hospital - Akademiska Sjukhuset

Suisse Alémanique
AARAU
Center for Rare Diseases (CRD) Kantonsspital Aarau AG
Kantonsspital Aarau

Suisse Alémanique
BASEL
The Basel University Centre for Rare and Undiagnosed Diseases
Universitätsspital Basel

Suisse Alémanique
BERN
Centre for Rare Diseases Inselspital
Universitätsspital Inselspital

Suisse Alémanique
LUZERN
Centre for rare diseases, LUKS
Luzerner Kantonsspital / Kinderspital Luzern

Suisse Alémanique
ST. GALLEN
Centre for Rare Diseases of Eastern Switzerland
Kantonsspital St. Gallen

Suisse Italienne
BELLINZONA
Center for Rare Diseases of Southern Switzerland
Ospedale Regionale di Bellinzona e Valli - San Giovanni

Suisse Romande
LAUSANNE
Center for rare diseases Lausanne University Hospital
Hôpital Nestlé - CHUV

AUVERGNE-RHONE-ALPES
BRON
Reference centre for rare ENT malformations (MALO) - Competence centre
CHU de Lyon HCL - GH Est-Hôpital Femme Mère Enfant

AUVERGNE-RHONE-ALPES
BRON
Reference centre for rare malformations of the face and oral cavity (MAFACE) - Competence centre
CHU de Lyon HCL - GH Est-Hôpital Femme Mère Enfant

AUVERGNE-RHONE-ALPES
CLERMONT-FERRAND
Reference centre for rare ENT malformations (MALO) - Competence centre
CHU de Clermont-Ferrand - Hôpital Gabriel Montpied

AUVERGNE-RHONE-ALPES
CLERMONT-FERRAND
Reference centre for rare malformations of the face and oral cavity (MAFACE) - Competence centre
CHU de Clermont-Ferrand - Hôpital d'Estaing

AUVERGNE-RHONE-ALPES
ECULLY
Reference centre for rare malformations of the face and oral cavity (MAFACE) - Competence centre
Clinique du Val d'Ouest

AUVERGNE-RHONE-ALPES
GRENOBLE
Reference centre for rare malformations of the face and oral cavity (MAFACE) - Competence centre
CHU de Grenoble site Nord - Hôpital Couple-Enfant

BOURGOGNE-FRANCHE-COMTE
BESANÇON
Reference centre for rare malformations of the face and oral cavity (MAFACE) - Competence centre
CHU de Besançon - Hôpital Jean Minjoz

BRETAGNE
BREST
Reference centre for rare ENT malformations (MALO) - Competence centre
CHRU de Brest - Hôpital Morvan

CENTRE-VAL DE LOIRE
TOURS
Reference centre for rare ENT malformations (MALO) - Competence centre
CHRU de Tours - Hôpital Bretonneau

CENTRE-VAL DE LOIRE
TOURS
Reference centre for rare malformations of the face and oral cavity (MAFACE) - Competence centre
CHRU de Tours - Hôpital Trousseau

GRAND-EST
NANCY
Reference centre for rare malformations of the face and oral cavity (MAFACE) - Competence centre
CHU de Nancy - Hôpital Central

GRAND-EST
STRASBOURG
Reference centre for rare malformations of the face and oral cavity (MAFACE) - Competence centre
CHU de Strasbourg - Hôpital Civil

GRAND-EST
STRASBOURG
Reference centre for rare ENT malformations (MALO) - Competence centre
CHU de Strasbourg - Hôpital de Hautepierre

GRAND-EST
VANDOEUVRE-LÈS-NANCY
Reference centre for rare ENT malformations (MALO) - Competence centre
CHU de Nancy - Hôpitaux de Brabois

HAUTS-DE-FRANCE
AMIENS
Reference centre for rare malformations of the face and oral cavity (MAFACE) - Competence centre
CHU Amiens-Picardie - Site Sud

HAUTS-DE-FRANCE
LILLE
Reference centre for rare ENT malformations (MALO) - Competence centre
CHRU de Lille - Hôpital Jeanne de Flandre

HAUTS-DE-FRANCE
LILLE
Reference centre for rare malformations of the face and oral cavity (MAFACE) - Competence centre
CHRU de Lille - Hôpital Jeanne de Flandre

ILE-DE-FRANCE
PARIS
Reference centre for rare ENT malformations (MALO) - Constitutive site
CHU Paris - Hôpital Robert Debré

ILE-DE-FRANCE
PARIS
Reference centre for rare ENT malformations (MALO) - Coordinator site
Hôpital Necker-Enfants Malades

ILE-DE-FRANCE
PARIS
Reference centre for rare malformations of the face and oral cavity (MAFACE) - Coordinator site
Hôpital Necker-Enfants Malades

NORMANDIE
CAEN
Reference centre for rare malformations of the face and oral cavity (MAFACE) - Competence centre
CHU de Caen - Hôpital de la Côte de Nacre

NORMANDIE
ROUEN

NOUVELLE AQUITAINE
LIMOGES
Reference centre for rare ENT malformations (MALO) - Competence centre
CHU de Limoges - Hôpital de la mère et de l'enfant

OCCITANIE
MONTPELLIER
Reference centre for rare ENT malformations (MALO) - Competence centre
CHU de Montpellier - Hôpital Gui de Chauliac

OCCITANIE
MONTPELLIER
Reference centre for rare malformations of the face and oral cavity (MAFACE) - Competence centre
Polyclinique Saint Roch

OCCITANIE
TOULOUSE
Reference centre for rare ENT malformations (MALO) - Competence centre
CHU de Toulouse - Hôpital Pierre-Paul Riquet

OCCITANIE
TOULOUSE
Reference centre for rare malformations of the face and oral cavity (MAFACE) - Competence centre
CHU de Toulouse - Hôpital des Enfants

OUTRE-MER
POINTE À PITRE
Reference centre for rare ENT malformations (MALO) - Competence centre
CHU de la Guadeloupe

PAYS DE LA LOIRE
NANTES
Reference centre for rare ENT malformations (MALO) - Competence centre
CHU de Nantes - Hôtel Dieu

PROVENCE-ALPES-COTE D'AZUR
MARSEILLE
Reference centre for rare ENT malformations (MALO) - Competence centre
CHU de Marseille - Hôpital de la Timone

Vestlandet
BERGEN
Expert Center on Cleft Palate Disorders_Bergen
Haukeland University Hospital

SALZBURG
SALZBURG
Center of expertise for cleft lip/palate and craniofacial anomalies (full member in the European Reference Network ERN CRANIO)
Universitätsklinikum der Paracelsus Medizinischen Privatuniversität

STEIERMARK
GRAZ
Outpatient clinic for cleft lip/palate and craniofacial anomalies
Medizinische Universität Graz

Québec
MONTRÉAL
Craniofacial and cleft clinic
Montreal Children's hospital - Hôpital de Montréal pour enfants

Cyprus
NICOSIA
Specialised clinic for rare maxillofacial anomalies
Apollonion private hospital

Baden-Württemberg
FREIBURG
Cranio-maxillo-facial diseases clinic
Universitätsklinikum Freiburg

Baden-Württemberg
HEIDELBERG
Cranial, facial and oral diseases clinic
Universitätsmedizin Heidelberg

Bayern
MÜNCHEN
Cleft lip/palate and craniofacial malformations clinic
Klinik und Poliklinik für Mund-, Kiefer- und Gesichtschirurgie

Berlin
BERLIN
Interdisciplinary craniofacial malformations clinic
Charité - Universitätsmedizin Berlin (CVK)

Hessen
FRANKFURT AM MAIN
Rare oro-cranio-facial malformations clinic
Universitätsklinikum Frankfurt

Niedersachsen
HANNOVER
Interdisciplinary facial malformations clinic
Medizinische Hochschule Hannover

Nordrhein-Westfalen
DORTMUND
Rare maxillo-facial anomalies clinic
Klinikum Dortmund gGmbH - Klinikzentrum Nord

Nordrhein-Westfalen
MÜNSTER
Rare diseases with orofacial manifestations clinic
Universitätsklinikum Münster

EMILIA ROMAGNA
BOLOGNA
Centre of expertise for rare maxillofacial anomalies
Policlinico S. Orsola-Malpighi - Area S. Orsola

EMILIA ROMAGNA
FERRARA
Centre of Expertise for rare maxillofacial anomalies
Università degli Studi di Ferrara - Arcispedale "S. Anna"

EMILIA ROMAGNA
PARMA
Centre of Expertise for rare maxillofacial anomalies
Azienda Ospedaliero-Universitaria di Parma

LAZIO
ROMA
Centre of Expertise for rare maxillofacial anomalies
Complesso Integrato Columbus - Università Cattolica del Sacro Cuore

VENETO
VICENZA
Centre of Expertise for rare maxillo-facial malformations
Azienda ULSS8 "Berica"

NORTE
PORTO
Cleft Facial multidisciplinary clinic
Centro Hospitalar Universitário de S. João, EPE

Suisse Alémanique
BASEL
Centre for Orofacial cleft and Craniofacial malformations
Universitätsspital Basel

Suisse Alémanique
ZÜRICH
Interdisciplinary Cranio-Facial Center
Zentrum für Zahnmedizin der Universität Zürich

Suisse Romande
GENÈVE
Rare cleft and craniomaxillofacial anomalies clinic and prenatal counseling
Hôpital des Enfants - Hôpitaux Universitaires de Genève HUG

Suisse Romande
LAUSANNE