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28 Ergebnis(se)
- 8 Netzwerke von Expertenzentren
- 15 Netzwerk Forschung
- 2 Multinationale klinische Studie
- 2 Netzwerk Patientenregister
- 1 Netzwerk Biobanken
Förderung durch ein IRDiRC-Mitglied = 
Netzwerke von Expertenzentren
FRANKREICH
HAUTS-DE-FRANCE
LILLE
FAI2R - French rare diseases Healthcare Network : Auto-immune and auto-inflammatory rare diseases
CHRU de Lille - Hôpital Claude Huriez
ITALIEN
TOSCANA
PISA
ERN ReCONNET: European Reference Network on Rare and Complex Connective Tissue and Musculoskeletal Diseases
Azienda Ospedaliero Universitaria Pisana - Ospedale S. Chiara
SPANIEN
Madrid
MADRID
TransplantChild: European Reference Network on Transplantation in Children (incl. HSCT, heart, kidney, liver, intestinal, lung and multiorgan)
Hospital Infantil Universitario la Paz
FRANKREICH
PROVENCE-ALPES-COTE D'AZUR
MARSEILLE
Filnemus - French rare diseases Healthcare Network : neuromuscular diseases
CHU de Marseille - Hôpital de la Timone
VEREINIGTES KONIGREICH
Greater London
LONDON
North Start Clinical Network for paediatric neuromuscular disease
GOSH NHS Foundatin Trust
VEREINIGTES KONIGREICH
Tyne & Wear
NEWCASTLE UPON TYNE
EURO-NMD: European Reference Network for Rare Neuromuscular Diseases
Newcastle upon Tyne Hospitals NHS Trust
DEUTSCHLAND
Baden-Württemberg
TÜBINGEN
ERN-RND: European Reference Network on Rare Neurological Diseases
Institut für Medizinische Genetik und angewandte Genomik Tübingen
UNGARN
Közép-Magyarország
BUDAPEST
Semmelweis University Centre of Expertise for Rare Diseases
Institute of Genomic Medicine and Rare Disorders, Semmelweis University
Netzwerk Forschung
FRANKREICH
ILE-DE-FRANCE
PARIS
French dermatology society: gstudy group of systemic dermatological diseases
CHU Paris Est - Hôpital Tenon
VEREINIGTES KONIGREICH
Greater London
LONDON
ENJD: European Network for Juvenile Dermatomyositis
GOSH NHS Foundatin Trust
VEREINIGTES KONIGREICH
Greater London
LONDON
Juvenile Dermatomyositis Research Group (JDRG)
GOSH NHS Foundatin Trust
DEUTSCHLAND
Mecklenburg-Vorpommern
ROSTOCK
AUTOROME: from immune responses in rare autoimmune diseases to novel therapeutic intervention strategies-a personalized medicine approach (FINISHED)
Institut für Immunologie
DEUTSCHLAND
Berlin
BERLIN
EUROMUSCLENET: European information network on muscle diseases
Charité / Max-Delbrück-Centrum für Molekulare Medizin
FRANKREICH
AUVERGNE-RHONE-ALPES
ADDRESS: NOT PROVIDED - FR
NMD-CHIP: Development of targeted DNA-Chips for High Throughput Diagnosis of NeuroMuscular Disorders
Institution: Information not provided - FR
FRANKREICH
AUVERGNE-RHONE-ALPES
CLERMONT-FERRAND
MYORES: European Muscle Development Network (FINISHED)
Faculté de médecine de Clermont-Ferrand
FRANKREICH
GRAND-EST
STRASBOURG
CRI: Club Rhumatismes et Inflammation
CHU de Strasbourg - Hôpital de Hautepierre
FRANKREICH
PROVENCE-ALPES-COTE D'AZUR
MARSEILLE
NMD-CHIP: development of targeted DNA-chips for high throughput diagnosis of neuromuscular disorders
CHU de Marseille - Hôpital de la Timone
VEREINIGTES KONIGREICH
Tyne & Wear
NEWCASTLE UPON TYNE
TREAT-NMD: Accelerating Treatments for Neuromuscular Diseases (research)
Newcastle upon Tyne Hospitals NHS Trust
DEUTSCHLAND
Bayern
MÜNCHEN
BNE: BrainNet Europe II: Europäische Hirngewebebank
Zentrum für Neuropathologie und Prionforschung (ZNP)
SPANIEN
Cataluña
L'HOSPITALET DE LLOBREGAT
CIEN: Spanish Network for Cooperative Research in Neurological diseases
Hospital Universitari de Bellvitge
Multinationale klinische Studie
VEREINIGTE STAATEN
Washington
ADDRESS: NOT PROVIDED - US
A Phase 3, Randomized, Double-Blind Clinical Trial to Evaluate the Efficacy and Safety of Abatacept SC With Standard Treatment Compared to Standard Treatment Alone in Improving Disease Activity in Adults With Active Idiopathic Inflammatory Myopathy (IIM)
Institution: Information not provided - US
FRANKREICH
ILE-DE-FRANCE
PARIS
Nemucough : Evaluation of a Mechanical Insufflation-Exsufflation Device During Acute Respiratory Failure in Patients With Neuromuscular Disorders: a Prospective, Randomized, Controlled, Multicenter Study (Phase III) (coordination)
CHU Paris Est - Hôpital d'Enfants Armand-Trousseau
Netzwerk Patientenregister
SPANIEN
Cataluña
BARCELONA
NMD-ES: Spanish Registry of Neuromuscular Diseases
Hospital de la Santa Creu i Sant Pau
VEREINIGTES KONIGREICH
Tyne & Wear
NEWCASTLE UPON TYNE
TREAT-NMD: Accelerating Treatments for Neuromuscular Diseases (registries)
Newcastle upon Tyne Hospitals NHS Trust
Netzwerk Biobanken
DEUTSCHLAND
Bayern
MÜNCHEN