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Didascalia : Centro di riferimento = Accreditato							
Membro di una ERN = ERN

BELGIO

OOST-VLAANDEREN
GENT

Aorta Team Ghent - UZ Gent
Ghent University Hospital - UZ Gent

CANADA

Québec
SAINTE FOY

GERMANIA

Berlin
BERLIN

GERMANIA

Hamburg
HAMBURG

Aortic diseases clinic
UKE - Universitätsklinikum Hamburg-Eppendorf

IRLANDA

County Dublin
DUBLIN

Marfan Aortopathy Clinic
Mater Misericordiae Hospital

NORVEGIA

Østlandet
NESODDTANGEN

PAESI BASSI

Zuid-Holland
ROTTERDAM

Center for Inherited Cardiovascular Diseases
Erasmus MC - Erasmus Medisch Centrum

PORTOGALLO

SUL
LISBOA

Cardiogenetics Department, Cardiologic Pediatric Department, Santa Cruz Hospital, CHLO, Carnaxide
Hospital de Sta. Maria - Centro Hospitalar de Lisboa Norte, EPE.

REGNO UNITO; GRAN BRETAGNA

Merseyside
LIVERPOOL

SPAGNA

Castilla - León
SALAMANCA

CSUR - National centre of expertise for familial cardiopathies
Hospital Clínico Universitario de Salamanca

SPAGNA

Madrid
MADRID

Rare genetic cardiac diseases clinic
Hospital Universitario Fundación Jiménez Díaz

SPAGNA

Madrid
MAJADAHONDA

CSUR - National unit of expertise for inherited cardiac diseases
Hospital Universitario Puerta de Hierro - Majadahonda

AUSTRIA

STEIERMARK
GRAZ

Vasculitis clinic
Medizinische Universität Graz

AUSTRIA

STEIERMARK
GRAZ

Outpatient clinic for pediatric orthopaedics
Medizinische Universität Graz

AUSTRIA

TIROL
INNSBRUCK

Vascular surgery clinic
Medizinische Universität Innsbruck

AUSTRIA

WIEN
WIEN

Outpatient clinic for adults with congenital heart defects
Allgemeines Krankenhaus der Stadt Wien

BELGIO

ANTWERPEN
ANTWERPEN-EDEGEM

BELGIO

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

BELGIO

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

BELGIO

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

BELGIO

VLAAMS BRABANT
LEUVEN

DANIMARCA

Hovedstaden
COPENHAGEN

Center for Rare Diseases
Rigshospitalet

FRANCIA

AUVERGNE-RHONE-ALPES
BRON

Reference centre for Marfan syndrome and related syndromes - Competence centre
CHU de Lyon HCL - GH Est-Hôpital Femme Mère Enfant

FRANCIA

BOURGOGNE-FRANCHE-COMTE
DIJON

Reference centre for Marfan syndrome and related syndromes - Competence centre
CHU Dijon Bourgogne - Hôpital François Mitterrand

FRANCIA

HAUTS-DE-FRANCE
LILLE

FRANCIA

ILE-DE-FRANCE
PARIS

Reference centre for rare ophtalmologic diseases (OPHTARA) - Constitutive site
CHU Paris IdF Ouest - HEGP Hôpital Européen Georges Pompidou

FRANCIA

ILE-DE-FRANCE
PARIS

Reference centre for Marfan syndrome and related syndromes - Coordinator site
CHU Paris Nord-Val de Seine - Hôpital Xavier Bichat-Claude Bernard

FRANCIA

NORMANDIE
CAEN

FRANCIA

OUTRE-MER
SAINT-PIERRE

Reference centre for Marfan syndrome and related syndromes - Competence centre
CHU de la Réunion - GH Sud Réunion - Saint-Pierre

FRANCIA

PAYS DE LA LOIRE
NANTES

Reference centre for Marfan syndrome and related syndromes - Competence centre
CHU de Nantes - Hôpital Nord Guillaume et René Laënnec

FRANCIA

PROVENCE-ALPES-COTE D'AZUR
MARSEILLE

GERMANIA

Baden-Württemberg
FREIBURG

Interdisciplinary Marfan clinic
Universitäts-Herzzentrum Freiburg

GERMANIA

Baden-Württemberg
HEIDELBERG

Marfan clinic
Universitätsmedizin Heidelberg

GERMANIA

Baden-Württemberg
STUTTGART

Marfan clinic
Klinikum Stuttgart - Katharinenhospital

GERMANIA

Baden-Württemberg
STUTTGART

Marfan clinic
Klinikum Stuttgart - Standort Olgahospital

GERMANIA

Bayern
MÜNCHEN

Marfan clinic
Deutsches Herzzentrum München

GERMANIA

Hamburg
HAMBURG

Marfan clinic
UKE - Universitätsklinikum Hamburg-Eppendorf

GERMANIA

Hamburg
HAMBURG

Marfan clinic
UKE - Universitätsklinikum Hamburg-Eppendorf

GERMANIA

Niedersachsen
GÖTTINGEN

Williams, marfan and noonan syndromes clinic
Universitätsmedizin Göttingen

GERMANIA

Nordrhein-Westfalen
AACHEN

Marfan clinic
Universitätsklinikum Aachen

GERMANIA

Nordrhein-Westfalen
KÖLN

Marfan clinic
Universitätsklinikum Köln

GERMANIA

Nordrhein-Westfalen
MÜNSTER

Marfan clinic
Universitätsklinikum Münster

GERMANIA

Saarland
HOMBURG

Interdisciplinary Marfan clinic
Universitätsklinikum des Saarlandes

GERMANIA

Sachsen
LEIPZIG

Marfan clinic
Herzzentrum Leipzig GmbH

GERMANIA

Sachsen-Anhalt
DESSAU

Vascular diseases clinic
Städtisches Klinikum Dessau

GERMANIA

Schleswig-Holstein
LÜBECK

Marfan clinic
Universitätsklinikum Schleswig-Holstein - Campus Lübeck

ITALIA

FRIULI VENEZIA GIULIA
UDINE

Centro di Riferimento Regionale per le malattie osteoconnettivali
Azienda Ospedaliero-Universitaria "Santa Maria della Misericordia" di Udine

ITALIA

PUGLIA
SAN GIOVANNI ROTONDO

Consulenza Specialistica per la chirurgia vascolare
Fondazione IRCCS Ospedale Casa Sollievo della Sofferenza

PAESI BASSI

Gelderland
NIJMEGEN

Marfan and Related Disorders Policlinic
Radboudumc - Radboud universitair medisch centrum

PAESI BASSI

Groningen
GRONINGEN

Clinic for Connective Tissue Disorders
UMCG - Universitair Medisch Centrum Groningen

PAESI BASSI

Limburg
MAASTRICHT

Marfan and Related Disorders Clinic
AZM - Academisch Ziekenhuis Maastricht

PAESI BASSI

Noord-Holland
AMSTERDAM

Centre for Marfan Syndrome
Amsterdam UMC, locatie AMC

PAESI BASSI

Utrecht
UTRECHT

Center for Inherited Cardiovascular Disease
UMC Utrecht - Universitair Medisch Centrum Utrecht

PAESI BASSI

Zuid-Holland
LEIDEN

Marfan-FTAAD Clinic
LUMC - Leids Universitair Medisch Centrum

PORTOGALLO

NORTE
PORTO

Marfan syndrome clinic
Centro Materno Infantil do Centro Hospitalar do Porto

SPAGNA

Galicia
A CORUÑA

SVEZIA

Region Stockholm
STOCKHOLM

Expert team for rare multisystemic vascular diseases
Karolinska Universitetssjukhuset - Solna

SVEZIA

Region Uppsala
UPPSALA

Expert team for rare syndromes
Akademiska Sjukhuset

SVIZZERA

Suisse Alémanique
BASEL

SVIZZERA

Suisse Alémanique
BERN

Centre for Rare Diseases Inselspital
Universitätsspital Inselspital

SVIZZERA

Suisse Alémanique
ST. GALLEN

SVIZZERA

Suisse Alémanique
ZÜRICH

Moyamoya Center
Universitäts - Kinderspital Zürich - Eleonorenstiftung

SVIZZERA

Suisse Alémanique
ZÜRICH

Centre for rare diseases Zurich
UniversitätsSpital Zürich

SVIZZERA

Suisse Romande
GENÈVE

HUG Centre for rare diseases
Hôpitaux Universitaires de Genève HUG

SVIZZERA

Suisse Romande
LAUSANNE

UNGHERIA

Dél-Dunántúl
PECS

Specialised clinic for Marfan syndrome
Heart Medical Clinic - Clinical Center - University of Pécs

UNGHERIA

Közép-Magyarország
BUDAPEST

UNGHERIA

Közép-Magyarország
BUDAPEST

CANADA

Manitoba
WINNIPEG

Genetics and Metabolism
Health Sciences Centre

CANADA

Ontario
MISSISSAUGA

Clinical Genetics, Credit Valley Site, Trillium Health Partners
Genetics Clinic, Credit Valley Hospital

CANADA

Ontario
TORONTO

Clinical and Metabolic Genetics Division
The Hospital for Sick Children and University of Toronto

CANADA

Québec
MONTRÉAL

Medical Genetics Clinic
Centre hospitalier universitaire Sainte-Justine

CANADA

Québec
MONTRÉAL

Medical genetics pediatric clinic
Glen / McGill Univeristy Health Centre - Centre Universitaire de santé McGill

CANADA

Québec
MONTRÉAL

Medical genetics adult clinic
Glen / McGill Univeristy Health Centre - Centre Universitaire de santé McGill

CANADA

Québec
SHERBROOKE

Medical genetics service
CIUSSS de l'Estrie - CHUS Fleurimont

FINLANDIA

Finland
HELSINKI

Genetic Counselling Clinic
HUS - Helsinki University Hospital

FINLANDIA

Finland
HELSINKI

Rare Diseases Unit
HUS - Helsinki University Hospital

FINLANDIA

Finland
KUOPIO

Rare Diseases Unit
Kuopio University Hospital

FINLANDIA

Finland
OULU

Rare Diseases Unit
Oulu University Hospital

FINLANDIA

Finland
TAMPERE

Rare Diseases Unit
TAYS - Tampere University Hospital

FINLANDIA

Finland
TURKU

Rare Diseases Unit
Turku University Hospital

GIAPPONE

JAPAN
CHIBA

Clinical Genetics
Chiba University Hospital

GIAPPONE

JAPAN
TOKYO

Center for Medical Genetics
Keio University Hospital

ITALIA

SICILIA
CATANIA

Centro di riferimento regionale per le malattie genetiche
Azienda Ospedaliero Universitaria "Policlinico Vittorio Emanuele"

LETTONIA

LATVIA
RIGA

PAESI BASSI

Noord-Holland
AMSTERDAM

REGNO UNITO; GRAN BRETAGNA

Greater Manchester
MANCHESTER

REGNO UNITO; GRAN BRETAGNA

Hampshire
SOUTHAMPTON

SPAGNA

Madrid
MADRID

Prenatal diagnosis and genetic counseling in pregnancy
INGEMM - Instituto de Genética Médica y Molecular (IdiPAZ)

SVEZIA

Region Skåne
LUND

FINLANDIA

Finland
HELSINKI

Expert Team for Vascular Anomalies
HUS - Helsinki University Hospital

FRANCIA

AUVERGNE-RHONE-ALPES
BRON

Reference centre for rare vascular diseases - Competence centre
Hospices Civils de Lyon - Groupement Hospitalier EST

FRANCIA

AUVERGNE-RHONE-ALPES
CLERMONT-FERRAND

Reference centre for rare vascular diseases - Competence centre
CHU de Clermont-Ferrand - Hôpital Gabriel Montpied

FRANCIA

AUVERGNE-RHONE-ALPES
GRENOBLE

Reference centre for rare vascular diseases - Competence centre
CHU Grenoble Alpes - Site Nord - Hôpital Couple Enfant

FRANCIA

AUVERGNE-RHONE-ALPES
SAINT-PRIEST-EN-JAREZ

FRANCIA

BRETAGNE
BREST

Reference centre for rare vascular diseases - Competence centre
CHU de Brest - Hôpital de la Cavale Blanche

FRANCIA

CENTRE-VAL DE LOIRE
TOURS

FRANCIA

GRAND-EST
STRASBOURG

FRANCIA

GRAND-EST
VANDOEUVRE-LÈS-NANCY

FRANCIA

HAUTS-DE-FRANCE
LILLE

FRANCIA

ILE-DE-FRANCE
PARIS

Reference centre for rare vascular diseases - Coordinator site
CHU Paris IdF Ouest - HEGP Hôpital Européen Georges Pompidou

FRANCIA

NORMANDIE
CAEN

Reference centre for rare vascular diseases - Competence centre
CHU de Caen - Hôpital de la Côte de Nacre

FRANCIA

NOUVELLE AQUITAINE
BORDEAUX

Reference centre for rare vascular diseases - Competence centre
CHU de Bordeaux - Hôpital Saint André

FRANCIA

NOUVELLE AQUITAINE
LIMOGES

FRANCIA

OCCITANIE
MONTPELLIER

Reference centre for rare vascular diseases - Constitutive site
CHU de Montpellier - Hôpital Saint-Eloi

FRANCIA

OCCITANIE
TOULOUSE

FRANCIA

PAYS DE LA LOIRE
NANTES

FRANCIA

PROVENCE-ALPES-COTE D'AZUR
MARSEILLE

Reference centre for rare vascular diseases - Competence centre
CHU de Marseille - Hôpital de la Timone

ITALIA

PUGLIA
SAN GIOVANNI ROTONDO

Centro di Riferimento per le malattie vascolari rare
IRCCS Ospedale Casa Sollievo della Sofferenza -Poliamb. Giovanni Paolo II

POLONIA

Kraków
KRAKOW

Centre for Rare Cardiovascular Diseases
Krakowski Szpital Specjalistyczny im. Jana Pawla II

SVIZZERA

Suisse Alémanique
BERN

Outpatient clinic for vascular malformation
University Hospital Inselspital

SVIZZERA

Suisse Romande
LAUSANNE

Center for malformation and rare vascular diseases
Centre Hospitalier Universitaire Vaudois CHUV