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ORPHA:36412  Hypocomplementemic urticarial vasculitis

:: Activity limitation/participation restriction is described according to the Orphanet Functioning Thesaurus, derived and adapted from the International Classification of Functioning, Disability and Health – Children and Youth (ICF-CY, WHO 2007). The provided information is assessed from the whole patients’ population affected by the disease, receiving standard care and management (specific and/or symptomatic management, prevention and prophylaxis, devices and aids, care and support). Functional consequences are organized by their frequency in the patients’ population. This general information may not apply to specific cases. Some difficulties reported here can occur with a different temporality or severity degree, and others that are not listed can nevertheless arise.

 Loss of an ability
Frequent
Temporality
Severity
Caring for body parts (skin, teeth, nails, hair, genitals)
Transient limitation
Low
Handling stress, responsabilities, emergencies and ensuring one's safety
Transient limitation
Low
Handling emotions and mood
Transient limitation
Moderate
Controlling one's own general behaviour
Transient limitation
Moderate
Controlling one's own eating behaviour
Transient limitation
Severe
Moving around outside the home
Transient limitation
Moderate
Moving around using transportation
Transient limitation
Moderate
Using transportation
Transient limitation
Moderate
Engaging in sexual relationships
Transient limitation
Low
Shopping
Transient limitation
Low
Cooking/preparing meals
Transient limitation
Moderate
Doing housework
Transient limitation
Moderate
Looking after/helping others
Transient limitation
Low
Taking part in community life
Transient limitation
Low
Playing with others
Transient limitation
Low
Socializing
Transient limitation
Low
Practicing sports
Transient limitation
Low
Participating in the arts and cultural activities
Transient limitation
Low
Environmental factors

:: Following are the environmental factors that should be addressed in order to improve the functioning or limit the restrictions deriving from this disease.

Climate
Temperature
Light
Source: Expert
Last update: 03/08/2020

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