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: Designated centre of expertise = Member of a ERN =

AUVERGNE-RHONE-ALPES
CLERMONT-FERRAND
Reference centre for sickle cell disease, thalassemia and other red cell disorders - Competence centre
CHU de Clermont-Ferrand - Hôpital d'Estaing

AUVERGNE-RHONE-ALPES
GRENOBLE
Reference centre for sickle cell disease, thalassemia and other red cell disorders - Competence centre
CHU Grenoble Alpes - Site Nord - Hôpital Couple Enfant

AUVERGNE-RHONE-ALPES
SAINT-PRIEST-EN-JAREZ
Reference centre for sickle cell disease, thalassemia and other red cell disorders - Competence centre
CHU de Saint-Etienne - Hôpital Nord

BOURGOGNE-FRANCHE-COMTE
BESANÇON
Reference centre for sickle cell disease, thalassemia and other red cell disorders - Competence centre
CHU de Besançon - Hôpital Jean Minjoz

BOURGOGNE-FRANCHE-COMTE
DIJON
Reference centre for sickle cell disease, thalassemia and other red cell disorders - Competence centre
CHU Dijon Bourgogne - Hôpital d'Enfants

BRETAGNE
RENNES
Reference centre for sickle cell disease, thalassemia and other red cell disorders - Competence centre
CHU de Rennes - Hôpital Sud

CENTRE-VAL DE LOIRE
TOURS
Reference centre for sickle cell disease, thalassemia and other red cell disorders - Competence centre
CHRU de Tours - Hôpital Trousseau

GRAND-EST
REIMS
Reference centre for sickle cell disease, thalassemia and other red cell disorders - Competence centre
CHU de Reims - American Memorial Hospital

GRAND-EST
VANDOEUVRE-LÈS-NANCY
Reference centre for sickle cell disease, thalassemia and other red cell disorders - Competence centre
CHU de Nancy - Hôpitaux de Brabois

HAUTS-DE-FRANCE
AMIENS
Reference centre for sickle cell disease, thalassemia and other red cell disorders - Competence centre
CHU Amiens-Picardie - Site Sud

HAUTS-DE-FRANCE
LILLE
Reference centre for sickle cell disease, thalassemia and other red cell disorders - Constitutive site
GH de l'Institut Catholique de Lille - Hopital Saint Vincent de Paul

ILE-DE-FRANCE
CRÉTEIL
Reference centre for sickle cell disease, thalassemia and other red cell disorders - Coordinator site
Hôpitaux Universitaires Henri Mondor

ILE-DE-FRANCE
GONESSE
Reference centre for sickle cell disease, thalassemia and other red cell disorders - Competence centre
Centre Hospitalier de Gonesse

ILE-DE-FRANCE
LE CHESNAY
Reference centre for sickle cell disease, thalassemia and other red cell disorders - Competence centre
CH de Versailles - Hôpital André Mignot

ILE-DE-FRANCE
LE KREMLIN-BICÊTRE
Reference centre for sickle cell disease, thalassemia and other red cell disorders - Constitutive site
APHP. Université Paris-Saclay, Hôpital Bicêtre

ILE-DE-FRANCE
MANTES-LA-JOLIE
Reference centre for sickle cell disease, thalassemia and other red cell disorders - Competence centre
CH Mantes - Centre hospitalier François Quesnay

ILE-DE-FRANCE
PARIS
Reference centre for sickle cell disease, thalassemia and other red cell disorders - Constitutive site
AP-HP. Centre - Université de Paris - HEGP Hôpital Européen Georges Pompidou

ILE-DE-FRANCE
PARIS
Reference centre for sickle cell disease, thalassemia and other red cell disorders - Competence centre
AP-HP.Sorbonne Université - Hôpital d'Enfants Armand-Trousseau

ILE-DE-FRANCE
PARIS
Reference centre for sickle cell disease, thalassemia and other red cell disorders - Constitutive site
CHU Paris - Hôpital Robert Debré

ILE-DE-FRANCE
PARIS
Reference centre for sickle cell disease, thalassemia and other red cell disorders - Competence centre
Groupe hospitalier AP-HP.6 - Hôpital Tenon

ILE-DE-FRANCE
PARIS
Reference centre for sickle cell disease, thalassemia and other red cell disorders - Constitutive site
Hôpital Necker-Enfants Malades

ILE-DE-FRANCE
POISSY
Reference centre for sickle cell disease, thalassemia and other red cell disorders - Competence centre
Centre hospitalier intercommunal Poissy-Saint-Germain-en-Laye

NORMANDIE
CAEN
Reference centre for sickle cell disease, thalassemia and other red cell disorders - Competence centre
CHU de Caen - Hôpital de la Côte de Nacre

NORMANDIE
ROUEN
Reference centre for sickle cell disease, thalassemia and other red cell disorders - Competence centre
CHU de Rouen

NOUVELLE AQUITAINE
BORDEAUX
Reference centre for sickle cell disease, thalassemia and other red cell disorders - Competence centre
CHU de Bordeaux-GH Pellegrin

NOUVELLE AQUITAINE
LIMOGES
Reference centre for sickle cell disease, thalassemia and other red cell disorders - Competence centre
CHU de Limoges - Hôpital de la mère et de l'enfant

OCCITANIE
MONTPELLIER
Reference centre for sickle cell disease, thalassemia and other red cell disorders - Constitutive site
CHU de Montpellier - Hôpital Saint-Eloi

OCCITANIE
TOULOUSE
Reference centre for sickle cell disease, thalassemia and other red cell disorders - Competence centre
IUCT Oncopole - CHU Toulouse

PAYS DE LA LOIRE
ANGERS
Reference centre for sickle cell disease, thalassemia and other red cell disorders - Competence centre
CHU d'Angers

PAYS DE LA LOIRE
NANTES
Reference centre for sickle cell disease, thalassemia and other red cell disorders - Competence centre
CHU de Nantes - Hôpital enfant-adolescent

PROVENCE-ALPES-COTE D'AZUR
MARSEILLE
Reference centre for sickle cell disease, thalassemia and other red cell disorders - Constitutive site
CHU de Marseille - Hôpital de la Timone

LOMBARDIA
MILANO
Centre of Expertise for congenital hemolytic and dyserythropoietic anemias
Fondazione IRCCS Ca' Granda - Ospedale Maggiore Policlinico

LOMBARDIA
MONZA
Centre of Expertise for hemoglobinopathy and constitutional anemia due to iron metabolism disorders
Fondazione IRCCS San Gerardo

Utrecht
UTRECHT
Van Creveldkliniek - UMC Utrecht Center of Expertise for Benign Haematology, Thrombosis and Haemostasis
UMC Utrecht - Universitair Medisch Centrum Utrecht

Cataluña
BARCELONA
CSUR - National unit of expertise for congenital spinal cord syndromes
Hospital Universitari Vall d'Hebron

Region Stockholm
SOLNA
Expert team for rare blood disorders, ERN EuroBloodNet
Karolinska Universitetssjukhuset

Olomouc
OLOMOUC
Highly specialized center for rare hematological disease
University hospital Olomouc

Baden-Württemberg
ULM
Paroxysmal nocturnal hemoglobinuria and aplastic anemia clinic
Zentrum für Seltene Erkrankungen am Universitätsklinikum Ulm

South-West region
SOFIA
Rare Haematological Diseases expert centre
National Specialized Hospital for Active Treatment of Haematologic Diseases

Baden-Württemberg
FREIBURG
Congenital and acquired hematological diseases
Universitätsklinikum Freiburg

Baden-Württemberg
STUTTGART
Haematology and oncology clinic
Klinikum Stuttgart - Standort Olgahospital

Baden-Württemberg
ULM
Congenital hematological diseases clinic
Zentrum für Seltene Erkrankungen am Universitätsklinikum Ulm

Bayern
AUGSBURG
Solid (CNS) tumors and rare hematologic diseases clinic
Universitätsklinikum Augsburg

Bayern
ERLANGEN
Haematology and oncology clinic
Kinder- und Jugendklinik des Universitätsklinikums Erlangen

Bayern
MÜNCHEN
Haematology and oncology clinic
Kinderklinik und Kinderpoliklinik im Dr. von Haunerschen Kinderspital

Bayern
REGENSBURG
Haematology, oncology and stem cell transplantation clinic
Universitätsklinikum Regensburg

Mecklenburg-Vorpommern
GREIFSWALD
Haematology, oncology and hemostasis clinic
Universitätsmedizin Greifswald

Mecklenburg-Vorpommern
ROSTOCK
Haematology and oncology clinic
Universitäts-Kinder- und Jugendklinik Rostock

Niedersachsen
BRAUNSCHWEIG
Haematology and oncology clinic
Städtisches Klinikum Braunschweig - Standort Salzdahlumer Straße

Nordrhein-Westfalen
BIELEFELD
Haematology and oncology clinic
Evangelisches Krankenhaus Bielefeld - Kinderzentrum Bethel

Nordrhein-Westfalen
DORTMUND
Haematology and oncology clinic
Klinikum Dortmund gGmbH - Klinikzentrum Mitte

Nordrhein-Westfalen
DÜSSELDORF
Congenital Disorders of the Bone Marrow clinic
Universitätsklinikum Düsseldorf

Nordrhein-Westfalen
SANKT AUGUSTIN
Haematology and oncology clinic
Asklepios Kinderklinik Sankt Augustin GmbH

Rheinland-Pfalz
KOBLENZ
Zentrum für Kinderhämatologie
Gemeinschaftsklinikum Mittelrhein gGmbH

Sachsen
DRESDEN
Haematology and oncology clinic
Universitätsklinikum Carl Gustav Carus an der TU Dresden

Sachsen
LEIPZIG
Haematology and oncology clinic
Zentrum für Frauen- und Kindermedizin am Universitätsklinikum Leipzig

Sachsen-Anhalt
HALLE (SAALE)
Haematology and oncology clinic
Universitätsklinikum Halle (Saale)

Sachsen-Anhalt
MAGDEBURG
Haematology and oncology clinic
Universitätsklinikum Magdeburg A.ö.R

Schleswig-Holstein
KIEL
Haematology and oncology clinic
Universitätsklinikum Schleswig-Holstein - Campus Kiel

Schleswig-Holstein
LÜBECK
Haematology and oncology clinic
Universitätsklinikum Schleswig-Holstein - Campus Lübeck

CAMPANIA
BENEVENTO
Centre of Expertise for rare coagulation disorders and rare anemias
A.O.R.N. "San Pio" - P.O. "G. Rummo"

EMILIA ROMAGNA
PIACENZA
Centre of Expertise for rare anemia
Ospedale Guglielmo da Saliceto - AUSL Piacenza

LAZIO
ROMA
Centre of Expertise for rare coagulation disorders
Fondazione Policlinico Universitario Agostino Gemelli IRCCS

LAZIO
ROMA
Centre of Expertise for pediatric hematology
IRCCS Ospedale Pediatrico Bambino Gesù - SEDE GIANICOLO

LIGURIA
GENOVA
Centre of Expertise for rare anemias and congenital disorders of iron metabolism
Ente Ospedaliero Ospedali Galliera

LOMBARDIA
BERGAMO
Centre of Expertise for rare coagulation disorders and rare anemias
ASST Papa Giovanni XXIII

LOMBARDIA
BRESCIA
Centre of Expertise for rare coagulation disorders and rare anemias
ASST Spedali Civili di Brescia

LOMBARDIA
MILANO
Centre of Expertise for rare anemias
Fondazione IRCCS Ca' Granda - Ospedale Maggiore Policlinico

LOMBARDIA
MILANO
Centre of Expertise for rare hemorrhagic disorder due to a platelet anomaly and rare anemias
Fondazione IRCCS Ca' Granda - Ospedale Maggiore Policlinico

LOMBARDIA
PAVIA
Centre of Expertise for rare hematologic diseases
Fondazione IRCCS Policlinico San Matteo

LOMBARDIA
VARESE
Centre of Expertise for rare hemorrhagic disorder due to a platelet anomaly and rare anemias
A.O.U. Ospedale di Circolo e Fondazione Macchi - Ospedale Filippo Del Ponte

PIEMONTE
ORBASSANO
Centre of Expertise for rare anemia
Azienda Ospedaliero-Universitaria San Luigi Gonzaga

PIEMONTE
TORINO
Centre of Expertise for rare pediatric tumors
A.O.U. Città della Salute e della Scienza di Torino - Ospedale Regina Margherita

PIEMONTE
TORINO
Centre of Expertise for rare coagulation disorders and rare anemias
A.O.U. Città della Salute e della Scienza di Torino - Ospedale Regina Margherita

PUGLIA
BARI
Centre of Expertise for rare anemias
Azienda Ospedaliero-Universitaria Consorziale Policlinico di Bari

PUGLIA
BARI
Interregional centre of expertise for rare coagulation disorders and rare pediatric anemias
Ospedale Pediatrico Giovanni XXIII

SARDEGNA
CAGLIARI
Centre of Expertise for onco-hematological diseases and rare anemias
Ospedale Oncologico "Armando Businco"

SARDEGNA
CAGLIARI
Centre of Expertise for rare anemia and thalassemias
Ospedale Regionale per le Microcitemie

SICILIA
CATANIA
Centre of Expertise for rare coagulation disorders and rare anemias
Presidio Ospedaliero Garibaldi-Nesima

TOSCANA
PISA
Centre of Expertise for rare constitutional anemia
Fondazione "Gabriele Monasterio" - Consiglio Nazionale delle Ricerche CNR

TRENTINO ALTO ADIGE
BOLZANO
Centre of Expertise for rare coagulation disorders and rare anemias
Azienda Sanitaria dell'Alto Adige - Ospedale di Bolzano

VENETO
ROVIGO
Centre of Expertise for rare anemias and thalassemias
ULSS 18 - Ospedale di Rovigo

Lublin
LUBLIN
Rare pediatric cancers and hematologic disorders clinic
Uniwersytecki Szpital Dzieciecy w Lublinie

Cataluña
BADALONA
Genetic red cells diseases clinic
IJC - Instituto de Investigación contra la Leucemia Josep Carreras, Campus HGTiP

Cataluña
BARCELONA
CSUR - National unit of expertise for hereditary erythropathology
Hospital de la Santa Creu i Sant Pau

Cataluña
ESPLUGUES DE LLOBREGAT
CSUR - National unit of expertise for hereditary erythropathology
Hospital Sant Joan de Déu Barcelona

Madrid
MADRID
CSUR - National unit of expertise for hereditary erythropathology
Hospital Materno Infantil Gregorio Marañón

ANTWERPEN
EDEGEM (ANTWERPEN)
Multidisciplinary expert team/Centre for Rare Diseases - University Hospital of Antwerp
Antwerp University Hospital - UZA

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
Multidisciplinary expert team/Centre for rare diseases - ULB
Cliniques Universitaires de Bruxelles - Hôpital Erasme

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
Multidisciplinary expert team/Centre for rare diseases - Saint-Luc University Hospital
Cliniques universitaires Saint-Luc - UCLouvain

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
Multidisciplinary expert team/Centre for Rare Diseases - University Hospital of Brussels
Universitair Ziekenhuis Brussel

HAINAUT
GILLY
Multidisciplinary expert team/Centre for rare diseases - Grand Hôpital de Charleroi et Institut de Pathologie et de Génétique
Grand Hôpital de Charleroi - Site Saint-Joseph

LIEGE
LIEGE
Multidisciplinary expert team/Centre for rare diseases - CHU Liège
CHU de Liège - Domaine universitaire du Sart Tilman

OOST-VLAANDEREN
GENT
Multidisciplinary expert team/Centre for Rare Diseases - University Hospital of Ghent
Ghent University Hospital - UZ Gent

VLAAMS BRABANT
LEUVEN
Multidisciplinary expert team/Centre for Rare Diseases - University Hospital of Leuven
UZ Leuven - Campus Gasthuisberg

Tallinn
TALLINN
Centre for Rare Paediatric Tumors (Associated National Centre in the ERN-Paed CAN)
Tallinn Children´s Hospital

Tartu
TARTU
Centre for Rare Haematologic Diseases (Associated National Centre in the EuroBloodNet)
Competence Centre for Rare Diseases - Tartu University Hospital

Tartu
TARTU
Centre for Rare Paediatric Tumors (Associated National Centre in the ERN-Paed CAN)
Competence Centre for Rare Diseases - Tartu University Hospital

Baden-Württemberg
FREIBURG
Haematology and oncology clinic
Zentrum für Kinder- und Jugendmedizin Freiburg

Baden-Württemberg
TÜBINGEN
Center for rare pediatric tumors, haematological and immunological diseases
Geschäftsstelle ZSE Tübingen

Bayern
MÜNCHEN
Care-for-Rare Center (CRCHauner): specialised clinic for children with rare diseases
Kinderklinik und Kinderpoliklinik im Dr. von Haunerschen Kinderspital

County Dublin
DUBLIN
Haemophilia and Allied Bleeding Disorder Service
Children's Health Ireland @ Crumlin

ABRUZZO
PESCARA
Regional centre of expertise for rare hematologic diseases
Presidio Ospedaliero di Pescara

CALABRIA
CATANZARO
Centre of Expertise for rare hematologic diseases
Azienda Ospedaliera Pugliese Ciaccio

CAMPANIA
AVELLINO
Centre of Expertise for rare hematologic and oncohematologic diseases
Azienda Ospedaliera San Giuseppe Moscati

CAMPANIA
NAPOLI
Centre of Expertise for rare hematologic diseases
Azienda Ospedaliera Universitaria "Federico II"

EMILIA ROMAGNA
BOLOGNA
Centre of Expertise for pediatric hematologic and oncohematologic diseases
IRCCS Azienda Ospedaliero Universitaria di Bologna, Policlinico di Sant'Orsola

LIGURIA
GENOVA
Centre of Expertise for pediatric hematology
IRCCS Istituto G. Gaslini - Ospedale Pediatrico

LIGURIA
PONTEDECIMO
Centre of Expertise for rare hematologic diseases
Azienda Sanitaria Locale 3 - Ospedale Andrea Gallino

SICILIA
PALERMO
Regional Centre of Expertise for rare hematologic diseases
Azienda Ospedaliera Ospedali Riuniti "Villa Sofia-Cervello" - Presidio Cervello

TOSCANA
FIRENZE
Centre of Expertise for rare hematologic diseases
Azienda Ospedaliero Universitaria Careggi

UMBRIA
PERUGIA
Centre of Expertise for pediatric hematology
Università degli Studi di Perugia - Ospedale S. Maria della Misericordia

VENETO
PADOVA
Centre of Expertise for pediatric hematologic and oncohematologic diseases
Azienda Ospedaliera di Padova

VENETO
VERONA
Centre of Expertise for pediatric hematologic and oncohematologic diseases
Azienda Ospedaliera Universitaria Integrata di Verona - Ospedale Borgo Trento

RUSSIAN FEDERATION
MOSCOW
Loginov Moscow Clinical Scientific Center
Loginov Moscow Clinical Scientific Center

RUSSIAN FEDERATION
ST. PETERSBURG
Almazov National Medical Research Centre
Almazov National Medical Research Centre

Region Stockholm
SOLNA
Expert team for thromboembolic disease in children, ERN EuroBloodNet
Karolinska Universitetssjukhuset

Suisse Alémanique
AARAU
Center for Rare Diseases (CRD) Kantonsspital Aarau AG
Kantonsspital Aarau

Suisse Alémanique
BASEL
The Basel University Centre for Rare and Undiagnosed Diseases
Universitätsspital Basel

Suisse Alémanique
BERN
Centre for Rare Diseases Inselspital
Universitätsspital Inselspital

Suisse Alémanique
LUZERN
Centre for rare diseases, LUKS
Luzerner Kantonsspital - Kinderspital

Suisse Alémanique
ST. GALLEN
Centre for Rare Diseases of Eastern Switzerland
Kantonsspital St. Gallen

Suisse Italienne
BELLINZONA
Center for Rare Diseases of Southern Switzerland
Ospedale Regionale di Bellinzona e Valli - San Giovanni

Suisse Romande
LAUSANNE
Benign and malignant hematology and hemostasis clinics
Centre Hospitalier Universitaire Vaudois CHUV

Suisse Romande
LAUSANNE
Center for rare diseases Lausanne University Hospital
Hôpital Nestlé - CHUV

Ontario
MISSISSAUGA
Clinical Genetics, Credit Valley Site, Trillium Health Partners
Genetics Clinic, Credit Valley Hospital

Ontario
TORONTO
Clinical and Metabolic Genetics Division
The Hospital for Sick Children and University of Toronto

Tartu
TARTU
Multidisciplinary expert team / Competence Centre for Rare Diseases
Competence Centre for Rare Diseases - Tartu University Hospital

Finland
HELSINKI
Expert Center on Rare Congenital Malformations and Rare Intellectual Disability
HUS - Helsinki University Hospital

Finland
OULU
Expert Center on Rare Congenital Malformations and Rare Intellectual Disability
Oulu University Hospital

LAZIO
ROMA
Centre of Expertise for rare genetic diseases
IRCCS Ospedale Pediatrico Bambino Gesù - SEDE GIANICOLO

SICILIA
CATANIA
Centre of Expertise for rare genetic disorders
Azienda Ospedaliero Universitaria Policlinico "G.Rodolico - San Marco"

VENETO
VERONA
Centre of Expertise for cystic fibrosis and rare pulmonary diseases
Azienda Ospedaliera Universitaria Integrata di Verona - Ospedale Borgo Trento

LATVIA
RIGA
Clinic of Medical Genetic and Prenatal Diagnostics and Rare disease coordination center
Children's Clinical University Hospital

CENTRO
COIMBRA
Genetic counselling clinic - CHUC, EPE
Centro Hospitalar e Universitário de Coimbra, EPE - CHUC, EPE

NORTE
VILA REAL
Genetic counselling clinic - CHTMAD, EPE
Centro Hospitalar de Trás-os-Montes e Alto Douro, EPE

SUL
LISBOA
Medical Genetics Clinic - CHULC, EPE - HDE
Centro Hospitalar Universitário de Lisboa Central, EPE - Hospital Dona Estefânia

TIMIS
TIMISOARA
Centrul Regional de Genetica Medicala Timis
University Medecine-Pharmacie "Victor Babes"- Pediatric Hospital "Louis Turcanu"

RUSSIAN FEDERATION
MOSCOW
The Research Centre for Medical Genetics
The Research Centre for Medical Genetics

RUSSIAN FEDERATION
MOSCOW
Veltischev Research and Clinical Institute for Pediatrics
Veltischev Research and Clinical Institute for Pediatrics

RUSSIAN FEDERATION
SAINT-PETERSBURG
St. Petersburg State Pediatric Medical University
St. Petersburg State Pediatric Medical University

RUSSIAN FEDERATION
TAMBOV
Tambov regional childrens clinical hospital
Tambov Regional Children's Hospital clinical hospital

RUSSIAN FEDERATION
TYUMEN
«Perinatal Medical Center» (Tyumen)
«Perinatal Medical Center» (Tyumen)

RUSSIAN FEDERATION
VLADIKAVKAZ
Children's Clinical Hospital, medical and Genetic consultation
Children's Clinical Hospital, medical and Genetic consultation

Region Skåne
LUND
Clinical Genetics - Skåne University Hospital
Skånes Universitetssjukhus -Klinisk Genetik

Suisse Italienne
VIGANELLO