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ORPHA:536  Systemic lupus erythematosus

:: Activity limitation/participation restriction is described according to the Orphanet Functioning Thesaurus, derived and adapted from the International Classification of Functioning, Disability and Health – Children and Youth (ICF-CY, WHO 2007). The provided information is assessed from the whole patients’ population affected by the disease, receiving standard care and management (specific and/or symptomatic management, prevention and prophylaxis, devices and aids, care and support). Functional consequences are organized by their frequency in the patients’ population. This general information may not apply to specific cases. Some difficulties reported here can occur with a different temporality or severity degree, and others that are not listed can nevertheless arise.

 Loss of an ability
Very frequent
Temporality
Severity
Focusing attention
Transient limitation
Low
Memorizing and retrieving
Transient limitation
Low
Thinking and reasoning
Transient limitation
Low
Falling asleep
Transient limitation
Severe
Falling asleep
Transient limitation
Moderate
Falling asleep
Transient limitation
Low
Staying asleep
Transient limitation
Severe
Staying asleep
Transient limitation
Moderate
Staying asleep
Transient limitation
Low
Getting good quality sleep
Transient limitation
Severe
Getting good quality sleep
Transient limitation
Moderate
Getting good quality sleep
Transient limitation
Low
Staying awake
Transient limitation
Severe
Staying awake
Transient limitation
Moderate
Staying awake
Transient limitation
Low
Frequent
Temporality
Severity
Focusing attention
Permanent limitation
Low
Focusing attention
Transient limitation
Moderate
Memorizing and retrieving
Permanent limitation
Low
Memorizing and retrieving
Transient limitation
Moderate
Thinking and reasoning
Permanent limitation
Low
Thinking and reasoning
Transient limitation
Moderate
Participating in a conversation
Transient limitation
Moderate
Handling objects (fine hand use)
Transient limitation
Severe
Handling objects (fine hand use)
Transient limitation
Moderate
Handling objects (fine hand use)
Transient limitation
Low
Managing one's health (diet, medications, prevention, needs, assistance, monitoring)
Permanent limitation
Severe
Managing one's health (diet, medications, prevention, needs, assistance, monitoring)
Permanent limitation
Moderate
Managing one's health (diet, medications, prevention, needs, assistance, monitoring)
Permanent limitation
Low
Managing one's health (diet, medications, prevention, needs, assistance, monitoring)
Transient limitation
Severe
Managing one's health (diet, medications, prevention, needs, assistance, monitoring)
Transient limitation
Moderate
Managing one's health (diet, medications, prevention, needs, assistance, monitoring)
Transient limitation
Low
Falling asleep
Permanent limitation
Severe
Falling asleep
Permanent limitation
Moderate
Falling asleep
Permanent limitation
Low
Staying asleep
Permanent limitation
Severe
Staying asleep
Permanent limitation
Moderate
Staying asleep
Permanent limitation
Low
Getting good quality sleep
Permanent limitation
Severe
Getting good quality sleep
Permanent limitation
Moderate
Getting good quality sleep
Permanent limitation
Low
Staying awake
Permanent limitation
Severe
Staying awake
Permanent limitation
Moderate
Staying awake
Permanent limitation
Low
Handling stress, responsabilities, emergencies and ensuring one's safety
Transient limitation
Moderate
Handling emotions and mood
Permanent limitation
Moderate
Handling emotions and mood
Transient limitation
Moderate
Shopping
Transient limitation
Severe
Shopping
Transient limitation
Moderate
Shopping
Transient limitation
Low
Cooking/preparing meals
Transient limitation
Severe
Cooking/preparing meals
Transient limitation
Moderate
Cooking/preparing meals
Transient limitation
Low
Doing housework
Transient limitation
Complete
Doing housework
Transient limitation
Severe
Doing housework
Transient limitation
Moderate
Doing housework
Transient limitation
Low
Looking after/helping others
Transient limitation
Severe
Looking after/helping others
Transient limitation
Moderate
Looking after/helping others
Transient limitation
Low
Accessing higher education
Transient limitation
Severe
Accessing higher education
Transient limitation
Moderate
Accessing higher education
Transient limitation
Low
Engaging in paid work in a standard environment
Transient limitation
Complete
Engaging in paid work in a standard environment
Transient limitation
Severe
Engaging in paid work in a standard environment
Transient limitation
Moderate
Engaging in paid work in a standard environment
Transient limitation
Low
Taking part in community life
Transient limitation
Moderate
Taking part in community life
Transient limitation
Low
Socializing
Transient limitation
Moderate
Socializing
Transient limitation
Low
Practicing sports
Transient limitation
Complete
Practicing sports
Transient limitation
Severe
Practicing sports
Transient limitation
Moderate
Practicing sports
Transient limitation
Low
Participating in the arts and cultural activities
Transient limitation
Moderate
Participating in the arts and cultural activities
Transient limitation
Low
Occasional
Temporality
Severity
Focusing attention
Permanent limitation
Moderate
Memorizing and retrieving
Permanent limitation
Moderate
Thinking and reasoning
Permanent limitation
Moderate
Participating in a conversation
Permanent limitation
Moderate
Participating in a conversation
Permanent limitation
Low
Maintaining a standing position
Permanent limitation
Moderate
Maintaining a standing position
Permanent limitation
Low
Maintaining a standing position
Transient limitation
Severe
Maintaining a standing position
Transient limitation
Moderate
Maintaining a standing position
Transient limitation
Low
Handling objects (fine hand use)
Permanent limitation
Severe
Handling objects (fine hand use)
Permanent limitation
Moderate
Handling objects (fine hand use)
Permanent limitation
Low
Walking short distances
Permanent limitation
Moderate
Walking short distances
Permanent limitation
Low
Walking short distances
Transient limitation
Moderate
Walking short distances
Transient limitation
Low
Walking long distances
Permanent limitation
Moderate
Walking long distances
Permanent limitation
Low
Walking long distances
Transient limitation
Moderate
Walking long distances
Transient limitation
Low
Performing vigorous activities (climbing, running, jumping, swimming,...)
Permanent limitation
Moderate
Performing vigorous activities (climbing, running, jumping, swimming,...)
Permanent limitation
Low
Performing vigorous activities (climbing, running, jumping, swimming,...)
Transient limitation
Moderate
Performing vigorous activities (climbing, running, jumping, swimming,...)
Transient limitation
Low
Dressing/undressing
Transient limitation
Moderate
Dressing/undressing
Transient limitation
Low
Handling stress, responsabilities, emergencies and ensuring one's safety
Permanent limitation
Moderate
Handling emotions and mood
Permanent limitation
Moderate
Controlling one's own general behaviour
Permanent limitation
Low
Controlling one's own general behaviour
Transient limitation
Low
Controlling one's own eating behaviour
Permanent limitation
Moderate
Controlling one's own eating behaviour
Permanent limitation
Low
Controlling one's own eating behaviour
Transient limitation
Moderate
Controlling one's own eating behaviour
Transient limitation
Low
Moving around outside the home
Permanent limitation
Moderate
Moving around outside the home
Permanent limitation
Low
Moving around outside the home
Transient limitation
Moderate
Moving around outside the home
Transient limitation
Low
Driving
Permanent limitation
Complete
Driving
Permanent limitation
Severe
Driving
Permanent limitation
Moderate
Driving
Permanent limitation
Low
Driving
Transient limitation
Complete
Driving
Transient limitation
Severe
Driving
Transient limitation
Moderate
Driving
Transient limitation
Low
Maintaining family relationships
Permanent limitation
Low
Maintaining family relationships
Transient limitation
Low
Engaging in and maintaining intimate relationships
Permanent limitation
Severe
Engaging in and maintaining intimate relationships
Permanent limitation
Moderate
Engaging in and maintaining intimate relationships
Permanent limitation
Low
Engaging in and maintaining intimate relationships
Transient limitation
Severe
Engaging in and maintaining intimate relationships
Transient limitation
Moderate
Engaging in and maintaining intimate relationships
Transient limitation
Low
Engaging in sexual relationships
Permanent limitation
Complete
Engaging in sexual relationships
Permanent limitation
Severe
Engaging in sexual relationships
Permanent limitation
Moderate
Engaging in sexual relationships
Permanent limitation
Low
Engaging in sexual relationships
Transient limitation
Complete
Engaging in sexual relationships
Transient limitation
Severe
Engaging in sexual relationships
Transient limitation
Moderate
Engaging in sexual relationships
Transient limitation
Low
Shopping
Permanent limitation
Severe
Shopping
Permanent limitation
Moderate
Shopping
Permanent limitation
Low
Cooking/preparing meals
Permanent limitation
Low
Doing housework
Permanent limitation
Severe
Doing housework
Permanent limitation
Moderate
Doing housework
Permanent limitation
Low
Looking after/helping others
Permanent limitation
Moderate
Looking after/helping others
Permanent limitation
Low
Learning a profession (vocational training/apprenticeship) in the standard environment
Permanent limitation
Low
Learning a profession (vocational training/apprenticeship) in the standard environment
Transient limitation
Severe
Learning a profession (vocational training/apprenticeship) in the standard environment
Transient limitation
Moderate
Learning a profession (vocational training/apprenticeship) in the standard environment
Transient limitation
Low
Accessing higher education
Permanent limitation
Severe
Accessing higher education
Permanent limitation
Moderate
Accessing higher education
Permanent limitation
Low
Engaging in paid work in a standard environment
Permanent limitation
Severe
Engaging in paid work in a standard environment
Permanent limitation
Moderate
Engaging in paid work in a standard environment
Permanent limitation
Low
Seeking employment
Permanent limitation
Severe
Seeking employment
Permanent limitation
Moderate
Seeking employment
Permanent limitation
Low
Performing professional tasks
Permanent limitation
Severe
Performing professional tasks
Permanent limitation
Moderate
Performing professional tasks
Permanent limitation
Low
Performing professional tasks
Transient limitation
Complete
Performing professional tasks
Transient limitation
Severe
Performing professional tasks
Transient limitation
Moderate
Performing professional tasks
Transient limitation
Low
Carrying out administrative procedures
Permanent limitation
Moderate
Carrying out administrative procedures
Permanent limitation
Low
Carrying out administrative procedures
Transient limitation
Moderate
Carrying out administrative procedures
Transient limitation
Low
Taking part in community life
Permanent limitation
Moderate
Taking part in community life
Permanent limitation
Low
Socializing
Permanent limitation
Moderate
Socializing
Permanent limitation
Low
Practicing sports
Permanent limitation
Severe
Practicing sports
Permanent limitation
Moderate
Practicing sports
Permanent limitation
Low
Participating in the arts and cultural activities
Permanent limitation
Moderate
Participating in the arts and cultural activities
Permanent limitation
Low
Travelling
Permanent limitation
Moderate
Travelling
Permanent limitation
Low
Travelling
Transient limitation
Complete
Travelling
Transient limitation
Severe
Travelling
Transient limitation
Moderate
Travelling
Transient limitation
Low
Not defined
Moving around within the home
Environmental factors

:: Following are the environmental factors that should be addressed in order to improve the functioning or limit the restrictions deriving from this disease.

Food
Temperature
Humidity
Light intensity
Source: Expert
Last update: 03/04/2019

Additional information

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