Orphanet: Disability
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ORPHA:77240  Primary lymphedema

:: Activity limitation/participation restriction is described according to the Orphanet Functioning Thesaurus, derived and adapted from the International Classification of Functioning, Disability and Health – Children and Youth (ICF-CY, WHO 2007). The provided information is assessed from the whole patients’ population affected by the disease, receiving standard care and management (specific and/or symptomatic management, prevention and prophylaxis, devices and aids, care and support). Functional consequences are organized by their frequency in the patients’ population. This general information may not apply to specific cases. Some difficulties reported here can occur with a different temporality or severity degree, and others that are not listed can nevertheless arise.

 Loss of an ability
Frequent
Temporality
Severity
Dressing/undressing
Permanent limitation
Moderate
Managing one's health (diet, medications, prevention, needs, assistance, monitoring)
Transient limitation
Moderate
Controlling one's own eating behaviour
Transient limitation
Moderate
Practicing sports
Permanent limitation
Moderate
Occasional
Temporality
Severity
Maintaining a standing position
Transient limitation
Moderate
Walking short distances
Permanent limitation
Moderate
Walking long distances
Permanent limitation
Moderate
Regulating urination
Transient limitation
Low
Managing one's health (diet, medications, prevention, needs, assistance, monitoring)
Transient limitation
Severe
Handling stress, responsabilities, emergencies and ensuring one's safety
Permanent limitation
Moderate
Handling emotions and mood
Permanent limitation
Moderate
Moving around outside the home
Permanent limitation
Moderate
Using transportation
Permanent limitation
Moderate
Driving
Permanent limitation
Severe
Interacting with other people
Permanent limitation
Severe
Interacting with other people
Permanent limitation
Moderate
Dealing with strangers
Permanent limitation
Severe
Dealing with strangers
Permanent limitation
Moderate
Engaging in and maintaining intimate relationships
Transient limitation
Moderate
Engaging in sexual relationships
Transient limitation
Moderate
Shopping
Permanent limitation
Moderate
Cooking/preparing meals
Transient limitation
Low
Doing housework
Permanent limitation
Moderate
Engaging in paid work in a standard environment
Permanent limitation
Severe
Engaging in paid work in a standard environment
Permanent limitation
Moderate
Performing professional tasks
Transient limitation
Moderate
Performing professional tasks
Transient limitation
Low
Taking part in community life
Transient limitation
Moderate
Taking part in community life
Transient limitation
Low
Travelling
Transient limitation
Low
Environmental factors

:: Following are the environmental factors that should be addressed in order to improve the functioning or limit the restrictions deriving from this disease.

Temperature
Source: Dr Stephane VIGNES[Expert]_Association Lymphoedème Rhône-Alpes[Patient ogranisation]
Last update: 24/08/2018

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The documents contained in this web site are presented for information purposes only. The material is in no way intended to replace professional medical care by a qualified specialist and should not be used as a basis for diagnosis or treatment.