Search for a disease and its functional consequences
ORPHA:586 Cystic fibrosis
:: Activity limitation/participation restriction is described according to the Orphanet Functioning Thesaurus, derived and adapted from the International Classification of Functioning, Disability and Health – Children and Youth (ICF-CY, WHO 2007).
The provided information is assessed from the whole patients’ population affected by the disease, receiving standard care and management (specific and/or symptomatic management, prevention and prophylaxis, devices and aids, care and support).
Functional consequences are organized by their frequency in the patients’ population.
This general information may not apply to specific cases. Some difficulties reported here can occur with a different temporality or severity degree, and others that are not listed can nevertheless arise.
Loss of an ability
Frequent
Walking long distances
Permanent limitation
Unspecified
Performing vigorous activities (climbing, running, jumping, swimming,...)
Permanent limitation
Unspecified
Occasional
Speaking
Transient limitation
Low
Participating in a conversation
Transient limitation
Low
Lifting and carrying objects
Permanent limitation
Unspecified
Lifting and carrying objects
Transient limitation
Low
Walking short distances
Permanent limitation
Unspecified
Walking short distances
Transient limitation
Severe
Walking long distances
Transient limitation
Complete
Performing vigorous activities (climbing, running, jumping, swimming,...)
Transient limitation
Complete
Washing oneself
Transient limitation
Moderate
Caring for body parts (skin, teeth, nails, hair, genitals)
Transient limitation
Moderate
Regulating urination
Transient limitation
Moderate
Regulating defecation
Transient limitation
Severe
Eating
Transient limitation
Moderate
Managing one's health (diet, medications, prevention, needs, assistance, monitoring)
Transient limitation
Severe
Moving around within the home
Permanent limitation
Unspecified
Moving around within the home
Transient limitation
Severe
Moving around outside the home
Permanent limitation
Unspecified
Moving around outside the home
Transient limitation
Complete
Using transportation
Permanent limitation
Unspecified
Using transportation
Transient limitation
Moderate
Driving
Transient limitation
Complete
Interacting with other people
Transient limitation
Low
Making/keeping friends
Transient limitation
Low
Engaging in and maintaining intimate relationships
Permanent limitation
Unspecified
Engaging in and maintaining intimate relationships
Transient limitation
Moderate
Engaging in sexual relationships
Permanent limitation
Unspecified
Engaging in sexual relationships
Transient limitation
Moderate
Shopping
Permanent limitation
Unspecified
Shopping
Transient limitation
Moderate
Cooking/preparing meals
Permanent limitation
Unspecified
Cooking/preparing meals
Transient limitation
Moderate
Doing housework
Permanent limitation
Unspecified
Doing housework
Transient limitation
Moderate
Looking after/helping others
Permanent limitation
Unspecified
Looking after/helping others
Transient limitation
Moderate
Attending preschool
Permanent limitation
Unspecified
Attending preschool
Transient limitation
Low
Attending mainstream school
Permanent limitation
Unspecified
Attending mainstream school
Transient limitation
Moderate
Learning a profession (vocational training/apprenticeship) in the standard environment
Permanent limitation
Unspecified
Learning a profession (vocational training/apprenticeship) in the standard environment
Transient limitation
Moderate
Accessing higher education
Permanent limitation
Unspecified
Accessing higher education
Transient limitation
Moderate
Engaging in paid work in a standard environment
Permanent limitation
Unspecified
Engaging in paid work in a standard environment
Transient limitation
Severe
Seeking employment
Permanent limitation
Unspecified
Seeking employment
Transient limitation
Severe
Performing professional tasks
Permanent limitation
Unspecified
Performing professional tasks
Transient limitation
Severe
Taking part in community life
Transient limitation
Moderate
Playing with others
Transient limitation
Low
Socializing
Transient limitation
Moderate
Practicing sports
Permanent limitation
Unspecified
Practicing sports
Transient limitation
Low
Participating in the arts and cultural activities
Permanent limitation
Unspecified
Participating in the arts and cultural activities
Transient limitation
Low
Travelling
Permanent limitation
Unspecified
Travelling
Transient limitation
Moderate
Not defined
Falling asleep
Staying asleep
Environmental factors
:: Following are the environmental factors that should be addressed in order to improve the functioning or limit the restrictions deriving from this disease.
Food
Temperature
Humidity
Seasonal cycles
Air quality
Source: Dr Gilles RAULT[Expert]_Carole SALOU[Expert]_Mathieu LANGLOIS[Expert]_Emy Van Der BURG[Expert]_Cystic Fibrosis Europe[Patient organisation]_Vaincre la mucoviscidose[Patient organisation]
Last update: 27/10/2016
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The documents contained in this web site are presented for information purposes only. The material is in no way intended to replace professional medical care by a qualified specialist and should not be used as a basis for diagnosis or treatment.
