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: Designated centre of expertise = Member of a ERN =

OOST-VLAANDEREN
GENT
Pediatric hemato-oncology and stem cell transplantation expert centre - Ghent University Hospital
Kinderziekenhuis Prinses Elisabeth - UZ Gent

LAZIO
ROMA
Centre of Expertise for vascular anomalies
IRCCS Ospedale Pediatrico Bambino Gesù - SEDE GIANICOLO

Østlandet
OSLO
Nasjonal behandlingstjeneste for store hemangiomer og vaskulære malformasjoner
Oslo University Hospital, Ullevaal

AUVERGNE-RHONE-ALPES
SAINT-PRIEST-EN-JAREZ
Reference centre for genetic dermatologic diseases NORD (MAGEC) - Competence centre
CHU de Saint-Etienne - Hôpital Nord

OCCITANIE
MONTPELLIER
Reference centre for genetic dermatologic diseases NORD (MAGEC) - Competence centre
CHU de Montpellier - Hôpital Saint-Eloi

OUTRE-MER
SAINT-PIERRE
Reference centre for genetic dermatologic diseases NORD (MAGEC) - Competence centre
CHU de la Réunion - GH Sud Réunion - Saint-Pierre

PAYS DE LA LOIRE
NANTES
Reference centre for genetic dermatologic diseases NORD (MAGEC) - Competence centre
CHU de Nantes - Hôtel Dieu

Sachsen-Anhalt
MAGDEBURG
Rare congenital and acquired malformations clinic
Universitätsklinikum Magdeburg A.ö.R

Gelderland
NIJMEGEN
HECOVAN - Radboudumc Center of Expertise for Hemangiomas and Congenital Vascular Anomalies
Radboudumc - Radboud universitair medisch centrum

Utrecht
UTRECHT
UMC Utrecht Center of Expertise for Vascular Anomalies
UMC Utrecht - Universitair Medisch Centrum Utrecht

Comunidad Valenciana
ALICANTE
Regional unit of expertise of pediatric oncology
Hospital General Universitario Dr. Balmis de Alicante

Region Stockholm
SOLNA
Expert team for vascular anomalies, ERN Vascern
Karolinska Universitetssjukhuset

STEIERMARK
GRAZ
Center for Vascular Anomalies in Childhood (Associated National Center in the European Reference Network VASCERN)
Medizinische Universität Graz

WIEN
WIEN
Thoracic surgery clinic (Associated National Center in the European Reference Network VASCERN)
Sozialmedizinisches Zentrum Ost - Donauspital

WIEN
WIEN
Center of expertise for pediatric oncology (full member in the European Reference Network ERN PaedCan)
St. Anna Kinderspital

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
Expert Centre for Vascular Anomalies - Cliniques universitaires Saint-Luc, UCLouvain
Cliniques universitaires Saint-Luc - UCLouvain

Tallinn
TALLINN
Centre for Rare Paediatric Tumors (Associated National Centre in the ERN-Paed CAN)
Tallinn Children´s Hospital

Tartu
TARTU
Centre for Rare Tumours (Associated National Centre in the ERN EURACAN)
Competence Centre for Rare Diseases - Tartu University Hospital

Tartu
TARTU
Centre for Rare Paediatric Tumors (Associated National Centre in the ERN-Paed CAN)
Competence Centre for Rare Diseases - Tartu University Hospital

AUVERGNE-RHONE-ALPES
BRON
Reference centre for rare vascular diseases - Competence centre
CHU de Lyon HCL - GH Est-Hôpital Neurologique P. Wertheimer

AUVERGNE-RHONE-ALPES
BRON
Reference centre for neurovascular malformations - Competence centre
CHU de Lyon HCL - GH Est-Hôpital Neurologique P. Wertheimer

AUVERGNE-RHONE-ALPES
LYON
Clinic for diagnosis and treatment of cancers in children and adolescents
GH Est des HCL - Institut d'Hématologie et d'Oncologie Pédiatrique (IHOPe)

BOURGOGNE-FRANCHE-COMTE
DIJON
Reference centre for genetic dermatologic diseases NORD (MAGEC) - Constitutive site
CHU Dijon Bourgogne - Hôpital François Mitterrand

CENTRE-VAL DE LOIRE
TOURS
Reference centre for genetic dermatologic diseases NORD (MAGEC) - Constitutive site
CHRU de Tours - Hôpital Trousseau

HAUTS-DE-FRANCE
LILLE

ILE-DE-FRANCE
LE KREMLIN-BICÊTRE
Reference centre for neurovascular malformations - Coordinator site
APHP. Université Paris-Saclay, Hôpital Bicêtre

ILE-DE-FRANCE
PARIS
Reference centre for genetic dermatologic diseases NORD (MAGEC) - Constitutive site
CHU Paris Centre - Hôpital Cochin, Site Tarnier

ILE-DE-FRANCE
PARIS
Reference centre for genetic dermatologic diseases NORD (MAGEC) - Constitutive site
GHU AP-HP Nord. Université de Paris - Hôpital Saint-Louis

ILE-DE-FRANCE
PARIS
Reference centre for rare genetic dermatologic diseases NORD (MAGEC) - Coordinator site
Hôpital Necker-Enfants Malades

ILE-DE-FRANCE
PARIS
Reference centre for neurovascular malformations - Competence centre
Hôpital Necker-Enfants Malades

ILE-DE-FRANCE
SURESNES

ILE-DE-FRANCE
VILLEJUIF
Clinic for diagnosis and treatment of cancers in children and adolescents
CLCC Institut Gustave Roussy

OCCITANIE
TOULOUSE
Reference centre for neurovascular malformations - Competence centre
CHU de Toulouse - Hôpital Pierre-Paul Riquet

OUTRE-MER
POINTE À PITRE
Reference centre for neurovascular malformations - Competence centre
CHU de la Guadeloupe

PAYS DE LA LOIRE
ANGERS

PROVENCE-ALPES-COTE D'AZUR
MARSEILLE
Clinic for diagnosis and treatment of cancers in children and adolescents
CHU de Marseille - Hôpital de la Timone

PROVENCE-ALPES-COTE D'AZUR
MARSEILLE
Reference centre for genetic dermatologic diseases NORD (MAGEC) - Competence centre
CHU de Marseille - Hôpital de la Timone

PROVENCE-ALPES-COTE D'AZUR
MARSEILLE
Reference centre for neurovascular malformations - Competence centre
CHU de Marseille - Hôpital de la Timone

PROVENCE-ALPES-COTE D'AZUR
NICE
Reference centre for rare and genetic dermatologic diseases SUD (MAGEC) - Constitutive site
CHU de Nice - Hôpital l'Archet 2

Baden-Württemberg
FREIBURG
Interdisciplinary angiomas and vascular malformations clinic
Universitätsklinikum Freiburg

Baden-Württemberg
HEIDELBERG
Comprehensive Cancer Center Heidelberg
Nationales Centrum für Tumorerkrankungen (NCT)

Baden-Württemberg
MANNHEIM
Interdisciplinary Center of Vascular Anomalies
Universitätsmedizin Mannheim

Baden-Württemberg
TÜBINGEN
Comprehensive Cancer Center Tübingen-Stuttgart
CCC Tübingen-Stuttgart

Baden-Württemberg
TÜBINGEN
Center for rare pediatric tumors, haematological and immunological diseases
Geschäftsstelle ZSE Tübingen

Baden-Württemberg
ULM
Comprehensive Cancer Center Ulm
Integratives Tumorzentrum des Universitätsklinikums Ulm

Bayern
ERLANGEN
Comprehensive Cancer Center Erlangen - EMN
Geschäftsstelle des CCC Erlangen-EMN

Bayern
WÜRZBURG
Comprehensive Cancer Center Mainfranken, Würzburg
CCC Mainfranken an der Universität Würzburg

Brandenburg
EBERSWALDE
Centre for Vascular Malformations
Klinikum Barnim GmbH, Werner Forßmann Krankenhaus

Hamburg
HAMBURG
Comprehensive Cancer Center Hamburg
Hubertus Wald Tumorzentrum/ Universitäres Cancer Center (UCCH)

Hessen
FRANKFURT AM MAIN
Hemangioma and vascular malformations clinic
Universitätsklinikum Frankfurt

Hessen
MARBURG
Comprehensive Cancer Center Marburg
Universitätsklinikum Gießen und Marburg GmbH, Standort Marburg

Nordrhein-Westfalen
DORTMUND
Haematology and oncology clinic
Klinikum Dortmund gGmbH - Klinikzentrum Mitte

Nordrhein-Westfalen
DÜSSELDORF
Center for Integrated Oncology Düsseldorf
Universitätstumorzentrum (UTZ)

Nordrhein-Westfalen
KÖLN
Comprehensive Cancer Center Köln
Centrum für Integrierte Onkologie (CIO) Köln-Bonn, Standort Köln

Nordrhein-Westfalen
KÖLN
Comprehensive Cancer Center Aachen Bonn Köln Düsseldorf
Geschäftsstelle CIO Aachen Bonn Köln Düsseldorf

Sachsen
DRESDEN
Hemangioma and vascular malformations clinic
Universitätsklinikum Carl Gustav Carus an der TU Dresden

Sachsen
DRESDEN
Comprehensive Cancer Center Dresden
Universitätsklinikum Carl Gustav Carus an der TU Dresden

Schleswig-Holstein
LÜBECK
Hematological and oncological diseases clinic
Universitätsklinikum Schleswig-Holstein - Campus Lübeck

County Dublin
DUBLIN
Department of Paediatric Haematology and Oncology
Children's Health Ireland @ Crumlin

CAMPANIA
NAPOLI
Centre of Expertise for rare tumors
Azienda Ospedaliera Universitaria "Federico II"

EMILIA ROMAGNA
BOLOGNA
Vascular malformations and angiomas specialized clinic
IRCCS Azienda Ospedaliero Universitaria di Bologna, Policlinico di Sant'Orsola

EMILIA ROMAGNA
BOLOGNA
Centre of Expertise for rare pediatric tumors
IRCCS Azienda Ospedaliero Universitaria di Bologna, Policlinico di Sant'Orsola

EMILIA ROMAGNA
MELDOLA
Centre of Expertise for rare tumors
IRST - Istituto Scientifico Romagnolo per lo studio e la cura dei Tumori

LAZIO
ROMA
Specialized clinic for craniofacial malformations
IRCCS Ospedale Pediatrico Bambino Gesù - SEDE GIANICOLO

LAZIO
ROMA
Centre of Expertise for rare tumors
Istituti Fisioterapici Ospitalieri - Istituto Nazionale Tumori Regina Elena

LAZIO
ROMA
Vascular anomaly or angioma specialized clinic
Istituto Dermopatico dell'Immacolata - IRCCS

LIGURIA
GENOVA
Centre of Expertise for vascular malformations and angiomas
IRCCS Istituto G. Gaslini - Ospedale Pediatrico

LIGURIA
GENOVA
Specialized clinic for rare pediatric tumors
IRCCS Istituto G. Gaslini - Ospedale Pediatrico

LOMBARDIA
MILANO
Centre of Expertise for vascular malformations and hemangiomas
Ospedale dei Bambini ''Vittore Buzzi"

PUGLIA
BARI
Centre of Expertise for rare tumors
I.R.C.C.S. Ospedale Oncologico "Giovanni Paolo II" di Bari

TOSCANA
FIRENZE
Centre of Expertise for rare pediatric tumors
Azienda Ospedaliera Universitaria Anna Meyer

TOSCANA
FIRENZE
Expert center for rare and undiagnosed skin disorders
Azienda Ospedaliera Universitaria Anna Meyer

DZUKIJA
VILNIUS
The Center of Congenital Vascular Anomalies
Vilnius University Hospital Santariskiu Klinikos

Lublin
LUBLIN
Rare pediatric cancers and hematologic disorders clinic
Uniwersytecki Szpital Dzieciecy w Lublinie

NORTE
PORTO
Expert Center on Rare Multisystemic Vascular Diseases_Porto
Centro Hospitalar Universitário de S. João, EPE - CHUSJ, EPE

Suisse Alémanique
BERN
Outpatient clinic for vascular malformation
Universitätsspital Inselspital

Suisse Romande
LAUSANNE
Center for malformation and rare vascular diseases
Centre Hospitalier Universitaire Vaudois CHUV

Greater Manchester
MANCHESTER
Paediatric Oncology Service
Royal Manchester Children's Hospital

ANTWERPEN
EDEGEM (ANTWERPEN)
Multidisciplinary expert team/Centre for Rare Diseases - University Hospital of Antwerp
Antwerp University Hospital - UZA

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
Multidisciplinary expert team/Centre for rare diseases - ULB
Cliniques Universitaires de Bruxelles - Hôpital Erasme

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
Multidisciplinary expert team/Centre for rare diseases - Saint-Luc University Hospital
Cliniques universitaires Saint-Luc - UCLouvain

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
Multidisciplinary expert team/Centre for Rare Diseases - University Hospital of Brussels
Universitair Ziekenhuis Brussel

HAINAUT
GILLY
Multidisciplinary expert team/Centre for rare diseases - Grand Hôpital de Charleroi et Institut de Pathologie et de Génétique
Grand Hôpital de Charleroi - Site Saint-Joseph

LIEGE
LIEGE
Multidisciplinary expert team/Centre for rare diseases - CHU Liège
CHU de Liège - Domaine universitaire du Sart Tilman

OOST-VLAANDEREN
GENT
Multidisciplinary expert team/Centre for Rare Diseases - University Hospital of Ghent
Ghent University Hospital - UZ Gent

VLAAMS BRABANT
LEUVEN
Multidisciplinary expert team/Centre for Rare Diseases - University Hospital of Leuven
UZ Leuven - Campus Gasthuisberg

Schleswig-Holstein
LÜBECK
Rare genetic syndromes and congenital malformations clinic
Universitätsklinikum Schleswig-Holstein - Campus Lübeck

RUSSIAN FEDERATION
MOSCOW
Loginov Moscow Clinical Scientific Center
Loginov Moscow Clinical Scientific Center

Suisse Alémanique
AARAU
Center for Rare Diseases (CRD) Kantonsspital Aarau AG
Kantonsspital Aarau

Suisse Alémanique
BASEL
The Basel University Centre for Rare and Undiagnosed Diseases
Universitätsspital Basel

Suisse Alémanique
BERN
Centre for Rare Diseases Inselspital
Universitätsspital Inselspital

Suisse Alémanique
LUZERN
Centre for rare diseases, LUKS
Luzerner Kantonsspital - Kinderspital

Suisse Alémanique
ST. GALLEN
Centre for Rare Diseases of Eastern Switzerland
Kantonsspital St. Gallen

Suisse Italienne
BELLINZONA
Center for Rare Diseases of Southern Switzerland
Ospedale Regionale di Bellinzona e Valli - San Giovanni

Suisse Romande
LAUSANNE
Center for rare diseases Lausanne University Hospital
Hôpital Nestlé - CHUV

Ontario
MISSISSAUGA
Clinical Genetics, Credit Valley Site, Trillium Health Partners
Genetics Clinic, Credit Valley Hospital

Ontario
TORONTO
Clinical and Metabolic Genetics Division
The Hospital for Sick Children and University of Toronto

Tartu
TARTU
Multidisciplinary expert team / Competence Centre for Rare Diseases
Competence Centre for Rare Diseases - Tartu University Hospital

Finland
HELSINKI
Expert Center on Rare Congenital Malformations and Rare Intellectual Disability
HUS - Helsinki University Hospital

Finland
OULU
Expert Center on Rare Congenital Malformations and Rare Intellectual Disability
Oulu University Hospital

LAZIO
ROMA
Centre of Expertise for rare genetic diseases
IRCCS Ospedale Pediatrico Bambino Gesù - SEDE GIANICOLO

SICILIA
CATANIA
Centre of Expertise for rare genetic disorders
Azienda Ospedaliero Universitaria Policlinico "G.Rodolico - San Marco"

VENETO
VERONA
Centre of Expertise for cystic fibrosis and rare pulmonary diseases
Azienda Ospedaliera Universitaria Integrata di Verona - Ospedale Borgo Trento

LATVIA
RIGA
Clinic of Medical Genetic and Prenatal Diagnostics and Rare disease coordination center
Children's Clinical University Hospital

CENTRO
COIMBRA
Genetic counselling clinic - CHUC, EPE
Centro Hospitalar e Universitário de Coimbra, EPE - CHUC, EPE

NORTE
VILA REAL
Genetic counselling clinic - CHTMAD, EPE
Centro Hospitalar de Trás-os-Montes e Alto Douro, EPE

SUL
LISBOA
Medical Genetics Clinic - CHULC, EPE - HDE
Centro Hospitalar Universitário de Lisboa Central, EPE - Hospital Dona Estefânia

TIMIS
TIMISOARA
Centrul Regional de Genetica Medicala Timis
University Medecine-Pharmacie "Victor Babes"- Pediatric Hospital "Louis Turcanu"

RUSSIAN FEDERATION
MOSCOW
The Research Centre for Medical Genetics
The Research Centre for Medical Genetics

RUSSIAN FEDERATION
MOSCOW
Veltischev Research and Clinical Institute for Pediatrics
Veltischev Research and Clinical Institute for Pediatrics

RUSSIAN FEDERATION
SAINT-PETERSBURG
St. Petersburg State Pediatric Medical University
St. Petersburg State Pediatric Medical University

RUSSIAN FEDERATION
TAMBOV
Tambov regional childrens clinical hospital
Tambov Regional Children's Hospital clinical hospital

RUSSIAN FEDERATION
TYUMEN
«Perinatal Medical Center» (Tyumen)
«Perinatal Medical Center» (Tyumen)

RUSSIAN FEDERATION
VLADIKAVKAZ
Children's Clinical Hospital, medical and Genetic consultation
Children's Clinical Hospital, medical and Genetic consultation

Region Skåne
LUND
Clinical Genetics - Skåne University Hospital
Skånes Universitetssjukhus -Klinisk Genetik

Suisse Italienne
VIGANELLO