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Caption : Designated centre of expertise = Accreditation
Member of a ERN = ERN

AUSTRIA

STEIERMARK
GRAZ

Outpatient clinic for pediatric orthopaedics
Medizinische Universität Graz

AUSTRIA

STEIERMARK
GRAZ

Hemato-oncology outpatient clinic
Medizinische Universität Graz

BELGIUM

VLAAMS BRABANT
LEUVEN

DENMARK

Fyn
ODENSE

DENMARK

Hovedstaden
COPENHAGEN

Center for Rare Diseases
Rigshospitalet

DENMARK

Jylland
AARHUS

Expert center on Rare Bone Disorders_Aarhus
Aarhus University Hospital - Skejby

FINLAND

Finland
TURKU

Expert center on Rare Bone Disorders_Turku
Turku University Hospital

GERMANY

Baden-Württemberg
FREIBURG

Haematology and oncology clinic
Zentrum für Kinder- und Jugendmedizin Freiburg

GERMANY

Baden-Württemberg
HEIDELBERG

Oncology clinic
Deutsches Krebsforschungszentrum

GERMANY

Baden-Württemberg
MANNHEIM

Haematology and oncology clinic
Universitätsmedizin Mannheim

GERMANY

Baden-Württemberg
STUTTGART

Haematology and oncology clinic
Klinikum Stuttgart - Standort Olgahospital

GERMANY

Baden-Württemberg
TÜBINGEN

GERMANY

Baden-Württemberg
ULM

Oncology clinic
Klinik für Kinder- und Jugendmedizin des Universitätsklinikums Ulm

GERMANY

Baden-Württemberg
ULM

Rare tumor clinic
Zentrum für Seltene Erkrankungen am Universitätsklinikum Ulm

GERMANY

Bayern
AUGSBURG

GERMANY

Bayern
AUGSBURG

Inherited cancer-predisposing syndrome clinic
Universitätsklinikum Augsburg

GERMANY

Bayern
ERLANGEN

Haematology and oncology clinic
Kinder- und Jugendklinik des Universitätsklinikums Erlangen

GERMANY

Bayern
MÜNCHEN

Haematology and oncology clinic
Kinderklinik und Kinderpoliklinik im Dr. von Haunerschen Kinderspital

GERMANY

Bayern
MÜNCHEN

Bone and soft tissue tumor clinic
Klinikum rechts der Isar der Technischen Universität München

GERMANY

Bayern
MÜNCHEN

Haematology and oncology clinic
Klinikum rechts der Isar der Technischen Universität München

GERMANY

Bayern
REGENSBURG

GERMANY

Bayern
WÜRZBURG

Expert center on Primary Bone Dysplasias_Würzburg
Orthopädische Klinik - Lehrstuhl der Universität Würzburg

GERMANY

Bayern
WÜRZBURG

Haematology and oncology clinic
Universitäts-Kinderklinik Würzburg

GERMANY

Berlin
BERLIN

Soft tissue sarcoma and bone tumor clinic
HELIOS Klinikum Berlin-Buch

GERMANY

Brandenburg
COTTBUS

Haematology and oncology clinic
Carl-Thiem-Klinikum Cottbus

GERMANY

Bremen
BREMEN

Haematology and oncology clinic
Klinikum Bremen-Mitte

GERMANY

Hamburg
HAMBURG

Expert center on Primary Bone Dysplasias_Hamburg
UKE - Universitätsklinikum Hamburg-Eppendorf

GERMANY

Hamburg
HAMBURG

Haematology and oncology clinic
UKE - Universitätsklinikum Hamburg-Eppendorf

GERMANY

Hessen
FRANKFURT AM MAIN

Haematology and oncology clinic
Universitätsklinikum Frankfurt

GERMANY

Hessen
FRANKFURT AM MAIN

Haematology and oncology clinic
Universitätsklinikum Frankfurt

GERMANY

Hessen
GIEßEN

Haematology and oncology clinic
Kinderklinik des UKGM am Standort Gießen

GERMANY

Hessen
KASSEL

Haematology and oncology clinic
Klinikum Kassel GmbH

GERMANY

Mecklenburg-Vorpommern
GREIFSWALD

Haematology, oncology and hemostasis clinic
Universitätsmedizin Greifswald

GERMANY

Mecklenburg-Vorpommern
ROSTOCK

Haematology and oncology clinic
Universitäts-Kinder- und Jugendklinik Rostock

GERMANY

Niedersachsen
BRAUNSCHWEIG

Haematology and oncology clinic
Städtisches Klinikum Braunschweig - Standort Salzdahlumer Straße

GERMANY

Niedersachsen
GÖTTINGEN

Haematology and oncology clinic
Universitätsmedizin Göttingen

GERMANY

Niedersachsen
HANNOVER

Haematology and oncology clinic
Medizinische Hochschule Hannover

GERMANY

Niedersachsen
HANNOVER

Genetic tumor clinic
Medizinische Hochschule Hannover

GERMANY

Niedersachsen
OLDENBURG

Haematology and oncology clinic
Klinikum Oldenburg gGmbH

GERMANY

Nordrhein-Westfalen
AACHEN

Haematology and oncology clinic
Universitätsklinikum Aachen

GERMANY

Nordrhein-Westfalen
BIELEFELD

Haematology and oncology clinic
Evangelisches Krankenhaus Bielefeld - Kinderzentrum Bethel

GERMANY

Nordrhein-Westfalen
BOCHUM

Expert center on Rare Bone Disorders_Bochum
St. Josef-Hospital - Katholisches Klinikum Bochum

GERMANY

Nordrhein-Westfalen
BONN

Haematology and oncology clinic
Universitäts-Kinderklinik Bonn

GERMANY

Nordrhein-Westfalen
BONN

GERMANY

Nordrhein-Westfalen
BONN

Hereditary gastrointestinal tumor clinic
Universitätsklinikum Bonn (AöR)

GERMANY

Nordrhein-Westfalen
BONN

Rare bone diseases and tumor clinic
Universitätsklinikum Bonn (AöR)

GERMANY

Nordrhein-Westfalen
DATTELN

Haematology and oncology clinic
Universität Witten/Herdecke

GERMANY

Nordrhein-Westfalen
DORTMUND

Haematology and oncology clinic
Klinikum Dortmund gGmbH - Klinikzentrum Mitte

GERMANY

Nordrhein-Westfalen
DÜSSELDORF

Haematology and oncology clinic
Universitätsklinikum Düsseldorf

GERMANY

Nordrhein-Westfalen
DÜSSELDORF

GERMANY

Nordrhein-Westfalen
ESSEN

Haematology and oncology clinic
Universitätsklinikum Essen

GERMANY

Nordrhein-Westfalen
KREFELD

Haematology and oncology clinic
HELIOS Klinikum Krefeld

GERMANY

Nordrhein-Westfalen
KÖLN

Haematology and oncology clinic
Universitätsklinikum Köln

GERMANY

Nordrhein-Westfalen
MÜNSTER

Center for rare diseases in surgical orthopedic
Universitätsklinikum Münster

GERMANY

Nordrhein-Westfalen
MÜNSTER

Haematology and oncology clinic
Universitätsklinikum Münster

GERMANY

Nordrhein-Westfalen
SANKT AUGUSTIN

Haematology and oncology clinic
Asklepios Kinderklinik Sankt Augustin GmbH

GERMANY

Rheinland-Pfalz
MAINZ

Haematology and oncology clinic
Universitätsmedizin Mainz

GERMANY

Saarland
HOMBURG

Haematology and oncology clinic
Universitätsklinikum des Saarlandes

GERMANY

Sachsen
CHEMNITZ

Haematology and oncology clinic
Klinikum Chemnitz gGmbH

GERMANY

Sachsen
DRESDEN

Haematology and oncology clinic
Universitätsklinikum Carl Gustav Carus an der TU Dresden

GERMANY

Sachsen
LEIPZIG

Haematology and oncology clinic
Zentrum für Frauen- und Kindermedizin am Universitätsklinikum Leipzig

GERMANY

Sachsen
LEIPZIG

Oncology clinic
Zentrum für Frauen- und Kindermedizin am Universitätsklinikum Leipzig

GERMANY

Sachsen
LEIPZIG

Disproportional growth clinic
Zentrum für Frauen- und Kindermedizin am Universitätsklinikum Leipzig

GERMANY

Sachsen-Anhalt
HALLE (SAALE)

Haematology and oncology clinic
Universitätsklinikum Halle (Saale)

GERMANY

Sachsen-Anhalt
MAGDEBURG

Haematology and oncology clinic
Universitätsklinikum Magdeburg A.ö.R

GERMANY

Schleswig-Holstein
KIEL

Haematology and oncology clinic
Universitätsklinikum Schleswig-Holstein - Campus Kiel

GERMANY

Schleswig-Holstein
LÜBECK

Haematology and oncology clinic
Universitätsklinikum Schleswig-Holstein - Campus Lübeck

GERMANY

Thüringen
ERFURT

Haematology and oncology clinic
Helios Klinikum Erfurt

GERMANY

Thüringen
JENA

Haematology and oncology clinic
Universitätsklinikum Jena

IRELAND

County Dublin
DUBLIN

Expert center on Primary Bone Dysplasias_Dublin
St. Vincent's University Hospital

ITALY

EMILIA ROMAGNA
BOLOGNA

Centre of Expertise for rare bone tumors
Istituto Ortopedico Rizzoli - Centro di Ricerca e Poliambulatorio

ITALY

EMILIA ROMAGNA
BOLOGNA

Centre of expertise for infantile and juvenile bone tumors
Istituto Ortopedico Rizzoli - Ospedale

ITALY

EMILIA ROMAGNA
FERRARA

Rare bone tumors clinic
Università degli Studi di Ferrara - Arcispedale "S. Anna"

ITALY

LAZIO
ROMA

Expert center on Rare Bone Disorders_A. Gemelli
Fondazione Policlinico Universitario Agostino Gemelli IRCCS

ITALY

LAZIO
ROMA

Expert center on Rare Bone Disorders_Rome
IRCCS Ospedale Pediatrico Bambino Gesù - SEDE GIANICOLO

ITALY

PIEMONTE
TORINO

Centre of Expertise for rare pediatric tumors
A.O. Città della Salute e della Scienza di Torino - Ospedale Regina Margherita

NETHERLANDS

Gelderland
NIJMEGEN

Radboud Sarcoma Center
Radboudumc - Radboud universitair medisch centrum

NETHERLANDS

Groningen
GRONINGEN

Centre for Familial Tumors
UMCG - Universitair Medisch Centrum Groningen

NETHERLANDS

Zuid-Holland
LEIDEN

Center for Bone Quality
LUMC - Leids Universitair Medisch Centrum

NETHERLANDS

Zuid-Holland
LEIDEN

Bone and Soft Tissue Tumor Clinic
LUMC - Leids Universitair Medisch Centrum

NORWAY

Østlandet
OSLO

PORTUGAL

SUL
LISBOA

Expert center on Rare Bone Disorders_Lisboa
Hospital de Santa Maria - Centro Hospitalar Universitário Lisboa Norte, EPE

RUSSIAN FEDERATION

RUSSIAN FEDERATION
MOSCOW

National Medical Radiology Research Center NMRRC
National Medical Radiology Research Center NMRRC

SPAIN

Andalucía
SEVILLA

Expert center on Primary Bone Dysplasias_Sevilla
Hospital Universitario Virgen del Rocío

SPAIN

Cataluña
BARCELONA

Expert center on Primary Bone Dysplasias_Barcelona
Hospital Universitari Vall d'Hebron

SPAIN

Cataluña
ESPLUGUES DE LLOBREGAT

Pediatric oncology clinic
Hospital Sant Joan de Déu Barcelona

SPAIN

Comunidad Valenciana
VALENCIA

Regional unit of expertise of pediatric oncology
Hospital Clínico Universitario de Valencia

SPAIN

Madrid
MADRID

Expert center on Primary Bone Dysplasias_Madrid
Hospital Universitario La Paz

SPAIN

Murcia
EL PALMAR

Expert center on Rare Bone Disorders_El Palmar
Hospital Clínico Universitario Virgen de la Arrixaca

SWITZERLAND

Suisse Alémanique
BERN

Oncogenetic clinic
Universitätsspital Inselspital

SWITZERLAND

Suisse Alémanique
ZÜRICH

Pediatric oncology clinic
Universitäts - Kinderspital Zürich - Eleonorenstiftung

SWITZERLAND

Suisse Romande
GENÈVE

Oncogenetics unit
Hôpitaux Universitaires de Genève - Maternité

SWITZERLAND

Suisse Romande
LAUSANNE

Oncogenetic clinic
Hôpital Nestlé - CHUV

SWITZERLAND

Suisse Romande
SION

Oncogenetic clinic
Institut Central des Hôpitaux (ICH)

UNITED KINGDOM

Essex
STANMORE

UNITED KINGDOM

Oxfordshire
OXFORD

UNITED KINGDOM

Shropshire
OSWESTRY

Primary Malignant Bone Cancer Treatment NHS Specialised Service
Robert Jones & Agnes Hunt Orthopaedic & District Hospital NHS Trust

AUSTRIA

TIROL
INNSBRUCK

Pediatric endocrinology clinic
Medizinische Universität Innsbruck

AUSTRIA

WIEN
WIEN

Outpatient clinic for metabolic bone diseases
Krankenhaus der Barmherzigen Schwestern Wien

BELGIUM

ANTWERPEN
ANTWERPEN-EDEGEM

BELGIUM

ANTWERPEN
EDEGEM (ANTWERPEN)

BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

BELGIUM

LIEGE
LIEGE

CANADA

Manitoba
WINNIPEG

Genetics and Metabolism
Health Sciences Centre

CANADA

Ontario
MISSISSAUGA

Clinical Genetics, Credit Valley Site, Trillium Health Partners
Genetics Clinic, Credit Valley Hospital

CANADA

Ontario
TORONTO

Clinical and Metabolic Genetics Division
The Hospital for Sick Children and University of Toronto

CANADA

Québec
MONTRÉAL

Genetique Medicale
Centre hospitalier universitaire Sainte-Justine

CANADA

Québec
MONTRÉAL

Medical genetics pediatric clinic
Glen / McGill Univeristy Health Centre - Centre Universitaire de santé McGill

CANADA

Québec
MONTRÉAL

Medical genetics adult clinic
Glen / McGill Univeristy Health Centre - Centre Universitaire de santé McGill

CANADA

Québec
SHERBROOKE

Medical genetics service
CIUSSS de l'Estrie - CHUS Fleurimont

FINLAND

Finland
HELSINKI

Department of Clinical Genetics
HUS - Helsinki University Hospital

FINLAND

Finland
HELSINKI

Harvinaissairauksien yksikkö
HUS - Helsinki University Hospital

FINLAND

Finland
KUOPIO

Paediatric Haematology and Oncology Unit
Kuopio University Hospital

FINLAND

Finland
KUOPIO

Harvinaissairauksien yksikkö
Kuopio University Hospital

FINLAND

Finland
OULU

Rare Diseases Unit
Oulu University Hospital

FINLAND

Finland
TAMPERE

Paediatric Haematology and Oncology Unit
TAYS - Tampere University Hospital

FINLAND

Finland
TAMPERE

Harvinaissairauksien yksikkö
TAYS - Tampere University Hospital

FINLAND

Finland
TURKU

Harvinaissairauksien yksikkö
Turku University Hospital

FINLAND

Finland
TURKU

TYKS Cancer Centre
Turku University Hospital

FRANCE

AUVERGNE-RHONE-ALPES
BRON

Competence centre for constitutional bone diseases (MOC)
CHU de Lyon HCL - GH Est-Hôpital Femme Mère Enfant

FRANCE

AUVERGNE-RHONE-ALPES
CLERMONT-FERRAND

FRANCE

AUVERGNE-RHONE-ALPES
GRENOBLE

Reference centre for constitutional bone diseases (MOC) - Competence centre
CHU de Grenoble site Nord - Hôpital Couple-Enfant

FRANCE

AUVERGNE-RHONE-ALPES
LYON

Reference centre for constitutional bone diseases (MOC) and Ehlers-Danlos Syndrome (EDS) - Competence centre
Centre Médico-Chirurgical de Réadaptation des Massues - Croix-Rouge française

FRANCE

AUVERGNE-RHONE-ALPES
LYON

Clinic for diagnosis and treatment of cancers in children and adolescents
GH Est des HCL - Institut d'Hématologie et d'Oncologie Pédiatrique (IHOPe)

FRANCE

AUVERGNE-RHONE-ALPES
SAINT-ÉTIENNE

FRANCE

BOURGOGNE-FRANCHE-COMTE
DIJON

Reference centre for constitutional bone diseases (MOC) - Competence centre
CHU Dijon Bourgogne - Hôpital François Mitterrand

FRANCE

BOURGOGNE-FRANCHE-COMTE
DIJON

Reference centre for constitutional bone diseases (MOC) - Competence centre
CHU Dijon Bourgogne - Hôpital François Mitterrand

FRANCE

CENTRE-VAL DE LOIRE
TOURS

FRANCE

GRAND-EST
STRASBOURG

FRANCE

GRAND-EST
VANDOEUVRE-LÈS-NANCY

FRANCE

GRAND-EST
VANDOEUVRE-LÈS-NANCY

FRANCE

HAUTS-DE-FRANCE
AMIENS

FRANCE

ILE-DE-FRANCE
PARIS

Reference centre for constitutional bone diseases (MOC) - Constitutive site
AP-HP.Centre - Université de Paris - Hôpital Cochin

FRANCE

ILE-DE-FRANCE
PARIS

Reference centre for constitutional bone diseases (MOC) - Competence centre
AP-HP.Sorbonne Université - Hôpital d'Enfants Armand-Trousseau

FRANCE

ILE-DE-FRANCE
PARIS

Pediatric visceral and urological surgery
Hôpital Necker-Enfants Malades

FRANCE

ILE-DE-FRANCE
VILLEJUIF

FRANCE

NORMANDIE
CAEN

FRANCE

NOUVELLE AQUITAINE
BORDEAUX

FRANCE

OCCITANIE
MONTPELLIER

Reference centre for constitutional bone diseases (MOC) - Competence centre
CHU de Montpellier - Hôpital Arnaud de Villeneuve

FRANCE

OUTRE-MER
SAINT-DENIS

FRANCE

PROVENCE-ALPES-COTE D'AZUR
MARSEILLE

FRANCE

PROVENCE-ALPES-COTE D'AZUR
MARSEILLE

FRANCE

PROVENCE-ALPES-COTE D'AZUR
NICE

GERMANY

Baden-Württemberg
FREIBURG

Comprehensive Cancer Center Freiburg
Tumorzentrum Freiburg (CCCF)

GERMANY

Baden-Württemberg
HEIDELBERG

Comprehensive Cancer Center Heidelberg
Nationales Centrum für Tumorerkrankungen (NCT)

GERMANY

Baden-Württemberg
HEIDELBERG

Rare tumor clinic
Universitätsmedizin Heidelberg

GERMANY

Baden-Württemberg
TÜBINGEN

GERMANY

Baden-Württemberg
TÜBINGEN

GERMANY

Baden-Württemberg
ULM

Comprehensive Cancer Center Ulm
Integratives Tumorzentrum des Universitätsklinikums Ulm

GERMANY

Baden-Württemberg
ULM

Bone dysplasia clinic
Zentrum für Seltene Erkrankungen am Universitätsklinikum Ulm

GERMANY

Bayern
ERLANGEN

Comprehensive Cancer Center Erlangen - EMN
Geschäftsstelle des CCC Erlangen-EMN

GERMANY

Bayern
MÜNCHEN

Comprehensive Cancer Center München
Geschäftsstelle CCC München

GERMANY

Bayern
WÜRZBURG

Comprehensive Cancer Center Mainfranken, Würzburg
CCC Mainfranken an der Universität Würzburg

GERMANY

Berlin
BERLIN

Comprehensive Cancer Center Berlin
Charité - Universitätsmedizin Berlin (CCM)

GERMANY

Berlin
BERLIN

Haematology and oncology clinic
Vivantes Klinikum Neukölln

GERMANY

Hamburg
HAMBURG

Oncology clinic
Asklepios Klinik Altona

GERMANY

Hamburg
HAMBURG

Comprehensive Cancer Center Hamburg
Hubertus Wald Tumorzentrum/ Universitäres Cancer Center (UCCH)

GERMANY

Hessen
DARMSTADT

Oncology clinic
Klinikum Darmstadt GmbH

GERMANY

Hessen
FRANKFURT AM MAIN

Oncology clinic
Centrum für Hämatologie und Onkologie Bethanien

GERMANY

Hessen
FRANKFURT AM MAIN

Tumor Cancer Centre Frankfurt
Universitätsklinikum Frankfurt

GERMANY

Hessen
MARBURG

Comprehensive Cancer Center Marburg
Universitätsklinikum Gießen und Marburg GmbH, Standort Marburg

GERMANY

Niedersachsen
GÖTTINGEN

University Cancer Center Göttingen
Universitätsmedizin Göttingen

GERMANY

Niedersachsen
HANNOVER

Onkologisches Zentrum
Medizinische Hochschule Hannover

GERMANY

Niedersachsen
OLDENBURG

Oncology clinic
Klinikum Oldenburg gGmbH

GERMANY

Nordrhein-Westfalen
BOCHUM

Rare bone diseases clinic
Universitäts-Kinderklinik am St. Josef-Hospital

GERMANY

Nordrhein-Westfalen
DÜSSELDORF

Center for Integrated Oncology Düsseldorf
Universitätstumorzentrum (UTZ)

GERMANY

Nordrhein-Westfalen
ESSEN

Comprehensive Cancer Center Essen
Westdeutsches Tumorzentrum Essen (WTZ)

GERMANY

Nordrhein-Westfalen
KÖLN

Comprehensive Cancer Center Köln
Centrum für Integrierte Onkologie (CIO) Köln-Bonn, Standort Köln

GERMANY

Nordrhein-Westfalen
KÖLN

Comprehensive Cancer Center Aachen Bonn Köln Düsseldorf
Geschäftsstelle CIO Aachen Bonn Köln Düsseldorf

GERMANY

Rheinland-Pfalz
MAINZ

Comprehensive Cancer Center Mainz
Universitätsmedizin Mainz

GERMANY

Sachsen
DRESDEN

Comprehensive Cancer Center Dresden
Universitätsklinikum Carl Gustav Carus an der TU Dresden

GERMANY

Schleswig-Holstein
LÜBECK

Hematological and oncological diseases clinic
Universitätsklinikum Schleswig-Holstein - Campus Lübeck

ITALY

CAMPANIA
NAPOLI

Centre of Expertise for rare tumors
Azienda Ospedaliera Universitaria "Federico II"

ITALY

EMILIA ROMAGNA
BOLOGNA

Centre of Expertise for rare pediatric tumors
Policlinico S. Orsola-Malpighi - Area S. Orsola

ITALY

LAZIO
ROMA

Centre of Expertise for rare tumors
Istituti Fisioterapici Ospitalieri - Istituto Nazionale Tumori Regina Elena

ITALY

LIGURIA
ARENZANO

ITALY

LIGURIA
GENOVA

Specialized clinic for rare pediatric tumors
IRCCS Istituto G. Gaslini - Ospedale Pediatrico

ITALY

LIGURIA
GENOVA

Centre of expertise for hereditary tumors
Istituto Nazionale per la Ricerca sul Cancro - IST

ITALY

LOMBARDIA
MILANO

Centre of Expertise for skeletal dysplasia
Fondazione IRCCS Ca' Granda - Ospedale Maggiore Policlinico

ITALY

LOMBARDIA
MONZA

Centre of Expertise for rare pediatric tumors
ASST Monza - Ospedale San Gerardo

ITALY

PIEMONTE
CANDIOLO

ITALY

PUGLIA
BARI

Centre of Expertise for rare tumors
I.R.C.C.S. Ospedale Oncologico "Giovanni Paolo II" di Bari

ITALY

SICILIA
CATANIA

Centre of Expertise for rare genetic disorders
Azienda Ospedaliero Universitaria "Policlinico Vittorio Emanuele"

ITALY

TOSCANA
FIRENZE

Centre of Expertise for rare pediatric tumors
Azienda Ospedaliera Universitaria Anna Meyer

ITALY

VENETO
PADOVA

Center of expertise for osteoporosis
Azienda Ospedale-Università di Padova

JAPAN

JAPAN
CHIBA

Clinical Genetics
Chiba University Hospital

JAPAN

JAPAN
TOKYO

Rinsho Idengaku Center
Keio University Hospital

LATVIA

LATVIA
RIGA

NETHERLANDS

Utrecht
UTRECHT

Utrecht Centre for Skeletal Malformations
UMC Utrecht - Universitair Medisch Centrum Utrecht

NETHERLANDS

Zuid-Holland
ROTTERDAM

Erasmus MC Bone Center
Erasmus MC - Erasmus Medisch Centrum

NORWAY

Østlandet
NESODDTANGEN

TRS National Resource Centre for Rare Disorders
Sunnaas Rehabilitation Hospital

POLAND

Lublin
LUBLIN

Rare pediatric cancers and hematologic disorders clinic
Uniwersytecki Szpital Dzieciecy w Lublinie

POLAND

Warszawa
WARSAW

Clinic for oncologic diseases
Instytut "Pomnik-Centrum Zdrowia Dziecka"

ROMANIA

TIMIS
TIMISOARA

Centrul Regional de Genetica Medicala Timis
University Medecine-Pharmacie "Victor Babes"- Pediatric Hospital "Louis Turcanu"

RUSSIAN FEDERATION

RUSSIAN FEDERATION
MOSCOW

Loginov Moscow Clinical Scientific Center
Loginov Moscow Clinical Scientific Center

RUSSIAN FEDERATION

RUSSIAN FEDERATION
MOSCOW

The Research Centre for Medical Genetics
The Research Centre for Medical Genetics

RUSSIAN FEDERATION

RUSSIAN FEDERATION
MOSCOW

Veltischev Research and Clinical Institute for Pediatrics
Veltischev Research and Clinical Institute for Pediatrics

RUSSIAN FEDERATION

RUSSIAN FEDERATION
SAINT-PETERSBURG

St. Petersburg State Pediatric Medical University
St. Petersburg State Pediatric Medical University

RUSSIAN FEDERATION

RUSSIAN FEDERATION
TAMBOV

Tambov regional childrens clinical hospital
Tambov Regional Children's Hospital clinical hospital

RUSSIAN FEDERATION

RUSSIAN FEDERATION
TYUMEN

«Perinatal Medical Center» (Tyumen)
«Perinatal Medical Center» (Tyumen)

RUSSIAN FEDERATION

RUSSIAN FEDERATION
VLADIKAVKAZ

Children's Clinical Hospital, medical and Genetic consultation
Children's Clinical Hospital, medical and Genetic consultation

SPAIN

Madrid
MADRID

Rare neoplastic diseases clinic
Hospital Universitario Fundación Jiménez Díaz

SPAIN

Madrid
MADRID

Prenatal diagnosis and genetic counseling in pregnancy
INGEMM - Instituto de Genética Médica y Molecular (IdiPAZ)

SPAIN

Madrid
MADRID

Clinical genetics and dysmorphology
INGEMM - Instituto de Genética Médica y Molecular (IdiPAZ)

SWEDEN

Region Skåne
LUND

Clinical Genetics - Skåne University Hospital
Lunds Universitetssjukhus -Klinisk Genetik

SWEDEN

Region Stockholm
STOCKHOLM

Expert team for skeletal dysplasia
Karolinska Universitetssjukhuset - Solna

SWITZERLAND

Suisse Alémanique
AARAU

SWITZERLAND

Suisse Alémanique
BASEL

SWITZERLAND

Suisse Alémanique
BERN

Genetic medicine clinic
Universitätsspital Inselspital

SWITZERLAND

Suisse Alémanique
BERN

Centre for Rare Diseases Inselspital
Universitätsspital Inselspital

SWITZERLAND

Suisse Alémanique
LUZERN

Centre for rare diseases, LUKS
Luzerner Kantonsspital / Kinderspital Luzern

SWITZERLAND

Suisse Alémanique
SCHLIEREN

SWITZERLAND

Suisse Alémanique
ST. GALLEN

SWITZERLAND

Suisse Alémanique
ZÜRICH

Skeletal dysplasia clinic
Universitäts - Kinderspital Zürich - Eleonorenstiftung

SWITZERLAND

Suisse Alémanique
ZÜRICH

Centre for rare diseases Zurich
Universitätsspital Zürich

SWITZERLAND

Suisse Italienne
BELLINZONA

Center for Rare Diseases of Southern Switzerland
Ospedale Regionale di Bellinzona e Valli - San Giovanni

SWITZERLAND

Suisse Romande
GENÈVE

HUG Centre for rare diseases
Hôpitaux Universitaires de Genève HUG

SWITZERLAND

Suisse Romande
LAUSANNE

TURKEY

TURKEY
ADANA

Pediatric Oncology Clinic
University of Çukurova

UNITED KINGDOM

Greater London
SURREY

UNITED KINGDOM

Greater Manchester
MANCHESTER

Paediatric Oncology Service
Royal Manchester Children's Hospital

UNITED KINGDOM

South Yorkshire
SHEFFIELD

FRANCE

AUVERGNE-RHONE-ALPES
BRON

FRANCE

AUVERGNE-RHONE-ALPES
CLERMONT-FERRAND

FRANCE

AUVERGNE-RHONE-ALPES
GRENOBLE

FRANCE

AUVERGNE-RHONE-ALPES
SAINT-PRIEST-EN-JAREZ

FRANCE

BOURGOGNE-FRANCHE-COMTE
BESANÇON

FRANCE

BOURGOGNE-FRANCHE-COMTE
DIJON

FRANCE

BRETAGNE
VANNES

FRANCE

GRAND-EST
VANDOEUVRE-LÈS-NANCY

FRANCE

ILE-DE-FRANCE
CRÉTEIL

FRANCE

ILE-DE-FRANCE
PARIS

Reference centre for developmental anomalies and malformation syndromes IDF - Competence centre
AP-HP.Sorbonne Université - Hôpital d'Enfants Armand-Trousseau

FRANCE

ILE-DE-FRANCE
PARIS

Reference centre for developmental anomalies and malformation syndromes IDF - Constitutive site
AP-HP.Sorbonne Université - Hôpital de la Pitié-Salpêtrière

FRANCE

ILE-DE-FRANCE
POISSY

Reference centre for developmental anomalies and malformation syndromes IDF - Constitutive site
Centre hospitalier intercommunal Poissy-Saint-Germain-en-Laye

FRANCE

PROVENCE-ALPES-COTE D'AZUR
MARSEILLE

FRANCE

PROVENCE-ALPES-COTE D'AZUR
TOULON

GERMANY

Baden-Württemberg
FREIBURG

Genetic skeletal anomalies clinic
Universitätsklinikum Freiburg

GERMANY

Bayern
MÜNCHEN

Rare bone diseases clinic
Medizinische Klinik und Poliklinik IV - Standort Ziemssenstraße

GERMANY

Bayern
WÜRZBURG

Rare bone diseases clinic
Universitätsklinikum Würzburg

GERMANY

Berlin
BERLIN

Skeletal dysplasia clinic
Charité - Universitätsmedizin Berlin (CVK)

GERMANY

Hamburg
HAMBURG

Orthopedic clinic
AKK Altonaer Kinderkrankenhaus gGmbH

GERMANY

Hamburg
HAMBURG

Rare bone diseases clinic
UKE - Universitätsklinikum Hamburg-Eppendorf

GERMANY

Nordrhein-Westfalen
AACHEN

Skeletal dysplasia clinic
Universitätsklinikum Aachen

GERMANY

Nordrhein-Westfalen
DÜSSELDORF

Rare bone diseases clinic
Universitätsklinikum Düsseldorf

GERMANY

Nordrhein-Westfalen
KÖLN

Rare bone diseases clinic
Universitätsklinikum Köln

ITALY

EMILIA ROMAGNA
BOLOGNA

Centre of Expertise for rare bone diseases
Istituto Ortopedico Rizzoli - Ospedale

ITALY

FRIULI VENEZIA GIULIA
TRIESTE

Centre of Expertise for rare bone diseases
IRCCS Burlo Garofolo - Istituto per l'Infanzia

ITALY

LIGURIA
GENOVA

Centre of Expertise for rare bone diseases
IRCCS Istituto G. Gaslini - Ospedale Pediatrico

ITALY

LOMBARDIA
MILANO

Bone diseases specialized clinic
Fondazione IRCCS Ca' Granda - Ospedale Maggiore Policlinico

ITALY

PIEMONTE
TORINO

Centre of Expertise for skeletal dysplasia
A.O. Città della Salute e della Scienza di Torino - Ospedale Regina Margherita

ITALY

VENETO
VERONA

Centre of Expertise for diagnosis and treatment of rare skeletal diseases in childhood
Azienda Ospedaliera Universitaria Integrata di Verona - Ospedale Borgo Roma

ROMANIA

SIBIU
SIBIU

SWEDEN

Region Stockholm
STOCKHOLM

Expert team for Congenital Limb Anomalies
Karolinska Universitetssjukhuset - Solna

SWEDEN

Region Stockholm
STOCKHOLM

SWITZERLAND

Suisse Alémanique
ZÜRICH

Center for rare musculoskeletal diseases
Balgrist University Hospital

SWITZERLAND

Suisse Romande
LAUSANNE

Genetic bone diseases clinic
Hôpital Nestlé - CHUV

BULGARIA

 South-West region
SOFIA

Dysmorphology clinic
University Hospital Alexandrovska

CYPRUS

Cyprus
NICOSIA

Dysmorphology clinic
Archbishop Makarios III hospital

DENMARK

Jylland
AARHUS

Centre for rare diseases - CSS
Klinisk Genetisk Afdeling - Aarhus Universitetshospital - Skejby

GERMANY

Baden-Württemberg
HEIDELBERG

Syndromic developmental disorders clinic
Universitätsmedizin Heidelberg

GERMANY

Bayern
ERLANGEN

Rare developmental defect clinic
ZSEER - Zentrum für Seltene Erkrankungen Erlangen

GERMANY

Mecklenburg-Vorpommern
GREIFSWALD

Congenital malformations clinic
Universitätsmedizin Greifswald

GERMANY

Niedersachsen
GÖTTINGEN

GERMANY

Niedersachsen
HANNOVER

Syndromology and dysmorphology clinic
Medizinische Hochschule Hannover

GERMANY

Nordrhein-Westfalen
AACHEN

Congenital malformations clinic
Universitätsklinikum Aachen

GERMANY

Nordrhein-Westfalen
AACHEN

Syndromology clinic
Universitätsklinikum Aachen

GERMANY

Nordrhein-Westfalen
ESSEN

Neuropediatrics clinic
Universitätsklinikum Essen

GERMANY

Nordrhein-Westfalen
ESSEN

Syndromology and dysmorphology clinic
Universitätsklinikum Essen

GERMANY

Nordrhein-Westfalen
MÜNSTER

Congenital metabolic diseases clinic
Universitätsklinikum Münster

GERMANY

Schleswig-Holstein
LÜBECK

Developmental defect during embryogenesis clinic
Universitätsklinikum Schleswig-Holstein - Campus Lübeck

GERMANY

Schleswig-Holstein
LÜBECK

Rare genetic syndromes and congenital malformations clinic
Universitätsklinikum Schleswig-Holstein - Campus Lübeck

HUNGARY

Dél-Dunántúl
PECS

Dysmorphology clinic
Department of Paediatrics - Clinical Center - University of Pécs

ITALY

ABRUZZO
CHIETI

Centre of Expertise for dysmorphology
Policlinico Universitario di Chieti

ITALY

CALABRIA
CATANZARO

Dysmorphology clinic
Azienda Ospedaliera Pugliese Ciaccio

ITALY

CAMPANIA
AVELLINO

Centre of Expertise for dysmorphology
Azienda Ospedaliera San Giuseppe Moscati

ITALY

CAMPANIA
BENEVENTO

Centre of Expertise for dysmorphology
A.O.R.N. "Gaetano Rummo"

ITALY

CAMPANIA
NAPOLI

Centre of Expertise for dysmorphology
Azienda Ospedaliera "A. Cardarelli"

ITALY

CAMPANIA
NAPOLI

Centre of Expertise for dysmorphology
Azienda Ospedaliera Universitaria "Federico II"

ITALY

CAMPANIA
NAPOLI

Centre of Expertise for dysmorphology
Azienda Ospedaliera Universitaria "Federico II"

ITALY

CAMPANIA
NAPOLI

Centre of Expertise for dysmorphology
Istituto di Genetica e Biofisica "Adriano Buzzati Traverso" - CNR

ITALY

CAMPANIA
SALERNO

Dysmorphology clinic
Centro Zigote S.r.L.

ITALY

EMILIA ROMAGNA
BOLOGNA

Centre of Expertise for rare developmental defect during embryogenesis
Policlinico S. Orsola-Malpighi - Area S. Orsola

ITALY

EMILIA ROMAGNA
IMOLA

ITALY

EMILIA ROMAGNA
PIEVESESTINA DI CESENA

Dysmorphologic clinic
AUSL Cesena

ITALY

EMILIA ROMAGNA
REGGIO EMILIA

Centre of Expertise for dysmorphology
AUSL IRCCS Arcispedale Santa Maria Nuova

ITALY

EMILIA ROMAGNA
REGGIO EMILIA

ITALY

FRIULI VENEZIA GIULIA
TRIESTE

Dysmorphology clinic
IRCCS Burlo Garofolo - Istituto per l'Infanzia

ITALY

FRIULI VENEZIA GIULIA
UDINE

Regional Centre of Expertise for developmental anomalies and malformation syndromes (Williams syndrome)
Azienda Ospedaliero-Universitaria "Santa Maria della Misericordia" di Udine

ITALY

LAZIO
ROMA

Dysmorphology clinic
Azienda Ospedaliera S. Camillo-Forlanini - Ospedale San Camillo

ITALY

LAZIO
ROMA

Dysmorphology clinic
Fondazione Policlinico Universitario Agostino Gemelli IRCCS

ITALY

LAZIO
ROMA

Dysmorphology clinic
IRCCS Ospedale Pediatrico Bambino Gesù - SEDE GIANICOLO

ITALY

LAZIO
ROMA

Centre of Expertise for dysmorphology
IRCCS Ospedale Pediatrico Bambino Gesù - SEDE SAN PAOLO

ITALY

LAZIO
ROMA

Dysmorphology clinic
Policlinico Umberto I

ITALY

LIGURIA
GENOVA

ITALY

LOMBARDIA
MILANO

Centre of Expertise for dysmorphology
ASST Grande Ospedale Metropolitano Niguarda

ITALY

LOMBARDIA
MILANO

Centre of Expertise for dysmorphology
Fondazione IRCCS Ca' Granda - Ospedale Maggiore Policlinico

ITALY

LOMBARDIA
MILANO

Centre of Expertise for dysmorphology
Fondazione IRCCS Ca' Granda - Ospedale Maggiore Policlinico

ITALY

LOMBARDIA
MILANO

Centre of Expertise for rare developmental defect during embryogenesis
IRCCS Ca' Granda Ospedale Maggiore Policlinico - Padiglione De Marchi

ITALY

LOMBARDIA
MILANO

Centre of Expertise for dysmorphology
IRCCS Ca' Granda Ospedale Maggiore Policlinico - Padiglione De Marchi

ITALY

LOMBARDIA
MILANO

Dysmorphology clinic
IRCCS Ospedale San Raffaele

ITALY

LOMBARDIA
MONZA

Centre of Expertise for dysmorphology
ASST Monza - Ospedale San Gerardo

ITALY

MOLISE
CAMPOBASSO

Centre of Expertise for dysmorphology
Ospedale "Cardarelli" - ASReM - Zona di Campobasso

ITALY

PIEMONTE
TORINO

Centre of Expertise for dysmorphology
A.O. Città della Salute e della Scienza di Torino - Ospedale Regina Margherita

ITALY

PIEMONTE
VERBANIA

Dysmorphology clinic
Azienda Sanitaria Locale Verbano Cusio Ossola - Ospedale Castelli

ITALY

PUGLIA
ACQUAVIVA DELLE FONTI

Dysmorphology clinic
Ospedale F. Miulli

ITALY

PUGLIA
SAN GIOVANNI ROTONDO

Centre of Expertise for dysmorphology
IRCCS Ospedale Casa Sollievo della Sofferenza -Poliamb. Giovanni Paolo II

ITALY

SARDEGNA
CAGLIARI

Dysmorphology clinic
Ospedale Regionale per le Microcitemie

ITALY

SICILIA
CATANIA

Centre of Expertise for congenital malformative syndromes
Azienda Ospedaliero Universitaria "Policlinico Vittorio Emanuele"

ITALY

SICILIA
CATANIA

Centre of Expertise for dysmorphology
Presidio Ospedaliero Garibaldi-Nesima

ITALY

SICILIA
PALERMO

Centre of Expertise for dysmorphology
Azienda Ospedaliera Ospedali Riuniti "Villa Sofia-Cervello" - Presidio Cervello

ITALY

SICILIA
PALERMO

Centre of Expertise for rare developmental defect during embryogenesis
Azienda Ospedaliera Ospedali Riuniti "Villa Sofia-Cervello" - Presidio Cervello

ITALY

SICILIA
PALERMO

Centre of Expertise for dysmorphology
Azienda Ospedaliera Universitaria Policlinico "Paolo Giaccone"

ITALY

SICILIA
RAGUSA

Dysmorphology clinic
Azienda Sanitaria Provinciale di Ragusa

ITALY

SICILIA
TROINA

Centre of Expertise for dysmorphology
IRCCS OASI Maria Santissima

ITALY

TOSCANA
FIRENZE

Dysmorphology clinic
AOU Careggi

ITALY

TOSCANA
FIRENZE

Dysmorphology clinic
Azienda Ospedaliera Universitaria Anna Meyer

ITALY

TOSCANA
PISA

Dysmorphology specialized clinic
Azienda Ospedaliero Universitaria Pisana - Ospedale S. Chiara

ITALY

TOSCANA
SIENA

Dysmorphology clinic
Azienda Ospedaliera Universitaria Senese - Policlinico Santa Maria alle Scotte

ITALY

TOSCANA
SIENA

Centre of Expertise for Dysmorphology
Azienda Ospedaliera Universitaria Senese - Policlinico Santa Maria alle Scotte

ITALY

TRENTINO ALTO ADIGE
TRENTO

Centre of Expertise for dysmorphology
A.P.S.S. Provincia Autonoma di Trento

ITALY

UMBRIA
PERUGIA

Centre of Expertise for dysmorphology
Azienda Ospedaliera di Perugia - Centro di Ricerca Emato-Oncologica

ITALY

VENETO
BELLUNO

Dysmorphology clinic
IRCCS Ospedale Policlinico San Martino

ITALY

VENETO
DOLO

Dysmorphology clinic
Ospedale di Dolo - ULSS 13

ITALY

VENETO
PADOVA

Centre of Expertise for dysmorphology
Azienda Ospedaliera di Padova

ITALY

VENETO
VERONA

Dysmorphology clinic
Centro Airett Ricerca e Innovazione - CARI

LATVIA

LATVIA
RIGA

Dysmorphology clinic
Childrens University Hospital

LEBANON

Beyrouth
BEIRUT

Dysmorphology clinic
Université Saint-Joseph

LITHUANIA

DZUKIJA
VILNIUS

Dysmorphology clinic
Vilnius University Hospital Santariskiu Klinikos

MOROCCO

Fes
FES

Dysmorphology clinic
CENTRE HOSPITALIER UNIVERSITAIRE HASSAN II  

PORTUGAL

CENTRO
COIMBRA

Dysmorphology clinic
Centro Hospitalar e Universitário de Coimbra

PORTUGAL

NORTE
PORTO

Dysmorphology clinic
CGMJM - Centro de Genética Médica Jacinto Magalhães

PORTUGAL

NORTE
PORTO

Unit of Developmental and Perinatal disorders
Centro Hospitalar Universitário de S. João, EPE

PORTUGAL

NORTE
VILA REAL

Dysmorphology clinic
Centro Hospitalar de Vila Real-Peso da Régua, SA

PORTUGAL

SUL
LISBOA

Expert Center on on Rare Congenital Malformations and Rare Intellectual Disability_Lisboa
Hospital de Santa Maria - Centro Hospitalar Universitário Lisboa Norte, EPE

PORTUGAL

SUL
LISBOA

Dysmorphology clinic
Hospital de Santa Maria - Centro Hospitalar Universitário Lisboa Norte, EPE

ROMANIA

IASI
IASI

Iasi Regional Medical Genetics Centre
Spitalul Clinic de Urgente pentru Copii Sfanta Maria

ROMANIA

SIBIU
SIBIU

Dysmorphology clinic
Spitalul de Pediatrie Sibiu

RUSSIAN FEDERATION

RUSSIAN FEDERATION
ST. PETERSBURG

D.O.Ott Research Institute of Obstetrics, Gynecology and Reproductology
D.O.Ott Research Institute of Obstetrics, Gynecology and Reproductology

SLOVENIA

SLOVENIA
LJUBLJANA

Dysmorphology clinic
Univerzitetni klinicni center Ljubljana

SPAIN

Cataluña
BARCELONA

Clinical genetics and dysmorphology clinic
Hospital Universitari Vall d'Hebron

SPAIN

Extremadura
BADAJOZ

Dysmorphology clinic
Hospital Universitario de Badajoz

SPAIN

Extremadura
CÁCERES

Dysmorphology pediatric clinic
Hospital San Pedro de Alcántara

SPAIN

Madrid
MADRID

Dysmorphology clinic
Hospital Universitario 12 de Octubre

SPAIN

Murcia
EL PALMAR

Clinical genetics and dysmorphology clinic
Hospital Clínico Universitario Virgen de la Arrixaca

TURKEY

TURKEY
ANKARA

Dysmorphology clinic
Intergen Genetic and Rare Diseases

TURKEY

TURKEY
ISTANBUL

Dysmorpholgy clinic
Koc University, Faculty of Medicine