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ORPHA:238606  Primary orthostatic tremor

:: Activity limitation/participation restriction is described according to the Orphanet Functioning Thesaurus, derived and adapted from the International Classification of Functioning, Disability and Health – Children and Youth (ICF-CY, WHO 2007). The provided information is assessed from the whole patients’ population affected by the disease, receiving standard care and management (specific and/or symptomatic management, prevention and prophylaxis, devices and aids, care and support). Functional consequences are organized by their frequency in the patients’ population. This general information may not apply to specific cases. Some difficulties reported here can occur with a different temporality or severity degree, and others that are not listed can nevertheless arise.

 Loss of an ability
Very frequent
Temporality
Severity
Maintaining a standing position
Permanent limitation
Severe
Maintaining a standing position
Transient limitation
Complete
Shopping
Permanent limitation
Severe
Cooking/preparing meals
Permanent limitation
Moderate
Doing housework
Permanent limitation
Moderate
Carrying out daily routines
Permanent limitation
Moderate
Participating in the arts and cultural activities
Permanent limitation
Unspecified
Travelling
Permanent limitation
Unspecified
Frequent
Temporality
Severity
Participating in a conversation
Permanent limitation
Unspecified
Moving around outside the home
Permanent limitation
Severe
Using transportation
Permanent limitation
Moderate
Taking part in community life
Permanent limitation
Unspecified
Socializing
Permanent limitation
Low
Practicing sports
Permanent limitation
Unspecified
Occasional
Temporality
Severity
Walking short distances
Permanent limitation
Moderate
Walking short distances
Transient limitation
Moderate
Walking long distances
Permanent limitation
Severe
Walking long distances
Transient limitation
Severe
Performing vigorous activities (climbing, running, jumping, swimming,...)
Permanent limitation
Unspecified
Washing oneself
Transient limitation
Moderate
Dressing/undressing
Transient limitation
Moderate
Moving around within the home
Permanent limitation
Moderate
Moving around outside the home
Transient limitation
Severe
Using transportation
Transient limitation
Severe
Shopping
Transient limitation
Severe
Cooking/preparing meals
Transient limitation
Severe
Doing housework
Transient limitation
Severe
Engaging in paid work in a standard environment
Permanent limitation
Severe
Engaging in paid work in a standard environment
Transient limitation
Complete
Performing professional tasks
Permanent limitation
Moderate
Source: Dr Marion SIMONETTA-MOREAU[Expert]_Dr Jörg SPIEGEL[Expert]_Dr Willi GERSCHLAGER[Expert]_Dr Peter BROWN[Expert]_Association des Personnes concernées par le Tremblement Essentiel[Patient organisation]
Last update: 30/03/2017

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The documents contained in this web site are presented for information purposes only. The material is in no way intended to replace professional medical care by a qualified specialist and should not be used as a basis for diagnosis or treatment.