Orphanet: Disability
x

Search for a disease and its functional consequences

* (*) mandatory field

ORPHA:1199  Esophageal atresia

:: Activity limitation/participation restriction is described according to the Orphanet Functioning Thesaurus, derived and adapted from the International Classification of Functioning, Disability and Health – Children and Youth (ICF-CY, WHO 2007). The provided information is assessed from the whole patients’ population affected by the disease, receiving standard care and management (specific and/or symptomatic management, prevention and prophylaxis, devices and aids, care and support). Functional consequences are organized by their frequency in the patients’ population. This general information may not apply to specific cases. Some difficulties reported here can occur with a different temporality or severity degree, and others that are not listed can nevertheless arise.

 Loss of an ability
Frequent
Temporality
Severity
Maintaining head position
Acquisition delay
Moderate
Performing vigorous activities (climbing, running, jumping, swimming,...)
Acquisition delay
Moderate
Eating
Acquisition delay
Severe
Eating
Acquisition delay
Moderate
Getting good quality sleep
Acquisition delay
Moderate
Handling emotions and mood
Permanent limitation
Moderate
Controlling one's own eating behaviour
Acquisition delay
Moderate
Attending preschool
Acquisition delay
Moderate
Taking part in community life
Acquisition delay
Moderate
Playing with others
Acquisition delay
Moderate
Socializing
Acquisition delay
Moderate
Practicing sports
Acquisition delay
Moderate
Participating in the arts and cultural activities
Acquisition delay
Moderate
Travelling
Acquisition delay
Moderate
Occasional
Temporality
Severity
Acquiring language
Acquisition delay
Moderate
Speaking
Acquisition delay
Moderate
Participating in a conversation
Acquisition delay
Moderate
Environmental factors

:: Following are the environmental factors that should be addressed in order to improve the functioning or limit the restrictions deriving from this disease.

Food
Humidity
Day/night cycles
Air quality
Source: Expert
Last update: 03/12/2018

Additional information

Specialised Social Services

Warning

The documents contained in this web site are presented for information purposes only. The material is in no way intended to replace professional medical care by a qualified specialist and should not be used as a basis for diagnosis or treatment.