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Funded by an IRDiRC member =

Expert centre networks

FRANCE

ILE-DE-FRANCE
COLOMBES

EPNET: European network on centre of reference on porphyria (centres of expertise)
CHU Paris Nord-Val de Seine - Hôpital Louis Mourier

FRANCE

PROVENCE-ALPES-COTE D'AZUR
MARSEILLE

UNITED KINGDOM

Greater Manchester
SALFORD

BIPNET: British & Irish Porphyria network
Salford Royal NHS Foundation Trust

GERMANY

Hessen
WIESBADEN

HUNGARY

Közép-Magyarország
BUDAPEST

Semmelweis University Centre of Expertise for Rare Diseases
Institute of Genomic Medicine and Rare Disorders, Semmelweis University

Multicentric Research projects

FRANCE

ILE-DE-FRANCE
COLOMBES

EPNET: European network on centre of reference on porphyria (Research projects)
CHU Paris Nord-Val de Seine - Hôpital Louis Mourier

FRANCE

ILE-DE-FRANCE
COLOMBES

EPI: European Porphyria Initiative
CHU Paris Nord-Val de Seine - Hôpital Louis Mourier

CANADA

Ontario
OTTAWA, ONTARIO

FRANCE

ILE-DE-FRANCE
PARIS

GM: Genodermatosis and Mediterranean
Hôpital Necker-Enfants Malades

FRANCE

OCCITANIE
TOULOUSE

Réseau Sud-Ouest des erreurs innées du métabolisme
CHU de Toulouse - Hôpital Purpan

ITALY

LAZIO
ROMA

GENESKIN: European network on rare genetic skin diseases
Istituto Dermopatico dell'Immacolata - IRCCS

UNITED KINGDOM

South Yorkshire
SHEFFIELD

MetBioNet - National Metabolic Biochemistry Network
The Sheffield Children's Hospital

CANADA

Colombie-Britannique
VANCOUVER

FRANCE

ILE-DE-FRANCE
PARIS

FRANCE

PAYS DE LA LOIRE
NANTES

Funded by an IRDiRC memberFROGH : FRench Regional Origins in Genetics for Health
Institut de Recherche en Santé - Université de Nantes

Networks of biobanks

ITALY

LIGURIA
GENOVA

TELETHON NETWORK OF GENETIC BIOBANKS
IRCCS Istituto G. Gaslini - Ospedale Pediatrico

Alliances and umbrella organisations

SWITZERLAND

Suisse Alémanique
ZÜRICH

IPPN - International Porphyria Patient Network
Schweizerische Gesellschaft für Porphyrie - Institut für Labormedizin Triemli