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ORPHA:900  Granulomatosis with polyangiitis

:: Activity limitation/participation restriction is described according to the Orphanet Functioning Thesaurus, derived and adapted from the International Classification of Functioning, Disability and Health – Children and Youth (ICF-CY, WHO 2007). The provided information is assessed from the whole patients’ population affected by the disease, receiving standard care and management (specific and/or symptomatic management, prevention and prophylaxis, devices and aids, care and support). Functional consequences are organized by their frequency in the patients’ population. This general information may not apply to specific cases. Some difficulties reported here can occur with a different temporality or severity degree, and others that are not listed can nevertheless arise.

 Loss of an ability
Occasional
Temporality
Severity
Standing
Permanent limitation
Low
Standing
Transient limitation
Moderate
Maintaining a standing position
Transient limitation
Low
Reaching and catching objects
Permanent limitation
Moderate
Reaching and catching objects
Transient limitation
Low
Lifting and carrying objects
Permanent limitation
Moderate
Lifting and carrying objects
Transient limitation
Low
Handling objects (fine hand use)
Permanent limitation
Moderate
Handling objects (fine hand use)
Transient limitation
Low
Walking short distances
Permanent limitation
Moderate
Walking short distances
Transient limitation
Low
Walking long distances
Permanent limitation
Moderate
Walking long distances
Transient limitation
Low
Performing vigorous activities (climbing, running, jumping, swimming,...)
Permanent limitation
Moderate
Performing vigorous activities (climbing, running, jumping, swimming,...)
Transient limitation
Low
Dressing/undressing
Permanent limitation
Moderate
Dressing/undressing
Transient limitation
Low
Eating
Permanent limitation
Moderate
Eating
Transient limitation
Low
Drinking
Permanent limitation
Moderate
Drinking
Transient limitation
Low
Staying asleep
Permanent limitation
Unspecified
Staying asleep
Transient limitation
Unspecified
Getting good quality sleep
Permanent limitation
Unspecified
Getting good quality sleep
Transient limitation
Unspecified
Staying awake
Permanent limitation
Unspecified
Staying awake
Transient limitation
Unspecified
Moving around outside the home
Permanent limitation
Moderate
Moving around outside the home
Transient limitation
Low
Driving
Permanent limitation
Moderate
Driving
Transient limitation
Low
Shopping
Permanent limitation
Moderate
Shopping
Transient limitation
Low
Cooking/preparing meals
Permanent limitation
Moderate
Cooking/preparing meals
Transient limitation
Low
Doing housework
Permanent limitation
Moderate
Doing housework
Transient limitation
Low
Engaging in paid work in a standard environment
Transient limitation
Low
Performing professional tasks
Transient limitation
Low
Practicing sports
Permanent limitation
Moderate
Practicing sports
Transient limitation
Low
Travelling
Permanent limitation
Moderate
Environmental factors

:: Following are the environmental factors that should be addressed in order to improve the functioning or limit the restrictions deriving from this disease.

Air quality
Source: Pr Loïc P GUILLEVIN[Expert]
Last update: 24/11/2016

Additional information

Specialised Social Services

Warning

The documents contained in this web site are presented for information purposes only. The material is in no way intended to replace professional medical care by a qualified specialist and should not be used as a basis for diagnosis or treatment.