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ORPHA:83597  Acute disseminated encephalomyelitis

:: Activity limitation/participation restriction is described according to the Orphanet Functioning Thesaurus, derived and adapted from the International Classification of Functioning, Disability and Health – Children and Youth (ICF-CY, WHO 2007). The provided information is assessed from the whole patients’ population affected by the disease, receiving standard care and management (specific and/or symptomatic management, prevention and prophylaxis, devices and aids, care and support). Functional consequences are organized by their frequency in the patients’ population. This general information may not apply to specific cases. Some difficulties reported here can occur with a different temporality or severity degree, and others that are not listed can nevertheless arise.

 Loss of an ability
Frequent
Temporality
Severity
Acquiring language
Transient limitation
Unspecified
Focusing attention
Transient limitation
Unspecified
Memorizing and retrieving
Transient limitation
Unspecified
Thinking and reasoning
Transient limitation
Unspecified
Making decisions/taking initiatives/finding solutions
Transient limitation
Unspecified
Producing messages
Transient limitation
Unspecified
Speaking
Transient limitation
Unspecified
Participating in a conversation
Transient limitation
Unspecified
Using communication devices
Transient limitation
Unspecified
Standing
Transient limitation
Unspecified
Sitting
Transient limitation
Unspecified
Bending
Transient limitation
Unspecified
Transferring oneself
Transient limitation
Unspecified
Maintaining a standing position
Transient limitation
Unspecified
Maintaining head position
Transient limitation
Unspecified
Reaching and catching objects
Transient limitation
Unspecified
Lifting and carrying objects
Transient limitation
Unspecified
Handling objects (fine hand use)
Transient limitation
Unspecified
Walking short distances
Transient limitation
Unspecified
Walking long distances
Transient limitation
Unspecified
Performing vigorous activities (climbing, running, jumping, swimming,...)
Transient limitation
Unspecified
Washing oneself
Transient limitation
Unspecified
Caring for body parts (skin, teeth, nails, hair, genitals)
Transient limitation
Unspecified
Regulating urination
Transient limitation
Unspecified
Regulating defecation
Transient limitation
Unspecified
Dressing/undressing
Transient limitation
Unspecified
Eating
Transient limitation
Unspecified
Drinking
Transient limitation
Unspecified
Managing one's health (diet, medications, prevention, needs, assistance, monitoring)
Transient limitation
Unspecified
Falling asleep
Transient limitation
Unspecified
Staying asleep
Transient limitation
Unspecified
Getting good quality sleep
Transient limitation
Unspecified
Staying awake
Transient limitation
Unspecified
Handling stress, responsabilities, emergencies and ensuring one's safety
Transient limitation
Unspecified
Moving around within the home
Transient limitation
Unspecified
Moving around outside the home
Transient limitation
Unspecified
Using transportation
Transient limitation
Unspecified
Driving
Transient limitation
Unspecified
Engaging in sexual relationships
Transient limitation
Unspecified
Shopping
Transient limitation
Unspecified
Cooking/preparing meals
Transient limitation
Unspecified
Doing housework
Transient limitation
Unspecified
Looking after/helping others
Transient limitation
Unspecified
Attending preschool
Transient limitation
Unspecified
Attending mainstream school
Transient limitation
Unspecified
Attending school in an adapted mainstream/special environment
Transient limitation
Unspecified
Learning a profession (vocational training/apprenticeship) in the standard environment
Transient limitation
Unspecified
Learning a profession (vocational training/apprenticeship) in an adapted mainstream/special environment
Transient limitation
Unspecified
Accessing higher education
Transient limitation
Unspecified
Engaging in paid work in a standard environment
Transient limitation
Unspecified
Engaging in paid work in a supported/sheltered environment
Transient limitation
Unspecified
Seeking employment
Transient limitation
Unspecified
Performing professional tasks
Transient limitation
Unspecified
Taking part in community life
Transient limitation
Unspecified
Practicing sports
Transient limitation
Unspecified
Participating in the arts and cultural activities
Transient limitation
Unspecified
Travelling
Transient limitation
Unspecified
Occasional
Temporality
Severity
Acquiring language
Permanent limitation
Unspecified
Focusing attention
Permanent limitation
Unspecified
Memorizing and retrieving
Permanent limitation
Unspecified
Thinking and reasoning
Permanent limitation
Unspecified
Making decisions/taking initiatives/finding solutions
Permanent limitation
Unspecified
Producing messages
Permanent limitation
Unspecified
Speaking
Permanent limitation
Unspecified
Participating in a conversation
Permanent limitation
Unspecified
Using communication devices
Permanent limitation
Unspecified
Standing
Permanent limitation
Unspecified
Sitting
Permanent limitation
Unspecified
Bending
Permanent limitation
Unspecified
Transferring oneself
Permanent limitation
Unspecified
Maintaining a standing position
Permanent limitation
Unspecified
Maintaining head position
Permanent limitation
Unspecified
Reaching and catching objects
Permanent limitation
Unspecified
Lifting and carrying objects
Permanent limitation
Unspecified
Handling objects (fine hand use)
Permanent limitation
Unspecified
Walking short distances
Permanent limitation
Unspecified
Walking long distances
Permanent limitation
Unspecified
Performing vigorous activities (climbing, running, jumping, swimming,...)
Permanent limitation
Unspecified
Washing oneself
Permanent limitation
Unspecified
Caring for body parts (skin, teeth, nails, hair, genitals)
Permanent limitation
Unspecified
Regulating urination
Permanent limitation
Unspecified
Regulating defecation
Permanent limitation
Unspecified
Dressing/undressing
Permanent limitation
Unspecified
Eating
Permanent limitation
Unspecified
Drinking
Permanent limitation
Unspecified
Managing one's health (diet, medications, prevention, needs, assistance, monitoring)
Permanent limitation
Unspecified
Falling asleep
Permanent limitation
Unspecified
Staying asleep
Permanent limitation
Unspecified
Getting good quality sleep
Permanent limitation
Unspecified
Staying awake
Permanent limitation
Unspecified
Handling stress, responsabilities, emergencies and ensuring one's safety
Permanent limitation
Unspecified
Moving around within the home
Permanent limitation
Unspecified
Moving around outside the home
Permanent limitation
Unspecified
Using transportation
Permanent limitation
Unspecified
Driving
Permanent limitation
Unspecified
Engaging in sexual relationships
Permanent limitation
Unspecified
Shopping
Permanent limitation
Unspecified
Cooking/preparing meals
Permanent limitation
Unspecified
Doing housework
Permanent limitation
Unspecified
Looking after/helping others
Permanent limitation
Unspecified
Attending preschool
Permanent limitation
Unspecified
Attending mainstream school
Permanent limitation
Unspecified
Attending school in an adapted mainstream/special environment
Permanent limitation
Unspecified
Learning a profession (vocational training/apprenticeship) in the standard environment
Permanent limitation
Unspecified
Learning a profession (vocational training/apprenticeship) in an adapted mainstream/special environment
Permanent limitation
Unspecified
Accessing higher education
Permanent limitation
Unspecified
Engaging in paid work in a standard environment
Permanent limitation
Unspecified
Engaging in paid work in a supported/sheltered environment
Permanent limitation
Unspecified
Seeking employment
Permanent limitation
Unspecified
Performing professional tasks
Permanent limitation
Unspecified
Taking part in community life
Permanent limitation
Unspecified
Practicing sports
Permanent limitation
Unspecified
Participating in the arts and cultural activities
Permanent limitation
Unspecified
Travelling
Permanent limitation
Unspecified
Source: Dr Benjamin GREENBERG[Expert]_Transverse Myelitis Association[Patient organisation]
Last update: 03/08/2020

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