Orphanet: Disability
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ORPHA:220402  Limited cutaneous systemic sclerosis

:: Activity limitation/participation restriction is described according to the Orphanet Functioning Thesaurus, derived and adapted from the International Classification of Functioning, Disability and Health – Children and Youth (ICF-CY, WHO 2007). The provided information is assessed from the whole patients’ population affected by the disease, receiving standard care and management (specific and/or symptomatic management, prevention and prophylaxis, devices and aids, care and support). Functional consequences are organized by their frequency in the patients’ population. This general information may not apply to specific cases. Some difficulties reported here can occur with a different temporality or severity degree, and others that are not listed can nevertheless arise.

 Loss of an ability
Frequent
Temporality
Severity
Reaching and catching objects
Permanent limitation
Unspecified
Reaching and catching objects
Transient limitation
Unspecified
Lifting and carrying objects
Permanent limitation
Unspecified
Lifting and carrying objects
Transient limitation
Unspecified
Handling objects (fine hand use)
Permanent limitation
Unspecified
Handling objects (fine hand use)
Transient limitation
Unspecified
Walking short distances
Permanent limitation
Low
Walking short distances
Transient limitation
Low
Walking long distances
Permanent limitation
Unspecified
Walking long distances
Transient limitation
Unspecified
Performing vigorous activities (climbing, running, jumping, swimming,...)
Permanent limitation
Unspecified
Performing vigorous activities (climbing, running, jumping, swimming,...)
Transient limitation
Unspecified
Caring for body parts (skin, teeth, nails, hair, genitals)
Permanent limitation
Unspecified
Caring for body parts (skin, teeth, nails, hair, genitals)
Transient limitation
Unspecified
Engaging in and maintaining intimate relationships
Permanent limitation
Unspecified
Engaging in and maintaining intimate relationships
Transient limitation
Unspecified
Engaging in sexual relationships
Permanent limitation
Unspecified
Engaging in sexual relationships
Transient limitation
Unspecified
Shopping
Permanent limitation
Severe
Shopping
Permanent limitation
Low
Shopping
Transient limitation
Severe
Shopping
Transient limitation
Low
Cooking/preparing meals
Permanent limitation
Severe
Cooking/preparing meals
Permanent limitation
Low
Cooking/preparing meals
Transient limitation
Severe
Cooking/preparing meals
Transient limitation
Low
Doing housework
Permanent limitation
Severe
Doing housework
Permanent limitation
Low
Doing housework
Transient limitation
Severe
Doing housework
Transient limitation
Low
Looking after/helping others
Permanent limitation
Severe
Looking after/helping others
Permanent limitation
Low
Looking after/helping others
Transient limitation
Severe
Looking after/helping others
Transient limitation
Low
Engaging in paid work in a standard environment
Permanent limitation
Severe
Engaging in paid work in a standard environment
Permanent limitation
Low
Engaging in paid work in a standard environment
Transient limitation
Severe
Engaging in paid work in a standard environment
Transient limitation
Low
Seeking employment
Permanent limitation
Severe
Seeking employment
Permanent limitation
Low
Seeking employment
Transient limitation
Severe
Seeking employment
Transient limitation
Low
Performing professional tasks
Permanent limitation
Severe
Performing professional tasks
Permanent limitation
Low
Performing professional tasks
Transient limitation
Severe
Performing professional tasks
Transient limitation
Low
Taking part in community life
Permanent limitation
Severe
Taking part in community life
Permanent limitation
Low
Taking part in community life
Transient limitation
Severe
Taking part in community life
Transient limitation
Low
Playing with others
Permanent limitation
Severe
Playing with others
Permanent limitation
Low
Playing with others
Transient limitation
Severe
Playing with others
Transient limitation
Low
Socializing
Permanent limitation
Severe
Socializing
Permanent limitation
Low
Socializing
Transient limitation
Severe
Socializing
Transient limitation
Low
Practicing sports
Permanent limitation
Severe
Practicing sports
Permanent limitation
Moderate
Practicing sports
Transient limitation
Severe
Practicing sports
Transient limitation
Moderate
Participating in the arts and cultural activities
Permanent limitation
Severe
Participating in the arts and cultural activities
Permanent limitation
Low
Participating in the arts and cultural activities
Transient limitation
Severe
Participating in the arts and cultural activities
Transient limitation
Low
Travelling
Permanent limitation
Severe
Travelling
Permanent limitation
Low
Travelling
Transient limitation
Severe
Travelling
Transient limitation
Low
Occasional
Temporality
Severity
Standing
Permanent limitation
Moderate
Standing
Permanent limitation
Low
Maintaining a standing position
Permanent limitation
Moderate
Maintaining a standing position
Permanent limitation
Low
Walking short distances
Permanent limitation
Unspecified
Walking short distances
Transient limitation
Unspecified
Walking long distances
Permanent limitation
Moderate
Walking long distances
Transient limitation
Moderate
Performing vigorous activities (climbing, running, jumping, swimming,...)
Permanent limitation
Moderate
Performing vigorous activities (climbing, running, jumping, swimming,...)
Transient limitation
Moderate
Washing oneself
Permanent limitation
Unspecified
Washing oneself
Transient limitation
Unspecified
Regulating defecation
Permanent limitation
Unspecified
Regulating defecation
Transient limitation
Unspecified
Dressing/undressing
Permanent limitation
Unspecified
Dressing/undressing
Transient limitation
Unspecified
Eating
Permanent limitation
Unspecified
Eating
Transient limitation
Unspecified
Drinking
Permanent limitation
Unspecified
Drinking
Transient limitation
Unspecified
Managing one's health (diet, medications, prevention, needs, assistance, monitoring)
Permanent limitation
Unspecified
Managing one's health (diet, medications, prevention, needs, assistance, monitoring)
Acquisition delay
Unspecified
Moving around within the home
Permanent limitation
Moderate
Moving around within the home
Permanent limitation
Low
Moving around within the home
Transient limitation
Moderate
Moving around within the home
Transient limitation
Low
Moving around outside the home
Permanent limitation
Moderate
Moving around outside the home
Permanent limitation
Low
Moving around outside the home
Transient limitation
Moderate
Moving around outside the home
Transient limitation
Low
Using transportation
Permanent limitation
Moderate
Using transportation
Permanent limitation
Low
Using transportation
Transient limitation
Moderate
Using transportation
Transient limitation
Low
Driving
Permanent limitation
Moderate
Driving
Permanent limitation
Low
Driving
Transient limitation
Moderate
Driving
Transient limitation
Low
Environmental factors

:: Following are the environmental factors that should be addressed in order to improve the functioning or limit the restrictions deriving from this disease.

Temperature
Humidity
Vibrations
Air quality
Source: Pr. Eric HACHULLA[Expert]
Last update: 29/06/2018

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