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ORPHA:48104  Pyoderma gangrenosum

:: Activity limitation/participation restriction is described according to the Orphanet Functioning Thesaurus, derived and adapted from the International Classification of Functioning, Disability and Health – Children and Youth (ICF-CY, WHO 2007). The provided information is assessed from the whole patients’ population affected by the disease, receiving standard care and management (specific and/or symptomatic management, prevention and prophylaxis, devices and aids, care and support). Functional consequences are organized by their frequency in the patients’ population. This general information may not apply to specific cases. Some difficulties reported here can occur with a different temporality or severity degree, and others that are not listed can nevertheless arise.

 Loss of an ability
Frequent
Temporality
Severity
Standing
Transient limitation
Moderate
Transferring oneself
Transient limitation
Moderate
Reaching and catching objects
Transient limitation
Moderate
Lifting and carrying objects
Transient limitation
Moderate
Performing vigorous activities (climbing, running, jumping, swimming,...)
Transient limitation
Severe
Caring for body parts (skin, teeth, nails, hair, genitals)
Transient limitation
Severe
Dressing/undressing
Transient limitation
Severe
Managing one's health (diet, medications, prevention, needs, assistance, monitoring)
Transient limitation
Moderate
Falling asleep
Transient limitation
Moderate
Staying asleep
Transient limitation
Moderate
Getting good quality sleep
Transient limitation
Moderate
Interacting with other people
Transient limitation
Moderate
Engaging in and maintaining intimate relationships
Transient limitation
Severe
Engaging in sexual relationships
Transient limitation
Severe
Looking after/helping others
Transient limitation
Severe
Engaging in paid work in a standard environment
Transient limitation
Severe
Seeking employment
Transient limitation
Severe
Performing professional tasks
Transient limitation
Moderate
Carrying out daily routines
Transient limitation
Moderate
Taking part in community life
Transient limitation
Moderate
Practicing sports
Transient limitation
Severe
Occasional
Temporality
Severity
Bending
Transient limitation
Low
Maintaining a standing position
Transient limitation
Low
Handling objects (fine hand use)
Transient limitation
Severe
Walking long distances
Transient limitation
Moderate
Washing oneself
Transient limitation
Severe
Regulating urination
Transient limitation
Moderate
Regulating defecation
Transient limitation
Moderate
Eating
Transient limitation
Moderate
Drinking
Transient limitation
Moderate
Handling emotions and mood
Transient limitation
Moderate
Moving around within the home
Transient limitation
Moderate
Moving around outside the home
Transient limitation
Moderate
Driving
Transient limitation
Moderate
Making/keeping friends
Transient limitation
Low
Dealing with strangers
Transient limitation
Moderate
Shopping
Transient limitation
Moderate
Cooking/preparing meals
Transient limitation
Moderate
Doing housework
Transient limitation
Moderate
Engaging in paid work in a supported/sheltered environment
Transient limitation
Moderate
Carrying out administrative procedures
Transient limitation
Moderate
Undertaking a simple task
Transient limitation
Low
Undertaking a complex/multiple task
Transient limitation
Low
Playing with others
Transient limitation
Low
Practicing sports
Transient limitation
Low
Travelling
Transient limitation
Low
Environmental factors

:: Following are the environmental factors that should be addressed in order to improve the functioning or limit the restrictions deriving from this disease.

Food
Source: Expert
Last update: 01/07/2019

Additional information

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