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ORPHA:43393  Lambert-Eaton myasthenic syndrome

:: Activity limitation/participation restriction is described according to the Orphanet Functioning Thesaurus, derived and adapted from the International Classification of Functioning, Disability and Health – Children and Youth (ICF-CY, WHO 2007). The provided information is assessed from the whole patients’ population affected by the disease, receiving standard care and management (specific and/or symptomatic management, prevention and prophylaxis, devices and aids, care and support). Functional consequences are organized by their frequency in the patients’ population. This general information may not apply to specific cases. Some difficulties reported here can occur with a different temporality or severity degree, and others that are not listed can nevertheless arise.

 Loss of an ability
Very frequent
Temporality
Severity
Performing vigorous activities (climbing, running, jumping, swimming,...)
Permanent limitation
Severe
Practicing sports
Permanent limitation
Severe
Frequent
Temporality
Severity
Bending
Permanent limitation
Moderate
Transferring oneself
Permanent limitation
Moderate
Maintaining a standing position
Permanent limitation
Low
Reaching and catching objects
Permanent limitation
Moderate
Lifting and carrying objects
Permanent limitation
Moderate
Walking long distances
Permanent limitation
Moderate
Occasional
Temporality
Severity
Using communication devices
Permanent limitation
Low
Maintaining head position
Permanent limitation
Low
Handling objects (fine hand use)
Permanent limitation
Low
Walking short distances
Permanent limitation
Low
Washing oneself
Permanent limitation
Low
Regulating defecation
Permanent limitation
Low
Dressing/undressing
Permanent limitation
Low
Eating
Permanent limitation
Low
Drinking
Permanent limitation
Low
Moving around within the home
Permanent limitation
Low
Moving around outside the home
Permanent limitation
Low
Using transportation
Permanent limitation
Low
Engaging in paid work in a standard environment
Permanent limitation
Low
Engaging in paid work in a supported/sheltered environment
Permanent limitation
Low
Performing professional tasks
Permanent limitation
Low
Travelling
Permanent limitation
Low
Not defined
Driving
Source: Dr Paul W. WIRTZ[Expert]
Last update: 22/07/2015

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