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: Designated centre of expertise = Member of a ERN =

Suisse Romande
GENÈVE
Multidisciplinary outpatient clinic for airway diseases
Hôpitaux Universitaires de Genève HUG

AUVERGNE-RHONE-ALPES
BRON
Reference centre for rare ENT malformations (MALO) - Competence centre
CHU de Lyon HCL - GH Est-Hôpital Femme Mère Enfant

AUVERGNE-RHONE-ALPES
CLERMONT-FERRAND
Reference centre for rare ENT malformations (MALO) - Competence centre
CHU de Clermont-Ferrand - Hôpital Gabriel Montpied

BRETAGNE
BREST
Reference centre for rare ENT malformations (MALO) - Competence centre
CHRU de Brest - Hôpital Morvan

CENTRE-VAL DE LOIRE
TOURS
Reference centre for rare ENT malformations (MALO) - Competence centre
CHRU de Tours - Hôpital Bretonneau

GRAND-EST
STRASBOURG
Reference centre for rare ENT malformations (MALO) - Competence centre
CHU de Strasbourg - Hôpital de Hautepierre

GRAND-EST
VANDOEUVRE-LÈS-NANCY
Reference centre for rare ENT malformations (MALO) - Competence centre
CHU de Nancy - Hôpitaux de Brabois

HAUTS-DE-FRANCE
LILLE
Reference centre for rare ENT malformations (MALO) - Competence centre
CHRU de Lille - Hôpital Jeanne de Flandre

ILE-DE-FRANCE
PARIS
Reference centre for rare ENT malformations (MALO) - Constitutive site
CHU Paris - Hôpital Robert Debré

ILE-DE-FRANCE
PARIS
Reference centre for rare ENT malformations (MALO) - Coordinator site
Hôpital Necker-Enfants Malades

NORMANDIE
ROUEN

NOUVELLE AQUITAINE
LIMOGES
Reference centre for rare ENT malformations (MALO) - Competence centre
CHU de Limoges - Hôpital de la mère et de l'enfant

OCCITANIE
MONTPELLIER
Reference centre for rare ENT malformations (MALO) - Competence centre
CHU de Montpellier - Hôpital Gui de Chauliac

OCCITANIE
TOULOUSE
Reference centre for rare ENT malformations (MALO) - Competence centre
CHU de Toulouse - Hôpital Pierre-Paul Riquet

OUTRE-MER
POINTE À PITRE
Reference centre for rare ENT malformations (MALO) - Competence centre
CHU de la Guadeloupe

PAYS DE LA LOIRE
NANTES
Reference centre for rare ENT malformations (MALO) - Competence centre
CHU de Nantes - Hôtel Dieu

PROVENCE-ALPES-COTE D'AZUR
MARSEILLE
Reference centre for rare ENT malformations (MALO) - Competence centre
CHU de Marseille - Hôpital de la Timone

ANTWERPEN
ANTWERPEN-EDEGEM
Multidisciplinary expert team/Centre for Rare Diseases - University Hospital of Antwerp
University Hospital of Antwerp - UZA

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
Multidisciplinary expert team/Centre for rare diseases - Saint-Luc University Hospital
Cliniques universitaires Saint-Luc - UCLouvain

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
Multidisciplinary expert team/Centre for rare diseases - Erasme University Hospital
Erasme Hospital - ULB

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS
Multidisciplinary expert team/Centre for Rare Diseases - University Hospital of Brussels
Universitair Ziekenhuis Brussel

HAINAUT
GILLY
Multidisciplinary expert team/Centre for rare diseases - Grand Hôpital de Charleroi et Institut de Pathologie et de Génétique
Grand Hôpital de Charleroi - Site Saint-Joseph

LIEGE
LIEGE
Multidisciplinary expert team/Centre for rare diseases - CHU Liège
CHU Sart Tilman - Liège

OOST-VLAANDEREN
GENT
Multidisciplinary expert team/Centre for Rare Diseases - University Hospital of Ghent
Ghent University Hospital - UZ Gent

VLAAMS BRABANT
LEUVEN
Multidisciplinary expert team/Centre for Rare Diseases - University Hospital of Leuven
UZ Leuven - Campus Gasthuisberg

AUVERGNE-RHONE-ALPES
BRON
Reference centre for Pierre Robin syndromes and congenital sucking/swallowing disorders (SPRATON) - Competence centre
CHU de Lyon HCL - GH Est-Hôpital Femme Mère Enfant

AUVERGNE-RHONE-ALPES
CLERMONT-FERRAND
Reference centre for Pierre Robin syndromes and congenital sucking/swallowing disorders (SPRATON) - Competence centre
CHU de Clermont-Ferrand - Hôpital d'Estaing

AUVERGNE-RHONE-ALPES
GRENOBLE
Reference centre for Pierre Robin syndromes and congenital sucking/swallowing disorders (SPRATON) - Competence centre
CHU de Grenoble site Nord - Hôpital Couple-Enfant

BOURGOGNE-FRANCHE-COMTE
BESANÇON
Reference centre for Pierre Robin syndromes and congenital sucking/swallowing disorders (SPRATON) - Competence centre
CHRU de Besançon - Hôpital Jean Minjoz

BRETAGNE
BREST
Reference centre for Pierre Robin syndromes and congenital sucking/swallowing disorders (SPRATON) - Competence centre
CHRU de Brest - Hôpital Morvan

BRETAGNE
RENNES
Reference centre for Pierre Robin syndromes and congenital sucking/swallowing disorders (SPRATON) - Competence centre
CHU de Rennes - Hôpital Sud

CENTRE-VAL DE LOIRE
TOURS
Reference centre for Pierre Robin syndromes and congenital sucking/swallowing disorders (SPRATON) - Competence centre
CHRU de Tours - Hôpital Clocheville

GRAND-EST
NANCY
Reference centre for Pierre Robin syndromes and congenital sucking/swallowing disorders (SPRATON) - Competence centre
CHU de Nancy - Hôpital Central

GRAND-EST
REIMS
Reference centre for Pierre Robin syndromes and congenital sucking/swallowing disorders (SPRATON) - Competence centre
CHU de Reims - American Memorial Hospital

GRAND-EST
STRASBOURG
Reference centre for Pierre Robin syndromes and congenital sucking/swallowing disorders (SPRATON) - Competence centre
CHU de Strasbourg - Hôpital de Hautepierre

HAUTS-DE-FRANCE
AMIENS
Reference centre for Pierre Robin syndromes and congenital sucking/swallowing disorders (SPRATON) - Competence centre
CHU Amiens-Picardie - Site Sud

HAUTS-DE-FRANCE
LILLE
Reference centre for Pierre Robin syndromes and congenital sucking/swallowing disorders (SPRATON) - Competence centre
CHRU de Lille - Hôpital Jeanne de Flandre

ILE-DE-FRANCE
PARIS
Reference centre for Pierre Robin syndromes and congenital sucking/swallowing disorders (SPRATON) - Coordinator site
Hôpital Necker-Enfants Malades

NORMANDIE
CAEN
Reference centre for Pierre Robin syndromes and congenital sucking/swallowing disorders (SPRATON) - Competence centre
CHU de Caen - Hôpital de la Côte de Nacre

NORMANDIE
ROUEN
Reference centre for Pierre Robin syndromes and congenital sucking/swallowing disorders (SPRATON) - Competence centre
CHU de Rouen

NOUVELLE AQUITAINE
BORDEAUX
Reference centre for Pierre Robin syndromes and congenital sucking/swallowing disorders (SPRATON) - Competence centre
CHU de Bordeaux-GH Pellegrin

NOUVELLE AQUITAINE
LIMOGES
Reference centre for Pierre Robin syndromes and congenital sucking/swallowing disorders (SPRATON) - Competence centre
CHU de Limoges - Hôpital de la mère et de l'enfant

NOUVELLE AQUITAINE
POITIERS
Reference centre for Pierre Robin syndromes and congenital sucking/swallowing disorders (SPRATON) - Competence centre
CHU de Poitiers

OCCITANIE
MONTPELLIER
Reference centre for Pierre Robin syndromes and congenital sucking/swallowing disorders (SPRATON) - Competence centre
CHU de Montpellier - IURC

OCCITANIE
TOULOUSE
Reference centre for Pierre Robin syndromes and congenital sucking/swallowing disorders (SPRATON) - Competence centre
CHU de Toulouse - Hôpital des Enfants

PAYS DE LA LOIRE
NANTES
Reference centre for Pierre Robin syndromes and congenital sucking/swallowing disorders (SPRATON) - Competence centre
CHU de Nantes - Hôtel Dieu

PROVENCE-ALPES-COTE D'AZUR
MARSEILLE
Reference centre for Pierre Robin syndromes and congenital sucking/swallowing disorders (SPRATON) - Competence centre
CHU de Marseille - Hôpital de la Timone

Østlandet
OSLO
TAKO centre - National Resource Centre for Oral Health in Rare Diagnosis
Lovisenberg Diakonale Sykehus AS

Østlandet
OSLO
Norwegian National Unit for Craniofacial Surgery
Oslo Universitetssykehus HF, Rikshospitalet

Suisse Alémanique
BASEL
Interdisciplinary Specialised Clinic for Hereditary ORL Diseases
Universitäts-Kinderspital beider Basel UKBB

Suisse Alémanique
BASEL
The Basel University Centre for Rare and Undiagnosed Diseases
Universitätsspital Basel

Suisse Alémanique
BERN
Centre for Rare Diseases Inselspital
Universitätsspital Inselspital

Suisse Alémanique
ST. GALLEN
Centre for Rare Diseases of Eastern Switzerland
Kantonsspital St. Gallen

Suisse Romande
LAUSANNE
Center for rare diseases Lausanne University Hospital
Hôpital Nestlé - CHUV

Ontario
MISSISSAUGA
Clinical Genetics, Credit Valley Site, Trillium Health Partners
Genetics Clinic, Credit Valley Hospital

Ontario
TORONTO
The Prenatal Diagnosis and Medical Genetics Program, Mount Sinai Hospital
Mount Sinai Hospital

Ontario
TORONTO
Clinical and Metabolic Genetics Division
The Hospital for Sick Children and University of Toronto

Québec
MONTRÉAL
Medical genetics pediatric clinic
Glen / McGill Univeristy Health Centre - Centre Universitaire de santé McGill

Québec
MONTRÉAL
Medical genetics adult clinic
Glen / McGill Univeristy Health Centre - Centre Universitaire de santé McGill

SICILIA
CATANIA
Centre of Expertise for rare genetic disorders
Azienda Ospedaliero Universitaria "Policlinico Vittorio Emanuele"

Madrid
MADRID
Prenatal diagnosis and genetic counseling in pregnancy
INGEMM - Instituto de Genética Médica y Molecular (IdiPAZ)

Region Skåne
LUND
Clinical Genetics - Skåne University Hospital
Lunds Universitetssjukhus -Klinisk Genetik

Greater Manchester
MANCHESTER
Manchester Centre for Genomic Medicine
St Mary's Hospital

Hampshire
SOUTHAMPTON