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ORPHA:2584  Classic mycosis fungoides

:: Activity limitation/participation restriction is described according to the Orphanet Functioning Thesaurus, derived and adapted from the International Classification of Functioning, Disability and Health – Children and Youth (ICF-CY, WHO 2007). The provided information is assessed from the whole patients’ population affected by the disease, receiving standard care and management (specific and/or symptomatic management, prevention and prophylaxis, devices and aids, care and support). Functional consequences are organized by their frequency in the patients’ population. This general information may not apply to specific cases. Some difficulties reported here can occur with a different temporality or severity degree, and others that are not listed can nevertheless arise.

 Loss of an ability
Very frequent
Temporality
Severity
Sitting
Permanent limitation
Low
Performing vigorous activities (climbing, running, jumping, swimming,...)
Permanent limitation
Severe
Performing vigorous activities (climbing, running, jumping, swimming,...)
Transient limitation
Complete
Washing oneself
Transient limitation
Unspecified
Caring for body parts (skin, teeth, nails, hair, genitals)
Transient limitation
Unspecified
Practicing sports
Permanent limitation
Moderate
Practicing sports
Transient limitation
Severe
Frequent
Temporality
Severity
Focusing attention
Transient limitation
Unspecified
Memorizing and retrieving
Transient limitation
Unspecified
Thinking and reasoning
Transient limitation
Unspecified
Making decisions/taking initiatives/finding solutions
Transient limitation
Unspecified
Sitting
Transient limitation
Moderate
Walking long distances
Permanent limitation
Moderate
Falling asleep
Transient limitation
Moderate
Staying asleep
Transient limitation
Moderate
Getting good quality sleep
Transient limitation
Moderate
Handling emotions and mood
Transient limitation
Moderate
Controlling one's own eating behaviour
Transient limitation
Unspecified
Making/keeping friends
Transient limitation
Low
Engaging in and maintaining intimate relationships
Transient limitation
Moderate
Engaging in sexual relationships
Transient limitation
Moderate
Taking part in community life
Transient limitation
Low
Socializing
Transient limitation
Low
Participating in the arts and cultural activities
Transient limitation
Low
Travelling
Transient limitation
Moderate
Occasional
Temporality
Severity
Walking long distances
Transient limitation
Severe
Dealing with strangers
Transient limitation
Low
Shopping
Transient limitation
Low
Cooking/preparing meals
Transient limitation
Low
Doing housework
Transient limitation
Low
Looking after/helping others
Transient limitation
Low
Engaging in paid work in a standard environment
Transient limitation
Low
Seeking employment
Transient limitation
Low
Performing professional tasks
Transient limitation
Low
Playing with others
Transient limitation
Low
Environmental factors

:: Following are the environmental factors that should be addressed in order to improve the functioning or limit the restrictions deriving from this disease.

Humidity
Source: Expert
Last update: 09/03/2015

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