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ORPHA:131  Budd-Chiari syndrome

:: Activity limitation/participation restriction is described according to the Orphanet Functioning Thesaurus, derived and adapted from the International Classification of Functioning, Disability and Health – Children and Youth (ICF-CY, WHO 2007). The provided information is assessed from the whole patients’ population affected by the disease, receiving standard care and management (specific and/or symptomatic management, prevention and prophylaxis, devices and aids, care and support). Functional consequences are organized by their frequency in the patients’ population. This general information may not apply to specific cases. Some difficulties reported here can occur with a different temporality or severity degree, and others that are not listed can nevertheless arise.

 Loss of an ability
Very frequent
Temporality
Severity
Practicing sports
Permanent limitation
Severe
Frequent
Temporality
Severity
Seeing/watching
Transient limitation
Moderate
Reading
Transient limitation
Moderate
Writing
Transient limitation
Moderate
Calculating
Transient limitation
Moderate
Focusing attention
Transient limitation
Moderate
Memorizing and retrieving
Transient limitation
Moderate
Thinking and reasoning
Transient limitation
Moderate
Being aware of time
Transient limitation
Moderate
Being aware of space
Transient limitation
Moderate
Participating in a conversation
Transient limitation
Moderate
Standing
Transient limitation
Severe
Sitting
Transient limitation
Severe
Bending
Transient limitation
Severe
Transferring oneself
Transient limitation
Severe
Maintaining a standing position
Transient limitation
Severe
Reaching and catching objects
Transient limitation
Severe
Lifting and carrying objects
Transient limitation
Severe
Handling objects (fine hand use)
Transient limitation
Severe
Walking short distances
Transient limitation
Severe
Walking long distances
Transient limitation
Severe
Performing vigorous activities (climbing, running, jumping, swimming,...)
Transient limitation
Severe
Dressing/undressing
Transient limitation
Severe
Eating
Transient limitation
Severe
Drinking
Transient limitation
Severe
Managing one's health (diet, medications, prevention, needs, assistance, monitoring)
Transient limitation
Severe
Falling asleep
Transient limitation
Severe
Getting good quality sleep
Permanent limitation
Moderate
Staying awake
Transient limitation
Severe
Controlling one's own general behaviour
Transient limitation
Severe
Moving around within the home
Transient limitation
Severe
Moving around outside the home
Transient limitation
Severe
Using transportation
Transient limitation
Severe
Driving
Transient limitation
Severe
Shopping
Transient limitation
Severe
Cooking/preparing meals
Transient limitation
Severe
Doing housework
Transient limitation
Severe
Looking after/helping others
Transient limitation
Severe
Attending mainstream school
Transient limitation
Severe
Learning a profession (vocational training/apprenticeship) in the standard environment
Transient limitation
Severe
Accessing higher education
Transient limitation
Severe
Engaging in paid work in a standard environment
Transient limitation
Severe
Engaging in paid work in a supported/sheltered environment
Transient limitation
Severe
Seeking employment
Transient limitation
Severe
Performing professional tasks
Transient limitation
Severe
Handling money/managing one's own budget
Transient limitation
Severe
Carrying out administrative procedures
Transient limitation
Severe
Undertaking a complex/multiple task
Transient limitation
Severe
Carrying out daily routines
Transient limitation
Severe
Taking part in community life
Transient limitation
Severe
Playing with others
Transient limitation
Severe
Occasional
Temporality
Severity
Seeing/watching
Permanent limitation
Severe
Reading
Permanent limitation
Moderate
Writing
Permanent limitation
Moderate
Calculating
Permanent limitation
Moderate
Focusing attention
Permanent limitation
Severe
Memorizing and retrieving
Permanent limitation
Severe
Thinking and reasoning
Permanent limitation
Severe
Being aware of time
Permanent limitation
Moderate
Being aware of space
Permanent limitation
Moderate
Participating in a conversation
Permanent limitation
Moderate
Falling asleep
Permanent limitation
Moderate
Handling stress, responsabilities, emergencies and ensuring one's safety
Permanent limitation
Severe
Handling stress, responsabilities, emergencies and ensuring one's safety
Acquisition delay
Moderate
Handling stress, responsabilities, emergencies and ensuring one's safety
Transient limitation
Moderate
Handling emotions and mood
Permanent limitation
Severe
Handling emotions and mood
Transient limitation
Moderate
Controlling one's own general behaviour
Permanent limitation
Severe
Moving around within the home
Permanent limitation
Severe
Moving around outside the home
Permanent limitation
Severe
Using transportation
Permanent limitation
Severe
Driving
Permanent limitation
Severe
Interacting with other people
Permanent limitation
Moderate
Interacting with other people
Transient limitation
Moderate
Making/keeping friends
Permanent limitation
Moderate
Making/keeping friends
Transient limitation
Moderate
Maintaining family relationships
Permanent limitation
Moderate
Maintaining family relationships
Transient limitation
Moderate
Dealing with strangers
Permanent limitation
Moderate
Dealing with strangers
Transient limitation
Moderate
Engaging in and maintaining intimate relationships
Permanent limitation
Moderate
Engaging in and maintaining intimate relationships
Transient limitation
Moderate
Engaging in sexual relationships
Permanent limitation
Moderate
Engaging in sexual relationships
Transient limitation
Moderate
Attending mainstream school
Permanent limitation
Moderate
Learning a profession (vocational training/apprenticeship) in the standard environment
Permanent limitation
Moderate
Accessing higher education
Permanent limitation
Moderate
Engaging in paid work in a standard environment
Permanent limitation
Moderate
Engaging in paid work in a supported/sheltered environment
Permanent limitation
Moderate
Seeking employment
Permanent limitation
Moderate
Performing professional tasks
Permanent limitation
Moderate
Handling money/managing one's own budget
Permanent limitation
Moderate
Carrying out administrative procedures
Permanent limitation
Moderate
Travelling
Permanent limitation
Severe
Travelling
Transient limitation
Severe
Source: Expert
Last update: 07/08/2018

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