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Caption : Designated centre of expertise = Accreditation
Member of a ERN = ERN

DENMARK

Hovedstaden
COPENHAGEN

Center for Rare Diseases
Rigshospitalet

FRANCE

AUVERGNE-RHONE-ALPES
CLERMONT-FERRAND

FRANCE

AUVERGNE-RHONE-ALPES
LYON

Reference centre for constitutional bone diseases (MOC) and Ehlers-Danlos Syndrome (EDS) - Competence centre
Centre Médico-Chirurgical de Réadaptation des Massues - Croix-Rouge française

FRANCE

BOURGOGNE-FRANCHE-COMTE
DIJON

Reference centre for constitutional bone diseases (MOC) - Competence centre
CHU Dijon Bourgogne - Hôpital François Mitterrand

FRANCE

GRAND-EST
STRASBOURG

FRANCE

GRAND-EST
VANDOEUVRE-LÈS-NANCY

FRANCE

GRAND-EST
VANDOEUVRE-LÈS-NANCY

FRANCE

HAUTS-DE-FRANCE
AMIENS

FRANCE

OCCITANIE
MONTPELLIER

Reference centre for constitutional bone diseases (MOC) - Competence centre
CHU de Montpellier - Hôpital Arnaud de Villeneuve

SWITZERLAND

Suisse Romande
LAUSANNE

Ehlers-Danlos non vascular types clinic
Hôpital Nestlé - CHUV

UNITED KINGDOM

Greater London
HARROW

Ehlers-Danlos Syndrome NHS Specialised Service
North West London Hospitals NHS - Northwick Park & St Marks Hospital

AUSTRIA

TIROL
INNSBRUCK

Pediatric endocrinology clinic
Medizinische Universität Innsbruck

BELGIUM

OOST-VLAANDEREN
GENT

CANADA

Québec
SAINTE FOY

GERMANY

Nordrhein-Westfalen
ESSEN

Ehlers-Danlos Syndrome clinic
Alfried Krupp Krankenhaus Rüttenscheid

GERMANY

Nordrhein-Westfalen
MÜNSTER

Genodermatosis clinic
Universitäts-Hautklinik Münster

GERMANY

Nordrhein-Westfalen
MÜNSTER

GERMANY

Thüringen
JENA

Centre for Rare Connective Tissue Diseases
Universitätsklinikum Jena

HUNGARY

Közép-Magyarország
BUDAPEST

Centre for Rare Skin Diseases
Department of Dermatology, Venereology and Dermatoncology, Semmelweis University

ITALY

EMILIA ROMAGNA
BOLOGNA

ITALY

FRIULI VENEZIA GIULIA
UDINE

Regional centre of expertise for osteo-connective diseases
Azienda Ospedaliero-Universitaria "Santa Maria della Misericordia" di Udine

ITALY

LAZIO
FIUMICINO

Ehlers-Danlos syndrome pediatric orthopedic clinic
IRCCS Ospedale Pediatrico Bambino Gesù - SEDE PALIDORO

ITALY

LAZIO
ROMA

Centre of Expertise for Marfan syndrome and related disorders
Azienda Ospedaliera Universitaria Policlinico di Tor Vergata

ITALY

LIGURIA
PONTEDECIMO

Centre of Expertise for vasculitis and rare systemic diseases
Azienda Sanitaria Locale 3 - Ospedale Andrea Gallino

ITALY

LOMBARDIA
BRESCIA

Centre of Expertise for Ehlers-Danlos syndromes
ASST Spedali Civili di Brescia

ITALY

LOMBARDIA
MILANO

Centre of Expertise for Ehlers-Danlos syndrome
Fondazione IRCCS Ca' Granda - Ospedale Maggiore Policlinico

ITALY

LOMBARDIA
ROZZANO

ITALY

PUGLIA
BARI

Centre of expertise for rare rheumatologic diseases
Azienda Ospedaliero-Universitaria Consorziale Policlinico di Bari

ITALY

PUGLIA
FOGGIA

Centre of Expertise for rare systemic and rheumatologic diseases
Azienda Ospedaliero Universitaria di Foggia - Ospedali Riuniti

ITALY

PUGLIA
SAN GIOVANNI ROTONDO

Expert Center for Ehlers-Danlos syndrome
IRCCS Ospedale Casa Sollievo della Sofferenza -Poliamb. Giovanni Paolo II

ITALY

SARDEGNA
CAGLIARI

Centre of Expertise for rare systemic diseases
Ospedale Oncologico "Armando Businco"

ITALY

TRENTINO ALTO ADIGE
BOLZANO

Centre of Expertise for vasculitis and rare systemic diseases
Azienda Sanitaria dell'Alto Adige - Ospedale di Bolzano

NETHERLANDS

Zuid-Holland
ROTTERDAM

Center of Expertise for Ehlers-Danlos Syndromes
Erasmus MC - Erasmus Medisch Centrum

NORWAY

Østlandet
NESODDTANGEN

TRS National Resource Centre for Rare Disorders
Sunnaas Rehabilitation Hospital

SPAIN

Comunidad Valenciana
ALICANTE

Rare systemic diseases and porphyria clinic
Hospital General Universitario Dr. Balmis de Alicante

SWEDEN

Region Kalmar Län
VÄSTERVIK

SWITZERLAND

Suisse Alémanique
ST. GALLEN

Rheumatology and Immunology Clinic
Kantonsspital St. Gallen

UNITED KINGDOM

South Yorkshire
SHEFFIELD

Ehlers-Danlos Syndrome NHS Specialised Service
The Sheffield Children's Hospital

BELGIUM

ANTWERPEN
EDEGEM (ANTWERPEN)

BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

Multidisciplinary expert team/Centre for rare diseases - ULB
Cliniques Universitaires de Bruxelles - Hôpital Erasme

BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

BELGIUM

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

BELGIUM

LIEGE
LIEGE

Multidisciplinary expert team/Centre for rare diseases - CHU Liège
CHU de Liège - Domaine universitaire du Sart Tilman

ESTONIA

Tartu
TARTU

FRANCE

AUVERGNE-RHONE-ALPES
BRON

FRANCE

AUVERGNE-RHONE-ALPES
BRON

FRANCE

AUVERGNE-RHONE-ALPES
CLERMONT-FERRAND

FRANCE

AUVERGNE-RHONE-ALPES
GRENOBLE

FRANCE

AUVERGNE-RHONE-ALPES
SAINT-PRIEST-EN-JAREZ

FRANCE

BOURGOGNE-FRANCHE-COMTE
BESANÇON

FRANCE

BOURGOGNE-FRANCHE-COMTE
DIJON

FRANCE

BRETAGNE
VANNES

FRANCE

GRAND-EST
VANDOEUVRE-LÈS-NANCY

FRANCE

HAUTS-DE-FRANCE
LILLE

FRANCE

HAUTS-DE-FRANCE
LILLE

FRANCE

ILE-DE-FRANCE
CRÉTEIL

FRANCE

ILE-DE-FRANCE
POISSY

Reference centre for developmental anomalies and malformation syndromes IDF - Constitutive site
Centre hospitalier intercommunal Poissy-Saint-Germain-en-Laye

FRANCE

PROVENCE-ALPES-COTE D'AZUR
MARSEILLE

FRANCE

PROVENCE-ALPES-COTE D'AZUR
TOULON

GERMANY

Nordrhein-Westfalen
BONN

IRELAND

County Dublin
DUBLIN

Department of Rheumatology
St. Vincent's University Hospital

ITALY

BASILICATA
POTENZA

Centre of Expertise for rare systemic or rheumatologic diseases
Azienda Ospedaliera Regionale San Carlo

ITALY

CAMPANIA
NAPOLI

Centre of Expertise for rare systemic or rheumatologic diseases
AOU Università degli Studi della Campania "Luigi Vanvitelli"- Cappella Cangiani

ITALY

CAMPANIA
NAPOLI

ITALY

CAMPANIA
NAPOLI

Centre of Expertise for rare rheumatologic and systemic diseases
Azienda Ospedaliera Universitaria "Federico II"

ITALY

LAZIO
ROMA

Hereditary connective tissue disorders clinic
Azienda Ospedaliera S. Camillo-Forlanini - Ospedale San Camillo

ITALY

LIGURIA
GENOVA

Centre of Expertise for rare systemic or rheumatologic diseases
IRCCS Ospedale Policlinico San Martino - IST - DIMI

ITALY

PIEMONTE
TORINO

Centre of Expertise for rare pediatric rheumatologic and systemic diseases
A.O.U. Città della Salute e della Scienza di Torino - Ospedale Regina Margherita

ITALY

SICILIA
CATANIA

Centre of Expertise for rare pediatric rheumatologic and systemic diseases
Azienda Ospedaliero Universitaria Policlinico "G.Rodolico - San Marco"

RUSSIAN FEDERATION

RUSSIAN FEDERATION
MOSCOW

Loginov Moscow Clinical Scientific Center
Loginov Moscow Clinical Scientific Center

SLOVAKIA

Kosicky kraj
KOSICE

Center for Rare Rheumatologic Diseases
Safarik University Medical School and University Children´s Hospital

SWITZERLAND

Suisse Alémanique
AARAU

SWITZERLAND

Suisse Alémanique
BASEL

SWITZERLAND

Suisse Alémanique
BERN

Centre for Rare Diseases Inselspital
Universitätsspital Inselspital

SWITZERLAND

Suisse Alémanique
LUZERN

Centre for rare diseases, LUKS
Luzerner Kantonsspital / Kinderspital Luzern

SWITZERLAND

Suisse Alémanique
ST. GALLEN

SWITZERLAND

Suisse Alémanique
ZÜRICH

Center for rare musculoskeletal diseases
Balgrist University Hospital

SWITZERLAND

Suisse Alémanique
ZÜRICH

Connective tissue diseases clinic
Universitäts - Kinderspital Zürich - Eleonorenstiftung

SWITZERLAND

Suisse Alémanique
ZÜRICH

SWITZERLAND

Suisse Alémanique
ZÜRICH

Centre for rare diseases Zurich
Universitätsspital Zürich

SWITZERLAND

Suisse Italienne
BELLINZONA

Center for Rare Diseases of Southern Switzerland
Ospedale Regionale di Bellinzona e Valli - San Giovanni

SWITZERLAND

Suisse Romande
GENÈVE

HUG Centre for rare diseases
Hôpitaux Universitaires de Genève HUG

SWITZERLAND

Suisse Romande
LAUSANNE

Center for autoimmune diseases and rare inflammatory disorders
Centre Hospitalier Universitaire Vaudois CHUV

SWITZERLAND

Suisse Romande
LAUSANNE

BELGIUM

VLAAMS BRABANT
LEUVEN

FRANCE

AUVERGNE-RHONE-ALPES
LYON

Reference centre for odontologic manifestations of rare diseases (ORares) - Competence centre
CHU de Lyon HCL - GH Nord-Service de consultations et de traitement dentaire

FRANCE

BOURGOGNE-FRANCHE-COMTE
BESANÇON

FRANCE

BOURGOGNE-FRANCHE-COMTE
DIJON

FRANCE

GRAND-EST
VANDOEUVRE-LÈS-NANCY

FRANCE

ILE-DE-FRANCE
PARIS

Reference centre for odontologic manifestations of rare diseases (ORares) - Competence centre
AP-HP.Sorbonne Université - Hôpital de la Pitié-Salpêtrière

FRANCE

OCCITANIE
MONTPELLIER

FRANCE

OCCITANIE
TOULOUSE

FRANCE

PROVENCE-ALPES-COTE D'AZUR
MARSEILLE

GERMANY

Baden-Württemberg
FREIBURG

Rare odontologic diseases clinic
Universitätsklinikum Freiburg

GERMANY

Baden-Württemberg
HEIDELBERG

Cranial, facial and oral diseases clinic
Universitätsmedizin Heidelberg

GERMANY

Baden-Württemberg
ULM

Rare odontologic diseases clinic
Zentrum für Seltene Erkrankungen am Universitätsklinikum Ulm

GERMANY

Niedersachsen
HANNOVER

Rare odontologic diseases clinic
Medizinische Hochschule Hannover

GERMANY

Nordrhein-Westfalen
ESSEN

Centre for Clinical Genomic Medicine
Universitätsklinikum Essen

GERMANY

Schleswig-Holstein
LÜBECK

Rare genetic syndromes and congenital malformations clinic
Universitätsklinikum Schleswig-Holstein - Campus Lübeck

ITALY

EMILIA ROMAGNA
FERRARA

Rare genetic odontologic diseases clinic
Università degli Studi di Ferrara - Arcispedale "S. Anna"

ITALY

PIEMONTE
TORINO

ITALY

PIEMONTE
TORINO

Rare odontologic diseases specialized clinic
A.O. Città della Salute e della Scienza di Torino - Dental School

ITALY

PUGLIA
BARI

Centre of Expertise for rare odontologic diseases
Azienda Ospedaliero-Universitaria Consorziale Policlinico di Bari

MOROCCO

Rabat
RABAT

Pediatric Ondontology clinic
Université Mohamed V

SWEDEN

Region Östergötland
LINKÖPING

Competency center for Rare Odontological Disorders
Universitetssjukhuset i Linköping

SWITZERLAND

Suisse Romande
GENÈVE

Orthodontic clinic for individuals with special needs
Clinique universitaire de médecine dentaire (CUMD)

AUSTRIA

SALZBURG
SALZBURG

Outpatient clinic for genodermatoses
Universitätsklinikum der Paracelsus Medizinischen Privatuniversität

CANADA

Manitoba
WINNIPEG

Genetics and Metabolism
Health Sciences Centre

CANADA

Ontario
MISSISSAUGA

Clinical Genetics, Credit Valley Site, Trillium Health Partners
Genetics Clinic, Credit Valley Hospital

CANADA

Ontario
TORONTO

Clinical and Metabolic Genetics Division
The Hospital for Sick Children and University of Toronto

CANADA

Québec
MONTRÉAL

Genetique Medicale
Centre hospitalier universitaire Sainte-Justine

CANADA

Québec
MONTRÉAL

Medical genetics pediatric clinic
Glen / McGill Univeristy Health Centre - Centre Universitaire de santé McGill

CANADA

Québec
MONTRÉAL

Medical genetics genodermatosis clinic
Glen / McGill Univeristy Health Centre - Centre Universitaire de santé McGill

CANADA

Québec
MONTRÉAL

Medical genetics adult clinic
Glen / McGill Univeristy Health Centre - Centre Universitaire de santé McGill

CANADA

Québec
SHERBROOKE

Medical genetics service
CIUSSS de l'Estrie - CHUS Fleurimont

ESTONIA

Tartu
TARTU

Multidisciplinary expert team / Competence Centre for Rare Diseases
Competence Centre for Rare Diseases - Tartu University Hospital

FINLAND

Finland
HELSINKI

Department of Clinical Genetics
HUS - Helsinki University Hospital

FINLAND

Finland
HELSINKI

Harvinaissairauksien yksikkö
HUS - Helsinki University Hospital

FINLAND

Finland
HELSINKI

FINLAND

Finland
KUOPIO

Harvinaissairauksien yksikkö
Kuopio University Hospital

FINLAND

Finland
OULU

Harvinaissairauksien yksikkö
Oulu University Hospital

FINLAND

Finland
TAMPERE

Harvinaissairauksien yksikkö
TAYS - Tampere University Hospital

FINLAND

Finland
TURKU

Harvinaissairauksien yksikkö
Turku University Hospital

GERMANY

Bayern
ERLANGEN

Genodermatosis clinic
Kinder- und Jugendklinik des Universitätsklinikums Erlangen

GERMANY

Bayern
WÜRZBURG

Dermatology clinic
Universitäts-Hautklinik Würzburg

ITALY

LAZIO
ROMA

Centre of Expertise for rare genetic diseases
IRCCS Ospedale Pediatrico Bambino Gesù - SEDE GIANICOLO

ITALY

SICILIA
CATANIA

Centre of Expertise for rare genetic disorders
Azienda Ospedaliero Universitaria Policlinico "G.Rodolico - San Marco"

ITALY

SICILIA
TROINA

Cente of Expertise for rare genodermatosis
IRCCS OASI Maria Santissima

ITALY

VENETO
VERONA

Centre of Expertise for cystic fibrosis and rare pulmonary diseases
Azienda Ospedaliera Universitaria Integrata di Verona - Ospedale Borgo Trento

JAPAN

JAPAN
CHIBA

Clinical Genetics
Chiba University Hospital

JAPAN

JAPAN
TOKYO

Rinsho Idengaku Center
Keio University Hospital

LATVIA

LATVIA
RIGA

MOROCCO

Rabat
RABAT

Genogermatosis clinic
CHU Ibn SINA - Souissi

NETHERLANDS

Limburg
MAASTRICHT

PORTUGAL

NORTE
VILA REAL

Genetic counselling clinic
Centro Hospitalar de Trás-os-Montes e Alto Douro, EPE

ROMANIA

TIMIS
TIMISOARA

Centrul Regional de Genetica Medicala Timis
University Medecine-Pharmacie "Victor Babes"- Pediatric Hospital "Louis Turcanu"

RUSSIAN FEDERATION

RUSSIAN FEDERATION
MOSCOW

The Research Centre for Medical Genetics
The Research Centre for Medical Genetics

RUSSIAN FEDERATION

RUSSIAN FEDERATION
MOSCOW

Veltischev Research and Clinical Institute for Pediatrics
Veltischev Research and Clinical Institute for Pediatrics

RUSSIAN FEDERATION

RUSSIAN FEDERATION
SAINT-PETERSBURG

St. Petersburg State Pediatric Medical University
St. Petersburg State Pediatric Medical University

RUSSIAN FEDERATION

RUSSIAN FEDERATION
TAMBOV

Tambov regional childrens clinical hospital
Tambov Regional Children's Hospital clinical hospital

RUSSIAN FEDERATION

RUSSIAN FEDERATION
TYUMEN

«Perinatal Medical Center» (Tyumen)
«Perinatal Medical Center» (Tyumen)

RUSSIAN FEDERATION

RUSSIAN FEDERATION
VLADIKAVKAZ

Children's Clinical Hospital, medical and Genetic consultation
Children's Clinical Hospital, medical and Genetic consultation

SPAIN

Madrid
MADRID

Genodermatoses clinic
INGEMM - Instituto de Genética Médica y Molecular (IdiPAZ)

SWEDEN

Region Skåne
LUND

Clinical Genetics - Skåne University Hospital
Skånes Universitetssjukhus -Klinisk Genetik

SWITZERLAND

Suisse Alémanique
BERN

Genetic medicine clinic
Universitätsspital Inselspital

SWITZERLAND

Suisse Alémanique
SCHLIEREN

SWITZERLAND

Suisse Italienne
VIGANELLO

SWITZERLAND

Suisse Romande
LAUSANNE

ESTONIA

Tartu
TARTU

Centre of Rare Skin Diseases (Associated National Centre in the ERN-Skin)
Competence Centre for Rare Diseases - Tartu University Hospital

ISRAEL

ISRAEL
TEL AVIV

Genetic skin diseases clinic
Tel-Aviv Sourasky Medical Center

ITALY

CAMPANIA
NAPOLI

Centre of Expertise for rare skin diseases
Azienda Ospedaliera Universitaria "Federico II"

ITALY

EMILIA ROMAGNA
BOLOGNA

Centre of Expertise for rare skin diseases
IRCCS Policlinico Sant'Orsola

ITALY

LAZIO
ROMA

Genodermatoses clinic
Azienda Ospedaliera S. Camillo-Forlanini - Ospedale San Camillo

ITALY

LAZIO
ROMA

Centre of Expertise for rare skin diseases
Istituto Dermopatico dell'Immacolata - IRCCS

ITALY

LAZIO
ROMA

ITALY

LOMBARDIA
MILANO

Centre of Expertise for rare skin diseases
Fondazione IRCCS Ca' Granda - Ospedale Maggiore Policlinico

ITALY

PIEMONTE
TORINO

Centre of Expertise for rare skin diseases
A.O. Città della Salute e della Scienza di Torino - Presidio San Lazzaro

ITALY

TRENTINO ALTO ADIGE
BOLZANO

Centre of Expertise for rare skin diseases
Azienda Sanitaria dell'Alto Adige - Ospedale di Bolzano

ITALY

VENETO
PADOVA

Centre of Expertise for rare skin diseases
Azienda Ospedaliera di Padova

ITALY

VENETO
TREVISO

Centre of Expertise for rare skin diseases
Azienda ULSS 9 - Ospedale di Treviso

ITALY

VENETO
VERONA

Centre of Expertise for rare skin diseases
Azienda Ospedaliera Universitaria Integrata di Verona - Ospedale Borgo Trento

SWITZERLAND

Suisse Romande
LAUSANNE

Adult dermatogenetic clinic
Centre Hospitalier Universitaire Vaudois CHUV - Hôpital Beaumont