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Titel : Nationaal erkend expertisecentrum = Accreditatie
Member of a ERN = ERN

OOSTENRIJK

TIROL
INNSBRUCK

CANADA

Québec
SAINTE FOY

DUITSLAND

Nordrhein-Westfalen
ESSEN

Ehlers-Danlos Syndrome clinic
Alfried Krupp Krankenhaus Rüttenscheid

DUITSLAND

Nordrhein-Westfalen
MÜNSTER

HONGARIJE

Közép-Magyarország
BUDAPEST

Centre for Rare Skin Diseases
Department of Dermatology, Venereology and Dermatoncology, Semmelweis University

ITALIË

FRIULI VENEZIA GIULIA
UDINE

Regional centre of expertise for osteo-connective diseases
Azienda Ospedaliero-Universitaria "Santa Maria della Misericordia" di Udine

ITALIË

LAZIO
FIUMICINO

Ehlers-Danlos syndrome pediatric orthopedic clinic
IRCCS Ospedale Pediatrico Bambino Gesù - SEDE PALIDORO

ITALIË

LAZIO
ROMA

Centre of Expertise for Marfan syndrome and related disorders
Azienda Ospedaliera Universitaria Policlinico di Tor Vergata

ITALIË

LOMBARDIA
BRESCIA

Centre of Expertise for Ehlers-Danlos syndromes
ASST Spedali Civili di Brescia

ITALIË

LOMBARDIA
MILANO

Centre of Expertise for Ehlers-Danlos syndromes
Fondazione IRCCS Ca' Granda - Ospedale Maggiore Policlinico

NOORWEGEN

Østlandet
NESODDTANGEN

OOSTENRIJK

TIROL
INNSBRUCK

Pediatric endocrinology clinic
Medizinische Universität Innsbruck

SPANJE

Comunidad Valenciana
ALICANTE

Rare systemic diseases and porphyria clinic
Hospital General Universitario de Alicante

VERENIGD KONINKRIJK

Greater London
HARROW

Ehlers-Danlos Syndrome NHS Specialised Service (Children)
North West London Hospitals NHS - Northwick Park Hospital

VERENIGD KONINKRIJK

Greater London
HARROW

Ehlers-Danlos Syndrome NHS Specialised Service (Adults)
North West London Hospitals NHS - St Mark's Hospital

VERENIGD KONINKRIJK

South Yorkshire
SHEFFIELD

Ehlers-Danlos Syndrome NHS Specialised Service
The Sheffield Children's Hospital

ZWEDEN

Region Kalmar Län
VÄSTERVIK

BELGIË

ANTWERPEN
ANTWERPEN-EDEGEM

BELGIË

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

BELGIË

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

BELGIË

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

DUITSLAND

Baden-Württemberg
FREIBURG

Rare odontologic diseases clinic
Universitätsklinikum Freiburg

DUITSLAND

Baden-Württemberg
HEIDELBERG

Cranial, facial and oral diseases clinic
Universitätsmedizin Heidelberg

DUITSLAND

Baden-Württemberg
ULM

Rare odontologic diseases clinic
Zentrum für Seltene Erkrankungen am Universitätsklinikum Ulm

DUITSLAND

Niedersachsen
HANNOVER

Rare odontologic diseases clinic
Medizinische Hochschule Hannover

FRANKRIJK

AUVERGNE-RHONE-ALPES
BRON

FRANKRIJK

AUVERGNE-RHONE-ALPES
BRON

FRANKRIJK

AUVERGNE-RHONE-ALPES
CLERMONT-FERRAND

FRANKRIJK

AUVERGNE-RHONE-ALPES
GRENOBLE

FRANKRIJK

AUVERGNE-RHONE-ALPES
LYON

Reference centre for odontologic manifestations of rare diseases (ORares) - Competence centre
CHU de Lyon HCL - GH Nord-Service de consultations et de traitement dentaire

FRANKRIJK

AUVERGNE-RHONE-ALPES
SAINT-PRIEST-EN-JAREZ

FRANKRIJK

BOURGOGNE-FRANCHE-COMTE
BESANÇON

FRANKRIJK

BOURGOGNE-FRANCHE-COMTE
BESANÇON

FRANKRIJK

BOURGOGNE-FRANCHE-COMTE
DIJON

FRANKRIJK

BOURGOGNE-FRANCHE-COMTE
DIJON

FRANKRIJK

BRETAGNE
VANNES

FRANKRIJK

GRAND-EST
STRASBOURG

FRANKRIJK

GRAND-EST
VANDOEUVRE-LÈS-NANCY

FRANKRIJK

GRAND-EST
VANDOEUVRE-LÈS-NANCY

FRANKRIJK

HAUTS-DE-FRANCE
LILLE

FRANKRIJK

HAUTS-DE-FRANCE
LILLE

FRANKRIJK

ILE-DE-FRANCE
CRÉTEIL

FRANKRIJK

ILE-DE-FRANCE
PARIS

Reference centre for odontologic manifestations of rare diseases (ORares) - Competence centre
APHP.Sorbonne Université, Hôpital de la Pitié-Salpêtrière

FRANKRIJK

ILE-DE-FRANCE
POISSY

Reference centre for developmental anomalies and malformation syndromes IDF - Constitutive site
Centre hospitalier intercommunal Poissy-Saint-Germain-en-Laye

FRANKRIJK

OCCITANIE
MONTPELLIER

FRANKRIJK

OCCITANIE
TOULOUSE

FRANKRIJK

PROVENCE-ALPES-COTE D'AZUR
MARSEILLE

FRANKRIJK

PROVENCE-ALPES-COTE D'AZUR
MARSEILLE

FRANKRIJK

PROVENCE-ALPES-COTE D'AZUR
NICE

FRANKRIJK

PROVENCE-ALPES-COTE D'AZUR
TOULON

ITALIË

EMILIA ROMAGNA
FERRARA

Rare genetic odontologic diseases clinic
Università degli Studi di Ferrara - Arcispedale "S. Anna"

ITALIË

LAZIO
ROMA

Hereditary connective tissue disorders clinic
Azienda Ospedaliera S. Camillo-Forlanini - Ospedale San Camillo

ITALIË

PIEMONTE
TORINO

ITALIË

PIEMONTE
TORINO

Rare odontologic diseases specialized clinic
A.O. Città della Salute e della Scienza di Torino - Dental School

ITALIË

PUGLIA
BARI

Centre of Expertise for rare odontologic diseases
Azienda Ospedaliero-Universitaria Consorziale Policlinico di Bari

MAROKKO

Rabat
RABAT

Pediatric Ondontology clinic
Université Mohamed V

NOORWEGEN

Østlandet
OSLO

ZWEDEN

Region Jönköpings Län
JÖNKÖPING

National oral Disability Center
Odontologiska Institutionen

ZWITSERLAND

Suisse Alémanique
BASEL

ZWITSERLAND

Suisse Alémanique
BERN

Centre for Rare Diseases Inselspital
Universitätsspital Inselspital

ZWITSERLAND

Suisse Alémanique
ST. GALLEN

ZWITSERLAND

Suisse Alémanique
ZÜRICH

Connective tissue diseases clinic
Universitäts - Kinderspital Zürich - Eleonorenstiftung

ZWITSERLAND

Suisse Alémanique
ZÜRICH

Centre for rare diseases Zurich
UniversitätsSpital Zürich

ZWITSERLAND

Suisse Romande
GENÈVE

Orthodontic clinic for individuals with special needs
Clinique universitaire de médecine dentaire (CUMD)

ZWITSERLAND

Suisse Romande
GENÈVE

HUG Centre for rare diseases
Hôpitaux Universitaires de Genève HUG

ZWITSERLAND

Suisse Romande
LAUSANNE

CANADA

Manitoba
WINNIPEG

Genetics and Metabolism
Health Sciences Centre

CANADA

Ontario
MISSISSAUGA

Clinical Genetics, Credit Valley Site, Trillium Health Partners
Genetics Clinic, Credit Valley Hospital

CANADA

Ontario
TORONTO

Clinical and Metabolic Genetics Division
The Hospital for Sick Children and University of Toronto

CANADA

Québec
MONTRÉAL

Medical Genetics Clinic
Centre hospitalier universitaire Sainte-Justine

CANADA

Québec
MONTRÉAL

Medical genetics pediatric clinic
Glen / McGill Univeristy Health Centre - Centre Universitaire de santé McGill

CANADA

Québec
MONTRÉAL

Medical genetics adult clinic
Glen / McGill Univeristy Health Centre - Centre Universitaire de santé McGill

CANADA

Québec
SHERBROOKE

Medical genetics service
CIUSSS de l'Estrie - CHUS Fleurimont

FINLAND

Finland
HELSINKI

Genetic Counselling Clinic
HUS - Helsinki University Hospital

FINLAND

Finland
HELSINKI

Rare Diseases Unit
HUS - Helsinki University Hospital

FINLAND

Finland
KUOPIO

Rare Diseases Unit
Kuopio University Hospital

FINLAND

Finland
OULU

Rare Diseases Unit
Oulu University Hospital

FINLAND

Finland
TAMPERE

Rare Diseases Unit
TAYS - Tampere University Hospital

FINLAND

Finland
TURKU

Rare Diseases Unit
Turku University Hospital

ITALIË

SICILIA
CATANIA

Centre of Expertise for rare genetic disorders
Azienda Ospedaliero Universitaria "Policlinico Vittorio Emanuele"

JAPAN

JAPAN
CHIBA

Clinical Genetics
Chiba University Hospital

JAPAN

JAPAN
TOKYO

Center for Medical Genetics
Keio University Hospital

LETLAND

LATVIA
RIGA

SPANJE

Madrid
MADRID

Prenatal diagnosis and genetic counseling in pregnancy
INGEMM - Instituto de Genética Médica y Molecular (IdiPAZ)

VERENIGD KONINKRIJK

Greater Manchester
MANCHESTER

VERENIGD KONINKRIJK

Hampshire
SOUTHAMPTON

ZWEDEN

Region Skåne
LUND

CANADA

Québec
MONTRÉAL

Medical genetics genodermatosis clinic
Glen / McGill Univeristy Health Centre - Centre Universitaire de santé McGill

DUITSLAND

Bayern
ERLANGEN

Genodermatosis clinic
Kinder- und Jugendklinik des Universitätsklinikums Erlangen

DUITSLAND

Bayern
WÜRZBURG

Dermatology clinic
Universitäts-Hautklinik Würzburg

FINLAND

Finland
HELSINKI

Rare Skin Diseases (Department of Dermatology)
HUS - Helsinki University Hospital

ITALIË

SICILIA
TROINA

Cente of Expertise for rare genodermatosis
IRCCS OASI Maria Santissima

MAROKKO

Rabat
RABAT

Genogermatosis clinic
CHU Ibn SINA - Souissi

NEDERLAND

Limburg
MAASTRICHT

Center for Genodermatoses
AZM - Academisch Ziekenhuis Maastricht

OOSTENRIJK

SALZBURG
SALZBURG

Outpatient clinic for genodermatoses
Universitätsklinikum der Paracelsus Medizinischen Privatuniversität

OOSTENRIJK

TIROL
INNSBRUCK

Center of Genodermatoses - Disorders of Cornification
Medizinische Universität Innsbruck

SPANJE

Madrid
MADRID

Genodermatoses clinic
INGEMM - Instituto de Genética Médica y Molecular (IdiPAZ)

VERENIGD KONINKRIJK

West Midlands
BIRMINGHAM

Rare genetic skin disorders and tertiary dermatology clinic
Birmingham Children's Hospital NHS Foundation Trust

ISRAËL

ISRAEL
TEL AVIV

Genetic skin diseases clinic
Tel-Aviv Sourasky Medical Center

ITALIË

CAMPANIA
NAPOLI

Centre of Expertise for rare skin diseases
Azienda Ospedaliera Universitaria "Federico II"

ITALIË

EMILIA ROMAGNA
BOLOGNA

Centre of Expertise for rare skin diseases
Policlinico S. Orsola-Malpighi - Area S. Orsola

ITALIË

LAZIO
ROMA

Genodermatoses clinic
Azienda Ospedaliera S. Camillo-Forlanini - Ospedale San Camillo

ITALIË

LAZIO
ROMA

Centre of Expertise for rare pediatric skin diseases
IRCCS Ospedale Pediatrico Bambino Gesù - SEDE GIANICOLO

ITALIË

LAZIO
ROMA

Centre of Expertise for rare skin diseases
Istituto Dermopatico dell'Immacolata - IRCCS

ITALIË

LAZIO
ROMA

ITALIË

LOMBARDIA
MILANO

Centre of Expertise for rare skin diseases
Fondazione IRCCS Ca' Granda - Ospedale Maggiore Policlinico

ITALIË

PIEMONTE
TORINO

Centre of Expertise for rare skin diseases
A.O. Città della Salute e della Scienza di Torino - Presidio San Lazzaro

ITALIË

TRENTINO ALTO ADIGE
BOLZANO

Centre of Expertise for rare skin diseases
Azienda Sanitaria dell'Alto Adige - Ospedale di Bolzano

ITALIË

VENETO
PADOVA

Centre of Expertise for rare skin diseases
Azienda Ospedaliera di Padova

ITALIË

VENETO
TREVISO

Centre of Expertise for rare skin diseases
Azienda ULSS 9 - Ospedale di Treviso

ITALIË

VENETO
VERONA

Centre of Expertise for rare skin diseases
Azienda Ospedaliera Universitaria Integrata di Verona - Ospedale Borgo Trento

ZWITSERLAND

Suisse Romande
LAUSANNE

Dermatogenetic clinic
Centre Hospitalier Universitaire Vaudois CHUV - Hôpital Beaumont -