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Funded by an IRDiRC member =

Expert centre networks

NETHERLANDS

Gelderland
NIJMEGEN

ERN GENTURIS: European Reference Network on GENetic TUmour RIsk Syndromes
Radboudumc - Radboud universitair medisch centrum

SWITZERLAND

Suisse Alémanique
BERN

FRANCE

ILE-DE-FRANCE
PARIS

MARIH - French rare diseases Healthcare Network : rare immuno-hematologic diseases
CHU Paris-GH St-Louis Lariboisière F.Widal - Hôpital Saint-Louis

GERMANY

Baden-Württemberg
TÜBINGEN

ERN-RND: European Reference Network on Rare Neurological Diseases
Institut für Medizinische Genetik und angewandte Genomik Tübingen

HUNGARY

Közép-Magyarország
BUDAPEST

Semmelweis University Centre of Expertise for Rare Diseases
Institute of Genomic Medicine and Rare Disorders, Semmelweis University

UNITED KINGDOM

Tyne & Wear
NEWCASTLE UPON TYNE

RITA: Rare Immunodeficiency, Autoinflammatory and Autoimmune Diseases Network
The Great North Children's Hospita, Royal Victoria Infirmary

GERMANY

Baden-Württemberg
ULM

Working group on paediatric immunology (Expert centres)
Klinik für Kinder- und Jugendmedizin des Universitätsklinikums Ulm

Multicentric Research projects

FRANCE

ILE-DE-FRANCE
PARIS

SPATAX: European network for hereditary spinocerebellar degenerative disorders
Institut du Cerveau et de la Moelle épinière (ICM) - Hôpital Pitié-Salpêtrière

FRANCE

OCCITANIE
MONTPELLIER

Funded by an IRDiRC memberEuro-SCAR: Nosology and molecular diagnosis of the degenerative recessive ataxias
IURC - Institut Universitaire de Recherche Clinique

GERMANY

Baden-Württemberg
FREIBURG

GERMANY

Baden-Württemberg
TÜBINGEN

Funded by an IRDiRC memberPREPARE : Preparing for therapies in autosomal recessive ataxias
Hertie-Institut für klinische Hirnforschung (HIH)

GERMANY

Nordrhein-Westfalen
AACHEN

CANADA

Colombie-Britannique
VANCOUVER

FRANCE

ILE-DE-FRANCE
PARIS

GM: Genodermatosis and Mediterranean
Hôpital Necker-Enfants Malades

FRANCE

ILE-DE-FRANCE
PARIS

FRANCE

PAYS DE LA LOIRE
NANTES

Funded by an IRDiRC memberFROGH : FRench Regional Origins in Genetics for Health
Institut de Recherche en Santé - Université de Nantes

GERMANY

Baden-Württemberg
TÜBINGEN

ITALY

LAZIO
ROMA

GENESKIN: European network on rare genetic skin diseases
Istituto Dermopatico dell'Immacolata - IRCCS

GERMANY

Baden-Württemberg
TÜBINGEN

Ataxia Study Group (ASG)
Institut für Medizinische Genetik und angewandte Genomik Tübingen

GERMANY

Bayern
MÜNCHEN

Funded by an IRDiRC memberPID-NET: German Network on Primary Immunodeficiency Diseases
Kinderklinik und Kinderpoliklinik im Dr. von Haunerschen Kinderspital

GERMANY

Bayern
MÜNCHEN

BNE: BrainNet Europe II: European brain tissue bank
Zentrum für Neuropathologie und Prionforschung (ZNP)

MOROCCO

Casablanca
CASABLANCA

SPAIN

Cataluña
L'HOSPITALET DE LLOBREGAT

SWEDEN

Skane
LUND

UNITED KINGDOM

Tyne & Wear
NEWCASTLE UPON TYNE

UK Primary Immunodeficiency Network
The Great North Children's Hospita, Royal Victoria Infirmary

GERMANY

Nordrhein-Westfalen
BONN

Competence Network Degenerative Dementias
Universitätsklinikum Bonn

ITALY

LOMBARDIA
MILANO

Funded by an IRDiRC memberPERSIST: Persisting transgenesis
Istituto San Raffaele Telethon per la Terapia Genica - TIGET

UNITED KINGDOM

Tyne & Wear
NEWCASTLE UPON TYNE

GERMANY

Niedersachsen
GÖTTINGEN

Networks of biobanks

ITALY

LIGURIA
GENOVA

TELETHON NETWORK OF GENETIC BIOBANKS
IRCCS Istituto G. Gaslini - Ospedale Pediatrico

GERMANY

Bayern
MÜNCHEN

Brain-Net Germany : National network of brain banks in Germany
Zentrum für Neuropathologie und Prionforschung (ZNP)

Alliances and umbrella organisations

UNITED KINGDOM

Greater London
LONDON

Euro-ATAXIA
Ataxia UK

LUXEMBOURG

LUXEMBOURG
LUXEMBOURG

Alzheimer Europe
Alzheimer Europe Office