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Caption : Designated centre of expertise = Accreditation
Member of a ERN = ERN

BELGIUM

OOST-VLAANDEREN
GENT

Aorta Team Ghent - UZ Gent
Ghent University Hospital - UZ Gent

CANADA

Québec
SAINTE FOY

GERMANY

Berlin
BERLIN

GERMANY

Hamburg
HAMBURG

Aortic diseases clinic
UKE - Universitätsklinikum Hamburg-Eppendorf

IRELAND

County Dublin
DUBLIN

Marfan Aortopathy Clinic
Mater Misericordiae Hospital

NETHERLANDS

Zuid-Holland
ROTTERDAM

Center for Inherited Cardiovascular Diseases
Erasmus MC - Erasmus Medisch Centrum

NORWAY

Østlandet
NESODDTANGEN

PORTUGAL

SUL
LISBOA

Cardiogenetics Department, Cardiologic Pediatric Department, Santa Cruz Hospital, CHLO, Carnaxide
Hospital de Sta. Maria - Centro Hospitalar de Lisboa Norte, EPE.

SPAIN

Castilla - León
SALAMANCA

CSUR - National centre of expertise for familial cardiopathies
Hospital Clínico Universitario de Salamanca

SPAIN

Madrid
MADRID

Rare genetic cardiac diseases clinic
Hospital Universitario Fundación Jiménez Díaz

SPAIN

Madrid
MAJADAHONDA

CSUR - National unit of expertise for inherited cardiac diseases
Hospital Universitario Puerta de Hierro - Majadahonda

UNITED KINGDOM

Merseyside
LIVERPOOL

AUSTRIA

STEIERMARK
GRAZ

Vasculitis clinic
Medizinische Universität Graz

AUSTRIA

STEIERMARK
GRAZ

Outpatient clinic for pediatric orthopaedics
Medizinische Universität Graz

AUSTRIA

TIROL
INNSBRUCK

Vascular surgery clinic
Medizinische Universität Innsbruck

AUSTRIA

WIEN
WIEN

Outpatient clinic for adults with congenital heart defects
Allgemeines Krankenhaus der Stadt Wien

BELGIUM

ANTWERPEN
ANTWERPEN-EDEGEM

BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

BELGIUM

VLAAMS BRABANT
LEUVEN

DENMARK

Hovedstaden
COPENHAGEN

Center for Rare Diseases
Rigshospitalet

FRANCE

AUVERGNE-RHONE-ALPES
BRON

Reference centre for Marfan syndrome and related syndromes - Competence centre
CHU de Lyon HCL - GH Est-Hôpital Femme Mère Enfant

FRANCE

BOURGOGNE-FRANCHE-COMTE
DIJON

Reference centre for Marfan syndrome and related syndromes - Competence centre
CHU Dijon Bourgogne - Hôpital François Mitterrand

FRANCE

GRAND-EST
STRASBOURG

FRANCE

HAUTS-DE-FRANCE
LILLE

FRANCE

ILE-DE-FRANCE
PARIS

Reference centre for rare ophtalmologic diseases (OPHTARA) - Constitutive site
CHU Paris IdF Ouest - HEGP Hôpital Européen Georges Pompidou

FRANCE

ILE-DE-FRANCE
PARIS

Reference centre for Marfan syndrome and related syndromes - Coordinator site
CHU Paris Nord-Val de Seine - Hôpital Xavier Bichat-Claude Bernard

FRANCE

NORMANDIE
CAEN

FRANCE

NOUVELLE AQUITAINE
BORDEAUX

FRANCE

OCCITANIE
TOULOUSE

FRANCE

OUTRE-MER
SAINT-PIERRE

Reference centre for Marfan syndrome and related syndromes - Competence centre
CHU de la Réunion - GH Sud Réunion - Saint-Pierre

FRANCE

PAYS DE LA LOIRE
NANTES

Reference centre for Marfan syndrome and related syndromes - Competence centre
CHU de Nantes - Hôpital Nord Guillaume et René Laënnec

FRANCE

PROVENCE-ALPES-COTE D'AZUR
MARSEILLE

GERMANY

Baden-Württemberg
FREIBURG

Interdisciplinary Marfan clinic
Universitäts-Herzzentrum Freiburg

GERMANY

Baden-Württemberg
HEIDELBERG

Marfan clinic
Universitätsmedizin Heidelberg

GERMANY

Baden-Württemberg
STUTTGART

Marfan clinic
Klinikum Stuttgart - Katharinenhospital

GERMANY

Baden-Württemberg
STUTTGART

Marfan clinic
Klinikum Stuttgart - Standort Olgahospital

GERMANY

Bayern
MÜNCHEN

Marfan clinic
Deutsches Herzzentrum München

GERMANY

Hamburg
HAMBURG

Marfan clinic
UKE - Universitätsklinikum Hamburg-Eppendorf

GERMANY

Hamburg
HAMBURG

Marfan clinic
UKE - Universitätsklinikum Hamburg-Eppendorf

GERMANY

Niedersachsen
GÖTTINGEN

Williams, marfan and noonan syndromes clinic
Universitätsmedizin Göttingen

GERMANY

Nordrhein-Westfalen
AACHEN

Marfan clinic
Universitätsklinikum Aachen

GERMANY

Nordrhein-Westfalen
KÖLN

Marfan clinic
Universitätsklinikum Köln

GERMANY

Nordrhein-Westfalen
MÜNSTER

Marfan clinic
Universitätsklinikum Münster

GERMANY

Saarland
HOMBURG

Interdisciplinary Marfan clinic
Universitätsklinikum des Saarlandes

GERMANY

Sachsen
LEIPZIG

Marfan clinic
Herzzentrum Leipzig GmbH

GERMANY

Sachsen-Anhalt
DESSAU

Vascular diseases clinic
Städtisches Klinikum Dessau

GERMANY

Schleswig-Holstein
LÜBECK

Marfan clinic
Universitätsklinikum Schleswig-Holstein - Campus Lübeck

HUNGARY

Dél-Dunántúl
PECS

Specialised clinic for Marfan syndrome
Heart Medical Clinic - Clinical Center - University of Pécs

HUNGARY

Közép-Magyarország
BUDAPEST

HUNGARY

Közép-Magyarország
BUDAPEST

ITALY

FRIULI VENEZIA GIULIA
UDINE

Regional centre of expertise for osteo-connective diseases
Azienda Ospedaliero-Universitaria "Santa Maria della Misericordia" di Udine

ITALY

PUGLIA
SAN GIOVANNI ROTONDO

Specialized clinic for vascular surgery
Fondazione IRCCS Ospedale Casa Sollievo della Sofferenza

NETHERLANDS

Gelderland
NIJMEGEN

Marfan and Related Disorders Policlinic
Radboudumc - Radboud universitair medisch centrum

NETHERLANDS

Groningen
GRONINGEN

Clinic for Connective Tissue Disorders
UMCG - Universitair Medisch Centrum Groningen

NETHERLANDS

Limburg
MAASTRICHT

Marfan and Related Disorders Clinic
AZM - Academisch Ziekenhuis Maastricht

NETHERLANDS

Noord-Holland
AMSTERDAM

Centre for Marfan Syndrome
Amsterdam UMC, locatie AMC

NETHERLANDS

Utrecht
UTRECHT

Center for Inherited Cardiovascular Disease
UMC Utrecht - Universitair Medisch Centrum Utrecht

NETHERLANDS

Zuid-Holland
LEIDEN

Marfan-FTAAD Clinic
LUMC - Leids Universitair Medisch Centrum

PORTUGAL

NORTE
PORTO

Marfan syndrome clinic
Centro Materno Infantil do Centro Hospitalar do Porto

SPAIN

Galicia
A CORUÑA

SWEDEN

Landstinget i Uppsala län
UPPSALA

Expert team for rare syndromes
Akademiska Sjukhuset

SWEDEN

Stockholms läns landsting
STOCKHOLM

Expert team for rare multisystemic vascular diseases
Karolinska Universitetssjukhuset - Solna

SWITZERLAND

Suisse Alémanique
BASEL

SWITZERLAND

Suisse Alémanique
BERN

Centre for Rare Diseases Inselspital
Universitätsspital Inselspital

SWITZERLAND

Suisse Alémanique
ST. GALLEN

SWITZERLAND

Suisse Alémanique
ZÜRICH

Moyamoya Center
Universitäts - Kinderspital Zürich - Eleonorenstiftung

SWITZERLAND

Suisse Alémanique
ZÜRICH

Centre for rare diseases Zurich
UniversitätsSpital Zürich

SWITZERLAND

Suisse Romande
GENÈVE

HUG Centre for rare diseases
Hôpitaux Universitaires de Genève HUG

SWITZERLAND

Suisse Romande
LAUSANNE

CANADA

Manitoba
WINNIPEG

Genetics and Metabolism
Health Sciences Centre

CANADA

Ontario
MISSISSAUGA

Clinical Genetics, Credit Valley Site, Trillium Health Partners
Genetics Clinic, Credit Valley Hospital

CANADA

Ontario
TORONTO

Clinical and Metabolic Genetics Division
The Hospital for Sick Children and University of Toronto

CANADA

Québec
MONTRÉAL

Genetique Medicale
Centre hospitalier universitaire Sainte-Justine

CANADA

Québec
MONTRÉAL

Medical genetics pediatric clinic
Glen / McGill Univeristy Health Centre - Centre Universitaire de santé McGill

CANADA

Québec
MONTRÉAL

Medical genetics adult clinic
Glen / McGill Univeristy Health Centre - Centre Universitaire de santé McGill

CANADA

Québec
SHERBROOKE

Medical genetics service
CIUSSS de l'Estrie - CHUS Fleurimont

FINLAND

Finland
HELSINKI

Genetic Counselling Clinic
HUS - Helsinki University Hospital

FINLAND

Finland
HELSINKI

Harvinaissairauksien yksikkö
HUS - Helsinki University Hospital

FINLAND

Finland
KUOPIO

Harvinaissairauksien yksikkö
Kuopio University Hospital

FINLAND

Finland
OULU

Harvinaissairauksien yksikkö
Oulu University Hospital

FINLAND

Finland
TAMPERE

Harvinaissairauksien yksikkö
TAYS - Tampere University Hospital

FINLAND

Finland
TURKU

Harvinaissairauksien yksikkö
Turku University Hospital

ITALY

SICILIA
CATANIA

Centre of Expertise for rare genetic disorders
Azienda Ospedaliero Universitaria "Policlinico Vittorio Emanuele"

JAPAN

JAPAN
CHIBA

Clinical Genetics
Chiba University Hospital

JAPAN

JAPAN
TOKYO

Rinsho Idengaku Center
Keio University Hospital

LATVIA

LATVIA
RIGA

NETHERLANDS

Noord-Holland
AMSTERDAM

SPAIN

Madrid
MADRID

Prenatal diagnosis and genetic counseling in pregnancy
INGEMM - Instituto de Genética Médica y Molecular (IdiPAZ)

SWEDEN

Skane
LUND

UNITED KINGDOM

Greater Manchester
MANCHESTER

UNITED KINGDOM

Hampshire
SOUTHAMPTON

FINLAND

Finland
HELSINKI

Expert Team for Vascular Anomalies
HUS - Helsinki University Hospital

FRANCE

AUVERGNE-RHONE-ALPES
BRON

Reference centre for rare vascular diseases - Competence centre
Hospices Civils de Lyon - Groupement Hospitalier EST

FRANCE

AUVERGNE-RHONE-ALPES
CLERMONT-FERRAND

Reference centre for rare vascular diseases - Competence centre
CHU de Clermont-Ferrand - Hôpital Gabriel Montpied

FRANCE

AUVERGNE-RHONE-ALPES
GRENOBLE

Reference centre for rare vascular diseases - Competence centre
CHU Grenoble Alpes - Site Nord - Hôpital Couple Enfant

FRANCE

AUVERGNE-RHONE-ALPES
SAINT-PRIEST-EN-JAREZ

FRANCE

BRETAGNE
BREST

Reference centre for rare vascular diseases - Competence centre
CHU de Brest - Hôpital de la Cavale Blanche

FRANCE

CENTRE-VAL DE LOIRE
TOURS

FRANCE

GRAND-EST
STRASBOURG

FRANCE

GRAND-EST
VANDOEUVRE-LÈS-NANCY

FRANCE

HAUTS-DE-FRANCE
LILLE

FRANCE

ILE-DE-FRANCE
PARIS

Reference centre for rare vascular diseases - Coordinator site
CHU Paris IdF Ouest - HEGP Hôpital Européen Georges Pompidou

FRANCE

NORMANDIE
CAEN

Reference centre for rare vascular diseases - Competence centre
CHU de Caen - Hôpital de la Côte de Nacre

FRANCE

NOUVELLE AQUITAINE
BORDEAUX

Reference centre for rare vascular diseases - Competence centre
CHU de Bordeaux - Hôpital Saint André

FRANCE

NOUVELLE AQUITAINE
LIMOGES

FRANCE

OCCITANIE
MONTPELLIER

Reference centre for rare vascular diseases - Constitutive site
CHU de Montpellier - Hôpital Saint-Eloi

FRANCE

OCCITANIE
TOULOUSE

FRANCE

PAYS DE LA LOIRE
NANTES

FRANCE

PROVENCE-ALPES-COTE D'AZUR
MARSEILLE

Reference centre for rare vascular diseases - Competence centre
CHU de Marseille - Hôpital de la Timone

ITALY

PUGLIA
SAN GIOVANNI ROTONDO

Centre of Expertise for rare vascular diseases
IRCCS Ospedale Casa Sollievo della Sofferenza -Poliamb. Giovanni Paolo II

POLAND

Kraków
KRAKOW

Centre for Rare Cardiovascular Diseases
Krakowski Szpital Specjalistyczny im. Jana Pawla II

SWITZERLAND

Suisse Alémanique
BERN

Outpatient clinic for vascular malformation
University Hospital Inselspital

SWITZERLAND

Suisse Romande
LAUSANNE

Center for malformation and rare vascular diseases
Centre Hospitalier Universitaire Vaudois CHUV