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ORPHA:2073  Narcolepsy type 1

:: Activity limitation/participation restriction is described according to the Orphanet Functioning Thesaurus, derived and adapted from the International Classification of Functioning, Disability and Health – Children and Youth (ICF-CY, WHO 2007). The provided information is assessed from the whole patients’ population affected by the disease, receiving standard care and management (specific and/or symptomatic management, prevention and prophylaxis, devices and aids, care and support). Functional consequences are organized by their frequency in the patients’ population. This general information may not apply to specific cases. Some difficulties reported here can occur with a different temporality or severity degree, and others that are not listed can nevertheless arise.

 Loss of an ability
Very frequent
Temporality
Severity
Staying asleep
Permanent limitation
Severe
Getting good quality sleep
Permanent limitation
Moderate
Staying awake
Permanent limitation
Severe
Moving around outside the home
Acquisition delay
Moderate
Using transportation
Acquisition delay
Moderate
Driving
Acquisition delay
Moderate
Seeking employment
Permanent limitation
Moderate
Performing professional tasks
Permanent limitation
Moderate
Frequent
Temporality
Severity
Handling stress, responsabilities, emergencies and ensuring one's safety
Permanent limitation
Moderate
Handling emotions and mood
Permanent limitation
Moderate
Taking part in community life
Transient limitation
Low
Practicing sports
Transient limitation
Low
Environmental factors

:: Following are the environmental factors that should be addressed in order to improve the functioning or limit the restrictions deriving from this disease.

Light intensity
Day/night cycles
Source: Dr Caroline GAURIAU[Expert]_Pr Damien LEGER[Expert]_Dr Virginie BAYON[Expert]
Last update: 27/03/2015

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