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ORPHA:33226  Waldenström macroglobulinemia

:: Activity limitation/participation restriction is described according to the Orphanet Functioning Thesaurus, derived and adapted from the International Classification of Functioning, Disability and Health – Children and Youth (ICF-CY, WHO 2007). The provided information is assessed from the whole patients’ population affected by the disease, receiving standard care and management (specific and/or symptomatic management, prevention and prophylaxis, devices and aids, care and support). Functional consequences are organized by their frequency in the patients’ population. This general information may not apply to specific cases. Some difficulties reported here can occur with a different temporality or severity degree, and others that are not listed can nevertheless arise.

 Loss of an ability
Frequent
Temporality
Severity
Performing vigorous activities (climbing, running, jumping, swimming,...)
Permanent limitation
Moderate
Performing vigorous activities (climbing, running, jumping, swimming,...)
Acquisition delay
Low
Work and economic life
Permanent limitation
Unspecified
Work and economic life
Acquisition delay
Unspecified
Engaging in paid work in a standard environment
Permanent limitation
Unspecified
Engaging in paid work in a standard environment
Acquisition delay
Unspecified
Seeking employment
Permanent limitation
Unspecified
Seeking employment
Acquisition delay
Unspecified
Performing professional tasks
Permanent limitation
Unspecified
Performing professional tasks
Acquisition delay
Unspecified
Practicing sports
Permanent limitation
Unspecified
Practicing sports
Acquisition delay
Unspecified
Occasional
Temporality
Severity
Seeing/watching
Permanent limitation
Unspecified
Seeing/watching
Acquisition delay
Unspecified
Seeing/watching
Transient limitation
Unspecified
Learning
Permanent limitation
Low
Learning
Acquisition delay
Low
Learning
Transient limitation
Low
Applying knowledge
Permanent limitation
Low
Applying knowledge
Acquisition delay
Low
Applying knowledge
Transient limitation
Low
Calculating
Permanent limitation
Low
Calculating
Acquisition delay
Low
Calculating
Transient limitation
Low
Focusing attention
Permanent limitation
Low
Focusing attention
Acquisition delay
Low
Focusing attention
Transient limitation
Low
Making decisions/taking initiatives/finding solutions
Permanent limitation
Low
Making decisions/taking initiatives/finding solutions
Acquisition delay
Low
Making decisions/taking initiatives/finding solutions
Transient limitation
Low
Maintaining body position
Permanent limitation
Unspecified
Maintaining body position
Acquisition delay
Low
Maintaining a standing position
Permanent limitation
Unspecified
Maintaining a standing position
Acquisition delay
Low
Walking short distances
Permanent limitation
Unspecified
Walking short distances
Acquisition delay
Low
Walking long distances
Permanent limitation
Unspecified
Walking long distances
Acquisition delay
Unspecified
Moving around within the home
Permanent limitation
Low
Moving around within the home
Acquisition delay
Low
Moving around outside the home
Permanent limitation
Low
Moving around outside the home
Acquisition delay
Low
Using transportation
Permanent limitation
Low
Using transportation
Acquisition delay
Low
Engaging in paid work in a supported/sheltered environment
Permanent limitation
Unspecified
Engaging in paid work in a supported/sheltered environment
Acquisition delay
Unspecified
Travelling
Permanent limitation
Unspecified
Travelling
Acquisition delay
Unspecified
Source: Expert
Last update: 20/04/2018

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