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Legenda : Centro especializado reconhecido = AcreditaçãoMembro de uma ERN = ERN

ALEMANHA

Berlin
BERLIN

ALEMANHA

Hamburg
HAMBURG

Aortic diseases clinic
UKE - Universitätsklinikum Hamburg-Eppendorf

BELGICA

OOST-VLAANDEREN
GENT

Aorta Team Ghent - UZ Gent
Ghent University Hospital - UZ Gent

CANADA

Québec
SAINTE FOY

ESPANHA

Castilla - León
SALAMANCA

CSUR - National centre of expertise for familial cardiopathies
Hospital Clínico Universitario de Salamanca

ESPANHA

Madrid
MADRID

Rare genetic cardiac diseases clinic
Hospital Universitario Fundación Jiménez Díaz

ESPANHA

Madrid
MAJADAHONDA

CSUR - National unit of expertise for inherited cardiac diseases
Hospital Universitario Puerta de Hierro - Majadahonda

IRLANDA

County Dublin
DUBLIN

Marfan Aortopathy Clinic
Mater Misericordiae Hospital

NORUEGA

Østlandet
NESODDTANGEN

PAISES BAIXOS

Zuid-Holland
ROTTERDAM

Center for Inherited Cardiovascular Diseases
Erasmus MC - Erasmus Medisch Centrum

PORTUGAL

SUL
LISBOA

Consulta de Cardiogenetica, Serviço de Cardiologia Pediatrica, Hospital de Santa Cruz, Carnaxide
Hospital de Sta. Maria - Centro Hospitalar de Lisboa Norte, EPE.

REINO UNIDO

Merseyside
LIVERPOOL

ALEMANHA

Baden-Württemberg
FREIBURG

Interdisciplinary Marfan clinic
Universitäts-Herzzentrum Freiburg

ALEMANHA

Baden-Württemberg
HEIDELBERG

Marfan clinic
Universitätsmedizin Heidelberg

ALEMANHA

Baden-Württemberg
STUTTGART

Marfan clinic
Klinikum Stuttgart - Katharinenhospital

ALEMANHA

Baden-Württemberg
STUTTGART

Marfan clinic
Klinikum Stuttgart - Standort Olgahospital

ALEMANHA

Bayern
MÜNCHEN

Marfan clinic
Deutsches Herzzentrum München

ALEMANHA

Hamburg
HAMBURG

Marfan clinic
UKE - Universitätsklinikum Hamburg-Eppendorf

ALEMANHA

Hamburg
HAMBURG

Marfan clinic
UKE - Universitätsklinikum Hamburg-Eppendorf

ALEMANHA

Niedersachsen
GÖTTINGEN

Williams, marfan and noonan syndromes clinic
Universitätsmedizin Göttingen

ALEMANHA

Nordrhein-Westfalen
AACHEN

Marfan clinic
Universitätsklinikum Aachen

ALEMANHA

Nordrhein-Westfalen
KÖLN

Marfan clinic
Universitätsklinikum Köln

ALEMANHA

Nordrhein-Westfalen
MÜNSTER

Marfan clinic
Universitätsklinikum Münster

ALEMANHA

Saarland
HOMBURG

Interdisciplinary Marfan clinic
Universitätsklinikum des Saarlandes

ALEMANHA

Sachsen
LEIPZIG

Marfan clinic
Herzzentrum Leipzig GmbH

ALEMANHA

Sachsen-Anhalt
DESSAU

Vascular diseases clinic
Städtisches Klinikum Dessau

ALEMANHA

Schleswig-Holstein
LÜBECK

Marfan clinic
Universitätsklinikum Schleswig-Holstein - Campus Lübeck

AUSTRIA

STEIERMARK
GRAZ

Vasculitis clinic
Medizinische Universität Graz

AUSTRIA

STEIERMARK
GRAZ

Outpatient clinic for pediatric orthopaedics
Medizinische Universität Graz

AUSTRIA

TIROL
INNSBRUCK

Vascular surgery clinic
Medizinische Universität Innsbruck

AUSTRIA

WIEN
WIEN

Outpatient clinic for adults with congenital heart defects
Allgemeines Krankenhaus der Stadt Wien

BELGICA

ANTWERPEN
ANTWERPEN-EDEGEM

BELGICA

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

BELGICA

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

BELGICA

ARRONDISSEMENT BRUSSELS-CAPITAL
BRUSSELS

BELGICA

OOST-VLAANDEREN
GENT

BELGICA

VLAAMS BRABANT
LEUVEN

DINAMARCA

Hovedstaden
COPENHAGEN

Center for Rare Diseases
Rigshospitalet

ESPANHA

Galicia
A CORUÑA

FRANCA

AUVERGNE-RHONE-ALPES
BRON

Reference centre for Marfan syndrome and related syndromes - Competence centre
CHU de Lyon HCL - GH Est-Hôpital Femme Mère Enfant

FRANCA

BOURGOGNE-FRANCHE-COMTE
DIJON

Reference centre for Marfan syndrome and related syndromes - Competence centre
CHU Dijon Bourgogne - Hôpital François Mitterrand

FRANCA

GRAND-EST
STRASBOURG

FRANCA

HAUTS-DE-FRANCE
LILLE

FRANCA

ILE-DE-FRANCE
PARIS

Reference centre for rare ophtalmologic diseases (OPHTARA) - Constitutive site
CHU Paris IdF Ouest - HEGP Hôpital Européen Georges Pompidou

FRANCA

ILE-DE-FRANCE
PARIS

Reference centre for Marfan syndrome and related syndromes - Coordinator site
CHU Paris Nord-Val de Seine - Hôpital Xavier Bichat-Claude Bernard

FRANCA

NORMANDIE
CAEN

FRANCA

NOUVELLE AQUITAINE
BORDEAUX

FRANCA

OCCITANIE
TOULOUSE

FRANCA

OUTRE-MER
SAINT-PIERRE

Reference centre for Marfan syndrome and related syndromes - Competence centre
CHU de la Réunion - GH Sud Réunion - Saint-Pierre

FRANCA

PAYS DE LA LOIRE
NANTES

Reference centre for Marfan syndrome and related syndromes - Competence centre
CHU de Nantes - Hôpital Nord Guillaume et René Laënnec

FRANCA

PROVENCE-ALPES-COTE D'AZUR
MARSEILLE

HUNGRIA

Dél-Dunántúl
PECS

Specialised clinic for Marfan syndrome
Heart Medical Clinic - Clinical Center - University of Pécs

HUNGRIA

Közép-Magyarország
BUDAPEST

HUNGRIA

Közép-Magyarország
BUDAPEST

ITALIA

FRIULI VENEZIA GIULIA
UDINE

Regional centre of expertise for osteo-connective diseases
Azienda Ospedaliero-Universitaria "Santa Maria della Misericordia" di Udine

ITALIA

PUGLIA
SAN GIOVANNI ROTONDO

Specialized clinic for vascular surgery
Fondazione IRCCS Ospedale Casa Sollievo della Sofferenza

PAISES BAIXOS

Gelderland
NIJMEGEN

Marfan and Related Disorders Policlinic
Radboudumc - Radboud universitair medisch centrum

PAISES BAIXOS

Groningen
GRONINGEN

Clinic for Connective Tissue Disorders
UMCG - Universitair Medisch Centrum Groningen

PAISES BAIXOS

Limburg
MAASTRICHT

Marfan and Related Disorders Clinic
AZM - Academisch Ziekenhuis Maastricht

PAISES BAIXOS

Noord-Holland
AMSTERDAM

Centre for Marfan Syndrome
Amsterdam UMC, locatie AMC

PAISES BAIXOS

Utrecht
UTRECHT

Center for Inherited Cardiovascular Disease
UMC Utrecht - Universitair Medisch Centrum Utrecht

PAISES BAIXOS

Zuid-Holland
LEIDEN

Marfan-FTAAD Clinic
LUMC - Leids Universitair Medisch Centrum

PORTUGAL

NORTE
PORTO

Consulta Multidisciplinar de Síndrome de Marfan
Centro Materno Infantil do Centro Hospitalar do Porto

SUECIA

Region Stockholm
STOCKHOLM

Expert team for rare multisystemic vascular diseases
Karolinska Universitetssjukhuset - Solna

SUECIA

Region Uppsala
UPPSALA

Expert team for rare syndromes
Akademiska Sjukhuset

SUICA

Suisse Alémanique
BASEL

SUICA

Suisse Alémanique
BERN

Centre for Rare Diseases Inselspital
Universitätsspital Inselspital

SUICA

Suisse Alémanique
ST. GALLEN

SUICA

Suisse Alémanique
ZÜRICH

Moyamoya Center
Universitäts - Kinderspital Zürich - Eleonorenstiftung

SUICA

Suisse Alémanique
ZÜRICH

Centre for rare diseases Zurich
UniversitätsSpital Zürich

SUICA

Suisse Romande
GENÈVE

HUG Centre for rare diseases
Hôpitaux Universitaires de Genève HUG

SUICA

Suisse Romande
LAUSANNE

CANADA

Manitoba
WINNIPEG

Genetics and Metabolism
Health Sciences Centre

CANADA

Ontario
MISSISSAUGA

Clinical Genetics, Credit Valley Site, Trillium Health Partners
Genetics Clinic, Credit Valley Hospital

CANADA

Ontario
TORONTO

Clinical and Metabolic Genetics Division
The Hospital for Sick Children and University of Toronto

CANADA

Québec
MONTRÉAL

Medical Genetics Clinic
Centre hospitalier universitaire Sainte-Justine

CANADA

Québec
MONTRÉAL

Medical genetics pediatric clinic
Glen / McGill Univeristy Health Centre - Centre Universitaire de santé McGill

CANADA

Québec
MONTRÉAL

Medical genetics adult clinic
Glen / McGill Univeristy Health Centre - Centre Universitaire de santé McGill

CANADA

Québec
SHERBROOKE

Medical genetics service
CIUSSS de l'Estrie - CHUS Fleurimont

ESPANHA

Madrid
MADRID

Prenatal diagnosis and genetic counseling in pregnancy
INGEMM - Instituto de Genética Médica y Molecular (IdiPAZ)

FINLANDIA

Finland
HELSINKI

Genetic Counselling Clinic
HUS - Helsinki University Hospital

FINLANDIA

Finland
HELSINKI

Rare Diseases Unit
HUS - Helsinki University Hospital

FINLANDIA

Finland
KUOPIO

Rare Diseases Unit
Kuopio University Hospital

FINLANDIA

Finland
OULU

Rare Diseases Unit
Oulu University Hospital

FINLANDIA

Finland
TAMPERE

Rare Diseases Unit
TAYS - Tampere University Hospital

FINLANDIA

Finland
TURKU

Rare Diseases Unit
Turku University Hospital

ITALIA

SICILIA
CATANIA

Centre of Expertise for rare genetic disorders
Azienda Ospedaliero Universitaria "Policlinico Vittorio Emanuele"

JAPAO

JAPAN
CHIBA

Clinical Genetics
Chiba University Hospital

JAPAO

JAPAN
TOKYO

Center for Medical Genetics
Keio University Hospital

LETONIA

LATVIA
RIGA

PAISES BAIXOS

Noord-Holland
AMSTERDAM

REINO UNIDO

Greater Manchester
MANCHESTER

REINO UNIDO

Hampshire
SOUTHAMPTON

SUECIA

Region Skåne
LUND

FINLANDIA

Finland
HELSINKI

Expert Team for Vascular Anomalies
HUS - Helsinki University Hospital

FRANCA

AUVERGNE-RHONE-ALPES
BRON

Reference centre for rare vascular diseases - Competence centre
Hospices Civils de Lyon - Groupement Hospitalier EST

FRANCA

AUVERGNE-RHONE-ALPES
CLERMONT-FERRAND

Reference centre for rare vascular diseases - Competence centre
CHU de Clermont-Ferrand - Hôpital Gabriel Montpied

FRANCA

AUVERGNE-RHONE-ALPES
GRENOBLE

Reference centre for rare vascular diseases - Competence centre
CHU Grenoble Alpes - Site Nord - Hôpital Couple Enfant

FRANCA

AUVERGNE-RHONE-ALPES
SAINT-PRIEST-EN-JAREZ

FRANCA

BRETAGNE
BREST

Reference centre for rare vascular diseases - Competence centre
CHU de Brest - Hôpital de la Cavale Blanche

FRANCA

CENTRE-VAL DE LOIRE
TOURS

FRANCA

GRAND-EST
STRASBOURG

FRANCA

GRAND-EST
VANDOEUVRE-LÈS-NANCY

FRANCA

HAUTS-DE-FRANCE
LILLE

FRANCA

ILE-DE-FRANCE
PARIS

Reference centre for rare vascular diseases - Coordinator site
CHU Paris IdF Ouest - HEGP Hôpital Européen Georges Pompidou

FRANCA

NORMANDIE
CAEN

Reference centre for rare vascular diseases - Competence centre
CHU de Caen - Hôpital de la Côte de Nacre

FRANCA

NOUVELLE AQUITAINE
BORDEAUX

Reference centre for rare vascular diseases - Competence centre
CHU de Bordeaux - Hôpital Saint André

FRANCA

NOUVELLE AQUITAINE
LIMOGES

FRANCA

OCCITANIE
MONTPELLIER

Reference centre for rare vascular diseases - Constitutive site
CHU de Montpellier - Hôpital Saint-Eloi

FRANCA

OCCITANIE
TOULOUSE

FRANCA

PAYS DE LA LOIRE
NANTES

FRANCA

PROVENCE-ALPES-COTE D'AZUR
MARSEILLE

Reference centre for rare vascular diseases - Competence centre
CHU de Marseille - Hôpital de la Timone

ITALIA

PUGLIA
SAN GIOVANNI ROTONDO

Centre of Expertise for rare vascular diseases
IRCCS Ospedale Casa Sollievo della Sofferenza -Poliamb. Giovanni Paolo II

POLONIA

Kraków
KRAKOW

Centre for Rare Cardiovascular Diseases
Krakowski Szpital Specjalistyczny im. Jana Pawla II

SUICA

Suisse Alémanique
BERN

Outpatient clinic for vascular malformation
University Hospital Inselspital

SUICA

Suisse Romande
LAUSANNE

Center for malformation and rare vascular diseases
Centre Hospitalier Universitaire Vaudois CHUV