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Légende : Centre officiellement désigné = Accréditation
Membre d'un ERN = ERN

FRANCE

AUVERGNE-RHONE-ALPES
CLERMONT-FERRAND

FRANCE

AUVERGNE-RHONE-ALPES
GRENOBLE

FRANCE

BOURGOGNE-FRANCHE-COMTE
DIJON

FRANCE

ILE-DE-FRANCE
PARIS

FRANCE

ILE-DE-FRANCE
POISSY

FRANCE

PROVENCE-ALPES-COTE D'AZUR
MARSEILLE

FRANCE

PROVENCE-ALPES-COTE D'AZUR
TOULON

ALLEMAGNE

Baden-Württemberg
TÜBINGEN

Neuropaediatric disease clinic
Universitätsklinik für Kinder- und Jugendmedizin Tübingen

ALLEMAGNE

Baden-Württemberg
ULM

Neurosurgery clinic
Universitätsklinikum Ulm am Oberen Eselsberg

ALLEMAGNE

Bayern
AUGSBURG

Neuropediatrics clinic
Universitätsklinikum Augsburg

ALLEMAGNE

Bayern
WÜRZBURG

Spina bifida clinic
Universitäts-Kinderklinik Würzburg

ALLEMAGNE

Berlin
BERLIN

Neural tube defect clinic
Charité - Universitätsmedizin Berlin (CVK)

ALLEMAGNE

Berlin
BERLIN

Central nervous system malformations and microcephaly clinic
Charité - Universitätsmedizin Berlin (CVK)

ALLEMAGNE

Hamburg
HAMBURG

Neurosurgery clinic
AKK Altonaer Kinderkrankenhaus gGmbH

ALLEMAGNE

Hamburg
HAMBURG

Orthopedic clinic
AKK Altonaer Kinderkrankenhaus gGmbH

ALLEMAGNE

Hessen
GIEßEN

Neurosurgery clinic
Klinik für Neurochirurgie des UKGM am Standort Gießen

ALLEMAGNE

Hessen
WIESBADEN

Central nervous system malformations clinic
HSK, Dr. Horst Schmidt Kliniken GmbH

ALLEMAGNE

Niedersachsen
GÖTTINGEN

Chiari malformation and craniosynostosis clinic
Universitätsmedizin Göttingen

ALLEMAGNE

Nordrhein-Westfalen
BIELEFELD

Neuropediatrics clinic
Evangelisches Krankenhaus Bielefeld - Kinderzentrum Bethel

ALLEMAGNE

Nordrhein-Westfalen
BOCHUM

Neuropediatrics clinic
Universitäts-Kinderklinik am St. Josef-Hospital

ALLEMAGNE

Nordrhein-Westfalen
DORTMUND

Neuropediatrics clinic - epilepsy and spina bifida
Klinikum Dortmund gGmbH - Klinikzentrum Mitte

ALLEMAGNE

Nordrhein-Westfalen
DÜSSELDORF

Neurosurgery clinic
Universitätsklinikum Düsseldorf

ALLEMAGNE

Nordrhein-Westfalen
SANKT AUGUSTIN

Syringomyelia and associated diseases clinic
Asklepios Kinderklinik Sankt Augustin GmbH

ALLEMAGNE

Rheinland-Pfalz
MAINZ

Neural tube defect clinic
Rheinhessen-Fachklinik Mainz

ALLEMAGNE

Sachsen
LEIPZIG

Interdisciplinary clinic for children with hydrocephalus and spina bifida
Zentrum für Frauen- und Kindermedizin am Universitätsklinikum Leipzig

AUTRICHE

TIROL
INNSBRUCK

Department of Neuroradiology
Medizinische Universität Innsbruck

BULGARIE

 South Central region
PLOVDIV

Medical Center UNIQUE
Medical Center 'UNIQUE'

ESPAGNE

Cataluña
BARCELONA

ESPAGNE

Cataluña
ESPLUGUES DE LLOBREGAT

ESPAGNE

Madrid
MADRID

FRANCE

ILE-DE-FRANCE
PARIS

ITALIE

LIGURIA
GENOVA

ITALIE

TOSCANA
FIRENZE

ITALIE

VENETO
VICENZA

Centre of Expertise for dysmorphology
Azienda ULSS 8 Berica - Ospedale San Bortolo di Vicenza

PAYS-BAS

Limburg
MAASTRICHT

Expertise Center Neural Tube Defects
AZM - Academisch Ziekenhuis Maastricht

PAYS-BAS

Zuid-Holland
ROTTERDAM

POLOGNE

Warszawa
WARSAW

Clinic for rare surgical neurology diseases
Instytut "Pomnik-Centrum Zdrowia Dziecka"

SUISSE

Suisse Romande
LAUSANNE

SUISSE

Suisse Romande
LAUSANNE

Consultation spina bifida
Hôpital Nestlé - CHUV

ALLEMAGNE

Baden-Württemberg
HEIDELBERG

Syndromic developmental disorders clinic
Universitätsmedizin Heidelberg

ALLEMAGNE

Baden-Württemberg
HEIDELBERG

Rare neurologic diseases clinic
Universitätsmedizin Heidelberg

ALLEMAGNE

Baden-Württemberg
STUTTGART

Neuropediatrics clinic
Klinikum Stuttgart - Standort Olgahospital

ALLEMAGNE

Bayern
ERLANGEN

Rare developmental defect clinic
ZSEER - Zentrum für Seltene Erkrankungen Erlangen

ALLEMAGNE

Bayern
MÜNCHEN

Neuropediatrics clinic
Kinderklinik und Kinderpoliklinik im Dr. von Haunerschen Kinderspital

ALLEMAGNE

Bayern
MÜNCHEN

Neuropediatrics clinic specialized on epileptology
Klinikum rechts der Isar der Technischen Universität München

ALLEMAGNE

Bayern
SCHWEINFURT

Moebius syndrome clinic
Leopoldina-Krankenhaus Schweinfurt

ALLEMAGNE

Bayern
VOGTAREUTH

Neuropediatrics clinic
Schön Klinik Vogtareuth

ALLEMAGNE

Bremen
BREMERHAVEN

Neurology and epilepsy clinic
Klinik Am Bürgerpark

ALLEMAGNE

Hamburg
HAMBURG

Neuropediatrics clinic
UKE - Universitätsklinikum Hamburg-Eppendorf

ALLEMAGNE

Hessen
FRANKFURT AM MAIN

Rare neuropaediatric diseases clinic
Clementine Kinderhospital

ALLEMAGNE

Hessen
GELNHAUSEN

ALLEMAGNE

Hessen
KASSEL

ALLEMAGNE

Mecklenburg-Vorpommern
GREIFSWALD

Congenital malformations clinic
Universitätsmedizin Greifswald

ALLEMAGNE

Mecklenburg-Vorpommern
ROSTOCK

Neuropediatrics clinic
Universitäts-Kinder- und Jugendklinik Rostock

ALLEMAGNE

Niedersachsen
GÖTTINGEN

Syndromology and dysmorphology clinic
Universitätsmedizin Göttingen

ALLEMAGNE

Niedersachsen
HANNOVER

Neuropediatrics clinic
Auf der Bult - Kinder- und Jugendkrankenhaus

ALLEMAGNE

Niedersachsen
HANNOVER

Neuropediatrics and epilepsy clinic
Medizinische Hochschule Hannover

ALLEMAGNE

Niedersachsen
HANNOVER

Syndromology and dysmorphology clinic
Medizinische Hochschule Hannover

ALLEMAGNE

Niedersachsen
OLDENBURG

Neuropediatrics and epilepsy clinic
Klinikum Oldenburg gGmbH

ALLEMAGNE

Nordrhein-Westfalen
AACHEN

Congenital malformations clinic
Universitätsklinikum Aachen

ALLEMAGNE

Nordrhein-Westfalen
AACHEN

Syndromology clinic
Universitätsklinikum Aachen

ALLEMAGNE

Nordrhein-Westfalen
DÜSSELDORF

Neuropediatrics clinic
Universitätsklinikum Düsseldorf

ALLEMAGNE

Nordrhein-Westfalen
ESSEN

Neuropediatrics clinic
Universitätsklinikum Essen

ALLEMAGNE

Nordrhein-Westfalen
ESSEN

Syndromology and dysmorphology clinic
Universitätsklinikum Essen

ALLEMAGNE

Nordrhein-Westfalen
KÖLN

Neuropediatrics clinic
Universitätsklinikum Köln

ALLEMAGNE

Nordrhein-Westfalen
PADERBORN

Neuropediatrics and epilepsy clinic
St. Vincenz-Krankenhaus GmbH

ALLEMAGNE

Rheinland-Pfalz
MAINZ

Center for rare neurologic diseases
Universitätsmedizin Mainz

ALLEMAGNE

Rheinland-Pfalz
MAINZ

Neurology clinic
Universitätsmedizin Mainz

ALLEMAGNE

Sachsen
DRESDEN

Syndromic developmental disorders clinic
Universitätsklinikum Carl Gustav Carus an der TU Dresden

ALLEMAGNE

Schleswig-Holstein
LÜBECK

Interdisciplinary neuropaediatric diseases clinic
Universitätsklinikum Schleswig-Holstein - Campus Lübeck

ALLEMAGNE

Schleswig-Holstein
LÜBECK

Developmental defect during embryogenesis clinic
Universitätsklinikum Schleswig-Holstein - Campus Lübeck

ALLEMAGNE

Thüringen
JENA

Facial-Nerve-Center Jena
Universitätsklinikum Jena

ALLEMAGNE

Thüringen
JENA

Neuropediatrics and epilepsy clinic
Universitätsklinikum Jena

BELGIQUE

ANTWERPEN
ANTWERPEN-EDEGEM

BELGIQUE

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

BELGIQUE

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

BELGIQUE

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

BULGARIE

 South-West region
SOFIA

Dysmorphology clinic
University Hospital Alexandrovska

CHYPRE

Cyprus
NICOSIA

Dysmorphology clinic
Archbishop Makarios III hospital

DANEMARK

Hovedstaden
COPENHAGEN

Center for Rare Diseases
Rigshospitalet

DANEMARK

Jylland
AARHUS

Centre for rare diseases - CSS
Aarhus Universitetshospital - Skejby

ESPAGNE

Cataluña
BARCELONA

Clinical genetics and dysmorphology clinic
Hospital Universitari Vall d'Hebron

ESPAGNE

Comunidad Valenciana
VALENCIA

Moebius syndrome clinic
Hospital Universitario y Politécnico La Fe

ESPAGNE

Extremadura
BADAJOZ

Dysmorphology clinic
Hospital Infanta Cristina

ESPAGNE

Extremadura
CÁCERES

Dysmorphology pediatric clinic
Hospital San Pedro de Alcántara

ESPAGNE

Madrid
MADRID

Dysmorphology clinic
Hospital Universitario 12 de Octubre

ESPAGNE

Madrid
MADRID

Overgrowth syndromes clinic
INGEMM - Instituto de Genética Médica y Molecular (IdiPAZ)

ESPAGNE

Murcia
EL PALMAR

Clinical genetics and dysmorphology clinic
Hospital Clínico Universitario Virgen de la Arrixaca

ESTONIE

Tallinn
TALLINN

Centre of Paediatric Neurology
Clinic of Paediatrics - Tallinn Children´s Hospital

ESTONIE

Tartu
TARTU

Centre of Paediatric Neurology
Children's Clinic - Tartu University Hospital

HONGRIE

Dél-Dunántúl
PECS

Dysmorphology clinic
Department of Paediatrics - Clinical Center - University of Pécs

ITALIE

ABRUZZO
CHIETI

Centre of Expertise for dysmorphology
Policlinico Universitario di Chieti

ITALIE

CALABRIA
CATANZARO

Dysmorphology clinic
Azienda Ospedaliera Pugliese Ciaccio

ITALIE

CAMPANIA
AVELLINO

Centre of Expertise for dysmorphology
Azienda Ospedaliera San Giuseppe Moscati

ITALIE

CAMPANIA
AVELLINO

Centre of Expertise for rare neurologic diseases
Azienda Ospedaliera San Giuseppe Moscati

ITALIE

CAMPANIA
BENEVENTO

Centre of Expertise for dysmorphology
A.O.R.N. "Gaetano Rummo"

ITALIE

CAMPANIA
NAPOLI

ITALIE

CAMPANIA
NAPOLI

Centre of Expertise for dysmorphology
Azienda Ospedaliera "A. Cardarelli"

ITALIE

CAMPANIA
NAPOLI

Centre of Expertise for rare pediatric neurologic diseases
Azienda Ospedaliera Universitaria "Federico II"

ITALIE

CAMPANIA
NAPOLI

Centre of Expertise for dysmorphology
Azienda Ospedaliera Universitaria "Federico II"

ITALIE

CAMPANIA
NAPOLI

Centre of Expertise for dysmorphology
Azienda Ospedaliera Universitaria "Federico II"

ITALIE

CAMPANIA
NAPOLI

Centre of Expertise for dysmorphology
Istituto di Genetica e Biofisica "Adriano Buzzati Traverso" - CNR

ITALIE

CAMPANIA
SALERNO

Dysmorphology clinic
Centro Zigote S.r.L.

ITALIE

EMILIA ROMAGNA
BOLOGNA

Centre of Expertise for rare neurologic diseases
Azienda USL di Bologna Ospedale Bellaria

ITALIE

EMILIA ROMAGNA
BOLOGNA

Centre of Expertise for rare developmental defect during embryogenesis
Policlinico S. Orsola-Malpighi - Area S. Orsola

ITALIE

EMILIA ROMAGNA
IMOLA

ITALIE

EMILIA ROMAGNA
PARMA

Centre of Expertise for Moebius syndrome
Azienda Ospedaliero-Universitaria di Parma

ITALIE

EMILIA ROMAGNA
PIEVESESTINA DI CESENA

Dysmorphologic clinic
AUSL Cesena

ITALIE

EMILIA ROMAGNA
REGGIO EMILIA

Centre of Expertise for dysmorphology
IRCCS Arcispedale Santa Maria Nuova

ITALIE

FRIULI VENEZIA GIULIA
TRIESTE

Dysmorphology clinic
IRCCS Burlo Garofolo - Istituto per l'Infanzia

ITALIE

FRIULI VENEZIA GIULIA
UDINE

Regional Centre of Expertise for developmental anomalies and malformation syndromes (Williams syndrome)
Azienda Ospedaliero-Universitaria "Santa Maria della Misericordia" di Udine

ITALIE

LAZIO
ROMA

Dysmorphology clinic
Azienda Ospedaliera S. Camillo-Forlanini - Ospedale San Camillo

ITALIE

LAZIO
ROMA

Dysmorphology clinic
Fondazione Policlinico Universitario Agostino Gemelli IRCCS

ITALIE

LAZIO
ROMA

Specialized pediatric neurology clinic
Fondazione Policlinico Universitario Agostino Gemelli IRCCS

ITALIE

LAZIO
ROMA

Dysmorphology clinic
IRCCS Ospedale Pediatrico Bambino Gesù - SEDE GIANICOLO

ITALIE

LAZIO
ROMA

Centre of Expertise for dysmorphology
IRCCS Ospedale Pediatrico Bambino Gesù - SEDE SAN PAOLO

ITALIE

LAZIO
ROMA

Centre of Expertise for rare pediatric neurologic diseases
IRCCS Ospedale Pediatrico Bambino Gesù - SEDE SAN PAOLO

ITALIE

LAZIO
ROMA

Dysmorphology clinic
Policlinico Umberto I

ITALIE

LIGURIA
GENOVA

Centre of Expertise for rare pediatric neurologic diseases
IRCCS Istituto G. Gaslini - Ospedale Pediatrico

ITALIE

LIGURIA
GENOVA

ITALIE

LOMBARDIA
MILANO

Centre of Expertise for dysmorphology
ASST Grande Ospedale Metropolitano Niguarda

ITALIE

LOMBARDIA
MILANO

Centre of Expertise for rare neurologic diseases
ASST Grande Ospedale Metropolitano Niguarda

ITALIE

LOMBARDIA
MILANO

Centre of Expertise for dysmorphology
Fondazione IRCCS Ca' Granda - Ospedale Maggiore Policlinico

ITALIE

LOMBARDIA
MILANO

Centre of Expertise for dysmorphology
Fondazione IRCCS Ca' Granda - Ospedale Maggiore Policlinico

ITALIE

LOMBARDIA
MILANO

Centre of Expertise for rare developmental defect during embryogenesis
IRCCS Ca' Granda Ospedale Maggiore Policlinico - Padiglione De Marchi

ITALIE

LOMBARDIA
MILANO

Centre of Expertise for dysmorphology
IRCCS Ca' Granda Ospedale Maggiore Policlinico - Padiglione De Marchi

ITALIE

LOMBARDIA
MILANO

Dysmorphology clinic
IRCCS Ospedale San Raffaele

ITALIE

LOMBARDIA
MILANO

Centre of Expertise for Moebius syndrome
Ospedale Maggiore Policlinico - Clinica Mangiagalli

ITALIE

LOMBARDIA
MONZA

Centre of Expertise for dysmorphology
ASST Monza - Ospedale San Gerardo

ITALIE

MOLISE
CAMPOBASSO

Centre of Expertise for dysmorphology
Ospedale "Cardarelli" - ASReM - Zona di Campobasso

ITALIE

PIEMONTE
TORINO

Centre of Expertise for dysmorphology
A.O. Città della Salute e della Scienza di Torino - Ospedale Regina Margherita

ITALIE

PIEMONTE
VERBANIA

Dysmorphology clinic
Azienda Sanitaria Locale Verbano Cusio Ossola - Ospedale Castelli

ITALIE

PUGLIA
ACQUAVIVA DELLE FONTI

Dysmorphology clinic
Ospedale F. Miulli

ITALIE

PUGLIA
BARI

Centre of Expertise for rare pediatric neurologic diseases
Azienda Ospedaliero-Universitaria Consorziale Policlinico di Bari

ITALIE

PUGLIA
BRINDISI

Inter-regional centre of expertise for microcephaly
I.R.C.C.S. Eugenio Medea - Polo di Ostuni Brindisi

ITALIE

PUGLIA
SAN GIOVANNI ROTONDO

Centre of Expertise for dysmorphology
IRCCS Ospedale Casa Sollievo della Sofferenza -Poliamb. Giovanni Paolo II

ITALIE

SARDEGNA
CAGLIARI

Dysmorphology clinic
Ospedale Regionale per le Microcitemie

ITALIE

SICILIA
CATANIA

Centre of Expertise for congenital malformative syndromes
Azienda Ospedaliero Universitaria "Policlinico Vittorio Emanuele"

ITALIE

SICILIA
CATANIA

Centre of Expertise for dysmorphology
Presidio Ospedaliero Garibaldi-Nesima

ITALIE

SICILIA
MESSINA

Rare paediatric neurological diseases clinic
A.O.U. Policlinico "G. Martino"

ITALIE

SICILIA
PALERMO

Centre of Expertise for dysmorphology
Azienda Ospedaliera Ospedali Riuniti "Villa Sofia-Cervello" - Presidio Cervello

ITALIE

SICILIA
PALERMO

Centre of Expertise for rare developmental defect during embryogenesis
Azienda Ospedaliera Ospedali Riuniti "Villa Sofia-Cervello" - Presidio Cervello

ITALIE

SICILIA
PALERMO

Centre of Expertise for dysmorphology
Azienda Ospedaliera Universitaria Policlinico "Paolo Giaccone"

ITALIE

SICILIA
RAGUSA

Dysmorphology clinic
Azienda Sanitaria Provinciale di Ragusa

ITALIE

SICILIA
TROINA

Centre of Expertise for dysmorphology
IRCCS OASI Maria Santissima

ITALIE

TOSCANA
FIRENZE

Dysmorphology clinic
AOU Careggi

ITALIE

TOSCANA
FIRENZE

Centre of Expertise for rare pediatric neurologic diseases
Azienda Ospedaliera Universitaria Anna Meyer

ITALIE

TOSCANA
FIRENZE

Dysmorphology clinic
Azienda Ospedaliera Universitaria Anna Meyer

ITALIE

TOSCANA
PISA

Dysmorphology specialized clinic
Azienda Ospedaliero Universitaria Pisana - Ospedale S. Chiara

ITALIE

TOSCANA
SIENA

Dysmorphology clinic
Azienda Ospedaliera Universitaria Senese - Policlinico Santa Maria alle Scotte

ITALIE

TOSCANA
SIENA

Centre of Expertise for Dysmorphology
Azienda Ospedaliera Universitaria Senese - Policlinico Santa Maria alle Scotte

ITALIE

TRENTINO ALTO ADIGE
BOLZANO

Centre of Expertise for rare neurologic diseases
Azienda Sanitaria dell'Alto Adige - Ospedale di Bolzano

ITALIE

TRENTINO ALTO ADIGE
TRENTO

Centre of Expertise for dysmorphology
A.P.S.S. Provincia Autonoma di Trento

ITALIE

UMBRIA
PERUGIA

Centre of Expertise for dysmorphology
Azienda Ospedaliera di Perugia - Centro di Ricerca Emato-Oncologica

ITALIE

VENETO
BELLUNO

Dysmorphology clinic
IRCCS Ospedale Policlinico San Martino

ITALIE

VENETO
DOLO

Dysmorphology clinic
Ospedale di Dolo - ULSS 13

ITALIE

VENETO
PADOVA

Centre of Expertise for dysmorphology
Azienda Ospedaliera di Padova

ITALIE

VENETO
VERONA

Centre of Expertise for rare neurologic diseases
Azienda Ospedaliera Universitaria Integrata di Verona - Ospedale Borgo Roma

ITALIE

VENETO
VERONA

Centre of Expertise for rare pediatric neurologic diseases
Azienda Ospedaliera Universitaria Integrata di Verona - Ospedale Borgo Roma

ITALIE

VENETO
VERONA

Dysmorphology clinic
Centro Airett Ricerca e Innovazione - CARI

ITALIE

VENETO
VICENZA

JAPON

JAPAN
TOKYO

Center for Medical Genetics
Keio University Hospital

LETTONIE

LATVIA
RIGA

Dysmorphology clinic
Childrens University Hospital

LIBAN

Beyrouth
BEIRUT

LITUANIE

DZUKIJA
VILNIUS

Dysmorphology clinic
Vilnius University Hospital Santariskiu Klinikos

LITUANIE

SUDOVIA
KAUNAS

HLUHS KK Center of Rare Neurosurgical Disorders
LSMUH KK, Hospital of Lithuanian University of Health Sciences Kauno klinikos

MAROC

Fes
FES

Consultation de dysmorphologie
CENTRE HOSPITALIER UNIVERSITAIRE HASSAN II  

PAYS-BAS

Noord-Holland
AMSTERDAM

Dutch Centre for Peroxisomal Disorders
Amsterdam UMC, locatie AMC

PORTUGAL

CENTRO
COIMBRA

Dysmorphology clinic
Centro Hospitalar e Universitário de Coimbra

PORTUGAL

ILHAS
ANGRA DO HEROÍSMO

Rare paediatric neurological diseases clinic
Hospital de Santo Espírito de Angra do Heroísmo

PORTUGAL

NORTE
PORTO

Dysmorphology clinic
CGMJM - Centro de Genética Médica Jacinto Magalhães

PORTUGAL

NORTE
PORTO

Unit of Developmental and Perinatal disorders
Centro Hospitalar de S. João, EPE

PORTUGAL

NORTE
PORTO

Rare paediatric neurological diseases clinic
Centro Materno Infantil do Centro Hospitalar do Porto

PORTUGAL

NORTE
VILA REAL

Dysmorphology clinic
Centro Hospitalar de Vila Real-Peso da Régua, SA

PORTUGAL

SUL
LISBOA

Rare paediatric neurological diseases clinic
Hospital Dona Estefânia - Centro Hospitalar de Lisboa Central - EPE

PORTUGAL

SUL
LISBOA

Dysmorphology clinic
Hospital de Sta. Maria - Centro Hospitalar de Lisboa Norte, EPE.

ROUMANIE

IASI
IASI

Iasi Regional Medical Genetics Centre
Spitalul Clinic de Urgente pentru Copii Sfanta Maria

ROUMANIE

SIBIU
SIBIU

Dysmorphology clinic
Spitalul de Pediatrie Sibiu

SLOVENIE

SLOVENIA
LJUBLJANA

Dysmorphology clinic
Univerzitetni klinicni center Ljubljana

SUEDE

Region Uppsala
UPPSALA

Expert team for rare syndromes
Akademiska Sjukhuset

SUISSE

Suisse Alémanique
BASEL

Neuropediatrics and developmental medicine clinic
Universitäts-Kinderspital beider Basel UKBB

SUISSE

Suisse Alémanique
BASEL

SUISSE

Suisse Alémanique
BERN

Genetic medicine clinic
University Hospital Inselspital

SUISSE

Suisse Alémanique
BERN

Centre for Rare Diseases Inselspital
Universitätsspital Inselspital

SUISSE

Suisse Alémanique
LUZERN

Neuropediatric disease clinic
Luzerner Kantonsspital

SUISSE

Suisse Alémanique
SCHLIEREN

SUISSE

Suisse Alémanique
ST. GALLEN

SUISSE

Suisse Alémanique
ST. GALLEN

Pediatric Neurology Clinic
Ostschweizer Kinderspital

SUISSE

Suisse Alémanique
ZÜRICH

Centre for rare diseases Zurich
UniversitätsSpital Zürich

SUISSE

Suisse Romande
GENÈVE

Consultation spécialisée syndrome de Moebius
Hôpital des Enfants - Hôpitaux Universitaires de Genève HUG

SUISSE

Suisse Romande
GENÈVE

Centre Maladies Rares des Hôpitaux Universitaires Genève
Hôpitaux Universitaires de Genève HUG

SUISSE

Suisse Romande
LAUSANNE

Centre Maladies Rares du CHUV
Hôpital Nestlé - CHUV

TURQUIE

TURKEY
ANKARA

Dysmorphology clinic
Intergen Genetic and Rare Diseases

TURQUIE

TURKEY
ISTANBUL

Dysmorpholgy clinic
Koc University, Faculty of Medicine

AUTRICHE

SALZBURG
SALZBURG

Outpatient clinic for pediatric surgery and pediatric urology
Universitätsklinikum der Paracelsus Medizinischen Privatuniversität

AUTRICHE

STEIERMARK
GRAZ

Pediatric urology clinic
Medizinische Universität Graz

AUTRICHE

STEIERMARK
GRAZ

BELGIQUE

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

Centre de référence pour le Spina Bifida - UCL Saint Luc
Cliniques universitaires Saint-Luc - UCLouvain

BELGIQUE

OOST-VLAANDEREN
GENT

BELGIQUE

OOST-VLAANDEREN
GENT

Spina bifida reference centre (adults section) UZ Gent
Ghent University Hospital - UZ Gent

BELGIQUE

VLAAMS BRABANT
LEUVEN

BELGIQUE

VLAAMS BRABANT
LEUVEN

FRANCE

AUVERGNE-RHONE-ALPES
CLERMONT-FERRAND

Centre de référence des Malformations ORL Rares (MALO) - Centre de compétence
CHU de Clermont-Ferrand - Hôpital Gabriel Montpied

FRANCE

AUVERGNE-RHONE-ALPES
GRENOBLE

FRANCE

BOURGOGNE-FRANCHE-COMTE
DIJON

FRANCE

GRAND-EST
STRASBOURG

FRANCE

GRAND-EST
VANDOEUVRE-LÈS-NANCY

FRANCE

HAUTS-DE-FRANCE
LILLE

FRANCE

ILE-DE-FRANCE
BOULOGNE-BILLANCOURT

FRANCE

ILE-DE-FRANCE
PARIS

Centre de référence des maladies rares orales et dentaires (ORares) - Centre de compétence
APHP.Sorbonne Université, Hôpital de la Pitié-Salpêtrière

FRANCE

OCCITANIE
MONTPELLIER

FRANCE

PROVENCE-ALPES-COTE D'AZUR
MARSEILLE

ITALIE

LOMBARDIA
MILANO

Centre of Expertise for Arnold-Chiari syndrome
ASST Grande Ospedale Metropolitano Niguarda

ITALIE

LOMBARDIA
MILANO

Centre of Expertise for epileptic syndromes
Fondazione IRCCS Ca' Granda - Ospedale Maggiore Policlinico

ITALIE

PIEMONTE
TORINO

Interregional Piemonte and Valle d'Aosta Expert Centre for syringomyelia and Chiari syndrome
A.O. Città della Salute e della Scienza di Torino - Presidio CTO - Unità Spinale

ITALIE

VENETO
PADOVA

NORVEGE

Østlandet
NESODDTANGEN

TRS National Resource Centre for Rare Disorders
Sunnaas Rehabilitation Hospital

PAYS-BAS

Gelderland
NIJMEGEN

PORTUGAL

SUL
LISBOA

Spina Bifida clinic
Hospital Dona Estefânia - Centro Hospitalar de Lisboa Central - EPE

FRANCE

AUVERGNE-RHONE-ALPES
GRENOBLE

PAYS-BAS

Zuid-Holland
ROTTERDAM

Expert Center Spinal Disraphism Rotterdam
Erasmus MC - Erasmus Medisch Centrum

ESPAGNE

Andalucía
SEVILLA

CSUR - National unit of expertise for pediatric orthopedics
Hospital Universitario Virgen del Rocío

ESPAGNE

Cataluña
ESPLUGUES DE LLOBREGAT

IRLANDE

County Dublin
DUBLIN

National Paediatric Craniofacial Centre
Children's Health Ireland @ Temple Street

IRLANDE

County Dublin
DUBLIN

LITUANIE

SUDOVIA
VILNIUS

Coordinating Centre of Pediatric Rare Diseases
Vilnius University Hospital Santariskiu Klinikos - Childrens Hospital

ROYAUME-UNI

Greater London
LONDON

Craniofacial Service (Great Ormond Street Hospital )
Great Ormond Street Hospital NHS Foundation Trust

SUEDE

Region Västra Götaland
GÖTEBORG

Expert team for Myelomeningocele
Sahlgrenska Universitetssjukhuset