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Caption : Designated centre of expertise = Accreditation
Member of a ERN = ERN

DENMARK

Fyn
ODENSE

OUH HHT Centre
Odense University hospital

FRANCE

AUVERGNE-RHONE-ALPES
BRON

Reference centre for Rendu-Osler disease - Coordinator site
CHU de Lyon HCL - GH Est-Hôpital Femme Mère Enfant

FRANCE

AUVERGNE-RHONE-ALPES
CLERMONT-FERRAND

Reference centre for Rendu-Osler disease - Competence centre
CHU de Clermont-Ferrand - Hôpital d'Estaing

FRANCE

BOURGOGNE-FRANCHE-COMTE
DIJON

Reference centre for Rendu-Osler disease - Competence centre
CHU Dijon Bourgogne - Hôpital François Mitterrand

FRANCE

BRETAGNE
RENNES

Reference centre for Rendu-Osler disease - Competence centre
CHU de Rennes - Hôpital Pontchaillou

FRANCE

CENTRE-VAL DE LOIRE
TOURS

FRANCE

GRAND-EST
STRASBOURG

Reference centre for Rendu-Osler disease - Competence centre
CHU de Strasbourg - Hôpital de Hautepierre

FRANCE

GRAND-EST
VANDOEUVRE-LÈS-NANCY

FRANCE

HAUTS-DE-FRANCE
LILLE

Reference centre for Rendu-Osler disease - Competence centre
CHRU de Lille - Hôpital Claude Huriez

FRANCE

ILE-DE-FRANCE
BOULOGNE-BILLANCOURT

Reference centre for Rendu-Osler disease - Competence centre
CHU Paris IdF Ouest - Hôpital Ambroise Paré

FRANCE

ILE-DE-FRANCE
PARIS

Reference centre for Rendu-Osler disease - Competence centre
Groupe hospitalier AP-HP.6 - Hôpital Tenon

FRANCE

NOUVELLE AQUITAINE
BORDEAUX

FRANCE

NOUVELLE AQUITAINE
POITIERS

FRANCE

OCCITANIE
MONTPELLIER

Reference centre for Rendu-Osler disease - Competence centre
CHU de Montpellier - Hôpital Saint-Eloi

FRANCE

OCCITANIE
TOULOUSE

FRANCE

PAYS DE LA LOIRE
NANTES

FRANCE

PROVENCE-ALPES-COTE D'AZUR
MARSEILLE

Reference centre for Rendu-Osler disease - Competence centre
CHU de Marseille - Hôpital de la Timone

GERMANY

Bayern
REGENSBURG

Rendu-Osler-Weber disease clinic
Universitätsklinikum Regensburg

GERMANY

Hessen
MARBURG

Hereditary hemorrhagic telangiectasia clinic
Universitätsklinikum Gießen und Marburg GmbH, Standort Marburg

GERMANY

Nordrhein-Westfalen
BOCHUM

Centre for rare diseases manifesting in oral and maxillofacial area
Universitäts-Kinderklinik am St. Josef-Hospital

GERMANY

Nordrhein-Westfalen
ESSEN

Hereditary hemorrhagic telangiectasia clinic
Alfried Krupp Krankenhaus Rüttenscheid

GERMANY

Nordrhein-Westfalen
ESSEN

Hereditary hemorrhagic telangiectasia clinic
Universitätsklinikum Essen

GERMANY

Nordrhein-Westfalen
KÖLN

GERMANY

Sachsen-Anhalt
DESSAU

Certified vascular center Anhalt
Städtisches Klinikum Dessau

IRELAND

County Cork
CORK

The National HHT Centre
Mercy Hospital

ISRAEL

ISRAEL
PETAH TIKVA

Hereditary Hemorrhagic Telangiectasia HHT Clinic
Schneider Children's Medical Center of Israel

ITALY

LAZIO
ROMA

Centre of Expertise for Rendu-Osler-Weber disease
Fondazione Policlinico Universitario Agostino Gemelli IRCCS

ITALY

LOMBARDIA
CREMA

Centre of Expertise for Rendu-Osler-Weber disease
Azienda Ospedaliera "Ospedale Maggiore"

ITALY

LOMBARDIA
GARBAGNATE MILANESE

Centre of Expertise for vascular malformation
Azienda Ospedaliera "Guido Salvini"

ITALY

LOMBARDIA
PAVIA

Centre of Expertise for Rendu-Osler-Weber disease
Fondazione IRCCS Policlinico San Matteo

ITALY

PUGLIA
BARI

Centre of Expertise for Rendu-Osler-Weber disease
Azienda Ospedaliero-Universitaria Consorziale Policlinico di Bari

ITALY

TOSCANA
FIRENZE

LITHUANIA

SUDOVIA
KAUNAS

NETHERLANDS

Utrecht
NIEUWEGEIN

Center for Pulmonary Vascular Diseases
St. Antonius Ziekenhuis, locatie Nieuwegein

NORWAY

Østlandet
OSLO

SSD - Resource Centre for Rare Disorders
Oslo Universitetssykehus HF, Rikshospitalet

SPAIN

Cantabria
TORRELAVEGA

Rendu-Osler-Weber disease clinic
Hospital Sierrallana

SPAIN

Cataluña
L'HOSPITALET DE LLOBREGAT

Hemorrhagic Hereditary Telangiectasia Unit Clinics
Hospital Universitari de Bellvitge

SPAIN

Comunidad Valenciana
ALICANTE

Rare systemic diseases and porphyria clinic
Hospital General Universitario de Alicante

SPAIN

Madrid
ALCORCÓN

Hemorrhagic hereditary telangiectasia expert center
Hospital Universitario Fundación Alcorcón

SWEDEN

Region Uppsala
UPPSALA

Expert team for Osler disease
Akademiska Sjukhuset

SWITZERLAND

Suisse Romande
GENÈVE

Multidisciplinary Rendu-Osler-Weber disease clinic
Hôpitaux Universitaires de Genève HUG

SWITZERLAND

Suisse Romande
LAUSANNE

Multidisciplinary Rendu-Osler-Weber disease clinic
Centre Hospitalier Universitaire Vaudois CHUV

UNITED KINGDOM

Greater London
LONDON

Hammersmith HHT and PAVM Service
Imperial College NHS Trust

AUSTRIA

TIROL
INNSBRUCK

Department of Neuroradiology
Medizinische Universität Innsbruck

BELGIUM

VLAAMS BRABANT
LEUVEN

FRANCE

AUVERGNE-RHONE-ALPES
BRON

FRANCE

AUVERGNE-RHONE-ALPES
BRON

Reference centre for neurovascular malformations - Competence centre
CHU de Lyon HCL - GH Est-Hôpital Neurologique P. Wertheimer

FRANCE

AUVERGNE-RHONE-ALPES
CLERMONT-FERRAND

FRANCE

AUVERGNE-RHONE-ALPES
CLERMONT-FERRAND

FRANCE

AUVERGNE-RHONE-ALPES
GRENOBLE

Reference centre for vascular diseases of the liver - Competence centre
CHU Grenoble Alpes - Site Nord - Hôpital Couple Enfant

FRANCE

BOURGOGNE-FRANCHE-COMTE
BESANÇON

FRANCE

BOURGOGNE-FRANCHE-COMTE
DIJON

Reference centre for vascular diseases of the liver - Competence centre
CHU Dijon Bourgogne - Hôpital François Mitterrand

FRANCE

BRETAGNE
BREST

FRANCE

BRETAGNE
RENNES

FRANCE

CENTRE-VAL DE LOIRE
ORLEANS

FRANCE

CENTRE-VAL DE LOIRE
TOURS

FRANCE

GRAND-EST
REIMS

FRANCE

GRAND-EST
STRASBOURG

FRANCE

HAUTS-DE-FRANCE
AMIENS

FRANCE

HAUTS-DE-FRANCE
LILLE

FRANCE

ILE-DE-FRANCE
CLICHY

Reference centre for vascular diseases of the liver - Coordinator site
CHU Paris Nord-Val de Seine - Hôpital Beaujon

FRANCE

ILE-DE-FRANCE
CRÉTEIL

FRANCE

ILE-DE-FRANCE
LE KREMLIN-BICÊTRE

FRANCE

ILE-DE-FRANCE
LE KREMLIN-BICÊTRE

FRANCE

ILE-DE-FRANCE
PARIS

Reference centre for vascular diseases of the liver - Competence centre
APHP.Sorbonne Université, Hôpital de la Pitié-Salpêtrière

FRANCE

ILE-DE-FRANCE
PARIS

Reference centre for vascular diseases of the liver - Competence centre
CHU Paris Centre - Hôpital Cochin, Site Cochin

FRANCE

ILE-DE-FRANCE
PARIS

Reference centre for vascular diseases of the liver - Competence centre
CHU Paris-GH St-Louis Lariboisière F.Widal - Hôpital Saint-Louis

FRANCE

ILE-DE-FRANCE
PARIS

FRANCE

ILE-DE-FRANCE
PARIS

FRANCE

ILE-DE-FRANCE
PARIS

FRANCE

ILE-DE-FRANCE
VILLEJUIF

FRANCE

NORMANDIE
CAEN

FRANCE

NOUVELLE AQUITAINE
LIMOGES

FRANCE

NOUVELLE AQUITAINE
LIMOGES

FRANCE

NOUVELLE AQUITAINE
PESSAC

Reference centre for vascular diseases of the liver - Competence centre
CHU de Bordeaux-GH Sud - Hôpital Haut-Lévêque

FRANCE

OCCITANIE
MONTPELLIER

FRANCE

OCCITANIE
TOULOUSE

Reference centre for neurovascular malformations - Competence centre
CHU de Toulouse - Hôpital Pierre-Paul Riquet

FRANCE

OCCITANIE
TOULOUSE

FRANCE

OUTRE-MER
PAPEETE

Reference centre for vascular diseases of the liver - Competence centre
Centre Hospitalier de la Polynésie française

FRANCE

PAYS DE LA LOIRE
NANTES

FRANCE

PROVENCE-ALPES-COTE D'AZUR
MARSEILLE

FRANCE

PROVENCE-ALPES-COTE D'AZUR
MARSEILLE

FRANCE

PROVENCE-ALPES-COTE D'AZUR
MARSEILLE

FRANCE

PROVENCE-ALPES-COTE D'AZUR
NICE

FRANCE

PROVENCE-ALPES-COTE D'AZUR
NICE

GERMANY

Bayern
MÜNCHEN

Neurovascular diseases clinic
LMU Klinikum der Universität München - Campus Großhadern

GERMANY

Bayern
REGENSBURG

Rare hepatic diseases clinic
Universitätsklinikum Regensburg

GERMANY

Berlin
BERLIN

Interdisciplinary neurovascular clinic
Charité - Universitätsmedizin Berlin (CBF)

GERMANY

Berlin
BERLIN

Neurovascular diseases clinic
Unfallkrankenhaus Berlin

GERMANY

Hamburg
HAMBURG

Pulmonary and allergic diseases clinic
AKK Altonaer Kinderkrankenhaus gGmbH

GERMANY

Hamburg
HAMBURG

Neurovascular diseases clinic
UKE - Universitätsklinikum Hamburg-Eppendorf

GERMANY

Hessen
FRANKFURT AM MAIN

Allergology and pneumology clinic
Clementine Kinderhospital

GERMANY

Hessen
FRANKFURT AM MAIN

Neurovascular malformations clinic
Klinikum der Johann Wolfgang Goethe-Universität Frankfurt

GERMANY

Hessen
GIEßEN

Vascular neurosurgery clinic
Klinik für Neurochirurgie des UKGM am Standort Gießen

GERMANY

Niedersachsen
GÖTTINGEN

Rare pulmonary diseases clinic
Universitätsmedizin Göttingen

GERMANY

Nordrhein-Westfalen
AACHEN

Spinal vascular malformations clinic
Universitätsklinikum Aachen

GERMANY

Nordrhein-Westfalen
BONN

Cerebral vascular diseases clinic
Universitätsklinikum Bonn (AöR)

GERMANY

Nordrhein-Westfalen
ESSEN

Pneumology clinic
Universitätsklinikum Essen

GERMANY

Nordrhein-Westfalen
KÖLN

Neurovascular diseases clinic
Universitätsklinikum Köln

GERMANY

Nordrhein-Westfalen
MÜNSTER

Pneumology clinic
Universitätsklinikum Münster

GERMANY

Nordrhein-Westfalen
MÜNSTER

Neurovascular diseases clinic
Universitätsklinikum Münster

GERMANY

Rheinland-Pfalz
KOBLENZ

Rare pulmonary diseases clinic
Gemeinschaftsklinikum Mittelrhein, Kemperhof

GERMANY

Rheinland-Pfalz
MAINZ

Pneumology clinic
Universitätsmedizin Mainz

GERMANY

Sachsen
LEIPZIG

Cerebrovascular diseases clinic
Universitätsklinikum Leipzig AöR

GERMANY

Schleswig-Holstein
LÜBECK

Pneumology and allergology clinic
Universitätsklinikum Schleswig-Holstein - Campus Lübeck

ITALY

LAZIO
ROMA

Centre of Expertise for vascular anomalies
IRCCS Ospedale Pediatrico Bambino Gesù - SEDE GIANICOLO

ITALY

LAZIO
ROMA

Pediatric hepatovascular diseases specialized clinic
IRCCS Ospedale Pediatrico Bambino Gesù - SEDE GIANICOLO

ITALY

LIGURIA
PONTEDECIMO

Centre of Expertise for vasculitis and rare systemic diseases
Azienda Sanitaria Locale 3 - Ospedale Andrea Gallino

ITALY

LOMBARDIA
ROZZANO

ITALY

PUGLIA
BARI

Centre of expertise for rare rheumatologic diseases
Azienda Ospedaliero-Universitaria Consorziale Policlinico di Bari

ITALY

PUGLIA
FOGGIA

Centre of Expertise for rare systemic and rheumatologic diseases
Azienda Ospedaliero Universitaria di Foggia - Ospedali Riuniti

ITALY

SARDEGNA
CAGLIARI

Centre of Expertise for rare systemic diseases
Ospedale Oncologico "Armando Businco"

ITALY

TRENTINO ALTO ADIGE
BOLZANO

Centre of Expertise for vasculitis and rare systemic diseases
Azienda Sanitaria dell'Alto Adige - Ospedale di Bolzano

NETHERLANDS

Noord-Brabant
TILBURG

Neurovascular Center Tilburg
Elisabeth-TweeSteden Ziekenhuis, Locatie Elisabeth

POLAND

Warszawa
WARSAW

Clinic for rare surgical neurology diseases
Instytut "Pomnik-Centrum Zdrowia Dziecka"

SPAIN

Cataluña
BARCELONA

Clinic of rare vascular liver disease
Hospital Clínic de Barcelona

SPAIN

Cataluña
ESPLUGUES DE LLOBREGAT

BELGIUM

ANTWERPEN
ANTWERPEN-EDEGEM

BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

ESTONIA

Tartu
TARTU

FRANCE

AUVERGNE-RHONE-ALPES
BRON

Reference centre for rare respiratory diseases - Competence centre
CHU de Lyon HCL - GH Est-Hôpital Femme Mère Enfant

FRANCE

AUVERGNE-RHONE-ALPES
BRON

FRANCE

AUVERGNE-RHONE-ALPES
CLERMONT-FERRAND

Reference centre for rare respiratory diseases - Competence centre
CHU de Clermont-Ferrand - Hôpital d'Estaing

FRANCE

AUVERGNE-RHONE-ALPES
GRENOBLE

Reference centre for rare respiratory diseases - Competence centre
CHU Grenoble Alpes - Site Nord - Hôpital Couple Enfant

FRANCE

BOURGOGNE-FRANCHE-COMTE
BESANÇON

FRANCE

BOURGOGNE-FRANCHE-COMTE
BESANÇON

FRANCE

BOURGOGNE-FRANCHE-COMTE
DIJON

FRANCE

CENTRE-VAL DE LOIRE
TOURS

FRANCE

GRAND-EST
REIMS

Reference centre for rare respiratory diseases - Competence centre
CHU de Reims - American Memorial Hospital

FRANCE

GRAND-EST
STRASBOURG

Reference centre for rare respiratory diseases - Competence centre
CHU de Strasbourg - Hôpital de Hautepierre

FRANCE

GRAND-EST
VANDOEUVRE-LÈS-NANCY

FRANCE

HAUTS-DE-FRANCE
LILLE

Reference centre for rare respiratory diseases - Competence centre
CHRU de Lille - Hôpital Jeanne de Flandre

FRANCE

ILE-DE-FRANCE
CRÉTEIL

Reference centre for rare respiratory diseases - Constitutive site
Centre Hospitalier Intercommunal de Créteil

FRANCE

ILE-DE-FRANCE
LE KREMLIN-BICÊTRE

FRANCE

ILE-DE-FRANCE
PARIS

FRANCE

ILE-DE-FRANCE
PARIS

Reference centre for rare respiratory diseases - Coordinator site
CHU Paris Est - Hôpital d'Enfants Armand-Trousseau

FRANCE

ILE-DE-FRANCE
PARIS

FRANCE

NORMANDIE
CAEN

Reference centre for rare respiratory diseases - Competence centre
CHU de Caen - Hôpital de la Côte de Nacre

FRANCE

NORMANDIE
CAEN

Reference centre for rare vascular diseases - Competence centre
CHU de Caen - Hôpital de la Côte de Nacre

FRANCE

NOUVELLE AQUITAINE
BORDEAUX

FRANCE

NOUVELLE AQUITAINE
LIMOGES

Reference centre for rare respiratory diseases - Competence centre
CHU de Limoges - Hôpital de la mère et de l'enfant

FRANCE

OCCITANIE
MONTPELLIER

Reference centre for rare respiratory diseases - Competence centre
CHU de Montpellier - Hôpital Arnaud de Villeneuve

FRANCE

OCCITANIE
TOULOUSE

FRANCE

OCCITANIE
TOULOUSE

FRANCE

OUTRE-MER
SAINT-DENIS

Reference centre for rare respiratory diseases - Competence centre
CHU de la Réunion - Hôpital Félix Guyon

FRANCE

OUTRE-MER
SAINT-PIERRE

Reference centre for rare respiratory diseases - Competence centre
CHU de la Réunion - GH Sud Réunion - Saint-Pierre

FRANCE

PAYS DE LA LOIRE
NANTES

FRANCE

PROVENCE-ALPES-COTE D'AZUR
MARSEILLE

FRANCE

PROVENCE-ALPES-COTE D'AZUR
MARSEILLE

FRANCE

PROVENCE-ALPES-COTE D'AZUR
NICE

Reference centre for rare respiratory diseases - Competence centre
Hôpitaux Pédiatriques de Nice CHU - Lenval

GERMANY

Baden-Württemberg
ESSLINGEN

Hepatology clinic
Klinikum Esslingen

GERMANY

Baden-Württemberg
FREIBURG

Rare respiratory or thoracic malformations
Universitätsklinikum Freiburg

GERMANY

Baden-Württemberg
FREIBURG

Hepatology clinic
Universitätsklinikum Freiburg

GERMANY

Baden-Württemberg
TÜBINGEN

Hepatic and biliary tract diseases clinic
Department für Innere Medizin - Medizinische Universitätsklinik Tübingen

GERMANY

Baden-Württemberg
ULM

Gastroenterology and hepatology clinic
Zentrum für Seltene Erkrankungen am Universitätsklinikum Ulm

GERMANY

Bayern
BAMBERG

Hepatology clinic
Klinikum Bamberg

GERMANY

Bayern
ERLANGEN

Gastroenterology and hepatology clinic
ZSEER - Zentrum für Seltene Erkrankungen Erlangen

GERMANY

Bayern
MÜNCHEN

Care-for-Rare Center (CRCHauner): specialised clinic for children with rare diseases
Kinderklinik und Kinderpoliklinik im Dr. von Haunerschen Kinderspital

GERMANY

Bayern
MÜNCHEN

Gastroenterology and hepatology clinic
Kinderklinik und Kinderpoliklinik im Dr. von Haunerschen Kinderspital

GERMANY

Bayern
REGENSBURG

Vascular malformations clinic
Universitätsklinikum Regensburg

GERMANY

Berlin
BERLIN

Hepatology clinic
Charité - Universitätsmedizin Berlin

GERMANY

Berlin
BERLIN

Gastroenterology and hepatology clinic
Charité - Universitätsmedizin Berlin (CVK)

GERMANY

Hamburg
HAMBURG

Gastroenterology and hepatology clinic
UKE - Universitätsklinikum Hamburg-Eppendorf

GERMANY

Hamburg
HAMBURG

International cerebral vasculitis clinic
UKE - Universitätsklinikum Hamburg-Eppendorf

GERMANY

Hessen
FRANKFURT AM MAIN

Gastroenterology and hepatology clinic
Klinikum der Johann Wolfgang Goethe-Universität Frankfurt

GERMANY

Hessen
FRANKFURT AM MAIN

Interdisciplinary liver center
Klinikum der Johann Wolfgang Goethe-Universität Frankfurt

GERMANY

Mecklenburg-Vorpommern
ROSTOCK

Gastroenterology and hepatology clinic
Universitäts-Kinder- und Jugendklinik Rostock

GERMANY

Niedersachsen
GÖTTINGEN

Neurovascular diseases clinic
Universitätsmedizin Göttingen

GERMANY

Niedersachsen
HANNOVER

Hepatology clinic
Medizinische Hochschule Hannover

GERMANY

Niedersachsen
HANNOVER

Rare systemic or rheumatologic disease
Medizinische Hochschule Hannover

GERMANY

Nordrhein-Westfalen
AACHEN

Gastroenterology and hepatology clinic
Universitätsklinikum Aachen

GERMANY

Nordrhein-Westfalen
AACHEN

Hepatology clinic
Universitätsklinikum Aachen

GERMANY

Nordrhein-Westfalen
BONN

Gastroenterology and hepatology clinic
Universitäts-Kinderklinik Bonn

GERMANY

Nordrhein-Westfalen
BONN

Congenital malformation clinic
Universitätsklinikum Bonn (AöR)

GERMANY

Nordrhein-Westfalen
DÜSSELDORF

Liver Centre Düsseldorf
Universitätsklinikum Düsseldorf

GERMANY

Nordrhein-Westfalen
ESSEN

Hepatology clinic
Universitätsklinikum Essen

GERMANY

Nordrhein-Westfalen
ESSEN

Hepatology clinic
Universitätsklinikum Essen

GERMANY

Nordrhein-Westfalen
KREFELD

Gastroenterology and hepatology clinic
HELIOS Klinikum Krefeld

GERMANY

Nordrhein-Westfalen
MÜNSTER

Hepatology clinic
Universitätsklinikum Münster

GERMANY

Saarland
HOMBURG

Gastroenterology and hepatology clinic
Universitätsklinikum des Saarlandes

GERMANY

Sachsen
LEIPZIG

Hepatology clinic
Universitätsklinikum Leipzig AöR

GERMANY

Schleswig-Holstein
KIEL

Hepatology clinic
Universitätsklinikum Schleswig-Holstein - Campus Kiel

GERMANY

Schleswig-Holstein
LÜBECK

Gastroenterology and hepatology clinic
Sana Kliniken Lübeck GmbH

IRELAND

County Dublin
DUBLIN

Rare Liver Diseases Clinic
Mater Misericordiae Hospital

ITALY

CAMPANIA
NAPOLI

Centre of Expertise for rare systemic or rheumatologic diseases
AOU Università degli Studi della Campania "Luigi Vanvitelli"- Cappella Cangiani

ITALY

CAMPANIA
NAPOLI

Centre of Expertise for rare neurologic diseases
AOU Università degli Studi della Campania "Luigi Vanvitelli"- Cappella Cangiani

ITALY

CAMPANIA
NAPOLI

ITALY

CAMPANIA
NAPOLI

Centre of Expertise for rare rheumatologic and systemic diseases
Azienda Ospedaliera Universitaria "Federico II"

ITALY

LAZIO
ROMA

Specialized pediatric hepatology clinic
IRCCS Ospedale Pediatrico Bambino Gesù - SEDE GIANICOLO

ITALY

LOMBARDIA
MILANO

Centre of Expertise for rare pediatric hepatic diseases
Fondazione IRCCS Ca' Granda - Ospedale Maggiore Policlinico

ITALY

LOMBARDIA
MILANO

ITALY

PIEMONTE
TORINO

Centre of Expertise for rare pediatric rheumatologic and systemic diseases
A.O. Città della Salute e della Scienza di Torino - Ospedale Regina Margherita

ITALY

PUGLIA
BARI

Centre of Expertise for rare systemic and rheumatologic diseases
Azienda Ospedaliero-Universitaria Consorziale Policlinico di Bari

ITALY

PUGLIA
SAN GIOVANNI ROTONDO

Centre of Expertise for rare pediatric hepatic diseases
Fondazione IRCCS Ospedale Casa Sollievo della Sofferenza

ITALY

SICILIA
CATANIA

Centre of Expertise for rare pediatric rheumatologic and systemic diseases
Azienda Ospedaliero Universitaria "Policlinico Vittorio Emanuele"

ITALY

SICILIA
PALERMO

Centre of Expertise for rare pediatric hepatic diseases
ISMETT Istituto Mediterraneo per i Trapianti e Terapie ad Alta Specializzazione

ITALY

TOSCANA
PISA

Centre of Expertise for rare systemic or rheumatologic diseases
Azienda Ospedaliero Universitaria Pisana - Ospedale S. Chiara

NETHERLANDS

Utrecht
UTRECHT

Center of Vascular Anomalies Utrecht
UMC Utrecht - Universitair Medisch Centrum Utrecht

POLAND

Kraków
KRAKOW

Rare Neurologic Diseases Clinic
Szpital Uniwersytecki w Krakowie

POLAND

Warszawa
WARSZAWA

Center of Experise for Rare Liver Diseases
Samodzielny Publiczny Centralny Szpital Kliniczny w Warszawie

PORTUGAL

CENTRO
COIMBRA

neurologic vascular disorder clinic
Hospitais da Universidade de Coimbra

PORTUGAL

SUL
LISBOA

Cerebrovascular disorders clinic
Hospital de Sta. Maria - Centro Hospitalar de Lisboa Norte, EPE.

SLOVAKIA

Kosicky kraj
KOSICE

Center for Rare Rheumatologic Diseases
Safarik University Medical School and University Children´s Hospital

SLOVENIA

SLOVENIA
GOLNIK

Genetic respiratory disease clinic
University Clinic of Respiratory and Allergic Diseases

SPAIN

Andalucía
MÁLAGA

Hepatology clinic
Hospital Regional Universitario de Málaga - Hospital Materno-Infantil

SPAIN

Madrid
MADRID

Rare hepatic diseases clinic
Hospital Universitario La Paz

SWEDEN

Region Stockholm
STOCKHOLM

Expert team for vascular anomalies
Karolinska Universitetssjukhuset - Solna

SWITZERLAND

Suisse Alémanique
AARAU

SWITZERLAND

Suisse Alémanique
BASEL

Clarunis - Universitäres Bauchzentrum Basel
Clarunis - Universitäres Bauchzentrum Basel

SWITZERLAND

Suisse Alémanique
BASEL

SWITZERLAND

Suisse Alémanique
BERN

Rare hepatic diseases clinic
Inselspital Universitätsspital

SWITZERLAND

Suisse Alémanique
BERN

Centre for Rare Diseases Inselspital
Universitätsspital Inselspital

SWITZERLAND

Suisse Alémanique
LUZERN

Centre for rare diseases, LUKS
Luzerner Kantonsspital / Kinderspital Luzern

SWITZERLAND

Suisse Alémanique
ST. GALLEN

SWITZERLAND

Suisse Alémanique
ZÜRICH

SWITZERLAND

Suisse Alémanique
ZÜRICH

Centre for rare diseases Zurich
Universitätsspital Zürich

SWITZERLAND

Suisse Italienne
BELLINZONA

Center for Rare Diseases of Southern Switzerland
Ospedale Regionale di Bellinzona e Valli - San Giovanni

SWITZERLAND

Suisse Romande
GENÈVE

Swiss paediatric liver center
Hôpital des Enfants - Hôpitaux Universitaires de Genève HUG

SWITZERLAND

Suisse Romande
GENÈVE

Interdisciplinary clinic for vascular anomalies
Hôpitaux Universitaires de Genève HUG

SWITZERLAND

Suisse Romande
GENÈVE

HUG Centre for rare diseases
Hôpitaux Universitaires de Genève HUG

SWITZERLAND

Suisse Romande
LAUSANNE

Center for malformation and rare vascular diseases
Centre Hospitalier Universitaire Vaudois CHUV

SWITZERLAND

Suisse Romande
LAUSANNE

Center for autoimmune diseases and rare inflammatory disorders
Centre Hospitalier Universitaire Vaudois CHUV

SWITZERLAND

Suisse Romande
LAUSANNE

UNITED KINGDOM

Greater London
LONDON

UNITED KINGDOM

Greater London
LONDON

UNITED KINGDOM

West Midlands
BIRMINGHAM

Paediatric Liver Disease Treatment NHS Specialised Service
Birmingham Children's Hospital NHS Foundation Trust

AUSTRIA

WIEN
WIEN

Pediatric surgery clinic
Allgemeines Krankenhaus der Stadt Wien

BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

CANADA

Manitoba
WINNIPEG

Genetics and Metabolism
Health Sciences Centre

CANADA

Ontario
MISSISSAUGA

Clinical Genetics, Credit Valley Site, Trillium Health Partners
Genetics Clinic, Credit Valley Hospital

CANADA

Ontario
TORONTO

Clinical and Metabolic Genetics Division
The Hospital for Sick Children and University of Toronto

CANADA

Québec
MONTRÉAL

Genetique Medicale
Centre hospitalier universitaire Sainte-Justine

CANADA

Québec
MONTRÉAL

Medical genetics pediatric clinic
Glen / McGill Univeristy Health Centre - Centre Universitaire de santé McGill

CANADA

Québec
MONTRÉAL

Medical genetics adult clinic
Glen / McGill Univeristy Health Centre - Centre Universitaire de santé McGill

CANADA

Québec
SHERBROOKE

Medical genetics service
CIUSSS de l'Estrie - CHUS Fleurimont

CYPRUS

Cyprus
NICOSIA

Rare paediatric pulmonary diseases clinic
Archbishop Makarios III hospital

ESTONIA

Tallinn
TALLINN

Centre of Paediatric Neurology
Clinic of Paediatrics - Tallinn Children´s Hospital

FINLAND

Finland
HELSINKI

Genetic Counselling Clinic
HUS - Helsinki University Hospital

FINLAND

Finland
HELSINKI

Harvinaissairauksien yksikkö
HUS - Helsinki University Hospital

FINLAND

Finland
KUOPIO

Harvinaissairauksien yksikkö
Kuopio University Hospital

FINLAND

Finland
OULU

Harvinaissairauksien yksikkö
Oulu University Hospital

FINLAND

Finland
TAMPERE

Harvinaissairauksien yksikkö
TAYS - Tampere University Hospital

FINLAND

Finland
TURKU

Harvinaissairauksien yksikkö
Turku University Hospital

FRANCE

AUVERGNE-RHONE-ALPES
BRON

Reference centre for rare vascular diseases - Competence centre
CHU de Lyon HCL - GH Est-Hôpital Neurologique P. Wertheimer

FRANCE

AUVERGNE-RHONE-ALPES
SAINT-PRIEST-EN-JAREZ

FRANCE

BOURGOGNE-FRANCHE-COMTE
DIJON

FRANCE

CENTRE-VAL DE LOIRE
TOURS

FRANCE

ILE-DE-FRANCE
PARIS

FRANCE

ILE-DE-FRANCE
PARIS

FRANCE

ILE-DE-FRANCE
PARIS

Reference centre for genetic dermatologic diseases NORD (MAGEC) - Constitutive site
CHU Paris-GH St-Louis Lariboisière F.Widal - Hôpital Saint-Louis

FRANCE

PROVENCE-ALPES-COTE D'AZUR
MARSEILLE

FRANCE

PROVENCE-ALPES-COTE D'AZUR
NICE

GERMANY

Baden-Württemberg
FREIBURG

GERMANY

Baden-Württemberg
HEIDELBERG

Rare pulmonary diseases clinic
Universitätsmedizin Heidelberg

GERMANY

Baden-Württemberg
HEIDELBERG

Rare neurologic diseases clinic
Universitätsmedizin Heidelberg

GERMANY

Baden-Württemberg
MANNHEIM

Interdisciplinary Center of Vascular Anomalies
Universitätsmedizin Mannheim

GERMANY

Baden-Württemberg
MANNHEIM

Vascular anomaly or angioma clinic
Universitätsmedizin Mannheim

GERMANY

Baden-Württemberg
STUTTGART

Neuropediatrics clinic
Klinikum Stuttgart - Standort Olgahospital

GERMANY

Bayern
MÜNCHEN

Neuropediatrics clinic
Kinderklinik und Kinderpoliklinik im Dr. von Haunerschen Kinderspital

GERMANY

Bayern
MÜNCHEN

Neuropediatrics clinic specialized on epileptology
Klinikum rechts der Isar der Technischen Universität München

GERMANY

Bayern
MÜNCHEN

Neurogenetic diseases clinic
LMU Klinikum der Universität München - Campus Großhadern

GERMANY

Bayern
VOGTAREUTH

Neuropediatrics clinic
Schön Klinik Vogtareuth

GERMANY

Brandenburg
EBERSWALDE

Centre for Vascular Malformations
Klinikum Barnim GmbH, Werner Forßmann Krankenhaus

GERMANY

Bremen
BREMERHAVEN

Neurology and epilepsy clinic
Klinik Am Bürgerpark

GERMANY

Hamburg
HAMBURG

Neuropediatrics clinic
UKE - Universitätsklinikum Hamburg-Eppendorf

GERMANY

Hessen
FRANKFURT AM MAIN

Rare neuropaediatric diseases clinic
Clementine Kinderhospital

GERMANY

Hessen
FRANKFURT AM MAIN

Hemangioma and vascular malformations clinic
Klinikum der Johann Wolfgang Goethe-Universität Frankfurt

GERMANY

Hessen
GELNHAUSEN

GERMANY

Hessen
KASSEL

GERMANY

Hessen
MARBURG

Extracranial angiomas and vascular malformations clinic
Universitätsklinikum Gießen und Marburg GmbH, Standort Marburg

GERMANY

Mecklenburg-Vorpommern
ROSTOCK

Neuropediatrics clinic
Universitäts-Kinder- und Jugendklinik Rostock

GERMANY

Niedersachsen
HANNOVER

Neuropediatrics and epilepsy clinic
Medizinische Hochschule Hannover

GERMANY

Niedersachsen
OLDENBURG

Neuropediatrics and epilepsy clinic
Klinikum Oldenburg gGmbH

GERMANY

Nordrhein-Westfalen
DÜSSELDORF

Neuropediatrics clinic
Universitätsklinikum Düsseldorf

GERMANY

Nordrhein-Westfalen
ESSEN

Angioedema clinic
Universitätsklinikum Essen

GERMANY

Nordrhein-Westfalen
KÖLN

Neuropediatrics clinic
Universitätsklinikum Köln

GERMANY

Nordrhein-Westfalen
PADERBORN

Neuropediatrics and epilepsy clinic
St. Vincenz-Krankenhaus GmbH

GERMANY

Rheinland-Pfalz
MAINZ

Center for rare neurologic diseases
Universitätsmedizin Mainz

GERMANY

Rheinland-Pfalz
MAINZ

Neurology clinic
Universitätsmedizin Mainz

GERMANY

Sachsen
DRESDEN

Hemangioma and vascular malformations clinic
Universitätsklinikum Carl Gustav Carus an der TU Dresden

GERMANY

Schleswig-Holstein
LÜBECK

Interdisciplinary neuropaediatric diseases clinic
Universitätsklinikum Schleswig-Holstein - Campus Lübeck

GERMANY

Thüringen
JENA

Neuropediatrics and epilepsy clinic
Universitätsklinikum Jena

HUNGARY

Dél-Alföld
SZEGED

Rare pulmonary diseases clinic
University of Szeged - Paediatric Department

IRELAND

County Dublin
DUBLIN

Rare Paediatric Respiratory Conditions Clinic
Children's Health Ireland @ Crumlin

ITALY

CAMPANIA
AVELLINO

Centre of Expertise for rare neurologic diseases
Azienda Ospedaliera San Giuseppe Moscati

ITALY

CAMPANIA
NAPOLI

ITALY

CAMPANIA
NAPOLI

Rare respiratory diseases clinic
A.O.R.N. Santobono-Pausilipon-Annunziata

ITALY

CAMPANIA
NAPOLI

Centre of Expertise for rare pediatric neurologic diseases
Azienda Ospedaliera Universitaria "Federico II"

ITALY

EMILIA ROMAGNA
BOLOGNA

Centre of Expertise for rare neurologic diseases
Azienda USL di Bologna Ospedale Bellaria

ITALY

EMILIA ROMAGNA
BOLOGNA

Vascular malformations and angiomas specialized clinic
Policlinico S. Orsola-Malpighi - Area S. Orsola

ITALY

LAZIO
ROMA

Specialized pediatric neurology clinic
Fondazione Policlinico Universitario Agostino Gemelli IRCCS

ITALY

LAZIO
ROMA

Centre of Expertise for rare pulmonary diseases
IRCCS Ospedale Pediatrico Bambino Gesù - SEDE GIANICOLO

ITALY

LAZIO
ROMA

Specialized clinic for craniofacial malformations
IRCCS Ospedale Pediatrico Bambino Gesù - SEDE GIANICOLO

ITALY

LAZIO
ROMA

Centre of Expertise for rare pediatric neurologic diseases
IRCCS Ospedale Pediatrico Bambino Gesù - SEDE SAN PAOLO

ITALY

LAZIO
ROMA

Vascular anomaly or angioma specialized clinic
Istituto Dermopatico dell'Immacolata - IRCCS

ITALY

LAZIO
ROMA

ITALY

LIGURIA
GENOVA

Centre of Expertise for vascular malformations and angiomas
IRCCS Istituto G. Gaslini - Ospedale Pediatrico

ITALY

LIGURIA
GENOVA

Centre of Expertise for rare pediatric neurologic diseases
IRCCS Istituto G. Gaslini - Ospedale Pediatrico

ITALY

LOMBARDIA
MILANO

Centre of Expertise for rare neurologic diseases
ASST Grande Ospedale Metropolitano Niguarda

ITALY

LOMBARDIA
MILANO

ITALY

LOMBARDIA
MILANO

ITALY

PUGLIA
BARI

Centre of Expertise for rare pediatric neurologic diseases
Azienda Ospedaliero-Universitaria Consorziale Policlinico di Bari

ITALY

SICILIA
CATANIA

Centre of Expertise for rare genetic disorders
Azienda Ospedaliero Universitaria "Policlinico Vittorio Emanuele"

ITALY

SICILIA
MESSINA

Rare paediatric neurological diseases clinic
A.O.U. Policlinico "G. Martino"

ITALY

TOSCANA
FIRENZE

Centre of Expertise for rare pediatric neurologic diseases
Azienda Ospedaliera Universitaria Anna Meyer

ITALY

TRENTINO ALTO ADIGE
BOLZANO

Centre of Expertise for rare neurologic diseases
Azienda Sanitaria dell'Alto Adige - Ospedale di Bolzano

ITALY

VENETO
PADOVA

ITALY

VENETO
VERONA

Centre of Expertise for rare neurologic diseases
Azienda Ospedaliera Universitaria Integrata di Verona - Ospedale Borgo Roma

ITALY

VENETO
VERONA

Centre of Expertise for rare pediatric neurologic diseases
Azienda Ospedaliera Universitaria Integrata di Verona - Ospedale Borgo Roma

ITALY

VENETO
VICENZA

JAPAN

JAPAN
CHIBA

Clinical Genetics
Chiba University Hospital

JAPAN

JAPAN
TOKYO

Rinsho Idengaku Center
Keio University Hospital

LATVIA

LATVIA
RIGA

MOROCCO

Marrakech
MARRAKECH

NETHERLANDS

Zuid-Holland
ROTTERDAM

Center of Rare Skin Diseases
Erasmus MC - Erasmus Medisch Centrum

PORTUGAL

ILHAS
ANGRA DO HEROÍSMO

Rare paediatric neurological diseases clinic
Hospital de Santo Espírito de Angra do Heroísmo

PORTUGAL

NORTE
PORTO

Rare paediatric neurological diseases clinic
Centro Materno Infantil do Centro Hospitalar do Porto

PORTUGAL

SUL
LISBOA

Rare paediatric neurological diseases clinic
Hospital Dona Estefânia - Centro Hospitalar de Lisboa Central - EPE

SPAIN

Madrid
MADRID

Neurogenetic diseases clinic
Hospital Universitario Fundación Jiménez Díaz

SPAIN

Madrid
MADRID

Genetic vascular anomalies clinic
Hospital Universitario La Paz

SPAIN

Madrid
MADRID

Prenatal diagnosis and genetic counseling in pregnancy
INGEMM - Instituto de Genética Médica y Molecular (IdiPAZ)

SWEDEN

Region Skåne
LUND

Clinical Genetics - Skåne University Hospital
Lunds Universitetssjukhus -Klinisk Genetik

SWITZERLAND

Suisse Alémanique
BASEL

Neuropediatrics and developmental medicine clinic
Universitäts-Kinderspital beider Basel UKBB

SWITZERLAND

Suisse Alémanique
BERN

Outpatient clinic for vascular malformation
University Hospital Inselspital

SWITZERLAND

Suisse Alémanique
BERN

Genetic medicine clinic
University Hospital Inselspital

SWITZERLAND

Suisse Alémanique
LUZERN

Neuropediatric disease clinic
Luzerner Kantonsspital / Kinderspital Luzern

SWITZERLAND

Suisse Alémanique
LUZERN

Paediatric cystic fibrosis and rare pulmonary disease clinic
Luzerner Kantonsspital / Kinderspital Luzern

SWITZERLAND

Suisse Alémanique
SCHLIEREN

SWITZERLAND

Suisse Alémanique
ST. GALLEN

Pediatric Neurology Clinic
Ostschweizer Kinderspital

SWITZERLAND

Suisse Alémanique
ZÜRICH

Neurogenetic Clinic
UniversitätsSpital Zürich

UNITED KINGDOM

Greater Manchester
MANCHESTER

UNITED KINGDOM

Hampshire
SOUTHAMPTON