x

Search for a disease and its functional consequences

* (*) mandatory field

ORPHA:57145  SUNCT syndrome

:: Activity limitation/participation restriction is described according to the Orphanet Functioning Thesaurus, derived and adapted from the International Classification of Functioning, Disability and Health – Children and Youth (ICF-CY, WHO 2007). The provided information is assessed from the whole patients’ population affected by the disease, receiving standard care and management (specific and/or symptomatic management, prevention and prophylaxis, devices and aids, care and support). Functional consequences are organized by their frequency in the patients’ population. This general information may not apply to specific cases. Some difficulties reported here can occur with a different temporality or severity degree, and others that are not listed can nevertheless arise.

 Loss of an ability
Very frequent
Temporality
Severity
Seeing/watching
Transient limitation
Severe
Hearing/listening
Transient limitation
Severe
Reading
Transient limitation
Severe
Writing
Transient limitation
Severe
Calculating
Transient limitation
Severe
Focusing attention
Transient limitation
Severe
Memorizing and retrieving
Transient limitation
Severe
Thinking and reasoning
Transient limitation
Severe
Making decisions/taking initiatives/finding solutions
Transient limitation
Severe
Being aware of time
Transient limitation
Severe
Being aware of space
Transient limitation
Severe
Receiving spoken messages
Transient limitation
Severe
Receiving messages in sign language
Transient limitation
Severe
Receiving nonverbal messages
Transient limitation
Severe
Receiving written messages
Transient limitation
Severe
Speaking
Transient limitation
Severe
Producing messages in sign language
Transient limitation
Severe
Producing nonverbal messages
Transient limitation
Severe
Writing messages
Transient limitation
Severe
Participating in a conversation
Transient limitation
Severe
Using communication devices
Transient limitation
Severe
Washing oneself
Transient limitation
Severe
Caring for body parts (skin, teeth, nails, hair, genitals)
Transient limitation
Severe
Interacting with other people
Transient limitation
Severe
Making/keeping friends
Transient limitation
Severe
Maintaining family relationships
Transient limitation
Severe
Engaging in paid work in a standard environment
Transient limitation
Severe
Performing professional tasks
Transient limitation
Unspecified
Taking part in community life
Transient limitation
Severe
Taking part in community life
Transient limitation
Unspecified
Playing with others
Transient limitation
Severe
Playing with others
Transient limitation
Unspecified
Socializing
Transient limitation
Severe
Socializing
Transient limitation
Unspecified
Practicing sports
Transient limitation
Severe
Practicing sports
Transient limitation
Unspecified
Participating in the arts and cultural activities
Transient limitation
Severe
Participating in the arts and cultural activities
Transient limitation
Unspecified
Travelling
Transient limitation
Severe
Travelling
Transient limitation
Unspecified
Frequent
Temporality
Severity
Driving
Permanent limitation
Complete
Occasional
Temporality
Severity
Seeking employment
Transient limitation
Severe
Not defined
Engaging in and maintaining intimate relationships
Engaging in sexual relationships
Source: Expert
Last update: 01/09/2021

Additional information

Specialised Social Services

Warning

The documents contained in this web site are presented for information purposes only. The material is in no way intended to replace professional medical care by a qualified specialist and should not be used as a basis for diagnosis or treatment.