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ORPHA:117  Behçet disease

:: Activity limitation/participation restriction is described according to the Orphanet Functioning Thesaurus, derived and adapted from the International Classification of Functioning, Disability and Health – Children and Youth (ICF-CY, WHO 2007). The provided information is assessed from the whole patients’ population affected by the disease, receiving standard care and management (specific and/or symptomatic management, prevention and prophylaxis, devices and aids, care and support). Functional consequences are organized by their frequency in the patients’ population. This general information may not apply to specific cases. Some difficulties reported here can occur with a different temporality or severity degree, and others that are not listed can nevertheless arise.

 Loss of an ability
Very frequent
Temporality
Severity
Seeing/watching
Permanent limitation
Moderate
Seeing/watching
Transient limitation
Severe
Reading
Transient limitation
Severe
Speaking
Transient limitation
Unspecified
Caring for body parts (skin, teeth, nails, hair, genitals)
Transient limitation
Unspecified
Eating
Transient limitation
Unspecified
Frequent
Temporality
Severity
Walking long distances
Transient limitation
Unspecified
Performing vigorous activities (climbing, running, jumping, swimming,...)
Permanent limitation
Moderate
Falling asleep
Permanent limitation
Unspecified
Staying asleep
Permanent limitation
Unspecified
Getting good quality sleep
Permanent limitation
Unspecified
Staying awake
Permanent limitation
Unspecified
Handling emotions and mood
Permanent limitation
Unspecified
Moving around outside the home
Permanent limitation
Moderate
Moving around outside the home
Transient limitation
Unspecified
Engaging in sexual relationships
Transient limitation
Unspecified
Practicing sports
Permanent limitation
Moderate
Practicing sports
Transient limitation
Unspecified
Occasional
Temporality
Severity
Seeing/watching
Permanent limitation
Severe
Reading
Permanent limitation
Unspecified
Focusing attention
Permanent limitation
Moderate
Focusing attention
Transient limitation
Severe
Memorizing and retrieving
Permanent limitation
Unspecified
Thinking and reasoning
Permanent limitation
Unspecified
Being aware of time
Permanent limitation
Unspecified
Being aware of space
Permanent limitation
Unspecified
Receiving nonverbal messages
Permanent limitation
Moderate
Producing nonverbal messages
Permanent limitation
Moderate
Reaching and catching objects
Permanent limitation
Moderate
Reaching and catching objects
Transient limitation
Moderate
Lifting and carrying objects
Permanent limitation
Moderate
Lifting and carrying objects
Transient limitation
Moderate
Handling objects (fine hand use)
Permanent limitation
Moderate
Handling objects (fine hand use)
Transient limitation
Moderate
Regulating urination
Transient limitation
Unspecified
Regulating defecation
Transient limitation
Unspecified
Handling stress, responsabilities, emergencies and ensuring one's safety
Permanent limitation
Moderate
Handling stress, responsabilities, emergencies and ensuring one's safety
Transient limitation
Unspecified
Controlling one's own general behaviour
Permanent limitation
Unspecified
Driving
Transient limitation
Unspecified
Shopping
Permanent limitation
Moderate
Shopping
Transient limitation
Unspecified
Doing housework
Permanent limitation
Moderate
Doing housework
Transient limitation
Unspecified
Looking after/helping others
Permanent limitation
Moderate
Looking after/helping others
Transient limitation
Unspecified
Attending mainstream school
Transient limitation
Unspecified
Learning a profession (vocational training/apprenticeship) in the standard environment
Transient limitation
Unspecified
Accessing higher education
Transient limitation
Unspecified
Engaging in paid work in a standard environment
Permanent limitation
Moderate
Engaging in paid work in a standard environment
Transient limitation
Unspecified
Performing professional tasks
Permanent limitation
Moderate
Carrying out administrative procedures
Transient limitation
Unspecified
Undertaking a complex/multiple task
Permanent limitation
Moderate
Undertaking a complex/multiple task
Transient limitation
Unspecified
Carrying out daily routines
Permanent limitation
Moderate
Carrying out daily routines
Transient limitation
Unspecified
Travelling
Permanent limitation
Moderate
Travelling
Transient limitation
Unspecified
Environmental factors

:: Following are the environmental factors that should be addressed in order to improve the functioning or limit the restrictions deriving from this disease.

Food
Source: Expert
Last update: 22/06/2015

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