Orphanet: Disability
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ORPHA:701  Alopecia universalis

:: Activity limitation/participation restriction is described according to the Orphanet Functioning Thesaurus, derived and adapted from the International Classification of Functioning, Disability and Health – Children and Youth (ICF-CY, WHO 2007). The provided information is assessed from the whole patients’ population affected by the disease, receiving standard care and management (specific and/or symptomatic management, prevention and prophylaxis, devices and aids, care and support). Functional consequences are organized by their frequency in the patients’ population. This general information may not apply to specific cases. Some difficulties reported here can occur with a different temporality or severity degree, and others that are not listed can nevertheless arise.

 Loss of an ability
Occasional
Temporality
Severity
Focusing attention
Permanent limitation
Low
Focusing attention
Transient limitation
Low
Making decisions/taking initiatives/finding solutions
Permanent limitation
Low
Making decisions/taking initiatives/finding solutions
Transient limitation
Low
Participating in a conversation
Permanent limitation
Moderate
Handling stress, responsabilities, emergencies and ensuring one's safety
Permanent limitation
Moderate
Handling stress, responsabilities, emergencies and ensuring one's safety
Transient limitation
Moderate
Handling emotions and mood
Permanent limitation
Moderate
Handling emotions and mood
Transient limitation
Moderate
Interacting with other people
Permanent limitation
Severe
Interacting with other people
Transient limitation
Severe
Making/keeping friends
Permanent limitation
Moderate
Making/keeping friends
Transient limitation
Moderate
Maintaining family relationships
Permanent limitation
Moderate
Maintaining family relationships
Transient limitation
Moderate
Dealing with strangers
Permanent limitation
Severe
Dealing with strangers
Transient limitation
Severe
Engaging in and maintaining intimate relationships
Permanent limitation
Moderate
Engaging in and maintaining intimate relationships
Transient limitation
Moderate
Engaging in sexual relationships
Permanent limitation
Moderate
Engaging in sexual relationships
Transient limitation
Moderate
Attending mainstream school
Permanent limitation
Moderate
Engaging in paid work in a standard environment
Permanent limitation
Moderate
Engaging in paid work in a standard environment
Transient limitation
Moderate
Carrying out daily routines
Permanent limitation
Moderate
Carrying out daily routines
Transient limitation
Moderate
Taking part in community life
Permanent limitation
Moderate
Taking part in community life
Transient limitation
Moderate
Playing with others
Permanent limitation
Moderate
Playing with others
Transient limitation
Moderate
Socializing
Permanent limitation
Moderate
Socializing
Transient limitation
Moderate
Travelling
Permanent limitation
Moderate
Travelling
Transient limitation
Moderate
Environmental factors

:: Following are the environmental factors that should be addressed in order to improve the functioning or limit the restrictions deriving from this disease.

Temperature
Humidity
Light intensity
Source: Expert
Last update: 28/02/2019

Additional information

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Warning

The documents contained in this web site are presented for information purposes only. The material is in no way intended to replace professional medical care by a qualified specialist and should not be used as a basis for diagnosis or treatment.