Orphanet: Disability
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ORPHA:284227  TEMPI syndrome

:: Activity limitation/participation restriction is described according to the Orphanet Functioning Thesaurus, derived and adapted from the International Classification of Functioning, Disability and Health – Children and Youth (ICF-CY, WHO 2007). The provided information is assessed from the whole patients’ population affected by the disease, receiving standard care and management (specific and/or symptomatic management, prevention and prophylaxis, devices and aids, care and support). Functional consequences are organized by their frequency in the patients’ population. This general information may not apply to specific cases. Some difficulties reported here can occur with a different temporality or severity degree, and others that are not listed can nevertheless arise.

 Loss of an ability
Frequent
Temporality
Severity
Walking short distances
Permanent limitation
Low
Walking long distances
Permanent limitation
Low
Performing vigorous activities (climbing, running, jumping, swimming,...)
Permanent limitation
Moderate
Practicing sports
Permanent limitation
Moderate
Occasional
Temporality
Severity
Walking short distances
Transient limitation
Severe
Walking long distances
Transient limitation
Severe
Performing vigorous activities (climbing, running, jumping, swimming,...)
Transient limitation
Severe
Handling stress, responsabilities, emergencies and ensuring one's safety
Permanent limitation
Low
Handling stress, responsabilities, emergencies and ensuring one's safety
Transient limitation
Severe
Moving around within the home
Permanent limitation
Low
Moving around within the home
Transient limitation
Severe
Moving around outside the home
Permanent limitation
Low
Moving around outside the home
Transient limitation
Severe
Using transportation
Permanent limitation
Low
Using transportation
Transient limitation
Severe
Driving
Permanent limitation
Low
Driving
Transient limitation
Severe
Shopping
Permanent limitation
Low
Shopping
Transient limitation
Severe
Cooking/preparing meals
Permanent limitation
Low
Cooking/preparing meals
Transient limitation
Severe
Doing housework
Permanent limitation
Low
Doing housework
Transient limitation
Severe
Looking after/helping others
Permanent limitation
Low
Looking after/helping others
Transient limitation
Severe
Engaging in paid work in a standard environment
Permanent limitation
Low
Engaging in paid work in a standard environment
Transient limitation
Severe
Engaging in paid work in a supported/sheltered environment
Permanent limitation
Low
Engaging in paid work in a supported/sheltered environment
Transient limitation
Severe
Seeking employment
Permanent limitation
Low
Seeking employment
Transient limitation
Severe
Performing professional tasks
Permanent limitation
Low
Performing professional tasks
Transient limitation
Severe
Undertaking a simple task
Permanent limitation
Low
Undertaking a simple task
Transient limitation
Severe
Undertaking a complex/multiple task
Permanent limitation
Low
Undertaking a complex/multiple task
Transient limitation
Severe
Carrying out daily routines
Permanent limitation
Low
Carrying out daily routines
Transient limitation
Severe
Taking part in community life
Permanent limitation
Low
Taking part in community life
Transient limitation
Severe
Socializing
Permanent limitation
Low
Socializing
Transient limitation
Severe
Practicing sports
Transient limitation
Severe
Participating in the arts and cultural activities
Permanent limitation
Low
Participating in the arts and cultural activities
Transient limitation
Severe
Travelling
Permanent limitation
Low
Travelling
Transient limitation
Severe
Source: Expert
Last update: 29/05/2013

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