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Didascalia : Centro di riferimento = Accreditato							
Membro di una ERN = ERN

PAESI BASSI

Zuid-Holland
LEIDEN

Marfan-FTAAD Clinic
LUMC - Leids Universitair Medisch Centrum

AUSTRIA

TIROL
INNSBRUCK

Pediatric endocrinology clinic
Medizinische Universität Innsbruck

BELGIO

OOST-VLAANDEREN
GENT

Aorta Team Ghent - UZ Gent
Ghent University Hospital - UZ Gent

CANADA

Québec
SAINTE FOY

DANIMARCA

Hovedstaden
COPENHAGEN

Center for Rare Diseases
Rigshospitalet

DANIMARCA

Jylland
AARHUS

FRANCIA

AUVERGNE-RHONE-ALPES
BRON

Reference centre for Marfan syndrome and related syndromes - Competence centre
CHU de Lyon HCL - GH Est-Hôpital Femme Mère Enfant

FRANCIA

BOURGOGNE-FRANCHE-COMTE
DIJON

Reference centre for Marfan syndrome and related syndromes - Competence centre
CHU Dijon Bourgogne - Hôpital François Mitterrand

FRANCIA

GRAND-EST
VANDOEUVRE-LÈS-NANCY

FRANCIA

HAUTS-DE-FRANCE
LILLE

FRANCIA

ILE-DE-FRANCE
PARIS

Reference centre for Marfan syndrome and related syndromes - Coordinator site
CHU Paris Nord-Val de Seine - Hôpital Xavier Bichat-Claude Bernard

FRANCIA

NORMANDIE
CAEN

FRANCIA

NORMANDIE
CAEN

FRANCIA

OUTRE-MER
SAINT-PIERRE

Reference centre for Marfan syndrome and related syndromes - Competence centre
CHU de la Réunion - GH Sud Réunion - Saint-Pierre

FRANCIA

PAYS DE LA LOIRE
NANTES

Reference centre for Marfan syndrome and related syndromes - Competence centre
CHU de Nantes - Hôpital Nord Guillaume et René Laënnec

FRANCIA

PROVENCE-ALPES-COTE D'AZUR
MARSEILLE

GERMANIA

Berlin
BERLIN

Marfan syndrome clinic
Charité - Universitätsmedizin Berlin (CVK)

GERMANIA

Berlin
BERLIN

GERMANIA

Hamburg
HAMBURG

Aortic diseases clinic
UKE - Universitätsklinikum Hamburg-Eppendorf

GERMANIA

Nordrhein-Westfalen
MÜNSTER

Marfan and Marfan-related disorders clinic
Universitätsklinikum Münster

IRLANDA

County Dublin
DUBLIN

Marfan Aortopathy Clinic
Mater Misericordiae Hospital

ITALIA

EMILIA ROMAGNA
BOLOGNA

Centro di Riferimento per la sindrome di Marfan e malattie correlate
Policlinico S. Orsola-Malpighi - Area S. Orsola

ITALIA

LAZIO
ROMA

Centro di Riferimento per la sindrome di Marfan e sindromi correlate
Azienda Ospedaliera Universitaria Policlinico di Tor Vergata

ITALIA

TOSCANA
FIRENZE

NORVEGIA

Østlandet
NESODDTANGEN

TRS National Resource Centre for Rare Disorders
Sunnaas Rehabilitation Hospital

PAESI BASSI

Zuid-Holland
ROTTERDAM

Center for Inherited Cardiovascular Diseases
Erasmus MC - Erasmus Medisch Centrum

PORTOGALLO

SUL
LISBOA

Cardiogenetics Department, Cardiologic Pediatric Department, Santa Cruz Hospital, CHLO, Carnaxide
Hospital de Santa Maria - Centro Hospitalar Universitário Lisboa Norte, EPE

REGNO UNITO; GRAN BRETAGNA

Merseyside
LIVERPOOL

SPAGNA

Andalucía
MÁLAGA

Marfan and Marfan related-disorders clinic
Hospital Universitario Virgen de la Victoria

SPAGNA

Asturias
OVIEDO

CSUR - National unit of expertise for familial cardiopathies
Hospital Universitario Central de Asturias

SPAGNA

Castilla - León
SALAMANCA

CSUR - National unit of expertise for familial cardiopathies
Hospital Clínico Universitario de Salamanca

SPAGNA

Cataluña
BARCELONA

CSUR - National unit of expertise for Marfan syndrome
Hospital Universitari Vall d'Hebron

SPAGNA

Comunidad Valenciana
ALICANTE

Rare systemic diseases and porphyria clinic
Hospital General Universitario de Alicante

SPAGNA

Galicia
A CORUÑA

SPAGNA

Madrid
MADRID

Rare genetic cardiac diseases clinic
Hospital Universitario Fundación Jiménez Díaz

SPAGNA

Madrid
MAJADAHONDA

CSUR - National unit of expertise for familial cardiopathies
Hospital Universitario Puerta de Hierro - Majadahonda

SVIZZERA

Suisse Alémanique
BERN

Marfan Clinics
Universitätsspital Inselspital

BELGIO

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

BELGIO

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

BELGIO

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

ITALIA

LIGURIA
PONTEDECIMO

Centro di Riferimento per le vasculiti e malattie sistemiche rare
Azienda Sanitaria Locale 3 - Ospedale Andrea Gallino

ITALIA

PUGLIA
BARI

Centro di Riferimento per le malattie reumatologiche rare
Azienda Ospedaliero-Universitaria Consorziale Policlinico di Bari

ITALIA

PUGLIA
FOGGIA

Centro di Riferimento per le malattie reumatologiche e sistemiche rare
Azienda Ospedaliero Universitaria di Foggia - Ospedali Riuniti

ITALIA

SARDEGNA
CAGLIARI

Centro di Riferimento per le malattie sistemiche rare
Ospedale Oncologico "Armando Businco"

ITALIA

TRENTINO ALTO ADIGE
BOLZANO

Centro di Riferimento per le vasculiti e le malattie sistemiche rare
Azienda Sanitaria dell'Alto Adige - Ospedale di Bolzano

PAESI BASSI

Utrecht
UTRECHT

Center for Inherited Cardiovascular Disease
UMC Utrecht - Universitair Medisch Centrum Utrecht

RUSSIA

RUSSIAN FEDERATION
MOSCOW

Loginov Moscow Clinical Scientific Center
Loginov Moscow Clinical Scientific Center

SVIZZERA

Suisse Alémanique
AARAU

SVIZZERA

Suisse Alémanique
BASEL

Pediatric surgery clinic
Universitäts-Kinderspital beider Basel UKBB

SVIZZERA

Suisse Alémanique
BASEL

SVIZZERA

Suisse Alémanique
BERN

Centre for Rare Diseases Inselspital
Universitätsspital Inselspital

SVIZZERA

Suisse Alémanique
LUZERN

Centre for rare diseases, LUKS
Luzerner Kantonsspital / Kinderspital Luzern

SVIZZERA

Suisse Alémanique
ST. GALLEN

SVIZZERA

Suisse Alémanique
ZÜRICH

Centre for rare diseases Zurich
Universitätsspital Zürich

SVIZZERA

Suisse Italienne
BELLINZONA

Centro per le Malattie Rare della Svizzera Italiana (CMRSI)
Ospedale Regionale di Bellinzona e Valli - San Giovanni

SVIZZERA

Suisse Romande
GENÈVE

HUG Centre for rare diseases
Hôpitaux Universitaires de Genève HUG

SVIZZERA

Suisse Romande
LAUSANNE

CANADA

Manitoba
WINNIPEG

Genetics and Metabolism
Health Sciences Centre

CANADA

Ontario
MISSISSAUGA

Clinical Genetics, Credit Valley Site, Trillium Health Partners
Genetics Clinic, Credit Valley Hospital

CANADA

Ontario
TORONTO

Clinical and Metabolic Genetics Division
The Hospital for Sick Children and University of Toronto

CANADA

Québec
MONTRÉAL

Medical Genetics Clinic
Centre hospitalier universitaire Sainte-Justine

CANADA

Québec
MONTRÉAL

Medical genetics pediatric clinic
Glen / McGill Univeristy Health Centre - Centre Universitaire de santé McGill

CANADA

Québec
MONTRÉAL

Medical genetics adult clinic
Glen / McGill Univeristy Health Centre - Centre Universitaire de santé McGill

CANADA

Québec
SHERBROOKE

Medical genetics service
CIUSSS de l'Estrie - CHUS Fleurimont

FINLANDIA

Finland
HELSINKI

Department of Clinical Genetics
HUS - Helsinki University Hospital

FINLANDIA

Finland
HELSINKI

Rare Diseases Unit
HUS - Helsinki University Hospital

FINLANDIA

Finland
KUOPIO

Rare Diseases Unit
Kuopio University Hospital

FINLANDIA

Finland
OULU

Rare Diseases Unit
Oulu University Hospital

FINLANDIA

Finland
TAMPERE

Rare Diseases Unit
TAYS - Tampere University Hospital

FINLANDIA

Finland
TURKU

Rare Diseases Unit
Turku University Hospital

GIAPPONE

JAPAN
CHIBA

Clinical Genetics
Chiba University Hospital

GIAPPONE

JAPAN
TOKYO

Center for Medical Genetics
Keio University Hospital

ITALIA

BASILICATA
POTENZA

ITALIA

CAMPANIA
NAPOLI

Centro di Riferimento per le malattie reumatologiche e sistemiche rare
AOU Università degli Studi della Campania "Luigi Vanvitelli"- Cappella Cangiani

ITALIA

CAMPANIA
NAPOLI

Centro di Riferimento per le malattie reumatologiche e sistemiche rare
Azienda Ospedaliera Universitaria "Federico II"

ITALIA

LIGURIA
GENOVA

Centro di Riferimento per le malattie reumatologiche e sistemiche rare
IRCCS Ospedale Policlinico San Martino - IST - DIMI

ITALIA

PIEMONTE
TORINO

Centro di Riferimento per le malattie reumatologiche e sistemiche rare pediatriche
A.O. Città della Salute e della Scienza di Torino - Ospedale Regina Margherita

ITALIA

PUGLIA
BARI

Centro di Riferimento per le malattie reumatologiche e sistemiche rare
Azienda Ospedaliero-Universitaria Consorziale Policlinico di Bari

ITALIA

SICILIA
CATANIA

Centro di Riferimento per le malattie reumatologiche e sistemiche rare pediatriche
Azienda Ospedaliero Universitaria "Policlinico Vittorio Emanuele"

ITALIA

SICILIA
CATANIA

Centro di Riferimento Regionale per le malattie genetiche
Azienda Ospedaliero Universitaria "Policlinico Vittorio Emanuele"

ITALIA

TOSCANA
PISA

Centro di Riferimento per le malattie reumatologiche e sistemiche rare
Azienda Ospedaliero Universitaria Pisana - Ospedale S. Chiara

LETTONIA

LATVIA
RIGA

ROMANIA

TIMIS
TIMISOARA

Regional Center of Medical Genetics Timis
University Medecine-Pharmacie "Victor Babes"- Pediatric Hospital "Louis Turcanu"

RUSSIA

RUSSIAN FEDERATION
MOSCOW

The Research Centre for Medical Genetics
The Research Centre for Medical Genetics

RUSSIA

RUSSIAN FEDERATION
MOSCOW

Veltischev Research and Clinical Institute for Pediatrics
Veltischev Research and Clinical Institute for Pediatrics

RUSSIA

RUSSIAN FEDERATION
SAINT-PETERSBURG

St. Petersburg State Pediatric Medical University
St. Petersburg State Pediatric Medical University

RUSSIA

RUSSIAN FEDERATION
TAMBOV

Tambov regional childrens clinical hospital
Tambov Regional Children's Hospital clinical hospital

RUSSIA

RUSSIAN FEDERATION
TYUMEN

«Perinatal Medical Center» (Tyumen)
«Perinatal Medical Center» (Tyumen)

RUSSIA

RUSSIAN FEDERATION
VLADIKAVKAZ

Children's Clinical Hospital, medical and Genetic consultation
Children's Clinical Hospital, medical and Genetic consultation

SLOVACCHIA

Kosicky kraj
KOSICE

Center for Rare Rheumatologic Diseases
Safarik University Medical School and University Children´s Hospital

SPAGNA

Madrid
MADRID

Prenatal diagnosis and genetic counseling in pregnancy
INGEMM - Instituto de Genética Médica y Molecular (IdiPAZ)

SVEZIA

Region Skåne
LUND

Clinical Genetics - Skåne University Hospital
Lunds Universitetssjukhus -Klinisk Genetik

SVIZZERA

Suisse Alémanique
BERN

Genetic medicine clinic
Universitätsspital Inselspital

SVIZZERA

Suisse Alémanique
SCHLIEREN

SVIZZERA

Suisse Romande
LAUSANNE

Center for autoimmune diseases and rare inflammatory disorders
Centre Hospitalier Universitaire Vaudois CHUV

FINLANDIA

Finland
HELSINKI

Expert Team for Vascular Anomalies
HUS - Helsinki University Hospital

FRANCIA

AUVERGNE-RHONE-ALPES
BRON

Reference centre for rare vascular diseases - Competence centre
Hospices Civils de Lyon - Groupement Hospitalier EST

FRANCIA

AUVERGNE-RHONE-ALPES
CLERMONT-FERRAND

Reference centre for rare vascular diseases - Competence centre
CHU de Clermont-Ferrand - Hôpital Gabriel Montpied

FRANCIA

AUVERGNE-RHONE-ALPES
GRENOBLE

Reference centre for rare vascular diseases - Competence centre
CHU Grenoble Alpes - Site Nord - Hôpital Couple Enfant

FRANCIA

AUVERGNE-RHONE-ALPES
SAINT-PRIEST-EN-JAREZ

FRANCIA

BRETAGNE
BREST

Reference centre for rare vascular diseases - Competence centre
CHU de Brest - Hôpital de la Cavale Blanche

FRANCIA

CENTRE-VAL DE LOIRE
TOURS

FRANCIA

GRAND-EST
STRASBOURG

FRANCIA

GRAND-EST
VANDOEUVRE-LÈS-NANCY

FRANCIA

HAUTS-DE-FRANCE
LILLE

FRANCIA

ILE-DE-FRANCE
PARIS

Reference centre for rare vascular diseases - Coordinator site
AP-HP. Centre - Université de Paris - HEGP Hôpital Européen Georges Pompidou

FRANCIA

NORMANDIE
CAEN

Reference centre for rare vascular diseases - Competence centre
CHU de Caen - Hôpital de la Côte de Nacre

FRANCIA

NOUVELLE AQUITAINE
BORDEAUX

Reference centre for rare vascular diseases - Competence centre
CHU de Bordeaux - Hôpital Saint André

FRANCIA

NOUVELLE AQUITAINE
LIMOGES

FRANCIA

OCCITANIE
MONTPELLIER

Reference centre for rare vascular diseases - Constitutive site
CHU de Montpellier - Hôpital Saint-Eloi

FRANCIA

OCCITANIE
TOULOUSE

FRANCIA

PAYS DE LA LOIRE
NANTES

FRANCIA

PROVENCE-ALPES-COTE D'AZUR
MARSEILLE

Reference centre for rare vascular diseases - Competence centre
CHU de Marseille - Hôpital de la Timone

ITALIA

PUGLIA
SAN GIOVANNI ROTONDO

Centro di Riferimento per le malattie vascolari rare
IRCCS Ospedale Casa Sollievo della Sofferenza -Poliamb. Giovanni Paolo II

POLONIA

Kraków
KRAKOW

Centre for Rare Cardiovascular Diseases
Krakowski Szpital Specjalistyczny im. Jana Pawla II

SVIZZERA

Suisse Alémanique
BERN

Outpatient clinic for vascular malformation
Universitätsspital Inselspital

SVIZZERA

Suisse Romande
LAUSANNE

Center for malformation and rare vascular diseases
Centre Hospitalier Universitaire Vaudois CHUV