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Légende : Centre officiellement désigné = Accréditation
Membre d'un ERN = ERN

DANEMARK

Hovedstaden
COPENHAGEN

Center for Rare Diseases
Rigshospitalet

FRANCE

AUVERGNE-RHONE-ALPES
CLERMONT-FERRAND

FRANCE

AUVERGNE-RHONE-ALPES
LYON

FRANCE

BOURGOGNE-FRANCHE-COMTE
DIJON

FRANCE

GRAND-EST
VANDOEUVRE-LÈS-NANCY

FRANCE

GRAND-EST
VANDOEUVRE-LÈS-NANCY

FRANCE

OCCITANIE
MONTPELLIER

SUISSE

Suisse Romande
LAUSANNE

ALLEMAGNE

Nordrhein-Westfalen
ESSEN

Ehlers-Danlos Syndrome clinic
Alfried Krupp Krankenhaus Rüttenscheid

ALLEMAGNE

Nordrhein-Westfalen
MÜNSTER

Genodermatosis clinic
Universitäts-Hautklinik Münster

ALLEMAGNE

Nordrhein-Westfalen
MÜNSTER

ALLEMAGNE

Thüringen
JENA

Centre for Rare Connective Tissue Diseases
Universitätsklinikum Jena

AUTRICHE

TIROL
INNSBRUCK

Pediatric endocrinology clinic
Medizinische Universität Innsbruck

BELGIQUE

OOST-VLAANDEREN
GENT

CANADA

Québec
SAINTE FOY

ESPAGNE

Comunidad Valenciana
ALICANTE

Rare systemic diseases and porphyria clinic
Hospital General Universitario de Alicante

HONGRIE

Közép-Magyarország
BUDAPEST

Centre for Rare Skin Diseases
Department of Dermatology, Venereology and Dermatoncology, Semmelweis University

ITALIE

EMILIA ROMAGNA
BOLOGNA

ITALIE

FRIULI VENEZIA GIULIA
UDINE

Regional centre of expertise for osteo-connective diseases
Azienda Ospedaliero-Universitaria "Santa Maria della Misericordia" di Udine

ITALIE

LAZIO
FIUMICINO

Ehlers-Danlos syndrome pediatric orthopedic clinic
IRCCS Ospedale Pediatrico Bambino Gesù - SEDE PALIDORO

ITALIE

LAZIO
ROMA

Centre of Expertise for Marfan syndrome and related disorders
Azienda Ospedaliera Universitaria Policlinico di Tor Vergata

ITALIE

LIGURIA
PONTEDECIMO

Centre of Expertise for vasculitis and rare systemic diseases
Azienda Sanitaria Locale 3 - Ospedale Andrea Gallino

ITALIE

LOMBARDIA
BRESCIA

Centre of Expertise for Ehlers-Danlos syndromes
ASST Spedali Civili di Brescia

ITALIE

LOMBARDIA
MILANO

Centre of Expertise for Ehlers-Danlos syndromes
Fondazione IRCCS Ca' Granda - Ospedale Maggiore Policlinico

ITALIE

LOMBARDIA
ROZZANO

ITALIE

PUGLIA
BARI

Centre of expertise for rare rheumatologic diseases
Azienda Ospedaliero-Universitaria Consorziale Policlinico di Bari

ITALIE

PUGLIA
FOGGIA

Centre of Expertise for rare systemic and rheumatologic diseases
Azienda Ospedaliero Universitaria di Foggia - Ospedali Riuniti

ITALIE

PUGLIA
SAN GIOVANNI ROTONDO

Expert Center for Ehlers-Danlos syndrome
IRCCS Ospedale Casa Sollievo della Sofferenza -Poliamb. Giovanni Paolo II

ITALIE

SARDEGNA
CAGLIARI

Centre of Expertise for rare systemic diseases
Ospedale Oncologico "Armando Businco"

ITALIE

TRENTINO ALTO ADIGE
BOLZANO

Centre of Expertise for vasculitis and rare systemic diseases
Azienda Sanitaria dell'Alto Adige - Ospedale di Bolzano

NORVEGE

Østlandet
NESODDTANGEN

TRS National Resource Centre for Rare Disorders
Sunnaas Rehabilitation Hospital

PAYS-BAS

Zuid-Holland
ROTTERDAM

Center of Expertise for Ehlers-Danlos Syndromes
Erasmus MC - Erasmus Medisch Centrum

ROYAUME-UNI

Greater London
HARROW

Ehlers-Danlos Syndrome NHS Specialised Service (Children)
North West London Hospitals NHS - Northwick Park Hospital

ROYAUME-UNI

Greater London
HARROW

Ehlers-Danlos Syndrome NHS Specialised Service (Adults)
North West London Hospitals NHS - St Mark's Hospital

ROYAUME-UNI

South Yorkshire
SHEFFIELD

Ehlers-Danlos Syndrome NHS Specialised Service
The Sheffield Children's Hospital

SUEDE

Region Kalmar Län
VÄSTERVIK

ALLEMAGNE

Nordrhein-Westfalen
BONN

BELGIQUE

ANTWERPEN
EDEGEM (ANTWERPEN)

BELGIQUE

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

BELGIQUE

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

BELGIQUE

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

ESTONIE

Tartu
TARTU

FRANCE

AUVERGNE-RHONE-ALPES
CLERMONT-FERRAND

FRANCE

AUVERGNE-RHONE-ALPES
GRENOBLE

FRANCE

BOURGOGNE-FRANCHE-COMTE
DIJON

FRANCE

ILE-DE-FRANCE
POISSY

FRANCE

PROVENCE-ALPES-COTE D'AZUR
MARSEILLE

FRANCE

PROVENCE-ALPES-COTE D'AZUR
TOULON

IRLANDE

County Dublin
DUBLIN

Department of Rheumatology
St. Vincent's University Hospital

ITALIE

BASILICATA
POTENZA

Centre of Expertise for rare systemic or rheumatologic diseases
Azienda Ospedaliera Regionale San Carlo

ITALIE

CAMPANIA
NAPOLI

Centre of Expertise for rare systemic or rheumatologic diseases
AOU Università degli Studi della Campania "Luigi Vanvitelli"- Cappella Cangiani

ITALIE

CAMPANIA
NAPOLI

ITALIE

CAMPANIA
NAPOLI

Centre of Expertise for rare rheumatologic and systemic diseases
Azienda Ospedaliera Universitaria "Federico II"

ITALIE

LAZIO
ROMA

Hereditary connective tissue disorders clinic
Azienda Ospedaliera S. Camillo-Forlanini - Ospedale San Camillo

ITALIE

LIGURIA
GENOVA

Centre of Expertise for rare systemic or rheumatologic diseases
IRCCS Ospedale Policlinico San Martino - IST - DIMI

ITALIE

PIEMONTE
TORINO

Centre of Expertise for rare pediatric rheumatologic and systemic diseases
A.O.U. Città della Salute e della Scienza di Torino - Ospedale Regina Margherita

ITALIE

PUGLIA
BARI

Centre of Expertise for rare systemic and rheumatologic diseases
Azienda Ospedaliero-Universitaria Consorziale Policlinico di Bari

ITALIE

SICILIA
CATANIA

Centre of Expertise for rare pediatric rheumatologic and systemic diseases
Azienda Ospedaliero Universitaria Policlinico "G.Rodolico - San Marco"

RUSSIE, FEDERATION DE

RUSSIAN FEDERATION
MOSCOW

Loginov Moscow Clinical Scientific Center
Loginov Moscow Clinical Scientific Center

SLOVAQUIE

Kosicky kraj
KOSICE

Center for Rare Rheumatologic Diseases
Safarik University Medical School and University Children´s Hospital

SUISSE

Suisse Alémanique
AARAU

SUISSE

Suisse Alémanique
BASEL

SUISSE

Suisse Alémanique
BERN

Centre for Rare Diseases Inselspital
Universitätsspital Inselspital

SUISSE

Suisse Alémanique
LUZERN

Centre for rare diseases, LUKS
Luzerner Kantonsspital / Kinderspital Luzern

SUISSE

Suisse Alémanique
ST. GALLEN

SUISSE

Suisse Alémanique
ZÜRICH

Center for rare musculoskeletal diseases
Balgrist University Hospital

SUISSE

Suisse Alémanique
ZÜRICH

Connective tissue diseases clinic
Universitäts - Kinderspital Zürich - Eleonorenstiftung

SUISSE

Suisse Alémanique
ZÜRICH

Centre for rare diseases Zurich
Universitätsspital Zürich

SUISSE

Suisse Italienne
BELLINZONA

Center for Rare Diseases of Southern Switzerland
Ospedale Regionale di Bellinzona e Valli - San Giovanni

SUISSE

Suisse Romande
GENÈVE

Centre Maladies Rares des Hôpitaux Universitaires Genève
Hôpitaux Universitaires de Genève HUG

SUISSE

Suisse Romande
LAUSANNE

Centre des maladies auto-immunes et inflammatoires rares
Centre Hospitalier Universitaire Vaudois CHUV

SUISSE

Suisse Romande
LAUSANNE

Centre Maladies Rares du CHUV
Hôpital Nestlé - CHUV

ALLEMAGNE

Baden-Württemberg
FREIBURG

Rare odontologic diseases clinic
Universitätsklinikum Freiburg

ALLEMAGNE

Baden-Württemberg
HEIDELBERG

Cranial, facial and oral diseases clinic
Universitätsmedizin Heidelberg

ALLEMAGNE

Baden-Württemberg
ULM

Rare odontologic diseases clinic
Zentrum für Seltene Erkrankungen am Universitätsklinikum Ulm

ALLEMAGNE

Niedersachsen
HANNOVER

Rare odontologic diseases clinic
Medizinische Hochschule Hannover

ALLEMAGNE

Nordrhein-Westfalen
ESSEN

Centre for Clinical Genomic Medicine
Universitätsklinikum Essen

ALLEMAGNE

Schleswig-Holstein
LÜBECK

Rare genetic syndromes and congenital malformations clinic
Universitätsklinikum Schleswig-Holstein - Campus Lübeck

BELGIQUE

VLAAMS BRABANT
LEUVEN

FRANCE

AUVERGNE-RHONE-ALPES
LYON

Centre de référence des maladies rares orales et dentaires (ORares) - Centre de compétence
CHU de Lyon HCL - GH Nord-Service de consultations et de traitement dentaire

FRANCE

BOURGOGNE-FRANCHE-COMTE
BESANÇON

FRANCE

BOURGOGNE-FRANCHE-COMTE
DIJON

FRANCE

GRAND-EST
VANDOEUVRE-LÈS-NANCY

FRANCE

ILE-DE-FRANCE
PARIS

Centre de référence des maladies rares orales et dentaires (ORares) - Centre de compétence
AP-HP.Sorbonne Université - Hôpital de la Pitié-Salpêtrière

FRANCE

OCCITANIE
MONTPELLIER

FRANCE

OCCITANIE
TOULOUSE

FRANCE

PROVENCE-ALPES-COTE D'AZUR
MARSEILLE

ITALIE

EMILIA ROMAGNA
FERRARA

Rare genetic odontologic diseases clinic
Università degli Studi di Ferrara - Arcispedale "S. Anna"

ITALIE

PIEMONTE
TORINO

Rare odontologic diseases specialized clinic
A.O. Città della Salute e della Scienza di Torino - Dental School

ITALIE

PUGLIA
BARI

Centre of Expertise for rare odontologic diseases
Azienda Ospedaliero-Universitaria Consorziale Policlinico di Bari

SUEDE

Region Östergötland
LINKÖPING

Competency center for Rare Odontological Disorders
Universitetssjukhuset i Linköping

SUISSE

Suisse Romande
GENÈVE

Consultation de soins orthodontiques aux personnes en situation de handicap
Clinique universitaire de médecine dentaire (CUMD)

ALLEMAGNE

Bayern
ERLANGEN

Genodermatosis clinic
Kinder- und Jugendklinik des Universitätsklinikums Erlangen

ALLEMAGNE

Bayern
WÜRZBURG

Dermatology clinic
Universitäts-Hautklinik Würzburg

AUTRICHE

SALZBURG
SALZBURG

Outpatient clinic for genodermatoses
Universitätsklinikum der Paracelsus Medizinischen Privatuniversität

CANADA

Manitoba
WINNIPEG

Genetics and Metabolism
Health Sciences Centre

CANADA

Ontario
MISSISSAUGA

Clinical Genetics, Credit Valley Site, Trillium Health Partners
Genetics Clinic, Credit Valley Hospital

CANADA

Ontario
TORONTO

Clinical and Metabolic Genetics Division
The Hospital for Sick Children and University of Toronto

CANADA

Québec
MONTRÉAL

Medical Genetics Clinic
Centre hospitalier universitaire Sainte-Justine

CANADA

Québec
MONTRÉAL

Clinique génétique médicale pédiatrique
Glen / McGill Univeristy Health Centre - Centre Universitaire de santé McGill

CANADA

Québec
MONTRÉAL

Clinique de genodermatose de génétique médicale
Glen / McGill Univeristy Health Centre - Centre Universitaire de santé McGill

CANADA

Québec
MONTRÉAL

Clinique génétique médicale pour adultes
Glen / McGill Univeristy Health Centre - Centre Universitaire de santé McGill

CANADA

Québec
SHERBROOKE

Service génétique médicale
CIUSSS de l'Estrie - CHUS Fleurimont

ESPAGNE

Madrid
MADRID

Genodermatoses clinic
INGEMM - Instituto de Genética Médica y Molecular (IdiPAZ)

ESTONIE

Tartu
TARTU

Multidisciplinary expert team / Competence Centre for Rare Diseases
Competence Centre for Rare Diseases - Tartu University Hospital

FINLANDE

Finland
HELSINKI

Department of Clinical Genetics
HUS - Helsinki University Hospital

FINLANDE

Finland
HELSINKI

Rare Diseases Unit
HUS - Helsinki University Hospital

FINLANDE

Finland
HELSINKI

FINLANDE

Finland
KUOPIO

Rare Diseases Unit
Kuopio University Hospital

FINLANDE

Finland
OULU

Rare Diseases Unit
Oulu University Hospital

FINLANDE

Finland
TAMPERE

Rare Diseases Unit
TAYS - Tampere University Hospital

FINLANDE

Finland
TURKU

Rare Diseases Unit
Turku University Hospital

ITALIE

LAZIO
ROMA

Centre of Expertise for rare genetic diseases
IRCCS Ospedale Pediatrico Bambino Gesù - SEDE GIANICOLO

ITALIE

SICILIA
CATANIA

Centre of Expertise for rare genetic disorders
Azienda Ospedaliero Universitaria Policlinico "G.Rodolico - San Marco"

ITALIE

SICILIA
TROINA

Cente of Expertise for rare genodermatosis
IRCCS OASI Maria Santissima

ITALIE

VENETO
VERONA

Centre of Expertise for cystic fibrosis and rare pulmonary diseases
Azienda Ospedaliera Universitaria Integrata di Verona - Ospedale Borgo Trento

JAPON

JAPAN
CHIBA

Clinical Genetics
Chiba University Hospital

JAPON

JAPAN
TOKYO

Center for Medical Genetics
Keio University Hospital

LETTONIE

LATVIA
RIGA

MAROC

Rabat
RABAT

Consultation des génodermatoses
CHU Ibn SINA - Souissi

ROUMANIE

TIMIS
TIMISOARA

Regional Center of Medical Genetics Timis
University Medecine-Pharmacie "Victor Babes"- Pediatric Hospital "Louis Turcanu"

RUSSIE, FEDERATION DE

RUSSIAN FEDERATION
MOSCOW

The Research Centre for Medical Genetics
The Research Centre for Medical Genetics

RUSSIE, FEDERATION DE

RUSSIAN FEDERATION
MOSCOW

Veltischev Research and Clinical Institute for Pediatrics
Veltischev Research and Clinical Institute for Pediatrics

RUSSIE, FEDERATION DE

RUSSIAN FEDERATION
SAINT-PETERSBURG

St. Petersburg State Pediatric Medical University
St. Petersburg State Pediatric Medical University

RUSSIE, FEDERATION DE

RUSSIAN FEDERATION
TAMBOV

Tambov regional childrens clinical hospital
Tambov Regional Children's Hospital clinical hospital

RUSSIE, FEDERATION DE

RUSSIAN FEDERATION
TYUMEN

«Perinatal Medical Center» (Tyumen)
«Perinatal Medical Center» (Tyumen)

RUSSIE, FEDERATION DE

RUSSIAN FEDERATION
VLADIKAVKAZ

Children's Clinical Hospital, medical and Genetic consultation
Children's Clinical Hospital, medical and Genetic consultation

SUEDE

Region Skåne
LUND

Clinical Genetics - Skåne University Hospital
Skånes Universitetssjukhus -Klinisk Genetik

SUISSE

Suisse Alémanique
BERN

Genetic medicine clinic
Universitätsspital Inselspital

SUISSE

Suisse Alémanique
SCHLIEREN

SUISSE

Suisse Italienne
VIGANELLO

ESTONIE

Tartu
TARTU

Centre of Rare Skin Diseases (Associated National Centre in the ERN-Skin)
Competence Centre for Rare Diseases - Tartu University Hospital

ISRAEL

ISRAEL
TEL AVIV

Genetic skin diseases clinic
Tel-Aviv Sourasky Medical Center

ITALIE

CAMPANIA
NAPOLI

Centre of Expertise for rare skin diseases
Azienda Ospedaliera Universitaria "Federico II"

ITALIE

EMILIA ROMAGNA
BOLOGNA

Centre of Expertise for rare skin diseases
IRCCS Policlinico Sant'Orsola

ITALIE

LAZIO
ROMA

Genodermatoses clinic
Azienda Ospedaliera S. Camillo-Forlanini - Ospedale San Camillo

ITALIE

LAZIO
ROMA

Centre of Expertise for rare skin diseases
Istituto Dermopatico dell'Immacolata - IRCCS

ITALIE

LOMBARDIA
MILANO

Centre of Expertise for rare skin diseases
Fondazione IRCCS Ca' Granda - Ospedale Maggiore Policlinico

ITALIE

PIEMONTE
TORINO

Centre of Expertise for rare skin diseases
A.O. Città della Salute e della Scienza di Torino - Presidio San Lazzaro

ITALIE

TRENTINO ALTO ADIGE
BOLZANO

Centre of Expertise for rare skin diseases
Azienda Sanitaria dell'Alto Adige - Ospedale di Bolzano

ITALIE

VENETO
PADOVA

Centre of Expertise for rare skin diseases
Azienda Ospedaliera di Padova

ITALIE

VENETO
TREVISO

Centre of Expertise for rare skin diseases
Azienda ULSS 9 - Ospedale di Treviso

ITALIE

VENETO
VERONA

Centre of Expertise for rare skin diseases
Azienda Ospedaliera Universitaria Integrata di Verona - Ospedale Borgo Trento

SUISSE

Suisse Romande
LAUSANNE

Consultation de dermatologie génétique adulte
Centre Hospitalier Universitaire Vaudois CHUV - Hôpital Beaumont